I too found the article uncomfortable reading.
Dd1 is nowhere near as affected, and god knows, I have had my days of self-pitying "why me? I didn't ask for a disabled child", and of course the generic "it's just not faiirrr!"
If I am totally honest, when dd1 has been at her worst - days of unending tantrumming, shouting, dmeanding cuddles then instantly pushing me away to shout for another cuddle - there have been times when I have thught I really cannot cope. And that dd1 would be better off with someone who can.
BUT.
and that says it all really:
but she is MY daughter, mine and no-one else's (well, dh had a hand in it I s'pose )
but no-one else would love her the way I do (egotistical view point I know)
but it is ME she needs (god, that really does sound vain)
No one thinks their child may be disabled when you get pregnant, but I did find her reasoning chilling.
She was prepared to breastfeed, until it was pointed out that her child was permanently disabled. Then Immie was not worth the bother. THat really made me
And to wipe out any memory of her existence in the house once she was gone - what must that have meant to the other child, coming home tofind that all trace of her sister had been wiped out? What a confusing time.
I was also saddened by the part where she said something along the lines of "and Tania said Immie liked chocolate", as though this were not soemthing that either 1)she ahd noticed or 2) thought was actually a fact (ie something Tania liked to think was true, but the mother knew better that actually Immie was not capable of likes/preferences)