DLA WAITING TIMES THREAD 65

[zoeybrooks45]

Please feel free to add your scan date and whether it's a new claim/mandatory reconsideration/change of circumstances or renewal.
New claims (NC) - people are being told the wait time has increased to 25 weeks! I would say most are done before this though around the 20 week mark?
Mandatory reconsideration (MC) and Change of circumstances (COC) is around 20-25 weeks.
Renewals tend to be between 15-20 weeks.
If you disagree with the outcome of an MR you can appeal and go to court (tribunal)
Scan date is the date DLA scan your application forms on to their system, if you downloaded your application forms then this will be from when your award will be backdated from. If you called up for forms then the date on those is the date yours will be backdated from.
If successful and claiming universal credit (UC) please update them as this will entitle you to disabled child element adding extra to your award.

This is what's putting me off - reading other people's experiences 😂 I think I'd cry if I had one bad person haha. When I rang to see what evidence I'd sent in (I sent more at the start of Feb) as I found some in my office and wasn't sure if they were duplicate, the man on the phone said it would be by 18th march but I'm not hopeful 🥲

Omfg snotty peeps on that phone when you ring first claim 14/03 lost evidence due to there mistake declined my little girl mr 18/09 had to send more an evidence sent more Friday from her last mri scan she can only walk 10steps due to her Perths an scollious being a 88 degree angle an snapped ribs on her left rib cage due to this she as a wheel chair she goes for a op in 2 weeks it’s her 4 th op an they still said no this as been with the dm for over 4 weeks now an when you ring you get some beep on the phone with there 25 week speech F off with it an get your fingers out your arse it’s a joke 24 weeks today am sick off them now it’s not fair or right

@KH94 well when I rang a few weeks ago I was told I should hear by the middle of March which would take us to around 20weeks . So hopefully it's correct !

Am 18 September an still nothink it’s a joke really is been with dm for over 4 weeks

Posting so I’m following the thread. Scan date 24th of Oct, rang Monday 24th of Feb for a different reason and it wasn’t with a DM yet. Can see on the FB group that a few of this date and onwards have been awarded but obviously can be another good couple of weeks before I hear. Three year old with assessed global delays, has speech therapy and accepted for possible ASD diagnosis (up to three year wait for panel…). But still may be seen as having typical care needs of a child his age so who knows.

I can’t believe some of the declines I see, I hope you get good news when your claim is looked at again.

I don’t understand the timescales either, how is everything not done in order? I’m seeing people having their claims looked at/awarded over a month after mine 15.10.24

@TheZippyMintHedgehog it will be because each decision maker has a digital "pile" of claims to assess .

If one decision maker works faster or gets through their claim decisions quicker they will be on a later date to other DMs

Its luck of the drawer who's "desk" your claim lands on

Ill think ill be declined tbf preparing for a mr x

@Glitzxx this is how I feel, by what I've said and explained he fits the criteria but only having the pathway acceptance letter and the letter from nursery stating the same kind of things that I have said about his needs let's me down I think as it's not that much evidence .

If I prepare for a no , I know what to expect and anything else is a bonus

Ive sent

Letter fron senco
Cahms refferal letter from doctor
Inclusion support letter
Letter from the another doctor his under

But still not sure if its enough :( i just wanna know now the wait is terrible :(

I rang earlier today (didn't think id get much of a update) but rang anyway esp since the last call the scan dates were wrong...& as expected was told i've not reached 25 weeks yet so hang fire 🙄
NC SD 30/10
Anyone else jump when they get a bank notification 😂 (just payments going out lol)

I rang today to be told i should hear soon i was told thursday it wont be seen till week 25 i dunno what to believe 🤣

@Glitzxx at this point tell yourself whatever makes you feel better!Because what they say on the phone really doesn't
I'm hopeful we will hear over the next couple of weeks going of the awards others are recieving (CONGRATS to those that have)
& sorry for those that are having to continue to fight with MR
I've been provided with a link to orthotic sandals (holiday booked for May) but she will need them for summer anyway & the starting price is £200!!
I'm hoping the mobility centre will cover the cost of these but if they don't then thsi is just 1 of the things we will benifit from the finacial support
The anxiety creeps up every so often x

Sending positive vibes that we will all wake up to payments soon for our little ones 🤞

I joined yesterday expecting a week or so wait, but have a backpay in my account this morning. Suggests that decision was made either Friday or Saturday. Scan date 24th of October, just waiting on the letter now. Good luck to everyone still waiting!

