death of my son due to williams syndrome

[gingegirl]

i have been on here for a couple of months now as we were waiting for our ds to be diagnosed with a rare genetic disorder called williams syndrome.
our wonderful ds sadly past away on may 4 suddenly! we took him to bristol childrens hospital for a routine cardiac catheterisation to check all his coronary arteries. our beautiful ds sadly suffered 2 cardiac arrests during the test, he was then put on a life support machine. however he suffered a further 3 cardiac arrests whilst in intensive care.

doctors told us that an opperation was not viable and there was nothing that could be done to save him.

he was placed in our arms the machines were switched off and he past away peacefully in our arms.

i honestly dont know how we are going to cope now he has gone? my life was filled with appointments with him, salt,dietitian, physio,pead, cardiologist etc.....

he was such a happy little boy!!!!

is ayone out there going through the same thing????

some advice please!!!!

My thoughts are with you and your family-so sorry you have lost your beautiful son

So sorry to read about the loss of your DS,

We are connected,
My child and I, by
An invisible cord
Not seen by the eye.

It's not like the cord
That connects us 'til birth
This cord can't been seen
By any on Earth.

This cord does it's work
Right from the start.
It binds us together
Attached to my heart.

I know that it's there
Though no one can see
The invisible cord
From my child to me.

The strength of this cord
Is hard to describe.
It can't be destroyed
It can't be denied.

It's stronger than any cord
Man could create
It withstands the test
Can hold any weight.

And though you are gone,
Though you're not here with me,
The cord is still there
But no one can see.

It pulls at my heart
I am bruised...I am sore,
But this cord is my lifeline
As never before.

I am thankful that God
Connects us this way
A mother and child
Death can't take it away!

Oh, what an absolute sweetheart.

So sorry for your loss.

Thinking of you and your family x so sad

so very sorry, thinking of you and your family.

so very sorry for your loss xx

So very sorry to hear of your loss.
You and your family are in my thoughts and prayers xxxx

gingegirl, I cannot even begin to imagine what you are going through but know that it is my very worst fear on earth to have to.

I'm so so sorry.

I'm so sorry to hear of your loss. Your little boy looks gorgeous and I can't imagine how hard it must be for you at the moment.

I've not been through this myself, but any time you want to talk to me about him, I'll be listening.

If no one else has mentioned it, there are a lot of mums on the Bereavement board who have been through this and can also offer you support.

so sorry for your loss x

I'm so very sorry for your loss . (((((((((hugs)))))))))

what a beautiful boy, sending you lots of lovexxx

So very very sorry, Gingegirl.

I'm so very sorry gingegirl, he was a beautiful boy.

My thoughts are with you.

I'm so sorry, Gingegirl. Thinking of you and your family. xxx

I am so sorry for your loss.

What a beautiful, happy boy - you must have some great memories.

Oh god, I'm so so sorry. What a beautiful little boy.

Sending big hugs to you and your family. It's hard to lose a child/baby. I lost my son to Edward syndrome on May 4th, 15 year ago.
Hope you continue to find peace and strength.

So sorry for your loss. Thinking of you and everyone who knew the joy your little man brought, xx

I'm so sorry, gingegirl. I remember looking at the photos of your gorgeous children back in March. So cruel. Thinking of you.

I am so sorry for your loss, you will be in my thoughts and prayers