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Dla wait times part 33

981 replies

Emma2345 · 04/03/2024 10:41

New thread as the other is almost full !

OP posts:
MrsW12 · 07/03/2024 12:56

Does anyone feel like this whole process has aged them? I was told I looked tired this morning and I didn’t even have that when my kids were newborns 🤣

Emma2345 · 07/03/2024 12:58

Muvva1981 · 07/03/2024 12:46

Just got off the phone after speaking to a lovely man. My little man has been awarded MRC . Backdated to 15th Nov which is the first Wednesday after I called for forms on the 9th Nov. Scan date was 30/11. Two days ago when I called the lady said no decision had been made and it would be another 3-4 weeks. So glad I called again. What a relief.

As my son doesn’t have his diagnosis yet all I submitted was senco reports, SLT reports and copies of acceptance onto the asd pathway letter.

Any idea when the backpay lands in the bank ? I’m with Monzo so it shows incoming pending payments 2-4 days in advance so now I’m watching the bank like a hawk.

Do i notify UC now as I know the date he was awarded from or wait for the letter to arrive ?

congratulations on your award , I’ve just received my letter of acceptance for my son on the ASD pathway today so will be sending that off as extra evidence , I’m hoping for HRC for him as he doesn’t sleep at all at night and when he does sleep he is then awake with in an hour or 2 and then will be awake all night he requires constant supervision and attention at night because he is violent towards myself his siblings and himself and he sufferers with severe night terrors can I ask if your child requires any night time care needs , just because you for a MRC award ,,, I’m worried with so many people getting MRC lately and a lot of people are appealing for HRC as their child deserves it weather they’ve just not filled it in correctly or weather the DM just hasn’t bothered to read all of the form correctly xx

OP posts:
lillyT83 · 07/03/2024 13:01

STEPH691 · 07/03/2024 12:42

@lillyT83 congratulations hun xxx

Thank you, It's been incredibly difficult as on paper my child looks naughty and he genuinely isn't he just can't cope. The stress continues as coc was 28th Nov but been told 2-3 weeks for a decision so I can relax a bit. Feeling over the moon. I never got a text either I just grew some balls and rung up with an excuse of I didn't know if I had time to send a copy of an appointment that's just come for next month 😂 I will see you all when time to do renewals for 2025 😂 x

Fudgie9922 · 07/03/2024 13:02

Emma2345 · 07/03/2024 12:58

congratulations on your award , I’ve just received my letter of acceptance for my son on the ASD pathway today so will be sending that off as extra evidence , I’m hoping for HRC for him as he doesn’t sleep at all at night and when he does sleep he is then awake with in an hour or 2 and then will be awake all night he requires constant supervision and attention at night because he is violent towards myself his siblings and himself and he sufferers with severe night terrors can I ask if your child requires any night time care needs , just because you for a MRC award ,,, I’m worried with so many people getting MRC lately and a lot of people are appealing for HRC as their child deserves it weather they’ve just not filled it in correctly or weather the DM just hasn’t bothered to read all of the form correctly xx

I wish I took a photo of the form I sent because I can't remember what I wrote down on the last page I know I wrote his poor eating habits his danger around cars/roads and that he doesn't talk much just said around 15 words but for the life of me can't remember of I put his poor sleeping habits he's 3 but sleeps from 9-2 then 5-8 because i have to wake him for nursery even then he doesn't nap in the day or anything he's always been a poor sleeper doesn't help thay I have a baby 5m who's up at 630 so I sleep from 9pm-2 am🤣🤣🤣

bonz2023 · 07/03/2024 13:04

@Emma2345 from what I've read over the last few weeks why I've been waiting, when people claims are 'suspected' or waiting referral etc MRC has been awarded, they say it's not based on diagnoses but I think that plays a part because a diagnoses does offer some kind of back up toissues children have and why they have them

I don't know for sure though obviously as there has been some exceptions, hope you get what you are hoping for

Lolly966 · 07/03/2024 13:05

Just spoke to a lovely man forgot his name but it’s with a decision maker!! And to call back beginning of next week! I’m more nervous now that I haven’t sent enough evidence for my daughter as she’s only a few waiting lists for different things! Didn’t say anything about sending a text just said to call back!

