Primary school auties thread 9 - spring / summer 2022.

[danni0509]

Thread 9.

Links to previous threads below.

For the parents / carers of children with additional needs, most of us have asd / adhd children in primary school, but anybody is welcome to join us to chat x

Thread 1
www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2
www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3
www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4
www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5
www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6
www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

Thread 8
www.mumsnet.com/Talk/special_needs/4422100-Primary-school-auties-step-into-Christmas-and-the-New-Year-thread-8

I'm pretty sure there's a section on this in The reason I jump

Thanks for asking Carrie - still haven't got the results. I tried calling the hospital last week to chase them up but didn't manage to speak to anyone helpful.

I can't stop daydreaming about this fantasy holiday. We're actually going to a cottage in Dumfries and Galloway at Easter with sea views and a hot tub. Unfortunately as the party comprises of my Mum, sister, my sister's 3 autistic children, DS and the hurricane that is currently DD I wonder how much chance I will get to admire the view. DS tends to be v easy to care for on holidays but when we return home he explodes - it's hard because he appears to enjoy the hols and I definitely enjoy getting away but from his reaction afterwards he is obviously v anxious.

We went to a forest today with lots of play areas about 30 mins drive from home. DS was a nightmare for running off and also pushed DD over very hard. I found the whole outing exhausting. I know what you mean Carrie about how do you teach them as each time today when I caught up with DS he just smiled at me. They both fell asleep in this car on the way home and I decided just to sit in the car with them for 10 mins when we got home - I'll probably regret that later when DD refuses to sleep but I really needed a moment without screaming/shouting/crying

We get the smiling too/ laughing… drives me insane. Esp over toilet accidents. I gesture to wet pants or worse and say look!!! No!!!!!!! You know you use the toilet!!!! Gesture to toilet. He looks me straight in the eye and just laughs. DD would have cried/ been mortified.

The hol has all the makings of a Richard and Judy bestseller…

‘A group of women seeking solace with only an internet connection book jet 2 flight to Rome to discover their identities are not what they envisaged. A twist on every page…’

What do you reckon Susan, good?? 🤣🤣🤣

Haha, I love it!! Also, when are we going??!🤣🤣

carrie Yes we talk about it too, or he wouldn’t learn, we talk about safety a lot in general and why we shouldn’t do something. Not that he learns anyway no matter how many times I tell him it’s dangerous. He is a bit morbid tho, when I say he’ll get burnt, he says into pieces? will I die? and go eat my dinner in heaven? I think he thinks heaven is a place which would be quite cool to visit as he flaps his hands as though he’s excited to go!

We get the morbid questions too!

Some of the conversations I have with ds are really disturbing susan in no way shape or form is what we talk about normal. 😂

That makes me feel better ha! We also get lits of questions about when people will die and wanting to know exact dates!! He's been in a total mood with me all day. Saying ribbet at finner all the time and did it mire when he could see me getting irritated. Just come upstairs for a cry while him and DH finish eating. My DM is also not speaking to me so a bit rubbish. DS is annoyed with me because I took him for a pcr test this morning, I know it, and I've asked him to calm down today which us like a red rag to a bull, but he's so fidgety it drives me mad after a few hours. Roll on the evening!!

Oh no what is up with DM???! Mine goes through spells of this, she always comes round. An age thing?

And I’m going whenever!

Oh I love Rome, would love to go again.

dimples sorry your day was exhausting, I hope bedtime goes ok.

Susan sorry you’ve had a rough day.

danni at the morbid talk.

I went out into town for a couple of blissful hours this morning. Not quite a holiday but nice.

Rome? I'm in!

DS advised me that he was planning to make me breakfast in bed. I have spent the last half an hour trying to secure the kitchen. I sincerely hope that he forgets what day it is when he wakes up..

dimples I hope the kitchen didn’t suffer too much!

Ds up at 3 old time today. Lovely!

Oh no Open! I am winning here as DS has totally forgotten

dimples it must be hard when you’re a single mum and there’s no partner to show you appreciation. Did ds make you a card at school?

Have you tried doubling up on the melatonin open as per the suggestion from the poster on the other thread? Did it make any difference?

No carrie, I need to find a study on it or discuss with the GP. Dh unlikely to want to take advice from MN posters alone

I get that. I do think though melatonin isn’t really ‘medication’ and there isn’t any right dose other than what works for the child. GPS are clueless but when I discussed back in the day with DSs paediatrician she simply said ‘it’s trial and error… we always start at 2 but if that doesn’t work try 3 or even 4.’ She did say she wouldn’t have any issue with us giving him 5 but not to go above that without telling her. So massively relaxed, based on what we found he needs (up to 5.) Not like other meds… have a paracetamol.. or have 10!

DH is the cautious one too though if DS was up at that time he would be piling the packet down his throat! I think because we have played around with melatonin over the years so much we are v relaxed about it. As the other poster said if he’s tired anyway we will give a different dose to if he’s hyper and just use our judgement 😁

carrie the paed did not talk to us about doses, neither has the GP. Otherwise I’d be more relaxed about it. At the moment I’d be getting through the prescription 50% faster if I gave him two tablets.

I’d be more comfortable going to 3 first but I don’t think there’s any point cutting a tablet it half as it will lose slow release benefits.

Ds has 5mg liquid melatonin every night and 17.5mg promethezine. I’m going to ask to increase the latter, but one bottle only lasts a few days anyway so no idea if they’ll let us, I get 5 or 6 bottles a month prescribed.

The dose on the box says 25mg (or might be 20mg) for ds age, no idea if it’s because he takes melatonin simultaneously why it’s a bit lower, the box also says not to be taken for more than 7 days, ds is on it permanently.

I might not give him melatonin one night and give him a full 25mg promethezine, that the box says and see what happens.

I did manage to cut his finger nails last though.

Toes tonight! If I can. Then clean his ears out.

I literally stalk his bedroom with nail scissors and cotton buds for when he’s asleep! 🤣

Open my Mum normally gets something for me 'from the children' but she didn't this year. DS made me a card at school. To be fair I have zero expectations on Mothers Day it is Fathers day which I find more difficult as my Dad died 6 years ago and I feel guilty that my children don't have a Dad or Granddad plus school/nursery can make it more awkward.

We made banana bread this morning which we took around to Granny's as part of a brunch. That was nice and then I took my 2 swimming which was exhausting but the kids mostly had fun. As I didn't get any treats we popped into a shop on the way home and now have far too many!

I am so lucky that my children sleep well generally - I take my hat off to you all coping with the challenging behaviours after disrupted sleep.

dimples hats off to you doing this on your own. I’m glad you had a nice day.

Ds has gone to sleep at 7.15 tonight, so is that 6.15 really? Oh fuck knows it confuses me, spring forward, fall back is how I remember the clocks.

I was going to keep him up a bit longer but after his bath he was being a toe rag so I laid him down with a book and he look tired so I turned his light off. Must’ve been tired to go to sleep with minimal effort.

He’ll probably be awake in about 2 hours anyway! 🤣 but never mind, he’s at school tomorrow so doesn’t feel like it’s my problem for a few hours.