DLA wait times 76

[HeartyGuide]

New Thread as previously one nearly full.

Hiya sorry about your son iv done a form for my sister daughter has bone and lung cancer shes just waiting 20/6 is her scan date my sis daughter was only dignoised may she went in for a bad back its horrible aint it

Thanks. Yes I didn't word like that just hard to explain.
Tbh any award will go towards extra physio, we ll see.

Hi it is terrible. My sons was only picked up on an eye test - straight to a&e and a golf ball tumour in his cerebellum.

5% chance of making it to 12 months post diagnosis and here we are 2 years later happy to have the start of long term effects because it means he's still here - ongoing MRzi's to check for disease, pituitary issues and now on daily growth and testosterone injections alongside mobility and processing issues.
He has quite an unusual after effect called posterior fossa syndrome or cerebellum mutism (it's referenced in the DM guidance) but I am guessing it will go to medical team for any decision.

Sending best wishes for your sister and her daughter it's a long difficult journey. X

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Renewal
SD: 28/7/25
Awarded 15/8/25 (5 years)
Mrc/lrm (same as previous award)

I want to challenge this as I think my son meets the criteria for SMI. He is age 7 with ASD. I thought I had detailed in the renewal how he met the SMI criteria for hrc and hrm. However, we were awarded again fairly quickly (19 days).

Any advice on how to proceed? Thanks

Yes its crazy ain't they went hospital weds in.may stayed 3 days of the not knowing she had mri sat boom cancer shes 16 next month sis only child sending lots of love to your boy x they have a central line fitted for her

@Itmustbe I understand that any help is great and a tiny weight off your shoulders to help your son... But if you're awarded any less than HRC HRM please come back to the thread and we / others will give you help andd guidance for a MR for the above rates.. I'm sure you already have enough evidence but just incase please don't just accept "any award".. You've already missed out on 18 months of financial support which is totally understandable that at the time you wasn't even thinking about dla you was thinking about your son and I'm sure it was all very upsetting and hard.. Don't miss out on what your son is entitled to from here on out...

Sending lots of positivity for your son 🙏💙

If your son has pica its not always caused by sensory, my daughters is caused by iron deficancy and severe anemia, you should take him to a pediatric doctor for tests. My daughter doesnt try and eat non edible items she mainly licks them but its calmed down since shes started the iron.

This is really interesting to hear, my daughter has just seen a dietician she has iron deficiency and she licks things, I never thought the two would be connected. She’s not been told she has pica we are in early stages of being seen.

Anyone know if the wait times for MR is coming down yet? I see NC is being done by 10-12 weeks now so are the now progressing on MR’s and COC’s?

only 18 weeks into MR currently but wanna see how long I’m looking at waiting for 😂

I know this is mumsnet but I am a dad full time carer for my LO and house husband. Hope this is ok!

MR 03-02-15 had phone call friday, she said we will know by the end of next week.

we are currently at week 29 I’m afraid! It’s such a long and anxious wait! Hopefully they catch up like they have with NC’s, we waited 25 weeks for new claim too.

29 weeks here too, SC 03/02. I called a couple of weeks back and it hadn't made it to a DM yet. Been a year now since the original NC scan date!

Yes licking things like floors walls blinds etc if your daughter is licking things with no nutritional value and shes been diagnosed with iron deficiency, she has got pica. Pica is iron deficiency thats probably why they havent used the actual term.

MR 30 weeks tomorrow, will this be my week

Omg I bloody hope so! Can't believe how long they are taking! I'm 29 weeks this week it's dragging so so badly x

Coc 26/03, I can see a pending payment for tomorrow

Oh wow, that’s the latest I’ve seen yet for a COC! Do you plan on calling them today? I hope it’s what you was going for!

He has already been tested by pediatrics no iron deficiency he does take multivitamins daily aswell due to his eating habits it definitely seems to ramp up in times of anixity seems to show it self more often at school these days he had a chew neckless to try to combat this but it doesn't always work at the moment he is eating alot of wood from wooden blocks so I'm trying to remove them but it easier said than done as removing the building blocks will cause him to inflict violence on himself or me so it's like being caught between a rock and a hard place sometimes

Congratulations, I’m so happy for you, did you do a COC for just mobility or care aswell?

Yes, I am on hold already

It was for both as my daughter had MRC and LRM

Good luck with your call, keep us updated 🤞

I got a text yesterday saying a decision had been made for renewal, so i rang this morning. My child has kept the same rates.

Called just now got through instantly and he said any day now it will go to a decision maker but it's still in the queue.... scan date 7/02