DLA WAIT TIMES THREAD 46

[Matilde08]

🤞🏻🤞🏻🤞🏻

Hi all, new here but been following for a while, congrats to all that have been awarded so far. I have a scan date of 25/3 so probably still have a while to wait. Been a few years since I last applied for my eldest who is autistic and I'm sure it never took this long....crazy waiting times! I've applied for my youngest who is now 13 and waiting assessment for adhd...she can be a handful and is 2 steps from being thrown out of school. Jumping in so I can keep tabs on what dates are being awarded :) X

I said it was aimed at Facebook and your right it's awful I've sat myself in tears on a night wondering what I've done why they hit me tell me to die why they never listen brake things etc but yeah they don't mean it they love us were all they have got and we need to be there through the bad and be greatful when we get that good half hour cos behind every child that's got needs there is a loving side.. it's very hard but we find ways through it that's what matters the most.. them who lie and use kids for money will get thier own karma and eventually get found out 😊

Welcome to in crazy institute 🤣 we're all lovely really x

I've seen how genuine people are on here which is why I asked the question here, I knew I'd get honest conversation that maybe helped me get my head round it, I didn't mean to offend anybody here.

I'm alright I wouldn't of felt bad if you did quote me, I'm of the mindset we all have opinions, some are the same, some differ but aslong as they're verbalised properly and without malice or hate that's okay, if we all thought the same life would be boring wouldn't it lol. I was just genuinely baffled at the conversations happening on there and yes it did rile me up becasue you do see genuine people jumping through hoops to get what their kids deserve and then you have people who get it so easy through lies. x

Exactly it just makes me angry when I come on here and see genuine people struggling to get the help after just reading a dozen different people discussing how's best to get hrc.

As I've previously said I wouldn't wish the meltdowns ect on my worse enemy, I've been there sat and cried about why my child hates me, tells me to die, tells me he wishes he wasn't born, he's told people I was dead before now and I know he can't help it but that doesn't make it hurt any less. Then he has his softer side when he'll randomly hug me and I cherish that as hugs are very few and far between, or him cuddling his 9 week old baby brother or playing football with his 2 year old brother and you sit and think these are the moments that make up for everything x

Oh no! 😂😂 I’m not calling again!

How old is your son?. It's awful isn't I'm dreading my 2 boys growing up as they already awful now the older one is already getting harder to restrain I'm only 5ft4 myself lol.. I deal with it all myself aswell had to go from full time work to part time and my partner works away so is no use to me really.. but finding this thread as made me see I'm not alone and can actually talk about it with people who are going through it also xx

I wouldn't worry about the other people who make things up karma will catch upto them..they will only get away with it for so long before they haven't got the evidence to back up what they claiming..

I no it’s terrible. I have never prescribed both mine (2.5 asd and 8 yo ADHD) because they have never need it. I have left my 8 year old sons applications as I didn’t know enough about dla and always knew there were children who needed a lot more- my 2.5yo for example! People who prescribe with no intent to give it need to remember it stays on record forever and is abusing the system

100% agree

I’m the same I’m 5’5 my 2.5 already hurts during a meltdown (ASD) I don’t know how we’ll deal in the future. We’ll have to get to the gym 🤦🏻‍♀️

Nightmare isn't it lol I don't non what we going to do as they get old my oldest is nearly 6 and he's like whippet and gets out of everything lol

😂🤦🏻‍♀️ luckily my 8yo ADHD doesn’t make him lash out, he just doesn’t stop running and talking- my youngest is in full meltdown mode, throwing whatever he can as high as he can, kicking, getting out of car seat! Ffs! Even my husband is scared of him 😂 I bet your upper arm strength is great too!

Me neither! I will just wait it out now 😂😂

Oh both my boys have meltdowns throw things pick up what evers around them headbut things and once one is in a meltdown the other shortly follows as he's been hit with something 😳 I'm forever tiptoeing around them for an easy day.. and my older one is non stop aswell he's waiting for adhd assessment.. my little girl though she's 9 nothing wrong with her bless her she stays in her room alot away from them it's not nice really but we have little make overs and our time when they finally drop tired.. might only get half hour but she's greatful x

this is like a replay of my life my younger rules all of our lives including her older sisters she also just stays in her room it just adds to the mum guilt basket too! 🫣 even when my daughter finally goes to sleep I then can’t sleep feeling like the worst mum in the world lol x

not seen many awards today I feel like yesterday they was on a roll hopefully we see some more throughout the day x

It's awful isn't it you so busy with others you feel like you forget the older one but we try.. my oldest one is going through stages he was a cat few months back but now he acts like a baby but then he snaps out of it and is normal.. when hes dad comes home weekends he sniffs and licks him like a dog😳.. I'm still learning as I go along with how to help and what to try but I wish he went back to the cat stage was easier lol xx

Scan date 26/02/2024 - just now received a text to say we have been awarded at 11.11am.

It states not to call but obviously I'm now on hold to find out rates 🤞🏻

Congratulations 🎊 👏🏼

that made me laugh! my older daughter (11 now) was the exact same when younger, she was a cat! she hissed and meowed at everybody, even if anybody spoke to her she would respond in cat 🫣 she is completely human now thank god and giggles about it 😂

Some of the things he does is funny and I shouldn't laugh but if I don't ill cry.. it's totally mad.. he would lick his hand and them wipe his head and meow.. now he acts like a baby though.. can be doing something then he just changes lol.. I'm glad your daughter is normal now gives me hope he snaps out of it haha x

Yep my youngest takes all our time. Every night I say to myself I must make more effort tomorrow but it’s so hard. My patience is so thin too. But I’m doing my absolute best and he’s happy, it’s all we can do x

11:11 🥰

That’s how I’ve got through my life so far I have to laugh or I will breakdown 😂 I thought it was never going to end at one point my daughter was honestly the same until about 9 then she just all of a sudden got so old I used to feel my face burning up going red because the cat would make an appearance at the worst of times! 🫣

Yeah we do our best we not got instructions on this I'm afraid so we just have to figure things out.. I read tips people try on Google but every child is different what works for one doesn't for the other.. I'm just so glad both my boys are similar so I no what I'm dealing with and slowly finding things that work.. it's like an episode of tom jerry and the dog cartoon in this house never a dull moment morning noon and night I survive on red bull and coffee.. but atleast we not a boring strict family it's always full of fun 🤣🫣 xx