Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Tinsley House Support Thread

980 replies

IndigoBell · 16/02/2012 01:55

An awful lot of us are now doing Tinsley House, either by going there, or by following the recommendations in The Brain Food Plan

So this is just a general support (and hopefully good news) thread.

Stage 1 of the TH therapy consists of:

  1. Multivitamins
  1. Healthy eating diet
  • High protein, low sugar, no artificial sweeteners, additives etc.
  1. Specific exercises done 3 times a day
OP posts:
IndigoBell · 21/02/2012 08:03

TTA - everything you need to get started is in the brain food plan, so you don't need to spend any money to get started.

If you buy the book and need any more clarification on anything, ask on this thread.

If you follow the book for 2 months and don't notice improvements, then it's reasonable t assume it won't help your DS. TH is not suitable for children with severe ASD.

You don't start with the vision therapy.

OP posts:
johnwithers · 21/02/2012 10:21

I keep looking at tinsley house. I bought both books years ago, Ds,s diet is already pretty good but now they are at secondary I have less control and after years of being aspartamine free they love to sneak in a diet coke when out. we have just gone back on fish oils, eskimo at present. Much try vegepa as I never notice any benefit from others. They may have been a bit calmer on flax oil??. we also use power teen which has fairly high amounts of magnesium @%)mg and zinc and loads of b bits. . ds1 has awful eye contact and nystagnus. Ds2 has some nystagmus. Both have squints. Ds2 has had surgery. He defiantly has no binocular vision at all. Both is due to an inherited eye condition. Ds1 also has asd. Ds @ no other problems but misses words when reading. Both have poor comprehension.
I tried stairs a few years back but stopped as wasn't sure if we were getting anywhere.
Ds !ds

johnwithers · 21/02/2012 10:23

Sorry having problems, just to add ds1 did retained reflex therapy, don't know how much that helped, but got rid of the toe walking. Still intreged buy tinsley house

Becaroooo · 21/02/2012 10:29

Hi all

Just to let you know I am going AWOL over lent Smile

Am also giving up ordering from amazon during lent too - so hopefully should be a bit richer by easter!! Smile

Best of luck to all of you...I will be keeping in touch with indigo so if I have anything to report she will let you know!

xxxx

crazygal · 21/02/2012 10:33

indgo the link you put up on the vitimans has just arrived to me!! yay!!
omega 3&6 mag &zinc and the multi vits,
im struggling to see what dosage to give? 4 capsules a day of omgea?? 10mls an day of the other two?? does that sound about right?

IndigoBell · 21/02/2012 11:01

CG - did you buy the chewable vegepa or the swallowable ones?

TH recommends 500mg of EPA which is 1 of the swallowable capsules and 2 of the chewable ones.

BlueShark recommends double that, which is what my kids are currently on - but I started them on 500mg.

OP posts:
crazygal · 21/02/2012 11:45

hi indigo i got the vegepa chewables,actually looking at the box,there just omgea 3......
do i get the same in omega 6? (his book is on order by the way)
also got floradix liquid calcium magnesium zinc formula.
plus floradix kindervital,calcium,vitamins,A,B,C,D and E.
both floradix is 10mls?

IndigoBell · 21/02/2012 12:16

You don't need to bother about omega 6. I don't know why.

I don't know howuch floradix. I think 10mls. Whatever it says on the box.

OP posts:
HolyCalamityJane · 21/02/2012 13:07

It's 10 ml twice a day of both of the floradix.

skewiff · 21/02/2012 13:12

My DS got terrible runny poo having that much floradix though.

skewiff · 21/02/2012 13:13

and tummy ache.

Becaroooo · 21/02/2012 13:14

I give ds1 10mls of each per day...and he has 5mls of fish oil. Thats enough for my ds1 IMO as well as the dietary changes too.

mrsbaffled · 21/02/2012 18:47

I have bought the 2x floradix and 1x Eye Q. If I give the recommended doses I will be a pauper very quickly! I reckon each bottle only lasts 2 weeks - I think I will try half dose initially....

HolyCalamityJane · 22/02/2012 05:45

Has anyone ever tried a balance or wobble board? Thought it might help any recommendations?

