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Primary school auties step into Christmas and the New Year - thread 8

999 replies

openupmyeagereyes · 09/12/2021 13:45

New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6 - www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7 -
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

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6
openupmyeagereyes · 16/12/2021 07:54

Oh dimples that is lovely 🥰

carrie I wouldn’t take it as read that you’ve not been offered a place. They are probably just overwhelmed/staff off/whatever. They definitely won’t have to abide by the same SLA’s that you do, that would actually make them efficient! I hope you get some answers soon.

Dh has now finished for Christmas. Hopefully now I can actually get some stuff done. I find it difficult to get everything I want done with ds here all the time.

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livpotter · 16/12/2021 09:08

That's lovely dimples!

I suppose at least there is not the anxiety about trying to get him to school open. Dd finishes this afternoon and ds has a half day tomorrow.

Movers are here. Hoping that we'll be finished by about lunchtime today so that I can at least set up the kids rooms a bit before they get home.
Ds asked for his room to be bright red and it really is very bright, so I'm hoping he likes it once he sees it done!

danni0509 · 16/12/2021 11:08

You do have a very big heart dimples x

Ds breaks up tomorrow, just doing a few last jobs before he does, I had my covid booster this morning.

openupmyeagereyes · 16/12/2021 11:16

Fingers crossed no side effects danni. Ours are not until the 29th. No earlier availability. Feeling a bit exposed with omicron.

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LightTripper · 16/12/2021 11:28

@carriebradshawwithlessshoes

Thank you Light! It’s funny but when we all chat relatively regularly it sticks in my mind as though I know you all in RL which is mad!

Ooo I’m interested in that… I wonder if that’s your private school or many? Part of the issue for DS (not all though) is class size. I have a few friends with children in private schools and they have put the fear of god in me as they are very not tolerant of SEN. My best friend has 2 in a very esteemed private school… a new boy joined recently from Spain, English a bit shaky, school weren’t overly happy with this ‘additional requirement’, they told mum they would reluctantly sort out some extra language lessons but then billed her (on top of school fees.) They are quite open they don’t want kids with SEN, they may accept a minor thing but nothing significant.

Wonder if that’s not the norm ??!!

I think it really varies. One private school we signed DD up with told us she was at the top of the waiting list so they should have a place in the next few months. So then we said that's great, can we talk to your SENCO... and then I had a very upsetting conversation with the Head where she said oh, maybe it's not the right school, we have another child with SEN in the class and it would be hard for them to manage two (I know somebody who has a kid in that class and she's not aware of any other kids with SEN, so suspect this was a lie) ... anyway, clearly they did not want her, and mysteriously we have never got to the top of the list (several years later) Hmm.

One of the other schools we looked at though is mainstream but 1/3 of their kids are on the SEN register. It's well known for being good for Dyslexia. We didn't go for it as it's very sporty and I didn't like the new head so much (he seemed more focused on scholarships and getting their academic and sporting performance up, and less on inclusivity - though I don't think he can just ditch it given their make-up!)

DD's school is a bit more in the middle. I don't think they have as much knowledge of SEN - and they definitely have fewer dedicated SEN staff than the higher SEN ratio school. Having said that, it's a smaller school (fewer kids in each year group - similar class sizes), they were very welcoming and their ethos is very much about helping kids develop in their own ways - so they aren't a hot house and aren't particularly selling themselves by their ability to get kids into the very "top" senior schools. She does have some extra support but we don't get billed extra for it. I suspect we would if it was "out of the ordinary" - but at the moment it's fairly limited (a special group for hand strength/small motor skills) and that's just part of the general offer (other kids go to the same provision for problems with spelling or maths or anything else and it seems to be seen as quite a normal part of school life - DD loves her sessions). I actually think DS is going too, even though the school has said nothing to us about it so I don't know if all of Reception go or it's for something particular. He seems to be doing motor skills/hand strength stuff too. Must get around to asking his teacher!

I think the problem is generally with schools who are overly focused on where their kids go on to. Which is natural because a lot of parents care VERY MUCH (whereas we genuinely don't care - just want somewhere DD is happy - I have no idea which private schools are famous/well regarded or not anyway and actively don't want DD or DS to turn into an entitled shit obvs Grin).

So yeah, I'm always a bit on tenterhooks that if DD started hitting big problems they might struggle/life might be made uncomfortable. But I think it depends very much on the school. We have friends whose DD (unDx'd but very sensory and speech delayed) had horrible problems at a very rigid and unhelpful private school. Moved to a much smaller and more casual place and is totally loving it.

So I think the ethos of the school is just as important as the class size: but I worry that even a school with a great ethos might be a bit tough for DD if the class was very big (and particularly if the school was very big and tricky to navigate with multi-form entry - which is most of the state schools around here).

