@Hearhoovesthinkzebras Because it's the only one you've got. Is not the medication, surgeries etc a way of showing love to it, you want it too heal? From your comments I suspect with present technologies and therapies it cannot heal, but you are still taking the best care of it you can. My OH works in healthcare and he has seen it, people do give up.
Would you prefer for your daughter to have the same outlook you do or a different one? I don't think embracing and accepting your disability means giving up on hope or change. Sometimes it might mean not giving up. All circumstances are different but that may be too philosophical for a small children's book.
It's about taking care of your body and loving it. It is a book for small children, going deeply into the ins and outs of disabilities and eating habits might be a bit above their heads. But it's about loving and taking care of your body. Your body is part of you, it cannot change, love it. It covers skin colour, hair colour/type, sex/gender and disability. It covers gender stereotypes, lots of pictures of children with different skin colours and definitely saw at least 1 wheelchair all happily playing together with whatever toys they want, hair how they want etc, it not mattering whether you like pink or blue. Very simple for a small child to take in and understand.
I've bought this book and my OH does have concerns about it setting out female children up for a big fall. He's aware that as females they'll likely be judged by their bodies their entire lives. I disagree and think it'll make them less susceptible too the impact of negative comments, and hopefully the more parents who read children such stories the less judgement they'll be in the world.