Primary school auties thread 9 - spring / summer 2022.

[danni0509]

Thread 9.

Links to previous threads below.

For the parents / carers of children with additional needs, most of us have asd / adhd children in primary school, but anybody is welcome to join us to chat x

Thread 1
www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2
www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3
www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4
www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5
www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6
www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

Thread 8
www.mumsnet.com/Talk/special_needs/4422100-Primary-school-auties-step-into-Christmas-and-the-New-Year-thread-8

I reported the LFD test online (not pcr testing now).

I’ll let his school know tomoz but think that’s him off for this full week at least, think I can do 2 tests, day 6 and 7 if neg then he can go back to school next Monday, is that right?

Is it from his symptoms? He started with those on Friday night (the cough).

The cold was the Friday morning (he went to school with that) ooops!

His chest is really bad now tho. He’s coughed non stop since he fell asleep tonight. Proper chesty barely taking a breath cough.

I’m sure his school will make their own dates up that he can go back on though..

Hi Danni just to let you know ds can come back to school on the 19th of never. 😂

Oh no, Danni!

Yes, you count from first day of symptoms but that day is day zero so I think that he is on day 2. If he tested negative on day 5 and 6 then I think that he could go back to school on Friday.

Oh no danni! Hope he feels a bit better today.

Light that's amazing of your dd. I hope it goes well for her.

Oh no danni, poor ds. Hope he is better soon and that you don’t get it too.

Light how great of dd, do you know what she’s going to say? I hope that the response is positive 🤞 What do you mean by off the wall?

Ds was asleep before 8 last night and slept until 5:30. Much needed here, we enjoy it while it lasts!

He also seems to have got over his reluctance to visit grandparents and has been to my mum’s a few times. We had family for lunch yesterday and he was quite sociable. A couple of months ago when my sister came he was telling them to leave and in a right grump.

I got it as Friday too dimples thanks x

So I test him Wednesday & Thursday with an LFD, if both are negative he can go back to school Friday?

His school will love that!

I’m pleased she understands her autism etc light I hope it goes well for her this week x

I’m pleased he had a better sleep open

Fingers crossed for -ve tests danni. I hope you’ve got plenty of coffee in.

I’ve done a Tesco click and collect for teatime. Dh is at work until 8pm. Monday is my shopping day and I’ve run out of bits. Ds will come in the car but not get out. I plan to take him for walks though. We never visit anyone in usual circumstances.

I let his teacher know at 7am, he hasn’t replied. I phoned the school office at 8.45am to let them know, since I had no reply from teacher.

Anyway, back to his school not contacting me, even when positive they should be offering some work to be completed if we’ll enough.They did it last year when Dh had covid and ds was 100% well, the guidance then was ds had to be off to. I didn’t hear anything from them for 10 days.

I probably wouldn’t do much / any if they did set anything, but it’s principle for me. They are supposed to set some appropriate work and instead I hear fuck all. Not even an acknowledgment of my email I sent to say he’ll be off.

I told the office I’ll test ds weds / thurs and he’ll be back Friday all being well, she was like ‘oh’.

Shit cunts or what.

Hopefully they will provide something for when ds is better danni. Sounds like he's not really up to it at the moment, which is different to when your dh had covid.

Ds did an hour at school this morning but went in without any fuss. He's still keen for me to stay in the classroom though which he hadn't wanted the week before last.

I was thinking yesterday that ds will soon be in his last term of y3 and yet he's hardly been in school. It's quite scary.

Oh no @danni0509! That's bad luck though there seems to be loads of it around now. Fingers crossed he gets back to negative quickly.

@openupmyeagereyes the bit that made me nervous was when she was talking to me about positives and basically seemed to think autism made her brilliant at everything at school (including e.g. PE, maths, english). Now, DD does fine but she is not outstanding in any of these things according to her reports, and even if she was...!! I just tried to explain that this might imply that other kids were not so good at those things and would be a bit hurtful, which she got, but it does make me worry a bit what she might say! She also asked if her brother had a diagnosis so I realised she's been assuming because it runs in families that he is autistic too. I mean, it's a reasonable assumption, but it just makes me realise that there is lots of scope for misunderstandings and getting things wrong!

She also really wanted to do an "are you autistic?" quiz as part of it so had to explain that actually, only doctors can decide that...

Having said that, she's also told me that when the other kids are being noisy she sometimes puts her ear defenders on but sometimes just goes to find a teacher - so I'm sure that goes down well with the other kids .

