Not borrowing trouble ahead of time, just enjoying each day with Beatrice.

[cupofteaplease]

Thanks to Thumbwitch for inspiring the title of this new thread.

I will do my very best to minimise my worrying about the future as none of us know what it holds. For now, it's all about celebrating Beatrice's life today, every day.

As always, please feel free to follow us on our journey, and thank you in advance for the wonderful advice I am bound to receive from fellow parents, of SN children or otherwise.

Here's to a positive, uneventful thread!

Thinking of you as always xxx

Prayers here too for you all

Thinking of you all and sending lots of love xx

You're in my thoughts. X

You're in my thoughts. X

Thinking of you all x

Sending love and strength to you all cup.

Can they expedite her NJ (ie do it NOW!) or is that what you need a bed in Oxford for?

Thinking of you all and hoping for a settled night for Beatrice x

Praying hard here in the Cotswolds - for Bea, for her family, and for all the wise people who they have to trust with her care. May the experts be gentle with little Bea - there are an army of people who care passionately about this darling girl x

best wishes for a good night and day tomorrow xx

Thinking of you all

Thoughts and prayers here.x

Thinking of you. Hope you all had a good night.

I've lit a candle for Beatrice and you, Cup, and I'm sending you my thoughts and prayers now. I hope things are going better, and that you both had a restful night.

A lurker here thinking of you and hoping that they get you a bed soon at Oxford.

keeping everything crossed here, hoping things are ok today.

Hoping everyhting is well with beatrice.

Thought with you all and positive thoughts xxx

Sending prayers and positive thoughts, cup. xx

Thinking of you and hoping Bea had a comfortable night.

Thinking of you all cup. Hope that the lovely Bea is more settled now, and that your sinusitis is on the mend. xx

Thank you for all your prayers and best wishes. Beatrice had a comfortable night so avoided an IV. We headed off to Oxford this morning and arrived in plenty of time for her 9.30 slot in radiology... Only to be told that they couldn't see her until midday. By this time I couldn't disguise my annoyance and disgust of the incompetence we had experienced, so I had to get out. Dh rang the hospice and they invited us over for tea and a chat to allow us time to calm down and talk through our options.

Whilst we were there, we had an in depth conversation with one of the nurses about the meeting with the anaesthetist on Friday. She was so incredibly helpful, answering all of our questions and allowing us to express our fears. I feel a bit more positive about the meeting now I have had a little rehearsal of questions I would like to ask. Oh, and the hospice have invited us for lunch before the meeting, which is lovely of them.

So, after tea it was back to hospital... This time, I chickened out and let dh take her in for the tube placement. I couldn't believe it when they were back out in just over 10 minutes with smiley faces, they got it in first time!

Before leaving we confirmed AGAIN, that we have open access to radiology at Oxford and this time we got a doctor's name to quote next time.

What a wonderful up date (other than the mix up at the hospital). Such a great supportive Hospice, Thank God for them

Thank god for the hospice and Beatrice (and your determination).

So glad you had the support of the hospice and dh today x and yay for the tube placement x

good

open access is a wonderful thing

(mycat namechanged)