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support thread for the going to be starting school or at school thread lol

291 replies

bubblagirl · 05/06/2009 19:15

thought maybe as there is a pre school thread maybe we could have a going to be starting school or at school thread all welcome really

but we are waiting for our re written proposed statement to turn up tomorrow hoping all is going to be as we need it this time

im really nervous and anxious about him starting school bubblaboy my 4 yr old with HFA for all who may not know me

he had induction today but his sound sensitivity was played up with singing time so may have to ask if he can sit outside of the group with support when he starts and introduced to it gradually as at the moment he dont like big school dont want to go and doesn't like the singing so would hate for that to be what ruins his joy of going to school every day

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boolifooli · 02/09/2009 21:56

Glad the first day has been ticked off the calendar Mad and good luck to everyone for tomorrow and Friday. What wine are you getting in Phoenix? Mine's a Shiraz. Matthew's first day at the main stream nursery isn't for a couple of weeks. Feeling okay about it most of the time x

Phoenix4725 · 04/09/2009 10:11

lots of , sadly we hit problem already , ds cant comminicate as they are not up to his level of makton, no pecs nothing ,I went in first day and they kept having to ask me what he wanted, was saying etc.Then they did story with actions they opbviously not thought through as the action was saying something else to ds .One point they was talking about dancing but ds was seeing sign for helicopters.

Till salt gets in end of month only way its going to work be me going in every day and staying with him

bubblagirl · 05/09/2009 17:18

hi all im back form holiday nervous for bubbla boys school start thur

phoenix sorry to hear it's not all gone well for you you would have thought they would have had someone properly trained they never cease to surprise you do they lets hope they get it sorted out soon

holiday went well he coped well only had one bad day but we got through it and he cried as he didnt want to come home but now all unpacked and back to reality

hope every one has a relaxing weekend

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Phoenix4725 · 05/09/2009 19:25

glad you had a good break next time will join you , just with #dorset clinic ran out of funds

I Has the wine ready for you lots of.How is bubblboy feeling?

boolifooli · 05/09/2009 20:09

Hi all

I'm sorry they weren't up to speed on the Makaton and pecs. Are you able to go in and be with him for the first few weeks? Not ideal though is it, them getting used to you being there. How is he when he comes out at the end of the day?

bubblagirl · 06/09/2009 08:33

hi phoenix im booking for 2 weeks next yr the location was perfect close to town opposite south pier and was met by views of the sea first thing in the morning from the window

bubbla boy doesn't really realise i think one minute he wants to go big school next minute he doesn't i think its more he'll go and how he'll handle the change im hoping he will but he is always so different in the school setting surrounded by lots of children

he has come along alot in holidays with speech sounds although needs to be reminded to use them and socially a little bit more social but ive been warned he'll probably take few steps back with such a huge change as school coming into things so i just keep my fingers crossed the support is enough when he goes

i know of 2 behaviourally challenged children in his class and worry that they will create and get the attention meant for him with the group TA wont panic myself too much

if you saved my mob number i did CAT it to you feel free to text any time you want to

thanks for the wine will need it

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Phoenix4725 · 06/09/2009 09:15

will text you .and will have phone ready on thursday.is dh having morning of to?

yep i will be going in with him and staying till at least when salt come sin at end of month , then take it from there.Mind ds is going be of for almost a week , due to having take him to Dorset by train 5 hrs or so .so be doing over 3 days and then he has appoinmen ton one of the other days

bubblagirl · 06/09/2009 09:34

yes dp will be coming in with us i made him take the day off lol didnt want him to miss it

i forget phoenix why do you have to do the dorset trips that long journeys isnt it how long will that go on for

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tiredmummyoftwo · 06/09/2009 09:54

Hello, DS did very well on his first day today. He cried for few minutes when I left, otherwise settled in well. His teacher made him sit at the front and talked to him directly as we requested (he still can't follow group instructions). Although all the other parents stayed inside the class for first two hours, I decided not as I know he will be expecting me there if I stay. So so far so good.

Bubbla, glad that you had a good holiday and bubblaboy doing so well. Sorry Phoenix, it sounds terrible that the school has not been able to put any extra help in place after knowing for months that he was joining.

bubblagirl · 06/09/2009 10:01

im glad your ds done well tiredmummy im glad they are doping what they have been told for him hoping school will do for ds as well as not good with group instruction either just off shopping no food from being away be back soon

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Phoenix4725 · 06/09/2009 10:02

glad all went well tiredmummyoftwo

Bubblagirl , Going to Dorset collect ds afos since the nhs is so slow had to go private.Wort have to go back for another 3minths or so though hopefully will be able go to their clinic they hold in London.Thankfully ds loves trains and is reall6 good and people been very helpfull.

