death of my son due to williams syndrome

[gingegirl]

i have been on here for a couple of months now as we were waiting for our ds to be diagnosed with a rare genetic disorder called williams syndrome.
our wonderful ds sadly past away on may 4 suddenly! we took him to bristol childrens hospital for a routine cardiac catheterisation to check all his coronary arteries. our beautiful ds sadly suffered 2 cardiac arrests during the test, he was then put on a life support machine. however he suffered a further 3 cardiac arrests whilst in intensive care.

doctors told us that an opperation was not viable and there was nothing that could be done to save him.

he was placed in our arms the machines were switched off and he past away peacefully in our arms.

i honestly dont know how we are going to cope now he has gone? my life was filled with appointments with him, salt,dietitian, physio,pead, cardiologist etc.....

he was such a happy little boy!!!!

is ayone out there going through the same thing????

some advice please!!!!

[Triggles]

I'm so sorry for your loss. What a beautiful boy! Thoughts and prayers for you and your family.

[ouryve]

I'm so sorry :(

[Ineedalife]

Very sad thing to happen, so sorry.

[dietstartstmoz]

so sorry to hear such sad news, i have also had a look at your photos and your DS was gorgeous. Such tragic news.

[1980Sport]

So terribly sorry for your loss! We've 'chatted' on the genetics support thread and I too sneaked a peak at your lovely photos - a gorgeous boy with a wonderful smile!

You and your family are in our thoughts at this sad time xx

[TheTimeTravellersWife]

I am so sorry to hear of the loss of your darling son. I cant imagine how devastated you must feel.

I hope that you do get some answers from the cardiologist.

[Larissaisonline]

Thinking of you, am so sorry for the loss of your lovely boy xxx

[Hulababy]

So sorry to hear that about the loss of your little boy. He looks lovely in his photos.

Take care of yourself.

[waitingforgodot]

Sorry for your loss. I hope you are ok.

[cankles]

So sorry for your loss gingegirl, thinking of you x

[asulikeit]

Truely sorry for your loss RIP Little one

[sickofsocalledexperts]

I have no words of wisdom, just sympathy. I know that a pal of mine had a lot of help and advice from the Child Bereavement Charity, could be worth contacting them.x

[proudmum74]

I'm so sorry ginger girl, he was a beautiful little boy.

[shazian]

So very sorry for your loss, what a beautiful little boy, now forever an angel. Cant begin to understand your pain and hope you, hubby and gorgeous little girl can reflect on the good memories and the time you had with your precious boy. Thoughts and prayers for you and family, and hope you find the strength to carry on. xxxx

[auntevil]

- for you and your family and friends at losing such a beautiful little boy

[weblette]

So so sorry Gingegirl, what a gorgeous boy x

[lisad123isasnuttyasaboxoffrogs]

so sorry for the loss of your beutiful boy x

[Eveiebaby]

So sad for your loss

[blueShark]

so sorry for your loss :(

[beautifulgirls]

Aww, his photos are just adorable. Thinking of you and the family and wishing you the strength to get through this very difficult time. He will always be with you no matter what. X

[2old2beamum]

I am so sad to read your sad news. My treasured son died aged 13years I felt my life was over,We had been through so much together. Although it was 8 years ago I am still grieving. I still feel the pain daily and I really wonder do I want the pain to go, it is all I have left. In a while my love you will embrace the pain and will not want it to go away. And remember no one can take your memories away
Much love to you and your family. Lindsey XX

[BialystockandBloom]

You poor, poor thing . I am so, so sorry for the dreadful loss of your beautiful little boy. Sending you all the love and strength in the world xx

[tiredmummyneedswineandsleep]

I'm so sorry to read this. My heart goes out to you. Photos are adorable. Sending you my love and sympathy. x

[woofie]

I am so very sorry for your loss gingegirl. What a beautiful little boy

[pigletmania]

Oh gingegirl big hugs to you (((((()))))). Looked at your pictures and your ds looks like a lovely little boy. My dd aged 4 has social communication difficulties, with speech and language developmental delay (possible ASD awaiting dx), it puts things in perspective. I often worry about her, that she is not at the same level as the NT children, and that her communication is not as good etc, but I thank god that she is happy and healthy and alive. Other things pale in comparison.