DLA WAIT TIMES THREAD 44

[Kla1913]

making a new thread ✨️

I think you can do a MR on the phone from what I have read

It can take a long time to be considered so it would be a good idea to start the process as soon as you can

Hi I phoned up today scan date 15/2 the guy on the phone told me she had been accepted for DLA and backpay will be from the 9th of jan when I phoned for forms, he then went to speak to someone else to be told the forms are in a holding Que and will take upto 2 weeks for a descion but surely he can't tell me she's been accepted then tell me she hasn't yet? Anyone else had this problem

Def call back and question what you were told xx

I even asked him are you sure twice and he said yes, I will now call back and see what else I get told xx

Hi does anyone know how long UC is taking at approving disabled child element back pay?
I’ve been waiting 2 months and they said it’s still with a decision maker

Oh no really?!!! I told them on Weds last week and have called and left a note on my journal. Are you at least receiving the disabled child element to your UC claim? x

@Kita86 from what you have wrote, mrc is correct award, if you didn't send in night notes the dla will assume no night care needs
Be very careful now saying there is night needs my friend did this and they had their entire award took away
I'm sure she got investigated for fraud

I know they are clamping down on fraud claims that's why evidence from professionals is so important xx

I know it's totally irrelevant to this thread but have a look at this https://www.mumsnet.com/talk/am_i_being_unreasonable/5086072-aibu-for-not-letting-an-autistic-child-jump-the-queue?page=22&reply=135665129

Oh my gosh thats horrible 😔. I hope she wasnt actually doing fraud lol. The Dla form is so scary for some people that they freeze and forget half off what they want to get across 😬 x

@Fee89 yes!! Serves her right doesnt it. Completely agree with you, the forms are a horrible xx
@Kita86 Fee is your person for Mr, I don't want to scare you at all x I don't want you losing what you deserve for your child xx

Your scan date is the day before me, I don’t think you will have time to send in extra evidence because we should hear in the next week, some call handlers just say 20 weeks to stop us calling again, but mine is with DM too so we should hear pretty soon, I find calling in the morning they will only tell you a decision if it’s been made the day before, if you called later in the day there is a longer wait on the phone but it gives them time to look at it that day, good luck, keep me posted if you hear anything 🤞

I wonder if they’ve just done it and not all the information is on there system yet?

I kept seeing all these Feb and march awards so I thought sod it I will ring....so pleased I did 😀 the bloke was lovely aswell

Yes 100% serves her right. Wish it would happen more often 😤. It then has a neg effect on children that actually need it xx

Yeah I wrote he’s awake till early hours and waking up during night I just didn’t do a night diary for week he fell from kitchen side had to go hospital for stitches I wrote all that down x might leave it till 2025 when he’s at a special school x

@Fee89 @OneTiredMumma84 @Kla1913 I guess I will have to get that courage and call them later today again 🤞🏻Have called them every Thursday since middle of April. Do I have to choose same '523' when calling?

@Kita86 ask gp for his hospital notes and MR you didn't send night dairy due to hospitalisation xx

Mr. Start by phone call. Then write a detailed example of a night you have and the effects it has. I would suggest doing it now as they will ignore again on next review. Think of the worst of the worst and write that down, then an okay night so they can see a varied night for you both. Example me last night. I woke to go toilet noticed Freya bloods were dropping at 12.50am. I stayed awake and kept checking for 10mins. At 1am i then came down and grabbed an orange juice and straw. I then went and woke Freya but she was so tired i had to 'dream feed' her. This was sitting her up with my hand supports behing her head. I then popped straw to her mouth and gave instruction to drink. It took Freya 15 mins to drink half the orange juice. This then took me to 1.20am. I laid Freya down and sat next to her to monitor her bloods. Her blood levels were 3.7. It took 45 mins for her bloods to rise to 5.5. During the 45 mins i have to stay awake and every 15 mins check her blood levels and ask if she is okay which means waking her every 15 mins. At 2.05am i went back to bed and waited 15 mins to check she was stable then at 2.20am i then started to settle back in bed. Hope that makes sense xx

Yeah same options 🥰 xx

Time to be on hold for ages again...

Rang Wednesday asked for priority, rang yesterday no update and told to call today hoping it's been put to a dm

Oh no thats scary! Just to jump on, ive just done an mr highlighting my sons night needs and also some other day time needs i think they missed.

I did provide my sons feeding plan from the dietician that shows him being tube fed at 11pm but explained that as he cant cope with the volume of feed i have to split it in 2 and feed him at 1am also... but the plan only states 11pm as the latest. Got me worrying now 😫

Thank you for your help 😊

So they telling me a decision has been made but won't tell me over phone does that mean declined?? Stressing now

Ring and do options 523 they can tell you x

She has said a decision has been made and I will receive letter within 10days but won't tell me the decision