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DLA WAIT TIME THREAD 40

963 replies

Fee89 · 21/04/2024 16:37

DLA WAITING TIME 2024

OP posts:
Kee3k · 24/04/2024 18:05

You no what we should do as a group! Start a petition!!

Clf2024 · 24/04/2024 18:06

Fee89 · 24/04/2024 17:58

ARGHH!!!! Why are we sat here waiting like idiots and listening to their bullshit every day when call handler's are marking a march claim as priority? All our kids are a bloody priority (unless terminally ill child that goes without saying). Seriously so bloody mad. Oct 9th i had to watch my child almost die, discuss if she needed to be put in a coma to give her body a rest. Stay in HDU. Asking me if shes to die would her diabetes go away. Shes fucking 10!!! Yet i couldnt apply for dla for 3 fucking months. Like an idiot i wait then apply in January and so far waiting another 3 months. The whole system is fucked. I'v been so calm and supportive with the wait untill seeing that. I'm done!!!!!!! 😡. Good luck everyone x

i saw that too and honestly it gave me the vibe of maybe they were nagging so the person on the phone marked it or said it was marked as priority. Hoping all of ours come soon but honestly the whole DLA process is in shambles 🙄

Bossofthehouse · 24/04/2024 18:22

@SAM2409 @UmElise thank you both, I’m hoping to get her into a mainstream school, it’s connected to her nursery and my other children go there so I know they will be good with her, I’m just hoping that she is able to start school with the support she needs and being diagnosed, but I’m wondering if I’m being to hopeful because we only have a year and 4 months before she would start primary school, loads of people keep telling me that the paediatrician won’t diagnose her and I will have to wait til she’s 5 to be referred to camhs and that’s a 4 year wait, but nursery has told me to keep pushing with the paediatric appointment because she really needs to be seen and that she needs the help sooner rather than later

Fee89 · 24/04/2024 18:23

TiredTilly · 24/04/2024 18:04

Oh hun I’m so sorry 🙁💔. I can’t imagine what you’ve been through honestly you are such a strong momma 💕
as for those damn call handlers they haven’t got a clue! If they lived a day in our shoes they would have some sympathy and not make us chase around like rats constantly lying to us as if we already don’t have enough to deal with!!
The system needs changing and I think something will be done soon I’ve read they get close to 20,000 applications a month !! They can’t keep up like this.
really hoping you hear something soon xxx

Sorry, just seeing that really pushed my buttons. I get so annoyed when call handlers bullshit everyone. And some have to take action to get things done for our kids. But we wait like everyone else. Sorry i'm struggling to explain what i mean. Just to say im happy for any child getting what they deserve and its aimed at dla that im angry with not that person x

OP posts:
Fee89 · 24/04/2024 18:25

Clf2024 · 24/04/2024 18:06

i saw that too and honestly it gave me the vibe of maybe they were nagging so the person on the phone marked it or said it was marked as priority. Hoping all of ours come soon but honestly the whole DLA process is in shambles 🙄

Edited

Yeah and the post right below that is someone waiting 27 weeks and sent more evidence 😔. Where is their priority x

OP posts:
SAM2409 · 24/04/2024 18:25

Fee89 · 24/04/2024 17:58

ARGHH!!!! Why are we sat here waiting like idiots and listening to their bullshit every day when call handler's are marking a march claim as priority? All our kids are a bloody priority (unless terminally ill child that goes without saying). Seriously so bloody mad. Oct 9th i had to watch my child almost die, discuss if she needed to be put in a coma to give her body a rest. Stay in HDU. Asking me if shes to die would her diabetes go away. Shes fucking 10!!! Yet i couldnt apply for dla for 3 fucking months. Like an idiot i wait then apply in January and so far waiting another 3 months. The whole system is fucked. I'v been so calm and supportive with the wait untill seeing that. I'm done!!!!!!! 😡. Good luck everyone x

so sorry to hear about your daughter, what a horrible experience to go through😖

stick with it cause the end is in reach! You really are so close to a decision now, use this group as support Until your babies get what they deserve! Sending love 💕.

Kee3k · 24/04/2024 18:31

Fee89 · 24/04/2024 18:25

Yeah and the post right below that is someone waiting 27 weeks and sent more evidence 😔. Where is their priority x

Is this post on Facebook?

SAM2409 · 24/04/2024 18:32

@Bossofthehouse . Tbh I had to wait just over a year for my son to even begin the process and that’s after my sons senco contacted them to try and prioritise the assessment.
so it’s another long wait unfortunately:(.

the good thing is you don’t need the diagnosis for an EHCP, so if you think she’s needs one defo get the ball rolling on that, if you haven’t already.

