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Here are some suggested organisations that offer expert advice on special needs.

2 people in the last week have asked me whether my ds has adhd!

309 replies

essbee · 20/02/2005 19:23

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Jimjams · 12/03/2005 09:40

btw I joined aut-uk about a year before ds1 was dxed. No problems with that.

Blossomhill · 12/03/2005 09:48

Hiya Essbee

Well I haven't anything to add then what I said when we met yesterday
However I agree this man is an ar$sehole and that my experience and another friend's weren't very positive either.
This website the discovery centre
Has lots of useful, easy to read without all of the jargon, links on all of the disorders.
It's worth having a read.
Hope you are okay. Lots of love and hugs Blossomhill {{{{{xxxxx}}}}}

Jimjams · 12/03/2005 09:48

Lisa Blakemore Brown is an educational psychologist who specialises in autism ADHD etc. She can be seen privately. She was the one that Jaqui Jackson took Joe to see on the TV programme about the Jacksons last year.

Blossomhill · 12/03/2005 09:49

If you could access London Borough of Sutton NHS I know a brilliant paediatrician, infact I know few! Let me know...

Jimjams · 12/03/2005 09:50

Don't bother contacting Duncan fennemore- the other person on that Lisa Blakemore Brown link I gave- he's a therapist- he can't diagnose.

Blossomhill · 12/03/2005 09:51

CAMHS were the people that dx dd with ADHD didn't pick up on her quite significant communication difficulties and then said unless we wanted Ritalin they didn't want to know! I said I wasn't happy to medicate a 4 year old and they just said oh well, we'll take you off of our lists! So as you can see I don't have a very good opinion of CAMHS anyway. I agree it doesn't sound as though it's the best route for you or ds. A developmental Paediatrician is usually the first port of call.

essbee · 12/03/2005 10:45

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roisin · 12/03/2005 11:07

Oh fgs! I want to wring his neck.
How is any of that supposed to be of any help to you? What a complete plonker.

I hope your Head kicks some ass on Monday.

I read this first thing this morning before dashing off with the dss to swimming lessons. I spent the whole time fuming about it, and came home and took my frustration out on my filthy house.
So thanks to you I now have gleaming floors. I even swept the porch and the stairs

Hope you have a good day/weekend. The sun is shining here, hope it is there too.

essbee · 12/03/2005 12:25

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Jimjams · 12/03/2005 12:31

I have found out that Ds1's clinical psych will see private patients. She diagnoses and in imo knows what she is talking about. I'll contact you by email with details. Would be nice to meet you if you do come down!

Jimjams · 12/03/2005 12:35

oh scrap that- she only sees local people privately and then not always. The trouble with LEA ed psychs is that they;re often not very good (bit of a lottery) and can't diagnose. Might be worth asking locally whether anybody knows of anyone.

ScummyMummy · 12/03/2005 12:37

Hi essbee. Sorry if you've btdtgtt but have you tried just taking ds to the GP and asking/telling her to refer him to a devlopmental paediatrician?
Sorry the Camhs route was so awful. He sounds like an absolute drongo.

tallulah · 12/03/2005 18:01

I've just read this all the way through and it rang horrible bells. My DS2 was exactly like your ds. The refusing to go to sleep until after midnight (then he would be up in the middle of the night wandering around) particularly. Mine once punched DS3 in the mouth during a car journey (he was 7). There was blood everywhere it was horrible. He was contrite afterwards & "didn't know" why he'd done it.

The first doctor we saw said his problems were down to bad parenting, and a father who worked nights ("if you could just get a proper job dear?").

I went to parents support meetings & forced myself on a new doctor in the next town who was giving a presentation, and begged him to see my ds. After the first consultation he dx ADHD & we've never looked back.

I'd hoped that things were better now, but it sounds like nothing has changed. Can't suggest anything to help I'm afraid, except that the thing about "if he can concentrate on the PS2 then it isn't ADHD" from further down the thread is a load of cr*p. These children can hyperconcentrate on something they are interested in. My ds is TV/Computer orientated and could be on them 24 hours a day, but can't remember "put some socks on" for the time it takes to go to the drawer.

Which area are you in?

MeerkatsUnite · 12/03/2005 19:49

Hi Essbee,

Apologies if you know about this group already but have posted the details up for you to see:-
www.addiss.co.uk

They have a couple of groups in Surrey listed there, you may well want to contact one of them to see who they saw.

Am sorry to read that CAMHS were so hopeless, I must say though that in the recent Horizon programme shown on children (and adults) with ADHD this service was not mentioned at all. The families in question all went down the GP/developmental paediatrician route. School can arrange for an ed pysch but am not certain they can diagnose.

I do hope you get answers soon; to my untutored knowledge he is behaving in the same ways of those children in that programme who came to be diagnosed with ADHD.

Davros · 13/03/2005 12:24

I sincerely believe that Psychiatrists, psychotherapists and mental health services are NOT the right place to start looking for help with children with difficulties. They can be useful sometimes once a child's condition/disorder is clearly understood and then only to help the child or family accept and learn to deal with said condition/disorder. I think they can do huge amounts of damage to everyone and this just bears it out. You could go via school but I don't know a lot about that, I would agree that asking your GP for a referral to CDC and Developmental Paediatrician is the best idea.
I know the man who runs the Surrey NAS Branch and he has 5 children and, if I can get this right, 4 of them are on the spectrum but ranging from classic ASD to dyslexia and possibly including AD(H)D in there somewhere. I also know the woman who runs the branch with him and she is lovely. DO look at their website and get in touch with them.

ScummyMummy · 13/03/2005 23:07

Agree (again!) with Davros. Camhs are not the right people to approach first if special needs may be involved. It's not their role to diagnose and their awareness of special needs can be pitifully low at the point of referral, IME. They are there to help with emotional, family and childhood mental health problems, primarily and that's what they'll be looking for when a new clent walks through the door. That's not to say that they can't be very good- though your guy sounds like an arse and a half. They can. But special needs need to be diagnosed or ruled out before a camhs referral, IMO.

essbee · 14/03/2005 16:15

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essbee · 14/03/2005 16:30

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anorak · 14/03/2005 16:35

He took a liking to those stones in my drive, didn't he?

I expect this has been suggested before, but could he take part in a sport to try and give him an outlet for his anger?

Perhaps he could go to a judo club? They take them very young, and it would give him the calm that comes with confidence as well as somewhere to vent.

essbee · 14/03/2005 17:49

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essbee · 14/03/2005 17:50

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essbee · 14/03/2005 17:52

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nutcracker · 14/03/2005 17:54

Blimey essbee, is there noone near to you that can help calm him down ?>?????

essbee · 14/03/2005 17:54

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nutcracker · 14/03/2005 17:54

Not really sure what to suggest you do with him ??