Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIMES THREAD 44

932 replies

Kla1913 · 23/05/2024 18:42

making a new thread ✨️

OP posts:
Thread gallery
13
Matilde08 · 31/05/2024 14:10

Calling again and can't stop cry as this whole never-ending waiting makes me miserable and the simple call makes me super anxious 😪

Ljstar · 31/05/2024 14:21

@Crazyhouse4

I just received a text message saying they are looking at my claim and that I do not need to call 😫

Have you received this message?

Crazyhouse4 · 31/05/2024 14:25

Ljstar · 31/05/2024 14:21

@Crazyhouse4

I just received a text message saying they are looking at my claim and that I do not need to call 😫

Have you received this message?

I just got the text too, I was hoping it was the decision text, it shouldn’t be long now 🤞

sjm100 · 31/05/2024 14:28

Rachfrank · 31/05/2024 14:10

Mine was a full decline even though it shouldn't off been but they changed to hrc and lrm with the MR I sent supporting letters and asd Adhd refferalls and my son required emergency dentist on Wednesday morning so added that to the priority Wednesday and awarded today xx

Mine was a full decline too also for asd and adhd but I've had trouble getting my daughter past the triage stage because school don't support my claims as she masks extremely well during school and saves her meltdowns for when she's safe at home. your award gives me hope x

Ljstar · 31/05/2024 14:30

@Crazyhouse4

Fingers crossed!! The not knowing is so hard isn't it.

I'm not going to bother sending a sleep diary if it's being looked at already. It might just delay things

Keeping everything crossed for you to get the outcome you need ❤️

Rachfrank · 31/05/2024 14:31

We didnt send any proof from school other than stating his been placed on 1-1 learning but they haven't contacted the school to verfiy our gp done our refferalls as he doesn't sleep and causing injuries from his behaviour, have you rang and seen if with a dm yet if not ask for priority xx

OneTiredMumma84 · 31/05/2024 14:33

Matilde08 · 31/05/2024 14:10

Calling again and can't stop cry as this whole never-ending waiting makes me miserable and the simple call makes me super anxious 😪

Tell them this is effecting your mental health and bringing up trauma that doesn’t need revisiting! I have everything crossed for you lovely x x

DoctorWhoScarf · 31/05/2024 14:34

Scan date 8/2/24.
Awarded middle rate care and low rate mobility for my 7yo (diagnosed ASD, possible ADHD). Received letter today, 31/5/24.
I’m so pleased. It will make a huge difference to her life.
I hope everyone else who is still waiting gets awarded soon. This wait has been so hard especially as it’s come at the same time as the migration notice from tax credit to universal credits. Very stressful. I hope it’s not much longer for others. X

Matilde08 · 31/05/2024 14:37

OneTiredMumma84 · 31/05/2024 14:33

Tell them this is effecting your mental health and bringing up trauma that doesn’t need revisiting! I have everything crossed for you lovely x x

Thank you. Still on hold 📞
I will tell them that it has started to affect my own health. All this unknowing and waiting.. I have one of those days when I just simply feel sad and life seems to be too much. Even if I have managed to move on with my life it's extremely challenging and hard sometimes. I wouldn't wish to anyone 😪

Crazyhouse4 · 31/05/2024 14:40

Ljstar · 31/05/2024 14:30

@Crazyhouse4

Fingers crossed!! The not knowing is so hard isn't it.

I'm not going to bother sending a sleep diary if it's being looked at already. It might just delay things

Keeping everything crossed for you to get the outcome you need ❤️

It’s so much harder when you hit 15 weeks and you know the decision could be anytime 😵‍💫 I’m going to hold off calling til Tuesday, hopefully there will be a decision by then. Good luck to you and your child I hope you get the award your hoping for 🤞 please keep me updated, I should be just after you hear your decision

Matilde08 · 31/05/2024 14:46

Great ...After 50 min hold I have been cut off 😔 Do I have to take it like a sign or call again😪

BlueyMama · 31/05/2024 14:48

Claire11031982 · 31/05/2024 10:52

I kept seeing all these Feb and march awards so I thought sod it I will ring....so pleased I did 😀 the bloke was lovely aswell

That's the exact same reason why I did it, and the guy I had was really nice too, wonder if we had the same person? Xxx

Crazyhouse4 · 31/05/2024 14:51

sambel · 31/05/2024 13:51

@Crazyhouse4 I was miss in formed and my scan date is the 28/2 not 15/2 so I'm not very happy, but the woman was very apologetic and asked me if I wanted to be texted when awarded. So just gotta keep my eye out for that text in the next few weeks xx