@Fudgie9922 im calling Monday, gosh I’m nervous now knowing it’s with a dm x

bonz2023 · 07/03/2024 13:06

@lillyT83 I'll add you to my 2025 catch up
List hahahah congrats

Shall89 · 07/03/2024 13:06

I’m scan date 10/11 - anyone waiting with a date around then or earlier? Called yesterday and they said it will be 6-8 :/

xxAmy · 07/03/2024 13:07

Lolly966 · 07/03/2024 13:05

Just spoke to a lovely man forgot his name but it’s with a decision maker!! And to call back beginning of next week! I’m more nervous now that I haven’t sent enough evidence for my daughter as she’s only a few waiting lists for different things! Didn’t say anything about sending a text just said to call back!

@Fudgie9922 im calling Monday, gosh I’m nervous now knowing it’s with a dm x

Edited

Oh yes!! Some movement! Any day for you now ❤️

Daisy5991 · 07/03/2024 13:08

Just wondered if it’s worth sending in extra evidence, I’ve just received another report that would definitely help the claim but I don’t want to make the wait any longer.. scan date is 22/11 so 15 weeks x

lillyT83 · 07/03/2024 13:08

bonz2023 · 07/03/2024 13:06

@lillyT83 I'll add you to my 2025 catch up
List hahahah congrats

Ha ha ha thank you, 🤣 I am glad this is over with for now. Congratulations everyone so far and keeping fingers crossed for everyone else x

EasygoinyAmy · 07/03/2024 13:09

@Lolly966 at least you'll hopefully have an answer. I only sent the letter from SENCO as they'd been waiting for his surgery and his behaviour at home is not any better if not it's worse he's become vindictive and spiteful. He hit me with such force last week I sat and cried but in other ways he's such a lovely boy. X

KaylaOG · 07/03/2024 13:10

Emma2345 · 07/03/2024 12:58

congratulations on your award , I’ve just received my letter of acceptance for my son on the ASD pathway today so will be sending that off as extra evidence , I’m hoping for HRC for him as he doesn’t sleep at all at night and when he does sleep he is then awake with in an hour or 2 and then will be awake all night he requires constant supervision and attention at night because he is violent towards myself his siblings and himself and he sufferers with severe night terrors can I ask if your child requires any night time care needs , just because you for a MRC award ,,, I’m worried with so many people getting MRC lately and a lot of people are appealing for HRC as their child deserves it weather they’ve just not filled it in correctly or weather the DM just hasn’t bothered to read all of the form correctly xx

@Emma2345 i just got awarded HRC for my son. He gets up soooo many times in the night but he’s only 6. So I wasn’t expecting HRC only MRC due to little evidence. We can’t get referred to sleep clinic in our area as they are accepting new patients so can’t get melatonin prescription or any evidence from them. So all we had was his ASD diagnosis report lighting touching on his lack of sleep and separation anxiety.

Lolly966 · 07/03/2024 13:13

@xxAmy you should have an answer too though cos we’ve got the same scan date! Call up?

@EasygoinyAmy thank you! I really hope you get the decision your som deserves too! My daughter is the same she hits me, throws her toys in anger and breaks them and hits her older sister, got no danger sense at all, tries to run in roads all sorts it’s so hard work, I’m waiting on community peads and ENT for appointments and her SALT hasn’t met her in person yet so I’ve sent referrals for all of them and obviously written about what she’s like at home in the form I’m just really hoping it’s enough and not a decline x

Lolly966 · 07/03/2024 13:16

Daisy5991 · 07/03/2024 13:08

Just wondered if it’s worth sending in extra evidence, I’ve just received another report that would definitely help the claim but I don’t want to make the wait any longer.. scan date is 22/11 so 15 weeks x

I’m not sure if it would reach them in time tbh, it probably would sending it special delivery though, I just rang and mines with a dm and told me to call back beginning of next week which will make me 16 weeks Monday x

MummyJones94 · 07/03/2024 13:25

@Ilovecats1 congratulations. Same scan date as me. Did you get a text or did you call them if you don't mind me asking.

