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Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIME THREAD 37

990 replies

MLW92 · 27/03/2024 20:34

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CornishMama2 · 02/04/2024 10:33

Fee89 · 02/04/2024 10:32

Im unsure though as i thought there would of been the £10 christmas bonus but i cant seem to work out amount for £1516.25 x

Yeah Im thinking MRC and LRM aswell

kristie198 · 02/04/2024 10:54

Emmajm85 · 02/04/2024 09:38

I’ve just called too and still nothing.
im going to leave it now until Friday, because that’s 20 weeks. Then if they still don’t have the NIno I’ll feel I’ve got more room to complain because I’ve waited the full 20 😂
Have you called? @TiredTilly

Edited

I can't believe how long it's taking xx

CuckooMamgu · 02/04/2024 10:56

Thanks everyone, I’m on hold now to find out.

I’m thinking that we wouldn’t qualify for the £10 bonus? My DS is on MRC and LRM and we got his £10 paid at the start of December, so I’m thinking maybe the cut of date for it is 1/12.

sjm100 · 02/04/2024 10:56

just a thought - could it be 15 weeks at old rate and 1 week at new rates for MRC and LRM I work that to be 1526.35

Leigh3 · 02/04/2024 10:59

scan date 5/12 just phoned and my little one has been awarded HRC I was not expecting to her that! Good luck to everyone

HRL · 02/04/2024 11:00

On hold 1hr and 10 mins in 🙃

Ld1988 · 02/04/2024 11:14

Good luck everyone cure on hold 1hr 23mins

Shabutie · 02/04/2024 11:24

Good luck on the phones today... shall be keeping an eye out on the outcomes. 🤞

Getting closer to our scan date of 20/12. Tomorrow is 15 weeks but think I'll ring Friday or Monday if not heard anything.

Leigh3 · 02/04/2024 11:28

He did also say that I should of received a payment today and that I may still get one by 5pm today if not it will be midnight.. I also don’t know if it was because I was in shock at being awarded HRC the back pay he said I would be receiving didn’t match up to being payed from 7th nov. I’m sure he said 1480 which isn’t what I worked out unless I really didn’t hear him 🤣

Shabutie · 02/04/2024 11:28

MLW92 · 02/04/2024 09:28

@mrsclarke89 yeah got the txt on 25th of march about still looking into claim.

does anyone know what MRC gets you on UC for the disabled child element? I can only see higher care or lower care rates online?

From what I can make of it, it's split into 2.

HRC you receive Higher rate of £487.58

MRC or LRC you receive Lower rate of £156.11

Jadexxx92 · 02/04/2024 11:37

21/12 scan date does anyone know the highest date of someone being awarded is?

TiredTilly · 02/04/2024 11:52

kristie198 · 02/04/2024 09:16

I've just got through and still no news scan date 17/11

No way?! Did they say anything at all like when they think you’ll hear back? Is it still waiting for NI?xx

TiredTilly · 02/04/2024 11:53

Emmajm85 · 02/04/2024 09:38

I’ve just called too and still nothing.
im going to leave it now until Friday, because that’s 20 weeks. Then if they still don’t have the NIno I’ll feel I’ve got more room to complain because I’ve waited the full 20 😂
Have you called? @TiredTilly

Edited

This is just unreal I can’t believe it’s taking this long!
I plan on calling Friday 5th, and if there’s been no movement I’m going to have to complain
xx

CuckooMamgu · 02/04/2024 11:55

Just got through after 1hr 20 mins on hold.

My Dd was awarded HRC for 2 years, no mobility. So my payment was 15 weeks HRC, no Christmas bonus.

Good Luck to everyone still waiting.

