Hi all,
I applied for DLA for my 4yo son at the end of October due to bowel incontinence. I stupidly didn't get help with the form but sent in plenty of evidence from consultant, nursery and gp. The decision came back that he didn't qualify and the reasons were that he doesn't have a diagnosis and that some 4 year olds aren't potty trained. I was so upset by this because a diagnosis isn't needed for DLA. My son has had surgeries to remove bowel blockages, he's had botox under GA, he has to gave enemas every night and other medication that keeps myself and DP up during the night due to their effects (mainly vomiting). I won't go into too much detail here but I am on a waiting list to go back to his consultant following trying botox which hasn't worked but it's taking longer than anticipated. I have contacted his assistant and the gp has reached out too but we are still waiting. This appointment should have been in December.
The nursery manager ha written quite a lengthy letter explaining his issues in specific detail so I'm hoping this will be enough to have the decision overturned at MR.
They received the information on 28th March, I've been given different timescales, the latest being 15 weeks so I have another month to go but it's all I can think about. Is anyone else waiting for MR?
I don't even know what happens next if we are told no again.