So, as she says, they will realise she is a bit different already, and it seems sensible to start to have the conversation about why. And if things go a bit wrong then we'll cross that bridge when we come to it...

They don't have that long for show and tell so it will be quite short. Just a bit about neurodiversity (including ADHD, dyslexia, etc), a bit about autistic traits (including some things she finds hard), and a few famous autistic people.

open they won’t. Honestly. I know they won’t. They are so shit. It’s what they do. They didn’t contact at all when Dh had covid and ds had nothing wrong with him then, they are doing the same this time. It’s like the past year of reduced hours, they should of been giving him work, not one time have they bothered.

I’m not bothered about the work as such whilst ds has covid, it’s how his school operate. It goes against all of what dfe tell them they have to do. They just think they are above the rules with everything for some reason.

And I don’t like how rude the staff are, literally all the same, they must put their applications out to a certain place to attract it!

Taxi and pa said all the staff are arseholes too so it’s not just me being snotty!

I know I thought the same open how quick has year 3 gone?! Summer holidays before we know it.

Ds isn’t poorly btw, he just has this cough. He’s completely fine in himself.

Just laid on his bed supervising whilst he plays, I could fall asleep his bed is so comfy. Why he doesn’t sleep in it long enough I’ll never know lol.

Just a bit about neurodiversity (including ADHD, dyslexia, etc), a bit about autistic traits (including some things she finds hard), and a few famous autistic people

That sounds perfect Light, though I love the idea of her holding an 'are you autistic quiz'

danni glad ds is not actually. I hope today has been ok.

Ds wanted to make a box scene for one of his toy figures - I know, actual crafting We didn't have a suitable box so we fashioned one out of some pieces of card and he decorated the back wall with me doing the floor and sides. A child-led result!

Oh no Danni! Hope you don’t get it. It’s impossible to look after kids that need a lot of attention when you are ill! I know that!

I haven’t given ds his medication since Friday (sat / sun / mon off) he’s been having calpol nurofen cough stuff and I just thought he’s not at school, I won’t give him his adhd one aswell. (I’ve said plenty of times, his adhd medication doesn’t make his symptoms any less severe so I’m not desperate to give it, it’s more to shut his boring school up)

Anyway I’ve given it this morning because I don’t want him to have too long off and have side affects when I re give it.

He’s been no angel sat sun mon, of course given his needs, but it’s clear how anxious his medication makes him.

This morning, look at me, keep looking at me, what you doing, stop moving your foot, stop this, etc etc. Counting to 20 and if anything interrupts he restarts the process. Kicking off if you say the wrong thing. It’s like a completely different expression on his face, hears a little noise and immediately on edge to find out what it is. He looks permanently frightened. Yet the 3 days previous, he’s still been a little shit standard 😂 but a lot less of the above.

He’s on half term from next Thursday (some people don’t medicate in school holidays or weekends, so it’s ok to do that) so I’m going to give him a week off it, keep a really detailed diary.

And then his next medication appointment is just after he goes back to school.

Honestly I prefer my ds when he’s unmedicated!.

I’ve managed to get my grass cut today, ds went on his trampoline for half hour with an ice lolly. Thank god the weather is getting warmer. Winter dragging on actually depresses me.

Sorry to hear you're both positive @danni0509 but interesting about the meds break. It definitely sounds like his meds make the anxiety worse and thus increase the need to feel in control.
I went to an even with Harry Thompson the pda advocate recently, which was very insightful, although if also like to chat to his mum I think!!

I’m not positive susan (I still try type your old name!!) just ds x

Ah sorry, that's good then! I think @MagratLancre still exists but I can't get into the account ha!

How’s it going danni? I hope ds is ok.

We are having a better week at school 🤞

He’s ok thanks open just coughing now, but other symptoms have gone.

I’m going to try test him tonight whilst he’s asleep. See what we get. If he’s negative today and tomorrow he will go back Friday (much to his schools horror) but I’m not too fussed if he doesn’t get to go back Friday, but he’s going back Monday, positive or not, he could grow 3 heads before now and then and he won’t be having any more time off! 🤣

He’s only in for 4 days next week and then has 3 weeks off for Easter. Give a mam a break! 😅

Ds school never contacted me, not even an acknowledgment to my email regarding ds having covid. Least I think they should of done is ‘thanks for letting us know, hope he’s ok’ or similar.

I’m pleased you have had a better week in school x

Ds is negative tonight. Just gone to sleep so I’ve attempted a test. Didn’t get chance to get a right old poke up there but suffice for a sample.