DLA WAIT TIME THREAD 42

[Tracy37x]

DLA wait time thread 42

Her scan is 22/01.

@Purplepinapple3 oh that’s fantastic news! Congratulations 🌺
Do you think this is because you put financial hardship or regular waiting?

@Purplepinapple3 i read that wrong, hope it is an award bless you!

She was awarded this morning so first call handler didn’t even check! So make sure you push ladies. She gets hrc and lrm.

scan date 22/1 went to a decision maker 7/1.

I can thank God this wait is finally over, I wish you all luck for all that are waiting and I will pray for positive decisions for all. Xxx

so happy for you! Congratulations 🌺

I called this morning and said how long until a decision is made and they spoke to the DM and came back to me and said I should have a answer before 12 and I did they texted me saying my child qualifies for the disability living allowance and I called straight away and asked for the rates and the back payment x

Hopefully you won’t be waiting long xx

yaaay, congratulations. So glad you got your decision. Did they say when you will receive backdate? I didn’t ask

happy for you also! They said will be from Wednesday to Friday so not sure xx

Thank you 🫂♥️

Thanks for asking...long day here, but appointment went well.. obviously his height and weight is below. He will turn 9 in two weeks, but looks like 6..7 y old one.. but here's improvement in his eating as he at least trying new products. They prescribed special milkshakes to try, fingers crossed he will like them.

I got my letter stating my claim was received 8th March a couple of days ago. Today I received the ‘about your claim’, we’re dealing with it don’t contact us’ letter 😁

I think it’s hopefully a sign they have more staff and are catching up with the backlog

Congratulations to all who have been awarded 🎉🎊💐

So sorry to hear you have had tough night... hugs to you 🫂 and I hope your MR will be sorted as soon as possible

Congratulations on all the awards!!
I'm feeling very anxious now especially as they seem to be coming up to end of Jan/some Feb dates 😬
I must hold off on calling as it'll just make me worse 🙈

My eldest was like that at her 11ish check for medication review she was 128cm and 26kg
Luckily she hit a growth spurt with pubity ands now 153cm and just under 8st she was 16 at the end of March

@Matilde08 paediasure? Good he is trying new foods 🥰 can be scary for kids. Some people are just tiny. My eldest is 17 & 4ft 11. My other 2 are giants. Are they happy with his progress though? Xx

Huge congratulations to everyone who got their decision ❤️ we hit 15 weeks in Tuesday so hopefully not much longer.....I can't bring myself to call 🫣 I always feel like I'm being annoying... fingers crossed we hear from them soon 🤞

@Fee89 i haven't called, I thought I'd wait it out until Monday and if I don't hear by 3pm like she said to call back again 👀 had to keep soo busy today but now my feet are aching! 😂 xx

Parking 6/3/24

I know I shouldn't compare him to others, but he has 3 older brothers and I can clearly say at the age of 9 they looked taller, bigger.. Anyways, I was relieved to find out it's not just fussy eater thing when we ended up in hospital 2 years ago and suddenly it made sense. At the moment I'm happy..it's under control, regular check ups in hospital..to make sure there's improvement. Sometimes I think it's a complex thing not only his ARFID. He used to like to love to try food from daddy's plate every single day when daddy's back from work.. it was like let's eat together. Then daddy died. So it's a complex thing here not just his autism. Everything just happened all together in the same time..

Glad your appointment went well my daughter is the same can count on my hands how many things she eats still in 4-5 clothes even tho she is 6 and is only 2 stone , her appointment with the doctor to get her referred is next Wednesday hopefully they can help me as I know she has ARFID

A lot of doctors don’t know much about AFRID. She’s been like this since she was 2 and is now 11 was diagnosed start of the year. I saw so many who just said it’s fussy eating. They told me to withhold food she likes as if she’s hungry she will eat. The meltdowns the threat of being hospitalised if she didn’t eat more was traumatic. Told me she has was anorexic aged 9 referred us to a clinic who discharged us and said she definitely wasn’t. None of worked! She didn’t eat a thing and I think personally their advice made it worse as we focused so much on food. I also find for her food isn’t an enjoyment it’s just something she has to do to function. If I don’t remind her it’s a meal time she wouldn’t eat at all. School have to supervise her at lunch to help encourage her to eat. It upsets me so much that as a family we go out for meals and she will just sit there with a bread roll. She will only eats Cheerios, milk, walkers plain crisps, crackers with butter and Oreos. But she eats such a small amount of each. I mean she’s tiny anyway because of the turner syndrome. Which she can start growth hormones for if she wishes. She’s 11 but wears aged 6 clothing. Her 5 year old sister is almost as tall now. Having to get her secondary school uniform tailored as the smallest is massive could get two of her in there. We just make sure she takes all the vitamins and her blood work luckily is good which surprises me as she doesn’t eat meat, veg or fruit!

Aree... loads doesn't even know.
We didn't even know anything about ARFID..till ended up in hospital. That was traumatic for him and me as well. One of the ambulance guy being really strict forced him to eat a toast what he never eats.. loads of crying.. bless him, he tried as he was told otherwise we have to go to hospital. He couldn't recover from stomach bug and stopped to eat even those limited foods, was drastically loosing weight. Sent back from emergency twice, I was scared what's going on. We ended up in hospital and everyone was in shock he's 7 years old as he looked like 5. I explained my fears just to make sure they take it seriously and do all the tests. He's dad died from very aggressive bowel cancer few years prior. It triggered me so much as I thought the worse. He's a spit of my late husband and see him loosing all that weight gave loads of flashbacks. Anyways I'm glad they toke it seriously and we ended up with really nice pediatrician whos actually speeded up all the processes with his autism assessment as well. She showed me all the blood tests results to put my mind at piece that he's OK, but he just has that ARFID and with kids like him the worse thing to do is to force him eat. We can courage to try, but never force as it will make the opposite effect. At this point we already used to and we just accept it how it is. But if honest financially it takes more as sometimes I need to do extra travels to certain shops to by that certain food, certain brand.

Hi, our scan date 12/02/2024. Anyone got awarded around that date ? Thanks and good luck all.