IndigoBell · 22/02/2012 07:46

We got a cheap one from TKMax ages ago. (Before TH, the OT recommended it)

Used it a bit, I can't say if it helped or not :)

OP posts:
mrsbaffled · 22/02/2012 08:32

I have a wobble board. DS likes to go on it (only very occasionally), but balance isn't really a big problem for him. It's meant to help with core stability. TBH the VT exercises are making more of a difference to him (in core stability) than the board ever did.

jalapeno · 22/02/2012 10:06

Spoke to TH yesterday, we've booked DS in Smile

Have just discovered that when I sent DH and the kids to the cinema at the weekend with freshly popped plain popcorn, DH emptied loads of sugar into it Angry I think I'm going to have to deal with his carb addiction first!!! Then he bought some bubblegum flavoured toothpaste for the kids as I stupidly just asked him to get toothpaste without giving him the exact coordinates of our usual brand in boots. We have only ever had minty paste!! Luckily I saw this before it was used...

QQ about the eye-q liquid, we put 5ml on breakfast but can't sneak the rest of the loading dose anywhere else as he sussed it was in his juice. Is it palatable to swallow a spoonful quickly? The thought of it makes me feel a bit sick so I haven't tried him with it yet. He takes the osteocare off a spoon no problem. Any other hints for hiding it would be great (he can't have yoghurt or other dairy stuff though).

runninggal · 22/02/2012 11:37

Hi Holy (Paranoid2 here). We use a wobbleboard. DS's core stability has certainly improved but not sure how much is due to the WB and how much to others. We no longer do exercises for core stability but we still use the WB for exercises such as throwing a ball while wobbling and doing sequencing tasks at the same time.

mrsbaffled · 22/02/2012 13:19

DS takes Eye Q off a spoon with no complaints

jalapeno · 22/02/2012 16:01

Thanks mrsbaffled, I'll give it a go. Will have juice on standby...

mrsbaffled · 22/02/2012 16:07

:)

sphil · 22/02/2012 16:43

We are doing Tinsley House Lite at the moment Grin with Ds1 who is 10 and dyspraxic. Previously he has done RRT for a year, which helped a lot, and he has been on Eye-Q chewables for ages. We started the diet three weeks ago and have seen some very positive changes. DS has started doing joined up writing for the first time ever and has gone up from a level 3 to a level 4 in writing. They have just introduced a pencil scheme at school where you have to progress up through different colours according to how much care you take with presentation. As you can imagine my heart sank when I heard this, but he came home delighted after a week when he had zoomed to the 'top pencil' Smile .He has always been an avid reader but has struggled to show his potential in tests because reading is always assessed through writing. However his latest SATS practice paper was marked at a 5c. It has always been taken for granted that he will get exam concessions but at parents eve before half term his teacher was questioning whther he needs them ( and I have to say I agree, though will probably still push for the extra time).

Over half term we let the diet slip a bit and I noticed a huge difference in his concentration and thinking skills when we were doing maths. Could have been the late bedtimes as well though!

Can I also put in a plug for Apples and Pears, a spelling programme that was recommmended by Indigo - this has helped Ds1s spelling and handwriting hugely.

I am intending to swap the Eye Qs for Vegepa and try Osteocare when we run out of EyeQs (stingy!) . Am put off Floradix by sweeteners as DS reacts badly to them. Havent done the exercises yet as DS is getting a bit scratchy about the daily homework school is setting and the Apples and Pears his horrible mother makes him do Wink. He has also taken a dislike to Robin Pauc as he read the bit of the book where he says dyspraxia, dyslexia etc dont exist as separate conditions, just symptoms of an underdeveloped brain. Was enraged as he says he likes being dyspraxic, its part of who he is! [ grin].

Oh and to complete this over long post, I am also trying to get more protein into DS2 ( severe ASD) and after 5 years of only eating hummus sandwiches for lunch he is now eating turkey and cucumber!

IndigoBell · 22/02/2012 16:58

Sphil - excellent. I'm so pleased.

Floradix has no sweeteners in it. It's the osteocare which has sweeteners in it. :)

It's funny, DS likes having ASD too. He feels it's part of who he is. However he doesn't like the symptoms of ASD, so we focus on improving his symptoms, rather than the condition.

And of course, now that he's getting better (calmer, happier etc) he is pleased we've done it.

OP posts:
sphil · 22/02/2012 17:07

Oh thanks Indigo - thats what comes of skim-reading posts!

IndigoBell · 22/02/2012 18:24

DS had a slight blip today :( :( :( :(

He beat up another boy quite badly

Damn. Damn. Damn.

He's come so far. School agree he's come so far. This is only the 2nd incident we've had since Sep.

But quite far isn't good enough. He needs to go even further.

:( :( :(

School are handling it really well. Both kids are being spoken to. And I'm really happy with all of that, and the why it happened and all of that. Just very, very sad that it happened at all.

6 months until he starts secondary....... :( 6 months to fully sort out his 'anger problems' :(

Damn.

OP posts: