Well done on the weight loss @newyorkinthefall and @lisam78 I have managed to keep my increased exercise up. I can’t believe how much better I’m feeling atm. I’ve gone from quasi bedridden and really needing my blue badge to being able to walk for a couple of miles! That is almost all I can do in day and I sit down most of the rest of the time, have a nap etc. But it’s a start.
I am brutally aware that the nature of chronic fatigue is that I could have set backs and am riding the wave right now. I saw my friend today, well now yesterday, who also has CFS but less severely and she said she hasn’t seen me this well for several years. I really am starting to regain the me I lost.
I haven’t lost any more weight and this is a lifetime journey rather than a sprint. And I’m 13.5 kg down from the start of my journey in June. I wore a dress yesterday that I really like and haven’t been able to put on for years! The thing I probably need to do now is to wean myself off dark chocolate. I get the impression that is giving me sensitive tongue, borderline tongue thrush and that means Candida issues. Thus far am resisting…
As for my emotional health, which is important for me to succeed, I wrote a couple of weeks ago about my distress with my dd’s medical condition. We’ve been looking at post 16 options and she won’t consider the 2 obvious schools with school buses so that means public transport or private school. I’ve been going out of my mind concerned that if she has a seizure on transport whilst travelling alone she could seriously hurt herself and as she won’t take identifying information people are going to panic. Yes, I could drive her but I can’t be guaranteed my energy will hold so I don’t want to commit to something I cannot maintain for 2 years. Two round trips would take me 2-3 hours a day.
Dd likes the idea of private school (she’s been at private since year 9 as wasn’t coping in state) but I’d also like her to consider college. Not just the money element but also to gently introduce her to the real world. Anyway the college she would consider is tough to get to and various public transport links. She needs to be able to sit down. Buses not an option as I’ve discovered they’re unreliable and often packed. For dd’s protection she needs to be seated so the other option is the train and the boy I talked about upthread takes the train, no one else I know does - and I got no joy from a post I put up on local fb.
Anyway with dd away this week (school trip and that’s been difficult in itself as dd nearly had a seizure on the plane but didn’t tell me), I bit the bullet and knocked on his door. He and his mum gave me a lovely reception. Poor lad probably nearly had an heart attack. And the relief to finally tell other people about dd’s medical condition was incredible. I obviously realise this isn’t going help dd now as they’re no longer dating. But it has helped me beyond belief. I now have the confidence to go and chat with the family of the next boy she dates in the hope that she will gain the confidence from that to do it herself in the future.