Emmajm85 · 02/04/2024 12:19

TiredTilly · 02/04/2024 11:53

This is just unreal I can’t believe it’s taking this long!
I plan on calling Friday 5th, and if there’s been no movement I’m going to have to complain
xx

Same!
the lady I spoke to today said it was marked as top priority and she was going to email the DM to say Ive spoken with the department that issue the NIno’s and they’ve had no request for one for my daughter. So will see if that speeds anything up. It will probably annoy the DM and it will be a decline now 😂 it’s bad that we’re too scared to say anything incase they decline us xx

kristie198 · 02/04/2024 12:25

TiredTilly · 02/04/2024 11:52

No way?! Did they say anything at all like when they think you’ll hear back? Is it still waiting for NI?xx

She didn't say just said she was going to send an email over to the DM so annoying xx

kristie198 · 02/04/2024 12:27

Emmajm85 · 02/04/2024 12:19

Same!
the lady I spoke to today said it was marked as top priority and she was going to email the DM to say Ive spoken with the department that issue the NIno’s and they’ve had no request for one for my daughter. So will see if that speeds anything up. It will probably annoy the DM and it will be a decline now 😂 it’s bad that we’re too scared to say anything incase they decline us xx

The lady I spoke to said she was going to email the DM as well 😂

Fee89 · 02/04/2024 12:33

CuckooMamgu · 02/04/2024 11:55

Just got through after 1hr 20 mins on hold.

My Dd was awarded HRC for 2 years, no mobility. So my payment was 15 weeks HRC, no Christmas bonus.

Good Luck to everyone still waiting.

Im guessing you just missed out on the xmas bonus. Glad its all done and you can breath now x

Nickij2024 · 02/04/2024 12:39

Long time lurker - scan date 30/1.

Not to be disrespectful but the staff in their call handling centre are beyond useless. I called this morning to see if evidence had been received (which I posted off 3 weeks ago) and it took him literally 15 minutes to get through security. He then put me on hold whilst he looked as to whether the evidence had been received. All in all I was on the phone to him for over 25 minutes for a simple ‘yes we have it’. No wonder no one can get any straight answers out of them. It’s so frustrating.

Emmajm85 · 02/04/2024 12:42

kristie198 · 02/04/2024 12:27

The lady I spoke to said she was going to email the DM as well 😂

Maybe we had the same one and that’s the script she’s using for today 😂
Have you been told when they requested your NIno?
I was given the date for the first time today. All the others said they didn’t know when it was requested xx

kristie198 · 02/04/2024 13:04

Emmajm85 · 02/04/2024 12:42

Maybe we had the same one and that’s the script she’s using for today 😂
Have you been told when they requested your NIno?
I was given the date for the first time today. All the others said they didn’t know when it was requested xx

Yes last week a lady told me it was requested on the 13th March when was yours requested xx

Emmajm85 · 02/04/2024 13:14

kristie198 · 02/04/2024 13:04

Yes last week a lady told me it was requested on the 13th March when was yours requested xx

Mine was the 15th apparently

so technically, when you get your decision, mine should come soon after 😂 xx

TiredTilly · 02/04/2024 13:24

Emmajm85 · 02/04/2024 12:42

Maybe we had the same one and that’s the script she’s using for today 😂
Have you been told when they requested your NIno?
I was given the date for the first time today. All the others said they didn’t know when it was requested xx

They said mine was requested on the 19th march. When was yours?x

TiredTilly · 02/04/2024 13:25

kristie198 · 02/04/2024 13:04

Yes last week a lady told me it was requested on the 13th March when was yours requested xx

I think when you’ve had your award…I will then call lol because I definitely won’t be awarded before you xx

Nickij2024 · 02/04/2024 13:28

I hope no one minds me asking but are you claiming for behavioural or physical issues?

If behavioural such as autism, has your little one got a formal diagnosis? I’ve seen people without a diagnosis be awarded and I’ve also seen people with a diagnosis be refused. I know lots of factors come into this but there doesn’t seem to be much rhyme or reason to it all.

My DD is 9 and has a formal diagnosis but the only evidence I have is her autism report. The report does include comments from the school but it also includes that she masks at school which is quite typical for girls. I’m nervous that they will contact the school and the school will say she doesn’t need too much support which isn’t completely untrue but that’s because she keeps it all in and blows up at home after school. She also has sensory issues, social issues, toileting issues, obsessive behaviours and routines and is an unable to share or manage her emotions. This is all detailed in her report but it’s just so stressful knowing that a decision is made based on what is on paper. It’s so hard to explain just how much support our children need and that a decision is in the hands of someone with no medical knowledge.