Glad dp coming in with you bubblagirl.There will be more mums crying than dc im sure

bubblagirl · 06/09/2009 15:57

oh yes i remember now what a pain though its good your ds doesn't mind the travelling

well i hope school goes ok and you dont mind having to go in its just a shame they couldn't be more prepared for him though

i think i wont cry when he starts school as ds is good at picking up my anxiety maybe i'll have little sob on way home lol

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bubblagirl · 06/09/2009 15:57

we must all put on pics of our kiddies in there uniform see how utterly gorgeous and grown up they look

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Sunfleurs · 09/09/2009 18:40

Well after having horrible panic attacks for the last three weeks at the thought of ds, 6, ASD going back to school we have had a fabulous couple of days. They have set up a corner of the classroom for him, his own private area he can retreat to when things get tough complete with ear defenders hanging on a peg for him to put on when his sensory issues begin to bug him. They have put systems in place to deal with his meltdowns eg when he seems to be losing it they have a large ball for him to jump around on and a weighted blanket to help calm him down.

He has a new one to one who seems to get him as well. I know it is early days but I feel so happy I could cry, in fact I am crying writing about this but happy iyswim.

I hope it is going well for everyone else as well.

bubblagirl · 09/09/2009 18:45

on sunfleurs thats great bought tear to my eye reading that

our big day is tomorrow so feeling slightly anxious but not too bad he seems excited about going so i'll go with that and keep fingers crossed all will be well

im so happy they have taken the time to make things comfortable for him that brings me great comfort to know there are some good people who actually do what they should

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Phoenix4725 · 09/09/2009 18:49

Hope all goes well Bubblagirl is ds excited about going?

Sunfleurs · 09/09/2009 18:50

Oh Good Luck! The first couple of days are tough (try Terms for us) but it WILL get better, although there are always ups and downs. It is like everything else with this ASD malarky, it seems so awful and hard at the beginning and then you just deal with it and it becomes ok.

I hope like anything that you get have a decent SENCO, it makes all the difference. I know that we are so very lucky with ds's school, with the allowances they make for him and the efforts they go to. I hope yours will be like that too.

bubblagirl · 09/09/2009 18:58

so far the team around the child meetings whilst ds was at pre school the school senco attended and seemed to be every helpful and understanding to bubbla boys needs it will be clearer obviously once he has started school

the statement is in place and hopefully they have all in place for him for when he starts as he starts week after others so would have chance to have it all ready for him fingers crossed

phoenix he seems excited his uniform is hanging up and kept saying im going big school tomorrow are my friends waiting as i told him some of his friends have started i hope this term at school they will be friends

we ave play dates outside of school with 3 of the boys on several occassions so hopefully we can do this and he may become more comfortable with them

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Sunfleurs · 09/09/2009 19:16

Great that you already have the statement. We removed ds from two seperate nurseries because they made it quite clear that they had no interest in dealing with him or helping us pursue a statement. At that time we had no diagnosis either so we were completely floundering around in the dark, with our "naughty, disruptive, doesn't listen" child. It was very scary. In the end we applied to the school he is in now as they have a SALT unit within the school and although I didn't think he would be in that unit I sort of thought they might have a better idea of what his difficulties were and the channels to go through. I was right because they have been great.

We now have a statement and loads of help in place for him.

My fingers are crossed for you and your ds, as long as everyone has an understanding of him and his needs there it will work out. There will probably be loads of trial and error but one thing I will say is don't be scared to ask for what you think he needs, if you don't ask you won't get. If it is the right place for him they will want to help him be happy there and will do whatever they can to make that happen.

bubblagirl · 09/09/2009 19:21

we did 4 school induction days and i handed them in his personal passport i has made and the 2 teachers and teaching assistants for his class had read it

they have 2 teachers who work 2 hlf days so hoping they will both be taking the time to understand him

induction days were for few hours each time and he seemed to get on well they also did a home visit and asked more about him and his needs so with any luck with all the info they gained before he started they should know and have more idea on how to deal with him also with the statement being prepared early for his start would have helped i hope

i wont be afraid to speak out and im really glad you have found a good school for your ds and getting help and advise

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bubblagirl · 09/09/2009 19:22

this was all before the holidays so had all that time also to read personal passport etc

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Sunfleurs · 09/09/2009 19:24

That sounds great, brilliant for them to do a home visit. They sound very committed. Fingers crossed for you .

bubblagirl · 09/09/2009 19:28

thank you i will be on here tomorrow letting you know how it went
i have to go in and have lunch with him tomorrow then bring him home the fri he will have lunch alone
then from mon full time
i'm making sure i get repeat of melatonin in soon before we even get near running out lol his so much more accepting of things if he has slept im not so nervous if he sleeps
keep me informed on how your ds gets on at school x

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bubblagirl · 10/09/2009 17:49

so far so good he had melt down at lunch as i paid for a school dinner and he wanted sarnies that was it really bit unsure with things this morning while there but he coped well only half days so more playing than anything it'll be next week that all will be revealed lol

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Phoenix4725 · 10/09/2009 19:54

so glad it went well and he looked so cute this morning.Was he tired? ds is really knackered by 11 by 12 hes almost asleep next week hes in to 1 and lunch all week then week after its all day though we are away with appoinments alot.

Mind I can feel for them im going in and staying helping with him and 27 othe rkids and by 12 I am so tired could do witha nap to lol