Sorry that was a very long answer to say "it depends on the school" Grin

LightTripper · 16/12/2021 11:34

That is lovely @dimples76!!

Hope the move is going well @livpotter. Great that you're not going too far, hopefully that will make it less stressful!

Hope you don't get any side-effects @danni0509. Mine were much milder (almost non-existent) for the booster compared with the first two. Hope you don't have to wait too long - things seemed to go a bit crazy earlier this week!

Right - I'm off to see if I can manage to do some tiling (never done it before - my Mum tells me it's easy but my Mum is super-competent at this kind of stuff). Anyway - what's the worst that can happen? We may be about to find out...

Kids only on a half day tomorrow, so this is my last chance and a neighbour has lent me some equipment so I thought I had better get on!!

LightTripper · 16/12/2021 11:34

Oh and hope DS can get in to say goodbye on Friday @openupmyeagereyes. Would be good to get some closure - I bet you can't wait to just get him started/settled in the new place!

danni0509 · 16/12/2021 13:01

Oh open is it ds last day at old school tomorrow? I hope he goes in & I’ll be thinking of you all tomorrow.

Even when ds left his, as you know I wasn’t very happy with ds old school (especially towards the end) but it still made me sad and I cried in the car on the way home that day, just felt really final and I felt bad for taking him away from where he was settled and all he’d ever known. And ds was crying and that was the first time he was ever upset about anything other than not getting his own way, I felt awful.

I don’t feel bad now obvs, but I do still feel a bit sad when I drive past, sad that if he didn’t have autism he would be there in the juniors now. Then I imagine him playing on the field with his friends and start getting a bit carried away thinking if autism was a person I’d be tracking them down and giving them what for Grin

I had Pfizer this morning, my first 2 were Astra Zeneca, I didn’t realise it would be different.

carriebradshawwithlessshoes · 16/12/2021 13:08

Thank you so much all.

I mean, being blunt about this, I have a child with severe speech dyspraxia who cannot say a bean and has no established form of other communication. Is that a no no for ANY mainstream school, really, private or not? I will not at all be offended if you think it IS too much, I’m kind of starting to think that. I have a friend with an asd child in MS, we were chatting the other day and she said that whatever his issues, difficulties etc etc staff can at least communicate and ask him things and he can at least give some verbal feedback as to why he is feeling/ doing as he is etc. Whereas DS cannot. Maybe that communication issue in its own right is so overwhelming that ms is just not possible.

Open, I get nothing done with the kids here!!! They finish tomorrow so I’m resigned to chaos then til they go back.

Dimples that’s lovely!!! I always hold my breath with ‘big’ questions (bum, yes, tum, ish, boobs, sadly definitely not.) DD told me they have a new TA who apparently is quite old, well, about my age. Thanks DD.

Liv, v exciting, hope you get sorted!!!!

Tiling…. Goodness, I wouldn’t have a clue!! But I’m useless with stuff like that, I guess like many things once you have done a bit it starts to get easier…!!!

Dilemma tomorrow… work do!! 7 of us in a private dining room… agreed everyone will LFT in the morning. Would you go?? Are any of you doing stuff like this, are your other halves?

carriebradshawwithlessshoes · 16/12/2021 13:12

Same here re the jab Danni. I was ok… bit headachy but think that’s my red wine consumption at the mo!

What upsets me is that my 2 kids won’t be in school together. I know that’s something and nothing probably but there are so many siblings in that school, DD will be devastated that hers isn’t.

danni0509 · 16/12/2021 13:17

Carrie, if that was my ds, no I wouldn’t want him in a mainstream school, definitely not, but you’ve tried haven’t you. And your making the steps to move him.

My Ds should of never of gone into a mainstream school, but at the time when he was 4 and I had to apply for a school, I was told to do that by the child development centre (obvs because it’s cheaper) mainstream schools aren’t specialist enough for your ds in my opinion. He needs proper specialist teachers who do this day in day out and have access to the right resources.

Most ta’s at ds old school just want a job whilst their own dc’s are in school (no offence, some are lovely and they care for the kids) but often they aren’t overly qualified. And definitely not to work with complicated children (not saying your ds is complicated btw, hopefully you know what I mean)

(Ds had a dinner lady looking after him in the morning at one point when they were short staffed at his old school due to covid, I don’t think you posted back then? I used to kick off every day on here about it! Asif a dinner lady with next to no training could manage my ds let alone teach him)

Your doing the right thing in moving him. X

danni0509 · 16/12/2021 13:18

And 6 is still so young. X

danni0509 · 16/12/2021 13:20

Light, tiling. That made me laugh. I thought I was clever the other day getting mould off my tile grout! Lol

