DLA WAIT TIME THREAD 42

[Tracy37x]

DLA wait time thread 42

@Fee89 to be honest I'm too scared to ask, in my head if its another decline (which I think it might be) I feel it will be even harder to claim PIP for her. She is under CAMHS for emotional and wellbeing / anxiety support and her therapist is leading the referral for ASD/ADHD assessment I've been trying for 3 years to get her on the pathway but school have basically told everyone that she is a normal child who receives no other support apart from extra time in her exams, and that is the reason that DLA was declines in the first place, she is doing ok (masking well) in school and is not a trouble maker so she's not even on their radar and what is more annoying is the person who DLA spoke to has not even had a conversation with my child during this whole school year, not once. My niece has the same issues had receives DLA HRC and has been extended til she's 17 while she applies for PIP, this process is soul destroying!

Rang back today, was told a decision has been made but they can't discuss it with me & all the information will be enclosed in the paperwork which will take up to 2 weeks

Pip is so much easier than dla. My eldest went from middle care and low mobility to high on both from pip. When applying or sending extra info send a asd fact sheet on masking in girls if you can find one. It just then reminds them that masking is a true thing. Both my girls masked it then became too hard for them.

Go through spoke to Kayleigh but all she could say was it was being reviewed at the moment and call back June 10th arghhhh

@Purplepinapple3 Hopefully you will hear beginning of next week. I doubt it will take till 10th June at all.

I hope so it’s driving me mad xx

@Fee89 my daughter was declined the MR was for them to re look not convinced they actually looked at any off the evidence that was sent in going by the letter off reasons 🤦‍♀️

Parking!!!!

SD 27.02

Hopefully a few weeks but gonna guess it won't be till July 🤦🏻‍♀️

@Fee89 With my MR I wrote a letter saying that my daughter basically wouldn't get through the day if I didn't do the things I did for her, I mean in the past I've handed her medication and a drink for her to take and when next dose was due she hadn't even taken the earlier dose, and that its well documented that girls mask in social settings, the problem is that most people who answer the phone are less than useless and I don't think they'd be able to help me, and now they've changed the PIP process, can't just ring up for the forms now have to go through a telephone assessment and I don't think she'd be able to do that, my niece had to do this and when my SIL was helping her with answers the caller was telling my SIL that my niece had to do this by herself. I can't see her doing that, and the thought of her struggling stresses me out so at the moment I've just put it to the back of my mind until I hear about the DLA. xx

I got awarded high rate and low mobility and my daughter has autism and suspected adhd if this helps anyone❤️ It’s not impossible to get the high rate for children with autism they do listen ! X

call back, they updated mine very quickly I wasn’t suppose to hear back until Monday and it came early! Honestly our children deserve this so don’t feel like you should wait to call them it may give them a kick up the ass x

Called for an update just now got straight through as apparently I can’t help myself 🤣 was with DM Tuesday and is still with them now….should be done by next Friday we’ll least theyve both told me the same which is reassuring x

i did ring yesterday it will be 15 weeks tuesday coming, and she just said it was with a DM

when was your scan date lovely?? xx

My scan date was 14/02, I called them and said I need to pay for her extra support classes but I can’t afford it and they moved it as priority yesterday afternoon and was with decision maker this morning and got a answer within 30 minutes of it being with her x

I wouldn’t know what to say though my little boy has hearing loss and needs SALT every 2 weeks he wears hearing aids but also suffers with his speech he was also born with a cleft lip and palate xx

Congratulations what a relief for you and your daughter. Can I ask how they told you so quickly? Did you get a text or DM call you up? Thanks

I don’t know if anyone will know this answer but my scan date is the 22/1 and I have recently separated from partner on 3/5 so I am wondering if she gets awarded will they back pay until scan date as it’s now a single claim? Everything is stressing me out x

Following.. I have just made an account on here as have been looking at updates on these threads and everyone is so supportive. My scan date is 6th Feb. Good luck everyone still waiting! it is certainly a anxious time all this waiting. I called today and was surprised to get straight through! But then the man at the other end of the phone wouldn't even take my references number and said call back in 3/4 weeks!

So happy. Renewal was due and he's gone from Middle rate to HRC LRM! Backpay issues yesterday.
I already have 1 child on HRC and LRM does anyone know if Uc will backdate too now to the scan date? I didnt ask the lady the dates to update uc I was too excited!
Scan date was around 8/2/24 x

ive just called as im receiving some more evidence in the post and she said you do have until june to do this so i said well it may not come for another few days and she said someone is actually looking at it at the moment if you want to send it make sure its by special or recorded also if you can get it sooner then great.. fingers crossed! x

With my eldest I was sent a letter asking if I wanted to be her appointee obviously it's different as she was already on dla but maybe you can call and ask for the form
I'm waiting on a dla claim for my youngest at the moment recently diognosed with adha and swapping my eldest to pip only on week 7 for dla and send my daughters form of a week ago for pip I'm dreading it as she's no longer on meds for her adhd as she refuses to take them so doesn't see any health care professionals
She has pica as well which costs us a fortune to cover the things she eats constantly

@Crystalsangel08 my SIL was appointee for my niece and my niece still had to answer all the questions, with the changes to PIP in March this year I can't even download the forms, my daughter has to ring up answer the questions and then they decide from that if she can apply for PIP, but she can't do that until next sat after she's turned 16 xx

I was allowed to answer for my daughter they never even spoke to her 🤔 seems they make up the rules as they go
she turned 16 on 27th of March this year
The having to wait to 16 is a ball ache and the forms takes forever to come plus you only get a month to get them back
I had to call up after 2 weeks to ask for them again to which they granted me an extension of 2 more weeks like it was my fault I didn't return them

I’m on hold a Decision has been made but system has not been updated yet so I asked to be transferred to someone who can tell me. Pray for an award xx

what scan date is yours please :) good luck and fingers crossed xx