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Here are some suggested organisations that offer expert advice on special needs.

DLA Wait Times 73

1000 replies

megan345 · 16/06/2025 11:30

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

OP posts:
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11
Judgejudysno1fan · 16/06/2025 16:32

BBLDRIZZY · 16/06/2025 15:57

Hi everyone,

just thought I’d give an update. Renewal was due 22/06 called today for an update and my DD has been awarded again however she’s gone from LRC and LRM to just LRC.

I sent in so much evidence and detailed answers.

DD has a diagnosis of cerebral palsy amongst many other issues that affects her daily life.

just waiting for the letter and I’m going to do an MR.

just feel so defeated 🤦🏻‍♀️

definitely do the MR hun

brc13 · 16/06/2025 16:35

COC 06/05 long wait ahead, hopefully have a decision by Christmas😂🙈

Liya1xx · 16/06/2025 16:38

Nieks247 · 16/06/2025 16:30

Think it’s a decline decision was made today but they said they can’t tell me. Asked to be put through to disputes am they haven’t picked up. Advisor keeps telling me can only hold for 2 mins. Trying option 4 now. He said wait for letter in the post! I said the least you guys could do is let me know after waiting 28 weeks! Calling back for the 4th time today!!

I had this issue, they refused to tell me I thought was decline to go through to general enquires they told me x

Liya1xx · 16/06/2025 16:39

Nieks247 · 16/06/2025 16:30

Think it’s a decline decision was made today but they said they can’t tell me. Asked to be put through to disputes am they haven’t picked up. Advisor keeps telling me can only hold for 2 mins. Trying option 4 now. He said wait for letter in the post! I said the least you guys could do is let me know after waiting 28 weeks! Calling back for the 4th time today!!

I hope it’s good news for you, have my fingers crossed!🤍

Nieks247 · 16/06/2025 16:39

Liya1xx · 16/06/2025 16:38

I had this issue, they refused to tell me I thought was decline to go through to general enquires they told me x

Babeee I’m on hold and I’m just panicking sweaty palms everything! I’m like why can’t you just tell me or keep me on hold. Did you do option 4 if u remember? Xx

Kes1730 · 16/06/2025 16:45

MR 20/12/24 hopefully not too much longer

BBLDRIZZY · 16/06/2025 16:46

Judgejudysno1fan · 16/06/2025 16:32

definitely do the MR hun

Thank you I definitely will!

can I request that I send in my MR by post?

Mummyof4children · 16/06/2025 16:47

When do they pay the first payment after the back pay ?

Liya1xx · 16/06/2025 16:48

Nieks247 · 16/06/2025 16:39

Babeee I’m on hold and I’m just panicking sweaty palms everything! I’m like why can’t you just tell me or keep me on hold. Did you do option 4 if u remember? Xx

I went through option 4, I was the same I felt like I was going to vomit! option 4 is the best to go through as they can tell you everything x

Nieks247 · 16/06/2025 16:50

Liya1xx · 16/06/2025 16:48

I went through option 4, I was the same I felt like I was going to vomit! option 4 is the best to go through as they can tell you everything x

okay perfect thanks on hold now with option 4 been on hold 25 mins!! 10mins to close. I just wanna know 😭😭

Mummytoviboys · 16/06/2025 16:53

ProudZebra · 16/06/2025 15:05

MR 31/12, I’m annoyed that my son was refused in the first place as I’ve just found this on google. My son has a life long disease, he is riddled with tumours and has them in almost every bone is his body, this causes lots of problems for him but they need to keep an eye on his tumours as there’s a high chance of some of them turning sinister so wouldn’t he automatically qualify if going off what this says?! He has already had some tumours removed but not because they were sinister but because they were causing bone deformities and weakness

My son was denied first time around too! He’s severely sight impaired, which states he’s eligible on their website! He was awarded with MR so hopefully you’ll get a positive outcome too! 🤞🤞

Momof3boys2girls · 16/06/2025 16:54

Nieks247 · 16/06/2025 16:50

okay perfect thanks on hold now with option 4 been on hold 25 mins!! 10mins to close. I just wanna know 😭😭