Matilde08 · 24/04/2024 18:34

Fee89 · 24/04/2024 17:58

ARGHH!!!! Why are we sat here waiting like idiots and listening to their bullshit every day when call handler's are marking a march claim as priority? All our kids are a bloody priority (unless terminally ill child that goes without saying). Seriously so bloody mad. Oct 9th i had to watch my child almost die, discuss if she needed to be put in a coma to give her body a rest. Stay in HDU. Asking me if shes to die would her diabetes go away. Shes fucking 10!!! Yet i couldnt apply for dla for 3 fucking months. Like an idiot i wait then apply in January and so far waiting another 3 months. The whole system is fucked. I'v been so calm and supportive with the wait untill seeing that. I'm done!!!!!!! 😡. Good luck everyone x

You have been so supportive, happy for others and patient while you have to go through so much 🫂 sorry to hear that 😔

Ncheetham01 · 24/04/2024 18:35

Waiting1901 · 24/04/2024 14:55

I am so raging have been told scan date 19th Jan on Monday it changed till 15th Jan have been told it's with DM rang today it's not with DM at all girl on phone said it had been flagged on Monday to see why it taking so long that coc should take 10 weeks so prob be waiting a long time yet

I've been holding off calling I sent I coc scan date 16/02 . So If she Said 10 weeks for coc tempted to call see what they say. X

Waiting1901 · 24/04/2024 18:39

Ncheetham01 · 24/04/2024 18:35

I've been holding off calling I sent I coc scan date 16/02 . So If she Said 10 weeks for coc tempted to call see what they say. X

Do ring and let me know how you get on hope yours is sorted for you

Ncheetham01 · 24/04/2024 18:42

Waiting1901 · 24/04/2024 18:39

Do ring and let me know how you get on hope yours is sorted for you

Thank you will call tomorrow need to update bank details anyway.

Emzi538 · 24/04/2024 18:51

@Fee89
I'm so so sorry you have gone through that, my heart broke reading that... I have no words just sending you a huge hug x

Fee89 · 24/04/2024 18:52

Kee3k · 24/04/2024 18:31

Is this post on Facebook?

Yeah xx

OP posts:
Fee89 · 24/04/2024 18:53

Sorry everyone for ranting. Iv calmed down now. Just hate the fact the system is so broken. Think lack of sleep has actually caught up with me. Thank you all for being supportive and not judging while i had that rant 😔💖 xx

OP posts:
Stephy32 · 24/04/2024 19:27

Couldn’t believe it when I got this text today 😭 I’d convinced myself I hadn’t put enough in the form and it was going to be a decline! Well done to everyone else who have been awarded today and for those who have been declined keep fighting!!

DLA WAIT TIME THREAD 40
Jodess · 24/04/2024 19:32

Stephy32 · 24/04/2024 19:27

Couldn’t believe it when I got this text today 😭 I’d convinced myself I hadn’t put enough in the form and it was going to be a decline! Well done to everyone else who have been awarded today and for those who have been declined keep fighting!!

Congratulations!🥰 what was your scan date?x

Jodess · 24/04/2024 19:33

So lovely to see all the awards today, congratulations everyone😘

Fee89 · 24/04/2024 19:33

Stephy32 · 24/04/2024 19:27

Couldn’t believe it when I got this text today 😭 I’d convinced myself I hadn’t put enough in the form and it was going to be a decline! Well done to everyone else who have been awarded today and for those who have been declined keep fighting!!

Congratulations 💝

OP posts:
Jodess · 24/04/2024 19:35

@Fee89 hope you're okay lovely, we're all behind you💗

LancsMcG · 24/04/2024 19:37

@UmElise Do you mind me asking what award you got - our boy is 3 and a half and we've got all the things in place that you have mentioned (except we got a private consultant report whichi identified possible ADHD, FASD, neuro development delay - we were awarded LRC and we put in a MR (19/02) so waiting to hear back.

Fee89 · 24/04/2024 19:40

Jodess · 24/04/2024 19:35

@Fee89 hope you're okay lovely, we're all behind you💗

Thank you. Think id be lost without everyone on here. Just cheered my self up looking at before and after pics, seeing how far she has come 🥰 xx

OP posts:
Jodess · 24/04/2024 19:42

Fee89 · 24/04/2024 19:40

Thank you. Think id be lost without everyone on here. Just cheered my self up looking at before and after pics, seeing how far she has come 🥰 xx

Bless you🥰 its lovely to see when you look back isn't it! But not long now let's hope xx

SAM2409 · 24/04/2024 20:03

Stephy32 · 24/04/2024 19:27

Couldn’t believe it when I got this text today 😭 I’d convinced myself I hadn’t put enough in the form and it was going to be a decline! Well done to everyone else who have been awarded today and for those who have been declined keep fighting!!

Congratulations! 💕 Could imagine the feeling of relief after seeing that text pop up

TiredTilly · 24/04/2024 20:23

Fee89 · 24/04/2024 18:23

Sorry, just seeing that really pushed my buttons. I get so annoyed when call handlers bullshit everyone. And some have to take action to get things done for our kids. But we wait like everyone else. Sorry i'm struggling to explain what i mean. Just to say im happy for any child getting what they deserve and its aimed at dla that im angry with not that person x

You don’t need to explain hun it’s totally understandable. You’ve been keeping up with everybody else on the thread checking in on everyone even with all your dealing with at home. You’ve got a heart of gold 💛
we can be happy for others awards and still be frustrated and sad about our own wait xxx