Tinsley House Support Thread

[IndigoBell]

An awful lot of us are now doing Tinsley House, either by going there, or by following the recommendations in The Brain Food Plan

So this is just a general support (and hopefully good news) thread.

Stage 1 of the TH therapy consists of:

1. Multivitamins

• Omega
• Zinc & Magnesium
• Multivitamin

1. Healthy eating diet

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific exercises done 3 times a day

Hi Indigobells DH here i can also pass on PM to her.

That is very sad if that is the reason. I wondered why she couldn't access my pm over the weekend. IB has been so helpful to me on- as well as off-thread.

Does anyone know how to set up a closed FB group that maybe we could continue discussions on?

I had an online forum run in with Indigo at one point, we violently disagreed with one another, yet I would never ever have wished to see her banned, as the discussion helped me clarify my own position on a number of points. Open debate of what may help our children is the only way forward. This is very "flat earth" of MNHQ it has to be said.

Assessment and therapy (if needed) is standard practice for visual tracking issues in Australia. Here it's hard to find anyone who even knows about visual tracking issues much less offers help in the public OR private sector. Sort the visual tracking issues and many a child can lose the "dyslexia" diagnosis.

A similar story is very, very gradually emerging re auditory processing disorders (the inability to "get phonics"). I come from a long line of dyslexics, yet it is only this generation of children who will be able to access help to mitigate the underlying physical causes of dyslexia, for my age group there was still a fight to get the fact "dyslexia" exists acknowledged. Some of what is now regarded as cutting edge, will eventually be seen as old hat by our Grandkids.

Agree too re the nonsense over on AIBU having to be tolerated by SN mums. Rightly or wrongly Indigo took MNHQ at their word and sought to "educate" the ignorant. As she's been punished for attempting this I take it that none of the rest of us will henceforth be encouraged to "educate" next time someone is astonishly rude about our kids?

If Indigo would like to stay in touch hubby, do please pm me & I'll pass on my email. We can continue our ideological and scientific arguments & discussions off line

Perhaps an FB page would be a good idea?
Not sure how you do it though! (dense)
Am deeply disillusioned with MNHQ over this (and other things)
Such a shame.
Perhaps people could PM Indigos dh? (seems a bit quicker than going through me!)

MNHQ, please can you clarify your position on this? As far as I see it Indigobell stated her belief that dyslexia is curable. She believes her dd is virtually cured. She may be wrong but who is she harming by stating this belief?
Yesterday I read a thread where a Muslim woman stated her belief that her sister would go to hell for having a relationship with a non Muslim man. MNHQ defended her right to state her belief. Her belief can do significantly more harm than Indigobell's, surely?
Indigobell was perfectly happy to discuss her views on dyslexia in a considered and polite way with anyone who disagreed. She has also provided invaluable support to other SEN parents on this forum.

Fact is Bochead that what we are doing (TH, RRT, AIT all of it) will be mainstream in 10 years and MN have really missed the boat on this one.
They are always bleating on about caring about posters with kids with sn/sen but when push comes to shove they are "flat earthers" as you say
(great phrase btw!)
Basically a poster (perhaps a DA tutor for example!!??) complained and that was enough for MNHQ to ban her.
I see so much awful stuff on MN on a daily basis...pesonal attackes, hideous disablist views, trolls, troll hunting....and they ban Indigo for simply telling the truth...that her severely dyslexic child has been helped immeasurably by going GF/CF and taking supplements.
To quote Jamie from "The thick of it" MNHQ are in grave danger od becoming "mimsy bastard quisling fucks"

Exactly shopping.
Exactly.

Also (i'm upset and on a roll now) just because current neuro-scientific thought is that dyslexia is incurable does not mean this thought will never change. there was a time when cancer was considered incurable, this was wrong.
And... If you ban Indigobell for ideas that go against current medical thinking I hope you also intend to ban those who regularly express views that vaccination can cause autism and other problems in children.

what a shame about Indigo, she has shared knowledge and experience for free and has been ever so supportive on many threads even though she has ft job, 3 kids with different sn issues, schools to helps her dc...!

I suppose everyone has a 'word' to describe their dc improvement, every time someone has started a thread to indicate a cure (GAPS diet, RRT, and this one) has been highly attacked by other posters,. We are all here, well most of us are sharing ideas on how to improve pur children lifes and future, whats wrong to use my word ;cure'. I cured DSs RRT and I have a specialists signature behind it as well as school and family supporting this.

I know we are all RECOVERING our children from their issues but nothing wrong to use a more simplistic word such as 'cure'.

Wish I had time to be more supportive on here, but no time with 3 young kids running all household, appointments, doing all therapies alone

There isn't even standardised agreement yet on what dyslexia actually IS, or what causes it ffs. In most areas the term SPLD (specific learning disability) is now used to reflect this as dyslexia actually covers a range of disabilities from visual tracking, to audioprocessing & all sorts inbetween. .

I think the key message to take from this, is that it's not worth posting any hints and tips to people on the main boards. It's safer to stay here in special needs, where at least our kids aren't regularly insulted, and leave the flat earthers to flatline in a stew of their own making.

I would bet good money that the posters complaining have a vested interest...the worst personal attacks indigo and I have suffered have been from DA tutors!!(who make a lot of money from tuition which is needed for years and years and years......)
Maybe indigos posting style is a bit brusque? But, Blimey, I could say that about 80% of the posters on MN!!

