DLA WAIT TIMES THREAD 45

[Matilde08]

💗🤞🏻💐

The lady who called me 2 weeks ago and promised to chase Blackpool and said any pension or benefit from other country needs additional checks even though it doesn't have any involvement in child's disabilities. They are waiting for some kind of advice or confirmation before making decisions and payments going out. But then I have a question what they did with my boys case all those 20 weeks before I started to call them. I even had a call from them on March to explain that pension. From the calls I got I have that feeling they just started to work on my boys claim only when I started to call them, that's why there's such a delay.

@Matilde08 get your complaint sent off ASAP, I feel awful for what they're putting you through! Do they not understand how long you've already waited and how badly it's affecting you being told to wait again? It's easy for them to say they're trying to sort it ASAP but they're not trying hard enough! I could just give you a big hug, you don't deserve to be messed around you've waited and been patient for so long and they've took the absolute pi*s.

@Crazyhouse4

Yes i think I did 🙈

I'm on a facebook page and everyone there seems
to be told 20 weeks too.

He did say if it's sooner than 20 weeks I would see the payment go in quicker than the letter. I asked for a text message once I have a decision

But no doubt i'll call again next week because I have no patience

Honestly I'm so traumatised by those calls that I don't believe to anyone there and it upsets me to chase them.

Hi I emailed them as I have the email address and they told me my little boys referal was excepted then they send out a letter to xx

@Ljstar @BlueyMama with this call I actually hoped to be connected with THE ONES who's working with the case, but they asked the guy to pass me all the information. If they would really care about my boys case, they would worked on it ages ago, not only when I'm starting to chase them. Even now how dare they to ask me just keep waiting.. maybe I should start to chase Blackpool myself if there's an option

So I caved and called again! For my sons claim 15/02 a decision has been made on 3/6 but she wouldn't tell me if it was yes or no 🫤
To wait for a letter in 10 working days!
Don't know if its made me feel better or worse!
But positive post for others around the same scan date! Fingers crossed everyone hears soon 🫶🏻

I would ring back and hope you get a different person ,, some call handlers will tell you others won’t for some reason xx

Apologies if not the correct area and please feel free to move.

I received a statement of reasons for COC refusal today and whilst it's quite vague, I'd like your thoughts on some of the reasons.

They're saying the medical evidence does not suggest a significant change of circumstances but, does additional care needs always have to arise from a medical point of view? ... our childs additional care needs have come about through trauma from the events of a crime. This crime is documented with the Police and details have been provided to the DLA and we also have a report from a developmental paedietrician which highlights what has happened to them.

In the letter, they say that sleepwalking in children is not uncommon and safety measures can be considered to help keep them safe. It doesn't suggest what safety measures could be put in place - surely they're not suggesting tying them down to the bed or fitting a lock to the door?

They suggest that bed wetting can be managed effectively with the use of aids. Again, it doesn't suggest what aids could be used - are they suggesting nappies (or similar) and leave them in a wet nappy all night?

The letter highlights some observations from a developmental paedietrician report that we have and mentions that the report states that the child is well behaved most of the time. I'm unsure at to what point they're trying to prove by highlighting this as I can't see how a childs behavior can be closely linked to their care needs.

I'm about to do my MR so I just want to be armed with all the correct rebuttal information that I can be.

Thank you.

Oh @Matilde08. I cannot believe how long they are taking with your claim. Maybe there's a way you can call Blackpool and find out why it's taking so long! There doesn't seem to be any compassion towards your little lads needs and your mental health.
Definitely get that complaint in, enough is enough now. I have everything crossed for you to get your award soon. Sending positive vibes my lovely x

😂 I know what you mean, I’m so impatient too, I will probably call again on Friday. I don’t understand how the wait times can go from 15-16 weeks last week to 20 weeks this week 😵‍💫 that’s a big jump in wait times, and it’s been so quiet this week too

Do all referrals go to the same people? How would I go about finding out where my son’s has gone? How to contact them?
I really could do with an update as to what’s happening x

@Emma2345
Do you think? I was going to wait until tomorrow! But shocked she wouldn't say, but she did say before she told me what's the name of the bank your dla payments will go into to? So I don't know if that was slip of the tongue or me being hopeful 😂😂.... I will let you know if I call back as I'm out with the babies atm ☺️

Hi hun what part of I’m do u live I do believe they all go to the same place but I don’t want to be wrong this is the email I used to query my child’s referal update ,,, I just wrote the child’s name in the subject box then wrote child’s full name date of birth and NHS number if you have it to hand and just put my child was referred to this services for an assessment of autism I have not yet received anything back since the referal has been sent I would just like an update to see weather the referal was accepted and if so could you please send me this via email or out in the post of acceptance it’s much appreciated then your name and in brackets I also put my child’s name Again let me just look for the email and I will send it to you x

I called when i first sent my forms on 14)05 and they told me 20 weeks back then xx

Thank you ✨️ that's what I said to this guy that it has affected and affecting me mentally sooo much. It should be treated with a bit more compassion as it's not only about his needs but personal loss what includes trauma, loads of triggers. Sorry, but there's no excuse now. When the case manager told me six weeks ago to give them another max 6 weeks to sort this out, I couldn't imagine to be exactly where I was back then. Still asked to wait...

I called up within the last hour. My scan date was the 15/2 and my application was declined. The lady was lovely and listed the reasons from the notes over the telephone. This will be followed up with a letter from them again outlining the reasons.
I'm not to surprised, my sons illness isn't classed as a disability even though it impacts the entire household and how his normal childhood should be.
I dont think I'll bother following up with an MR as I don't actually have the fight in me. I save that for his doctors!

oh yeah that sounds like probably an award and yes I would definitely ring back 🤣🤣 xx

I’ve called a few times for my 16/2 claim and never been told 20 weeks, the most I’ve been told is 17 weeks. My youngest daughters scan date is 21/5 and I think that’s going to be a long wait, they had a back log just scanning on new claims so must be busy

I would definitely call back you’ve waited long enough for a decision they can’t expect you to wait even longer to receive a letter, hoping you receive some positive news, keep us posted 🤞

Hey all. Scan date 21/02. Anyone heard anything from around this date?

I got a letter today scan date 17/05 this is going to be a very long 15 weeks or more

I'm really sorry, that must be incredibly frustrating for you!

I do understand not wanting to do a MR, as it is so so draining and I would absolutely be feeling the same way.

One thing I will say is, I have been told most MR do get overturned. So it might be worth not making a final decision just yet ❤️

A few of us are 14/15/16 and still waiting but there have been a few that have had responses today.

l have been told today it's taking up to 20 weeks and there is a current back log

Definitely call back.

it's ridiculous asking you to wait for a letter when lots of other people get told their award over the phone.

why is there so much inconsistency within the DLA? it's bizarre