STEPH691 · 07/03/2024 13:28

Awaiting to hear from the dreaded UC now done a change updates yesterday and nothing back rang this morning. Heard nothing again think must the same workers as DLA 😂😂

my5to1 · 07/03/2024 13:38

Is anyone on old style tax credits still?

updated on the app the dla rates but nothing as yet!

don’t want to call I can’t face another call or hold music after the battle with dla, there on hold music is still ringing in my brain !

Misste · 07/03/2024 13:42

Just rang them, had the most miserable woman ever, asked them if they'd received my evidence I sent last week she said yes & it's all scanned on ... then she said it's taking 20 weeks to get a decision and I'm nowhere near she said you might as well of waited instead of ringing omg 🤣 my scan date is 27/11

Muvva1981 · 07/03/2024 13:47

bonz2023 · 07/03/2024 12:52

@Muvva1981 I was told on Monday she's been awarded and I received back pay today, it showed in my monzo on Tuesday

Ok great ty so it should show as incoming pending anytime now :)

MrsW12 · 07/03/2024 14:00

Gave in and called and got through to a lovely man who said it went to a dm yesterday and to call back if not received a text or letter in 2 weeks 🙄. Do I believe this or not! I’m hoping it’ll be as quick as some others that have been with a dm recently. Was just about to hang up as my 3 year old has lined the entire upstairs floor with muslin squares, towels, nappies and cotton wool balls 😩

Muvva1981 · 07/03/2024 14:02

Emma2345 · 07/03/2024 12:58

congratulations on your award , I’ve just received my letter of acceptance for my son on the ASD pathway today so will be sending that off as extra evidence , I’m hoping for HRC for him as he doesn’t sleep at all at night and when he does sleep he is then awake with in an hour or 2 and then will be awake all night he requires constant supervision and attention at night because he is violent towards myself his siblings and himself and he sufferers with severe night terrors can I ask if your child requires any night time care needs , just because you for a MRC award ,,, I’m worried with so many people getting MRC lately and a lot of people are appealing for HRC as their child deserves it weather they’ve just not filled it in correctly or weather the DM just hasn’t bothered to read all of the form correctly xx

He does yes. Once he’s asleep he tends to sleep all night but it’s getting him to sleep and settle which is the issue . He climbs constantly , has no sense of danger so I have to stay in his room with him till he falls asleep. Sometimes it can take hours. There is no consistency to his sleep pattern. It’s exhausting in all honesty . He’s still in a cot even tho he has his bottom bunk all ready for him and I’ve tried him in it and he just doesn’t sleep . I think he feels more secure in his cot but it’s not going to last forever .

you definitely are entitled to Hrc from what you’ve said there. I’m crossing my fingers for you that you get what he deserves x

kristie198 · 07/03/2024 14:10

Misste · 07/03/2024 13:42

Just rang them, had the most miserable woman ever, asked them if they'd received my evidence I sent last week she said yes & it's all scanned on ... then she said it's taking 20 weeks to get a decision and I'm nowhere near she said you might as well of waited instead of ringing omg 🤣 my scan date is 27/11

Omg how rude 😂

Ilovecats1 · 07/03/2024 14:11

@MummyJones94 I called to check and they said she was awarded yesterday.

Shall89 · 07/03/2024 14:15

Sloulou20 · 06/03/2024 10:09

Does that mean if you send extra evidence you get bumped back down? I'm nearly at the top [5/12] and got my sons autism diagnosis through now worrying about sending extra evidence!!!

Just to let you know I decided to call again today as seeing people being awarded after my date (scan date 10/11) and I explained I phoned yesterday to check extra evidence received and I was confused that she told me it was going to be another 6-8 weeks. She said “did she not tell you you’ve been awarded?” Can’t believe it!

feel like whoever I spoke to yesterday morning and woken up properly or knew what they were doing!