Agree bochead.
But I came across indigo on the primary ed boards (as a lot of people have I think?)
I would certainly not have immediately gone to the sn boards 4 years ago....

Aaaah - my Mum was a DA tutor. It was her that first pointed out to me that actually overlearning & superb tuition does NOT always help where there is an underlying physical or neurological issue, (as there deffo is in my son's case). DA is great for kids who have just been badly taught, or have mild issues. Sadly access to lots of private DA tutoring (Granny) at an early age didn't help my DS or my sibling. Mum got into it as dyslexia is an intergenerational issue in my family, and she had two kids who needed help, (myself & a sibling). She's left the DA now as she felt they were "falling behind the times" - from a 76 year old that's hardly a ringing endorsement lol!

I'm not actually going to/have been to TH at this point in time, so have no vested financial interests in either the DA (who to be fair DO help a lot of kids) or TH, (who seem to help a lot of children that the DA can't). If you ring TH Robin is the first to admit his methods can't help ALL dyslexics. No one solution is going to be right for every child - all any of us can do is research ALL available options & try and select the best fit for our own individual child, and their specific issues.

Feel bereft without Indigo on TH thread. She is a TRULY AMAZING woman. Still, we are in touch. Cannot explain how important this thread is to me. DDS is so tough and this thread gives such amazing support.

DS and DD on plan now for 7 weeks. DS behavioural problems so much better. Last two mornings has asked to do stairs and teeth first thing in the morning though still hates evening teeth. Has really coped well at school compared to pre TH.

I too have added extra minerals following hair analysis report. Loads of B6 is really helping though Robin wary about overdoing it.

Keep looking at VT disk that Robin gave us at first appointment but have not done as DS got violent. Going to start after follow up at the end of September. Dreading it but know it will sort out his eye problems.

The lady I spoke to at DA was very nice.
And horrified by what I told her of my ds problems and experiences at school.
But I realised pretty quickly that all the stuff that DA do I could do at home 1-1...apples and pears, earobics, etc
I guess it's a route I would have gone down if not for TH in all honesty.

Beautiful possum, most of us have found bribery helps at first with vision therapy. If your ds can cope with longer term rewards the offer of a prize when he gets a certain number of stars may work. My ds needs instant gratification so I read Harry Potter to him while he does VT (loves being read to) and I feed him a few chocolate buttons if he starts to flag. At first we found we needed a break between each exercise so it took forever. He is now doing fifteen minutes without a break and without complaint.
Baby steps.

Badvoc - thanks for the reply and the timescales, I've looked at the feedback area at TH and can see you've had great success which is really encouraging.

Just need to keep up with everything suggested in the book before our visit to TH in November.

Ds has not been well tonight. We have been talking about whether he should go to school tomorrow and he sad that he really did not want to miss school! A year ago he would never have said that and would have cried and sobbed to stay at home.

What a difference!

Hi everyone.
Have spoken to indigo. They are going to Th this weekend so I may have an update to post from her n Monday.
She is fine and touched by the support she has recieved.
Da1 win a prize at the art comp!! :)
Don't know what yet, but am thrilled. Hs first real stab at art and it wins a prize :)
He is also going great guns on his Greek trireme and he should have it finished before the project cut off date.
Ds1 went to anther boys house strait after school yesterday and....drum roll!.....ate some gammon!
:)
Not much I know but another big stride for him.
Had to apply for his place at middle school this week and had a bit of a wobble but I really think that by the end of year 5 he will be ok :)

So pleased all is well with Indigo and you this week. Ds has now had 13 full days at his new school and still not a single melt down. He hasn't even cried and is no longer even moaning about doing the work. His handwriting is really different in just two weeks there. When I look at the progress he's made in six months (6 months on omega 3 and 3 1/2 months at Tinsley House) I am amazed. I looked today at the Mother's Day poem he wrote at school in march - massive writing, barely legible and really basic. Today he spelled 'relief' 'complete' 'extreme' and 'quickly' correctly in a test and his writing was beautiful even though it was done quickly. Fabulous :)

Wow.
That's amazing!
So great to hear such progress.
Do keep updating...we will need a new sparkly shines new thread won't we??
Shall I do the honours?

Have started a new TH support thread.
Can't do links so hoping someone will come along and link to it for me!
:)

I emailed Indigo and she is very keen for this thread to continue instead of us moving to FB.

New thread

See you there!

Hi Shopping, Thanks for that. Will set up VT tomorrow and bribe like mad. Instant gratification is required ( he is massively dyspraxic) Behavioural issues are definately our biggest challenge at the moment. Does anyone know when R obin deals with behaviour, I don't know if it is cerebellum or pre frontal cortex?

Generally had a good week. DS has coped at school and not had any major meltdowns though is still very controlling at times and generally a PIA. We are off to see Robin next week and am really excited to find out how things are going.

Meeting with HT was not a great success. She thinks I am depressed and suggested a parenting course..... she is 32 with no kids! Meeting with SENCO on monday. Does anyone have any suggestions about intervention?

Thanks to Indigo, Badvoc and Blueshark I have looked at GF/DF options, also additional vitamins to chelate high copper levels. Robin thinks I shouldn't do too much. Really hard to know what to do.

GF/cf is harder to implement, but you could do what i do and do it in a sort if half arsed way! :)
I have swopped pasta to GF pasta and no one noticed!
I use GF flour to bake, again, no one noticed.
I also use GF oats to make flapjacks etc.
Ds1 does still have bread and rolls but much reduced.
Wrt cf you can try goats milk or go whole hog and try Alpro?