MagratGarlikInDisguise · 16/12/2021 13:32

@carriebradshawwithlessshoes I agree with @danni0509. I think the damage done in anxiety for all of us in Ms was just shocking. His 121 was a school mum who had gone on a course. Now, the tas are all properly trained and are used to sen kids. They tailor everything around each child and their needs. That way, the child can thrive.
In my opinion, a private school will still have behaviour expectations that my DS actually cannot meet due to his sen. He would again be being set up to fail, then feel bad, then get more challenging etc. He really needs a unique bespoke approach that only special provision can give him. But that's just my opinion about my DS.
Aww I saw a video DS' school made today doing an Xmas video. It was lovely and very inclusive. DS now saying he wants to be a youtube sensation when he grows up...!
Got to go and finish all the wrapping etc. Good luck everyone getting everything finished before the kids break up!

carriebradshawwithlessshoes · 16/12/2021 14:19

His communication needs are complex danni so yes I know what you are saying, and Magrat. It feels a huge responsibility to work out where is best for him and sometimes things arise like the private school option and you think have I missed that??? Has something fallen through the net that I’ve not properly considered? You know what I mean…

Good luck wrapping Magrat it’s a job and a half!!! If I see another sellotape roll it will be too soon!!!! X

danni0509 · 16/12/2021 15:56

My nephew came this afternoon with my sister (he’s 8 months) ds has only seen him twice before (have to be careful because ds hits etc and ds had a phase of saying he was going to hit him on the head when he see him) so it’s been more of a weekly FaceTime, and 2 occasions were they have briefly met, well ds was really good to begin with read him a story about a dinosaur, introduced him to about 300 teddies, told him about the ‘fucking word’ he gets into trouble for saying, which it’s a good job he’s only 8 months and doesn’t understand 😂 then ds started getting silly and putting a pillow over his face and pressing it down so we called it a day, then as my sister was putting him in the pushchair ds started trying to hit him. And pull his bib off and tip his pushchair over, he was hell bent on tipping the pushchair so the baby fell out and was mightily pissed off that we wouldn’t allow him to do so. Confused

I thank my lucky stars I don’t have any younger kids!!! x

openupmyeagereyes · 16/12/2021 16:00

carrie I have said before that I think it must be very difficult for a non-verbal child in ms, especially one that doesn't have another way of communicating. I don't know any personally though and it is just my opinion. I know your ds is bright but that doesn't mean he won't necessarily achieve his potential in ss, nor that he can't transfer back to ms when his communication needs change.

Private schools are generally very academic and I think they often try to dissuade children with more significant SEN. I also think the parents are more likely to complain about behaviour when they are paying fees. I think overall it would be more stressful, not less, despite the smaller classes. I hope that I'm not speaking out of turn here when I say that Light's dd has the lowest support needs of all our dc. I don't remember any behavioural issues that Light has ever mentioned and the rest of us have all had these at times to a greater or lesser degree. I hope you understand what I mean here Light, I don't mean to imply dd is not affected by her autism, just that she presents differently, probably, in light of being a girl. I hope I haven't put my foot in it.

danni I'm sure I will cry tomorrow. We will pass by this school every day as it's on our route to most places including the new school. I know this is the right decision though and I'm hoping that in a few months our situation will be different.

Magrat I fear ds' career ambitions will be being on YouTube. It makes my stomach clench just thinking about it!

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livpotter · 16/12/2021 18:13

Good luck with the tiling light!

Hope you feel ok with the booster danni. I was the same astra Zeneca for the first two and had my Pfizer booster last week. Felt a bit funny for a couple of days but nowhere near as bad as I did on the AZ ones.

Hope last day of school goes well open.

Carrie if it was me I would want ds in a chill that puts communication (of all forms) at the forefront of everything they do and I'm not sure if that is possible in mainstream.

Magrat the video sounds lovely!

Well we are in the new house surrounded by so many boxes! It's very sobering seeing all your stuff piled up like that. I also very stupidly ordered a 7ft Christmas tree which turned up this afternoon, I don't know what I was thinking, Bedlam! Anyway I'm never moving again.
Ds has handled it really well. His is the only bedroom that's fully unpacked as we want him to settle in asap. Have no idea how I'm going to get him on the bus tomorrow though.

openupmyeagereyes · 16/12/2021 18:50

liv congratulations! Bribe, do whatever it takes. It sounds like you need the free time more.

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livpotter · 16/12/2021 19:58

Thanks open. Yes I have some Marvel Lego for the morning to hopefully motivate him!

dimples76 · 16/12/2021 22:15

Light wow, tiling. I am impressed. But I am totally useless at DIY.

Open fingers crossed that you can get DS in tomorrow for a farewell.

Carrie I totally understand about wanting the children to be at the same school. My DS would be thrilled to introduce his little sister to his school. Covid has spoiled my plans to visit special schools so no progress on that front here. I also get sad when DS talks with excitement about going to the local secondary school which he definitely will not be attending as way too academic.

