@Ahna65 it was a lot better than I had feared so don’t worry. I really was expecting worse. DS is more sensory seeking than avoidance and under sensitive to things (would sit in wet clothes etc) so getting the wires and hat on was ok, I sat with him on my knee whilst DH held the iPad and I held his hands down. I had a good chat with the dr tho and he said he worked with many severely autistic patients and he had never failed to get the wires and hat on even with major resistance. The hat itself was glued on so once on virtually impossible to pull off. DS was really good and seemed to forget it was on.
Whilst he can be v hyper he can be very placid too and he was actually very withdrawn/ quiet and happy to watch TV/ iPad for most of the time which is very different to at home!! Ours was with video recording, the most tricky bit was the wires were attached to this box which had to be carried if he moved, so trips to the toilet were fun!
my gut feeling is it will be abnormal, tbh I felt more relaxed when he was on meds. I know people say it’s pointless taking meds if not needed but after watching your child have a fit, then having the reassurance of meds, then that being withdrawn I feel is really nerve racking. I feel he’s a loose cannon. Anyway yes I’ll report back and Ahna pm me if more questions.
dimples the whole logistics were exhausting, DH said no point paying loads as not a fun trip so stayed in a budget hotel out of London which was horrendous! Like a red light zone 😆. Trains were on strike and then the tube was unable to stop at the hotel station so logistically awful! Of course for me not great either, very little sleep with bleeps and machines buzzing, another child crying constantly in the next room and so on. But the actual thing Ahna wasn’t terrible so don’t worry.
the dr said he often gets lots of resistance but the value of the data far outweighs that so they find a way. It’s their job to!