DLA WAIT TIMES THREAD 46

[Matilde08]

🤞🏻🤞🏻🤞🏻

Hi ladies does anyone know if you get HRC, do you automatically get the higher rate carers element on UC?

I wholeheartedly agree with this, some people are far too quick to judge others.
The phrase 'Be Kind" seems to have been forgotten by many
Not everyone's struggles are the same or outwardly visible. Many mask so well you'd never know what really goes on behind closed doors in their safe space!
We are all in this together for our own reasons and everyone's struggles are very real to them.
Medication or not diagnosis or not. We should all respect each other and our individual fights for our childrens well-being.

very True

Has anyone with SD 26/02 been awarded yet?

my scan date was 15th February and was awarded last Wednesday. Money went in today!

I'm.scan date 6/03 and got the "we're still looking ..." text yesterday afternoon. How long does it generally take after that? I'm so done with all the waiting now 🙄

Good luck for today everyone, hope everyone gets good news xx

Me, same scan date. Just finished on the phone and we’ve been awarded until Feb 2026.

I’ve been waiting since 20th may

Thanks and congratulations!
I may call later today, the anxiety is too much! I'm convinced we will be refused as my DD is almost 16 and this is a first claim, I was in denial for far too long about her problems even after taking her out of school back in feb 2022. 🤞🏼

Scan date 20/02
Just called and was told its still with the decision maker but should hopefully be done this week.
He said I can see you're calling quite frequently if you want to continue to do so that's fine or you can wait for your letter which should be about 2-3 weeks time.
Didn't realise they can see how many times you call 🙈😂

My son is the same. I tried lots of alternatives for helping my 5yr old get to sleep. What he has at the moment that’s helping him is a mood light humidifier with lavender essential oil in it. It has a Bluetooth speaker to play white noise, bed time stories, songs etc. Every child is different and that works for him at the moment. He has been eligible since he was 9 months old because he lost his eye sight during Covid from an eye infection, because no one could get seen he didn’t get treatment properly and the infection ate around his eye leaving a hole in the back of his eye, he is visually impaired in the other eye but can see through it with glasses on. My son is also partially verbal, but I only applied for it this year. It just seems like some people hear about DLA and try and claim for it as young as possible. I waited till we had the autism assessment and formally diagnosed, also letters from the hospital show he has appointments every 6 weeks for his eyes. I can see why they are cracking down on the fraudulent cases. Wishing you and your son all best and happiness and luck in the world x

Oh my gosh, that must of been horrific for both her and you, bless her heart. So glad she is getting some sort of sleep now. ❤️

I know someone that has melatonin prescribed but don’t give it to their kid just to show they are on it for DLA, honestly there are people out there like that.

I don't think it's aimed at anyone on here.. think it's Facebook.. I believe everyone on here are nice and genuine but Facebook is a different story that's why I don't use social media it's just a load of crap and fake people.. we're this thread is actually genuine people trying to help each other out and get us through the dreadful wait xx

I'm not on uc but I think you do

Hiya all good luck for today I've called this morning and was told should be with decision maker in next couple of days and decision in couple weeks sd 8/3

Yes you do but you have to notify them your award and depending on ur job centre can take weeks or with my first dla claim for my elder son it was done in 1 day but I think I just got lucky

And yes people do abuse dla, my nephews ex has melatonin for her son even though he don't need it she's got an older child's pushchair even though he don't need that and she's made out things about him that he hasn't got.. she's vile he's a lovely little boy when I see him with me my nephew and yes he as got autism but sleeps no problems and walks no problems.. she must just see pound signs when she looks at him.. honestly some people don't deserve the title mother

Oh yeah I've seen people saying you write in your journal when you get your award and it goes from there

I can imagine not everybody is genuine unfortunately, it’s crazy to think people would lie about the struggles we go through in real life I wouldn’t wish it on my worse enemy no amount of money could solve how much we have to see our little ones struggle throughout life 😔 this is why I stay clear from Facebook, on here is honest and genuine without judgment it’s a godsend for some of us 🙏🏼 xx

It not aimed on anyone one here purely Facebook, thats why i posted on here to get your views as i know most here are honest and you can talk to them as i couldnt get my head around why people were so fixed on it to the point of asking for tips to buy it online or get prescription online, another woman was pissed off she couldnt add it to her claim straight away as a coc and others were asking if it gives them night time needs for dla.

They do lie though and that's my point as I don't see why. I know someone who gave it all their kids even though they didn't need it so they could put it on the dla form and have night time needs. I said I know not everyone does it but there are people who do it and I didn't get the huge fixation on it because it doesn't keep your child asleep, just helps settle of you're lucky, I'm looking into alternatives to get my son off it as previously stated it's stopped working for him again

That's an idea im going to try one of those humidifiers now you've mentioned one does it help?

People do use benefits to their advantage which is wrong as some of the stuff I've been through as a mother and our family go through with meltdowns I wouldn't wish on my worse enemy and to sit there at night wondering what you've done wrong that day or why you're not a good mother when your sons telling you to die and they hate you no amount of money makes that's better, especially when you know they can't help it and don't mean it, they just can't regulate feelings.

Thank you and same to you, hopefully good times always outweigh the bad x

I no I hate Facebook it's full of idiots and your right I wouldn't wish the struggles I deal with on anyone.. it's not nice and I did hold out for a while before claiming even though doctors school and others were saying claim.. I told them it's not about money I'd rather have the help he needs, but time as went on other son is the same and it's getting expensive to replace the things they smashed the bedding and mattresses we go through as once the wee smell hits them you can't get rid.. the amount of waterproof sheets pillows etc I've went through they don't last forever then there's shoes and clothes they don't last a month one toe walks and the other dargs hes feet along while walking so they end up with no fronts in shoes they even managed to get no fronts on the special shoes you get ones that are meant to be strong😳.. among other things it's very very frustration and expensive theb you go out places they have meltdowns people stare at you thinking bad mother horrible child they don't no reasons or anything but why people make out that they live like this is beyond me they should be greatful their child is healthy.. but the money I receive goes In a bank and at the minute I'm not struggling so don't use it but times change so quickly so you never no when that time will come.. if any is still there once they hit adults they will get it split between them to help live in the crazy world we're in xx

No I completely understand what your saying you did mention people was filling in others forms etc. which is awful while genuine people are struggling, just thought some people on here could think it was aimed at them (we are all exhausted mentally and physically things could be taken wrong); I just wanted to reassure that wasn’t the case with all us on here 🙂 I didn’t want to single you out or make you feel bad that’s why I didn’t quote you I completely believe what you said is true
just not about us on here x