Making hay while the sun shines and always adoring Beatrice.

[cupofteaplease]

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can.

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply , read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.

Oh lovely to hear she seems to be responding to AB. Love that she found her voice and reminded everyone she's here.

Positive changes by the sound of it! Hurrah and I hope it continues in that direction for you all :) xx

Here with you cup and sending love and strength to you and Bea xxx

I see it's been another tough week. Will lift up my hands in prayer for Bea

Hope Bea is better today. Must be strange for you to hear her cry! But it sounds like a positive thing developmentally.

Come on Bea, you can do it.

Candle lit for Beatrice today at church. x

Just checking in to see how Bea is today. Hope you have managed to have a peaceful weekend with no more major problems

Oh Cup. Praying hard for you here.

Still thinking of you cup and Bea.

((((((((()))))))))

Thinking of you all, Bea is an AMAZING fighter, come on littlest teacup you can do it x

Beatrice has crashed twice today. Once when I wasn't here, abd again about an hour ago as I got her ready for bed. It was utterly terrifying, I've never had to pull the emergency button before, the room flooded with nurses and doctors and she was put on a mask with a bag attached. She soon recovered, but I was shaking so hard. I just kept saying, 'Mummy's here. You're not going anywhere, it's not time yet, stay with me.' But I'm never going ti be ready. I'll never be able to say goodbye. I'm so scared this time, she's taking so long to get better. We've hardly had an visitors, I can't leave her side as she keeps choking on her secretions and desating. I'm exhausted with worry. I had a night away yesterday as my dh stayed here with her, but after he left, before I arrived, she crashed. I can't risk leaving her again.

Both my older dds are sick with a vomitting bug, my dh has been signed off work with stress as he tries to keep the house together at the same time as getting our new house ready for us to move on Saturday. We move in 6 days, and we haven't even packed up the old house. I haven't been able to help with anything as I'm at the hospital all the time.

The Teaset is falling apart.

I'm so sorry :( I'm thinking of you all and sending best wishes to little Bea xx

Thinking of you all, x

Oh love .

Is there anything we can do?

I can pack, look after the older children so your DH can be with you, etc etc etc.

I'm so sorry . Thinking of you all.

Thinking of you all - I am sorry I'm not close enough to offer help in rl but will keep praying for you all.

Thinking of you all and holding you in my heart.

Sending so much love, positive vibes and hope to Bea.

Second what Fab said, anything we can do?

hoping Bea pulls throughCup. thinking of all the teaset

Where does cup live? I will help if I can . I have been checking in all day to see if there was an update . Stay strong cup , you are an amazing mum . Xx

Oh Cup, thinking of you all. Just you & your dh be there together with Bea. Everything else can wait.

Let people help if there is anything they can do.

Wishing Bea a peaceful, restful night so that she can be better & be home with you all soon xx

Thinking of you, Cup and Bea and all the tea set. xxx

Packing - can you use some funds to get packers in, or a team of family and friends just before? Apart from one set of clothes and toothbrushes/teddies you can sort the rest later. Get takeaway or ready meals once you are there and get people to unpack the essentials for you - ie clothes in one corner.

Let the practical things go as much as possible and just BE with Bea at the moment. I hope and pray she strengthens and can come home for many more adventures.

You are with her. She is loved.

Prayers, love and hugs to you all. X