Scary side effects to Mounjaro.

[000ta]

ok so maybe not included in most people that take this injection but just asking out of curiosity.

Tuesday night late on around 11pm I started my first dose of Maunjaro starting weight was 12 stone 11.
Today I’m 12 stone 3 so it is quite a big drop in pounds just 4 days really.

I understand side effects I have suffered from feeling sick headache no feeling to eat what so ever since then. You’re lucky I’ve even had the equivalent to a full meal since then.

what I’ve had since then is: Banana, 2X Toasties (eating half of both portions) plenty of water. And one bar of chocolate as my body starting craving for sugar yesterday evening.

now the rest of the side effects have been ok and managed but it’s a weird felling of not being hungry that I just couldn’t explain to anyone but this is the scary part day 2 right up until last night all I could really explain the problem was like a (demon in my body) my eyes were really big sticking out and my pupils were massive I felt like I was in a world of my own constantly and completely zoned out. Even my mum looked at me and was checking in often as she said I didn’t look right or look or seem like myself?

has anyone else felt like this? Today I feel back to my normal self?

What stricter rules do you think need to be in place?

You write that Like your experience is common, it clearly isn’t, there is over 16 million in the us alone on them, likely three quarters of a million in the uk, if you start to add all the global countries this is now sold in, you’d see prob in the region if 50 million or more. And you can see from forums like Reddit, on here, and death and hospital statistics your extreme reaction is rare.

2000 people die a year from taking nurofen. Actually die. Want that tightened too?

Your reaction sounds strange. I had a reaction on my first week with an increased heart rate, it isn't the usual side effects but noted in the trial. I contacted my provider & GP. I also paid for a private app with a local pharmacy to discuss continuing. I would reach out to your provider asap to discuss

You are really rude op.
Have you had your blood sugar checked before taking mj? Carbs and sweet foods with not much else is going to make you feel very odd, considering mj works on blood sugar.
Are you feeling suppression or aversion? What foods could you eat? A plain chicken breast with veg?

she Keeps going on and trying to make every excuse as possible to not blame mounjaro and trying to get smart is no one aloud to be smart back what she last said only reply back

Yeah I’ve done this already this evening awaiting reply back said can take up to 24hrs to get back to me

Everybody seems to do everything to make mounjaro not the cause off side effects never hear one person saying it probably is that that’s causing it I know my body I was absolutely fine before I started it.

You haven't answered my question though.

I think the point people are trying to make is that it isn't that Mounjaro has given you side effects, it has given you the effect that is meant to happen. Appetite suppression. But you need to eat even if you don't feel like it, even if it's small amounts more frequently. Otherwise you're starving yourself, and it's the lack of food that has made you spaced out and feeling strange. Not the Mounjaro itself.

Presumably you were eating prior to starting?

You need to inform your prescriber about these side effects, not a bunch of random Mumsnetters.

But how would you expect your body to feel after four days with almost no food? Spaced out, weird and sick. That's the effect of a starvation diet. Mounjaro is not intended to enable people to starve themselves. If you don't eat, you will feel strange and terrible - that's what's happened.

That's good, hopefully hear soon. You can also call nhs 24 if you need advice before hearing from your prescriber.

I've eaten chocolate and been fine. I've had really strong suppression also with minimal eating the first couple weeks & was also fine with that. It's definitely something with the meds and not what you're doing. Ignore the hate

Then you went 4 days on a banana, 2 x half a toastie and a single chocolate bar. So 4 days on less than 1000 calories.

Is it any wonder you had side effects. If someone said to you "I haven't eaten for 4 days and I feel really nauseous and spaced out would you not tell them to eat something?

Did it really not cross your mind at any point during that 4 days to try a protein shake or lucozade or cup of sweet tea or anything to see if it made you feel a bit better?

Of course it's not the chocolate. And there isn't any hate. But if you eat approximately 300 calories a day for four days, you will feel very weird, very spaced out and nauseous. I had strong suppression at first and when increasing a dose so I made sure to drink electrolytes and find ways to get a healthy amount of calories in. Not eating makes people ill; I don't know why anyone would expect to feel well and normal after four days on almost no food? That's not possible.

I don't think anyone is hating, but people are offering sensible advice to consider that eating one small meal across 4 days is obviously going to leave you feeling unbelievably crap.
It's impossible to know if it's a bad reaction to mounjaro or to starving herself but the latter shouldn't be ruled out.
No-one has said that eating chocolate on WLI will make you feel bad, they're saying only eating one banana, one chocolate bar and two half toasties since Tuesday will.

@backawayfatty1

I've eaten chocolate and been fine. I've had really strong suppression also with minimal eating the first couple weeks & was also fine with that. It's definitely something with the meds and not what you're doing. Ignore the hate

What hate? Nobody is giving OP hate.

Her eyes are bulging & she feels like a demon is inside her ... That's not from undereating. Part fo the screening for mounjaro is a history of anxiety & depression so I think it can cause issues/relapse with mental health for some. I'm just meaning more the comments of you're not eating enough aren't actually focusing on the biggest issue here. As someone who has an adverse reaction causing high anxiety type symptoms, it was really stressful as it's not a daily tab so the side effects take 2 weeks to subside. It does seem like a reaction to the medication rather than from the appetite suppression so as suggested I think OP needs medical advice rather than just to eat more

To put into perspective, I've had strong suppression off the started dose & if I try to eat when not hungry I feel horrific nausea. I can't force myself to eat. Some people have protein shakes to get cals so OP could do this. I personally don't need this as I barely walk from disability so need less cals & am very overweight so won't be harmed by a few less cals for a short period of time. No harm in calling NHS 24 for advice if you are worrying OP

There seem to be some users whose sole aim is to suppress their appetite completely… I do not understand this mentality at all. I have found myself hungry at meal times but really able to ignore the snacks in between. My side effects have been feeling cold and that’s it. In your position OP I would just try to eat something regardless of what it was… cereal, toast & peanut butter, scrambled eggs, something. Don’t worry about the whole eat protein thing. These things are constantly repeated online without knowing what the initial source is for them. Get some calories in and some non alcoholic drink and see if you feel a bit more normal. If it doesn’t improve then it might be that you’re super sensitive to some aspect of the medication.

Stop being ridiculous. MN alone is full of threads where people write of their journey on Mounjaro including any issues they have with side effects.

And If you can afford Mounjaro then you could probably afford weight loss surgery albeit you’d have to finance the cost for longer. Have you considered surgery?

@PinkArt @SilenceInside I was just reading an article in the paper this morning that said people who are buying whats said to be ‘much cheaper proper Mounjaro’ from dubious sources are actually injecting insulin in most cases.

I just read a rather sensationalist article in the mail. For some reason it starts off with all these scary stats About thousands being admitted some serious, but if you read it properly and look at the stats it’s a nothing article. There is no reason the stats here on illnesses etc would be different to any other country, so very low, but what it’s referring to is people buying fakes from “online pharmacies” which clearly won’t be regulated ones.

the case studies were showing someone who bought one with insulin, another with the highest dose of semiglutide, rather than the first starting dose, so it’s basically an article about folks using fakes,

can I ask op, where did you buy the product you used?

Pharmacy 2 u

worked out I payed £108 all in for first pen seemed really cheap.

but pharmacy 2 u seems legit