Not borrowing trouble ahead of time, just enjoying each day with Beatrice.

[cupofteaplease]

Thanks to Thumbwitch for inspiring the title of this new thread.

I will do my very best to minimise my worrying about the future as none of us know what it holds. For now, it's all about celebrating Beatrice's life today, every day.

As always, please feel free to follow us on our journey, and thank you in advance for the wonderful advice I am bound to receive from fellow parents, of SN children or otherwise.

Here's to a positive, uneventful thread!

Oh my she is gorgeous. What ace chubby cheeks! X

Beatrice has been up and down over the last few days. The consultant decided this morning that she could go home as she looked so much better, but this afternoon as they were preparing her discharge paperwork, she spiked another temperature and her heart rate increased again. So they have decided that she needs to stay in again, and they will try some new antibiotics. I was so close to getting her home, that I now feel like a deflated balloon. I'm hunting around to find someone who can have the older girls overnight as dh starts work at 2am. He is very stressed at the moment and getting very angry towards me. We are hardly speaking as every telephone conversation has ended in bitterness and blame. He has only been in twice this week, both very briefly. I am feeling incredibly alone and down.

He probably is as well, cup. it's pretty hard to be trying to keep everything going in the background, as well as being at the draining coal face. Not good for either of you x

Good luck with finding someone to help out overnight. So tough when things change unexpectedly.

Sending strength to you, and health vibes to Bea. Remember you don't have to be strong all the time and it's okay to take some time to concentrate on being a blubbery heap. coping is exhausting. X

SO frustrated I can't help as I would if you would let a random stranger near you!

Your DH is hurting and worried an dstruggling and when Beatrice is home it is time for a calm chat about how this is NO OPNE's fault and he can not be like that with you.

Can we put a call out for some help which is near to you or a visitor?

Oh Cup. I'm so sorry that you and Bea haven't managed to escape from hospital. I can understand how deflated you must be feeling.
The stress between you and your DH is perfectly normal. He is under pressure as presumably his workload has increased in keeping things going at home and his daughter has been poorly again too - men deal with that in a very different way to women.
Is there anyone who can come and sit with Bea for a while so that you can go home for a few hours and perhaps have a meal with DH and the girls?
Do the Hospice do outreach? I know they have helped us out when DD has been in hospital, but it may not be something your hosice do.
At risk of stating the obvious, are they sure that Bea's rise in temperature is due to an infection and not just down to the hot weather. I've no doubt it is warm on the ward and I know my DD has great difficulty in regulating her temperature in hot/cold weather. In fact she will be roasted when she gets home from the school on the bus as its like a glass house on wheels with no air conditioning and only a skylight for fresh air.

Fingers crossed that Bea's temperature stabilises and you escape soon. And don't beat yourself up over the situation. You are a fantastic mother.

Cup - you and dh are facing a very tiring and difficult situation. Him with the big girls, you with Bea and both of you facing the unrelenting difficulties all of you have forced upon you. It's just so very hard for both of you

I know you feel alone and you do need more RL support. You know though, don't you, that you are our Father's precious child and His hand is on your shoulder. You may not feel you are able to talk to Him at the moment. That the words won't come? I've felt like that before. But I've learnt that even when you feel like you can't pray, He is still listening. I will bump the prayer thread now. Hang in there Cup

Oh Cup, I am so sorry to hear that Bea has another temperature

:( Cup good vibes for the Teaset.

Sorry to hear Beatrice is not again again

Sending positive vibes to you all.

hope she has a good night and feels much better soon x

oh Cup (((hugs))) - sorry to hear that Bea isn't so well again and very sorry to hear that the stress is taking its toll on you and your DH - I hope you can get some time to try and talk to each other without some of the pressures on you. Is there any way you could get a bit of time away, just even an evening together, to try and "reconnect"? (sorry for therapese speak)

How was your night, Cup? How is Beatrice? I hope you both get home today. If so, get easy food in and have a lovely, cosy day together and sort out MrCup

Oh cup. Sending loving thoughts to you all. So hard on you and your DH in similar and different ways. You know you can always vent on here- no-one here will ever judge you (other than the pedestal I have you on as a brilliant mother and person).
Just do whatever you need to do to get through each bit. xx

Thinking of you all x

Hope you are home and things are easier. So tough for you all.

Hope you are home soon, DD is rubbish at controlling her temp and in this hot weather we have noticed her core temp has Got quite High but she is perfectly ok, no illness. Teething for DD also causes temp spikes!

They are home

Oh good!

Glad you're all home cup. What a little trooper Bea is :).

Gkad you are home, Cup. Best place for you both¬

Back in this morning, prayers please

Oh I am praying here.I was at Church yesterday for Penecost and did a flame of hope for the wonderful CUP family and Bea the Brave Beauty.

Lisa123 - please let cup know there are lots of people rooting for her and bea. I'm not religious but i will put my faith in Cup's ability to cope with all the crap that is being thrown at her right now and hope for better times ahead

Thinking of all the Teaset.

Sending love to Bea and the whole set.