What! How can they mix up everything they have said to you so much today, I wouldn’t be happy either! Hopefully it won’t be to much longer 🤞

BlueyMama · 31/05/2024 14:54

Matilde08 · 31/05/2024 14:46

Great ...After 50 min hold I have been cut off 😔 Do I have to take it like a sign or call again😪

Sending virtual hugs your way!!
You could phone again but have your phone on loud speaker while keeping yourself occupied? 50 mins wait to be hung up on though, I completely understand you're frustration, you just need an answer !
I'd definitely be telling them how this is affecting your mental health, it's not on!! Xxx

sjm100 · 31/05/2024 15:04

Rachfrank · 31/05/2024 14:31

We didnt send any proof from school other than stating his been placed on 1-1 learning but they haven't contacted the school to verfiy our gp done our refferalls as he doesn't sleep and causing injuries from his behaviour, have you rang and seen if with a dm yet if not ask for priority xx

I won't qualify for priority, I have one teacher in school that supports us but the head who dla contacted told dla that the school has no concerns for her and whilst she has extra time for exams no other extra support is given to her so we were basically told by dla there is no professional person who supports my claims and we were declined. She is now in therapy with camhs who is now leading the referral onto the asd pathway, I sent the letter confirming therapy and my requests for help with her at home as extra evidence, I'm still not confident but we will see.

Fee89 · 31/05/2024 15:06

@Matilde08 Call again. 🙏 sending positive vibes xxx

Matilde08 · 31/05/2024 15:07

Fee89 · 31/05/2024 15:06

@Matilde08 Call again. 🙏 sending positive vibes xxx

On hold again 📞 thank you 💗

MumOf6Beauts · 31/05/2024 15:08

Ljstar · 31/05/2024 14:21

@Crazyhouse4

I just received a text message saying they are looking at my claim and that I do not need to call 😫

Have you received this message?

I Have Recieved The Text Too! Unsure If It's For My Daughters MR Though Or My Sons New Claim!
Rang Today Was Told My Daughters MR 20/03 - Was Being Looked At Now With A Decision Maker, And My Sons Shouldn't Be Much Longer (15/02) Smile

Matilde08 · 31/05/2024 15:09

BlueyMama · 31/05/2024 14:54

Sending virtual hugs your way!!
You could phone again but have your phone on loud speaker while keeping yourself occupied? 50 mins wait to be hung up on though, I completely understand you're frustration, you just need an answer !
I'd definitely be telling them how this is affecting your mental health, it's not on!! Xxx

Thank you 💐💗 Stepping into 28th week soon. I need an answer 😪

ArtfulJoker · 31/05/2024 15:20

Rachfrank · 31/05/2024 14:10

Mine was a full decline even though it shouldn't off been but they changed to hrc and lrm with the MR I sent supporting letters and asd Adhd refferalls and my son required emergency dentist on Wednesday morning so added that to the priority Wednesday and awarded today xx

Can I ask how you did this? My daughter has just bitten a step during a meltdown and snapped her front tooth in half I’ve been referred to a specialist dentist previous to this incident but still haven’t heard back?

Rachfrank · 31/05/2024 15:25

If you mean the emergency dentist I contacted my dentist who got me to be seen at the dental hospital I then rang dla explained what had happened and they added to his notes x

Claire11031982 · 31/05/2024 15:41

BlueyMama · 31/05/2024 14:48

That's the exact same reason why I did it, and the guy I had was really nice too, wonder if we had the same person? Xxx

If I remember rightly he said Charlie 🤔 but he was so nice....he was like Good News....gave me rate, when his back pay would be in, when my 1st payment day would be & how much! He should be training others x

Claire11031982 · 31/05/2024 15:43

Matilde08 · 31/05/2024 15:07

On hold again 📞 thank you 💗

I so hope it's good news for you! Sending loads of positivity your way ❣️ x

Matilde08 · 31/05/2024 15:44

Claire11031982 · 31/05/2024 15:43

I so hope it's good news for you! Sending loads of positivity your way ❣️ x

Thank you... nearly an hour on hold 📞🙃

OneTiredMumma84 · 31/05/2024 15:53

Matilde08 · 31/05/2024 15:44

Thank you... nearly an hour on hold 📞🙃

Edited

You got this 💜 x