Thank you, its definitely a learning curve isn't it. I'm going to send some extra evidence over by post and write a letter with anything I think I missed out from forms because when I phoned they wouldn't take the evidence over the phone verbally they just said they'd put a note in that more evidence was coming. The call handeller said, oh no you don't need to tell me what it is! I was only calling to add on a new medication but now I'll be sending that new prescription and loads more info by post next week 😅
I've already put in tons but it's things like I said in forms how long it takes to get her dressed because of how she will only wear certain colours, the seams have to be a certain way, no labels, clothing positioned in a certain way, all very time consuming, an shes not able to dress herself etc. But I completely forgot to say that she goes rigid when I dress her and doesn't move to help me at all, won't bend her arms legs etc and she's a dead weight. So its stuff like that I need to add on.
We had a long drawn out thing this evening about her drink of water not being the exact right temperature which took for ever to get right and then forever to calm the situation which had escalated way out of proportion. There's many 'little' things like that that I just didn't think to add in cos I didn't think they were relevant and its the norm for us, but it wouldn't be the norm for other families would it so that's what I need to remember.
So many things I'm thinking to add in but I'd be here till next year if I wrote down everything though 🤦♀️... Might be here by next year anyway if I have to do mr 😅
Oh an I forgot to say in my reply to you about the DCD and my daughter being dangerously clumsy and uncoordinated, I did add all that in already. It would be funny if it wasn't so bloody dangerous, she literally veers from side to side bumping into parked cars, trees, the wall and constantly trips up over nothing at all! So yeah I would definitely add the DCD in when you do your sons forms if he's anything like my daughter with that.
Sorry for long reply again I'm on a right waffle tonight 😂