That's outrageous. It pisses me off the cost of anything remotely designed for different needs. My LB wears Billy's and they're knackered after 5 months and so expensive.

@Poobs2022 I need to get my little boy a specially adapted car seat as he elopes from a normal one which isn't safe .

They are so expensive !

Hey everyone, I updated my UC and it's been sent to a decision maker. They verified my child the day after I made the change, so that part was quick at least. Does anyone know how long it takes for a decision maker to decide whether to give the backpayment?

It took the decision maker 4 days with my claim. Then another 4 days to receive back pay

i need to get my son some new reins as he has no sense of danger and its even worse when he has a meltdown as he tries to run away and will run towards the road so the reins help me a lot

its surprising how nasty some people can be tho i had a women stop me the other day saying i shouldnt have him on reins etc etc which got my back up so i told her to stop sticking her nose in and unless shes got a child with additional needs then her opinion dont mean nothing to me if i have to keep my son on reins to keep him safe then il bloody well do it

my sons also been referred to incontinence as well due to him holding himself and toilet refusal even tho hes on medicaition for it

sorry for the rant guys but it annoys me how people can be so judgemental

really hope we all get the news were hoping to hear fingers crossed its soon

Oh that's great, I was expecting another 20 week wait like with DLA 😅 thank you

@Glitzxx my little boy has sensory meltdown while out and will throw himself on the floor kicking and screaming and will then lie there with his ear to the floor for ages I think the vibrations sooth something in his brain !

I've had people tell me before I'm a disgrace for letting him lie on the floor . I just say "you don't understand the situation so please don't comment "

My little boy has something similar with toileting he is incontinent and constantly poos throughout the day . We change him about 15-20 times a day . He panics when pooing and only lets out a certain amount 😞

Paeds have said it's likely due to sensory and anxiety to do with his suspected autism .

The doctors have told us they won't look into it till he is 5 unfortunately as it doesn't seem to cause him any pain . Although I'd disagree with this because he doesn't look very comfortable at all when trying to poop!

my sons on movicol i keep the potty out for him but he going through refusal atm and sometimes dont tell me hes pooed either i he wont go at school and soon as he has a pull up on he goes i feel its a never ending cycle as im trying my hardest but all i get told by the senco etc is he will go when hes ready and not to keep pushing him

my son has meltdowns and screams and shouts as well and tells me to go away etc he also lashes out and will hit and bite also i went to a fair a few months ago and he had a meltdown at the fair and i had to sit in the middle of the fair on the grass with him on my lap to calm him down people were staring at me so i told em to mind it

some people can be so nasty it really surprises me ive now brought a lanyard which says that my son may have autism and adhd so at least people can see them i shouldnt have to do that but feel like i need to due to comments off people

your a great mom whos trying her best dont let people get to you i try and ignore it but it can be hard but your doing fab remember that

My little one is on the pathway for asd but is struggling to walk (his whole body stiffens as he walks and he walks on his top toes) and is physically exhausted all the time and just lays down on the ground outside so I just paid out a good chunk of money for a bigger stroller as he's 3 1/2 and needed a bigger one and after I paid the money his health visitor said she could help get him a disability stroller, so ask your health visitor if you still have one if they can help with something, not saying it's guaranteed they will cause I haven't heard anything back as she said shes not 100% sure he'll qualify without diagnosis but it's worth asking. It is a joke the price of things though and people wonder what people need the dla money for. I'm struggling to find shoes that my little one can even wear as everything seems to be changed to these full front straps and the Velcro just bursts open as he walks so I'm having to buy off resellers for any sort of trendy shoes as they normally have laces🙈
My LB is the same I've tried potty training since he was 2, he was doing pees in the potty just before his 3rd birthday few weeks later he went through some change and would just constantly pee himself and then started nursery and had to put him back in nappies day and night, and totally regressed with everything else he was doing so well at! Anyone else's kid with asd all of a sudden develop a really bad stutter? My LB always gets. compliments about his language and how more advanced he sounds with the words he uses even though he didn't start talking until 2 but caught up really fast then developed a really bad stutter that he actually raises his arms and head to the sky when stuttering and has always struggled to communicate his needs, always hand led! Can recite a whole episode of peppa but can't tell me what he done at nursery🙈 feel there's not much support at all before diagnosis even though it can't take years, not even sure what's offered after diagnosis either

@Glitzxx my little one bites, kicks and punches also . As he's non verbals he lashes out . It upsets me so much that he can't tell me what's wrong .

He doesn't make me aware of when he's wet or soiled either . I don't think he has any understanding of it unfortunately