Got my fingers crossed for you chick x

Momof3boys2girls · 16/06/2025 16:56

Nc sd 28/2
saw a few posts on fb today same date and have been awarded.
called earlier and said its with the dm and that ive requested a text when they’ve made a decision the wait its physically and mentally draining me at this point

Mummytoviboys · 16/06/2025 16:59

Nieks247 · 16/06/2025 16:50

okay perfect thanks on hold now with option 4 been on hold 25 mins!! 10mins to close. I just wanna know 😭😭

I did option 4 too and they tell you everything!
fingers crossed for you 🤞🤞🤞

Liya1xx · 16/06/2025 16:59

Nieks247 · 16/06/2025 16:50

okay perfect thanks on hold now with option 4 been on hold 25 mins!! 10mins to close. I just wanna know 😭😭

I got through at 5:30 they don’t cut off if you’ve been waiting a while and I called at 4:35 Friday x

Nieks247 · 16/06/2025 17:00

Mummytoviboys · 16/06/2025 16:59

I did option 4 too and they tell you everything!
fingers crossed for you 🤞🤞🤞

Been on hold 45 minutes I just hope they answer as it’s 5pm now!

Mummytoviboys · 16/06/2025 17:05

Nieks247 · 16/06/2025 17:00

Been on hold 45 minutes I just hope they answer as it’s 5pm now!

Ahhh you must be so nervous!
when I rang last week I was sweating and so anxious, it seemed like they took ages to answer 🤦🏼‍♀️

rebkat82 · 16/06/2025 17:08

@JordanashleyHow did you find out you had been awarded? Did they tell you on the phone?
Thanks

Nieks247 · 16/06/2025 17:29

These people really know how to stress you out! Got through to be told no decision has been made even though 3 advisors before all said a decision has been made! So I’ll be back to calling at 9am because this makes no sense. I even told him refresh your screen he said it’s in live time. Sighs

Lindsey555 · 16/06/2025 17:34

rebkat82 · 16/06/2025 13:39

Mr 28/11. Had a call on Thursday and called today and told a decision has been made but she couldn't tell me. Does this mean it's bad news? And how do people get decisions over the phone?

To find out its 1,5,1,4 and they can tell you the outcome.x

Lindsey555 · 16/06/2025 17:35

Mummyof4children · 16/06/2025 16:47

When do they pay the first payment after the back pay ?

Its 4 weeks after you had your backpay.x

TashaxJ · 16/06/2025 18:52

@ProudZebra I am sure you can apply under the special circumstances which are fast tracked so please check this out. It’s a different box you had to tick within the form if I remember correctly xx

ProudZebra · 16/06/2025 19:00

TashaxJ · 16/06/2025 18:52

@ProudZebra I am sure you can apply under the special circumstances which are fast tracked so please check this out. It’s a different box you had to tick within the form if I remember correctly xx

Sorry for sounding dumb but why would it be special circumstances? I’ll be 25wks MR on Friday so may aswell just wait it out now. I just saw the thing about cancer or having things removed before they turn cancerous, that is pretty much my son, he doesn’t have cancer thank god but he is riddled with rumours which could turn sinister 😔 I sent a load of his hospital notes off a couple of weeks ago but none of them really reflect how his disease affects him. I’m just hoping and praying his decision is overturned but knowing my luck, it won’t be

Kimby2024 · 16/06/2025 19:19

Any other MR 3/12 heard anything today? as I’ve seen a few after our date get responses.
It’s officially 365 days tomorrow since I first applied.
im very convinced it’s a decline again as most people who are going through an MR have DM call them for info. Just would like to know so I can stop thinking about it all the time and let go.

TashaxJ · 16/06/2025 19:24

@ProudZebra dont quote me on it as I could be wrong but children with certain illnesses I believe came under the special circumstances rule which I thought included tumours. Trying googling it I could be wrong but I am sure I saw a check box for that in my form xx

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