LightTripper · 17/12/2021 10:12

You haven't at all @openupmyeagereyes! I think it's one of the big unspoken barriers in autism isn't it, that it's so different between people and it can create barriers between us as parents can't it? I often feel a bit guilty like maybe I shouldn't really be here because we don't have the struggles that many people do. But then I think I really like you guys and want to know how your kids are getting on, and also I do see lots of similarities at a more fundamental level - just with things like processing, anxiety, sensory stuff, that I can see is common across all our kids but to a different extent and in different ways.

I also know that sometimes parents come across our thread and it's probably nice for them to have the whole range of experience here. But if I'm ever being annoying please do tell me - I promise not to be offended!

I agree I think non-verbal will probably be hard in private MS too. Certainly in the two schools DD has been to, although they've been very nice in being calmer and I think more flexible than many MS schools would be able to be, in terms of actual knowledge of autism I think they have both actually known a lot less than the state schools we visited. So I wouldn't expect the class teachers to be well versed in other communication methods or how to differentiate their communication to make the material accessible.

Hopefully though if your DS learns to access e.g. AAC in the future then there may be a lot more options opened for him? I think it's worth remembering that a lot of European countries don't even start formal school until Y3 do they? So a lot of our school experiences are very specific to the UK and the way we happen to do things here.

DD's only behavioural issues have been more of a "freeze" variety (e.g. getting overwhelmed and melting down/crying) - but not an "active" variety (she tends to internalise rather than externalise her overwhelm and frustration), which I think is a lot easier for schools to handle. At the end of the day if they just don't ask anything of her and give her a quiet space then things will resolve by themselves, so they don't really need any expertise - just a bit of compassion and common sense. I also probably mention those things less because (a) they are less traumatic for us (being largely internalised - though still upsetting to see DD suffering) and (b) because I'm very similar it seems not so noteworthy to me, just part of life. I think that's why I often find myself mentioning DS on here rather than DD - his NT ways are much more exotic and mysterious to me than DD is!! He has me completely wrapped around his finger as a result.

Tiling seemed to go OK but to be fair it was only 1 row of 6 tiles to create a splashback, so I think it is pretty baby steps on the tiling front. I also haven't actually been back in today yet to check they haven't fallen off the wall overnight Grin. I did already buy some ready mixed grout this morning though, so I'm being optimistic....

@carriebradshawwithlessshoes in terms of doing things, I think it depends how much you want to not be isolating at Christmas specifically. I am generally being careful but on the other hand I'm going to the kids carol concert in about half an hour which seems really stupid to me but I couldn't face telling them that either (a) they couldn't go or (b) they could go but I wouldn't come. So anyway, there we go, this is how I will catch Omicron (we're in London so EVERYONE has Covid. Except us. So far).

@danni0509 I had AZ followed by Pfizer too and found far fewer side effects this time. I think there are reasons why mix and match might actually be better than having the same one 3 times, so definitely nothing to worry about :)

openupmyeagereyes · 17/12/2021 12:15

Thank you @LightTripper I must admit I nearly had my post deleted Blush. Please don't ever think that you shouldn't be on the thread, I really value your contribution. And, yes there are definitely common issues with all our children, they just manifest in a slightly different way.

Well ds spent about 20 minutes in school today saying good bye to everyone, he popped into each class. I actually surprised myself and didn't cry though I was definitely a bit choked up. They had made him a lovely card where they had all written a message and drawn a little picture and it had been stuck in. He said thank you to his TA's unprompted and gave them a hug. Ds said that he felt a bit sad about leaving and a bit excited about the new school, so a perfectly normal reaction. I've said before that he's very out of sight, out of mind so hopefully that will work well here, especially once he sees the facilities at the new school.

Gah, only 8 days left and so much to do!

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openupmyeagereyes · 17/12/2021 12:16

Dh and I have been able to move our boosters to next week. It will be either Pfizer or Moderna as you can't have a third AZ. By all accounts the combination is beneficial anyway.

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dimples76 · 17/12/2021 18:53

Open I am so glad that your DS got to say his goodbyes and wasn't upset by it.

Light of course you should be here, you're an important part of this thread. And as you and Open agreed there are a lot of similarities with our children.

Liv I moved into my house this time of year but that was pre-kids. I remember my Dad implying that I had my priorities all wrong as I was putting up Christmas decs before I had fully unpacked.

We have been to an illuminated trail this evening. We went to a National Trust one which I found rather crowded and overwhelming but today's visit to a place closer to home was blissfully quiet. DS is getting much worse about speaking inappropriately to strangers although tonight he cracked me up. He asked a member of staff if they worked there and when they said yes he responded, that's a good job, you just get to stand there and do nothing!