death of my son due to williams syndrome

[gingegirl]

i have been on here for a couple of months now as we were waiting for our ds to be diagnosed with a rare genetic disorder called williams syndrome.
our wonderful ds sadly past away on may 4 suddenly! we took him to bristol childrens hospital for a routine cardiac catheterisation to check all his coronary arteries. our beautiful ds sadly suffered 2 cardiac arrests during the test, he was then put on a life support machine. however he suffered a further 3 cardiac arrests whilst in intensive care.

doctors told us that an opperation was not viable and there was nothing that could be done to save him.

he was placed in our arms the machines were switched off and he past away peacefully in our arms.

i honestly dont know how we are going to cope now he has gone? my life was filled with appointments with him, salt,dietitian, physio,pead, cardiologist etc.....

he was such a happy little boy!!!!

is ayone out there going through the same thing????

some advice please!!!!

[FoxyRevenger]

Hi gingegirl, I have just seen this thread and had a peek at your photos. Your children are very beautiful. I am so sorry Oliver isn't with you any more.

xxx

[gingegirl]

Thank you all for such kind messages!!!!
There's nothing else to say really?!? I miss Oliver So much, and not a second goes by when he isn't in my thoughts, but I am so lucky to have had him for two years!!!! Better to have had and lost than to have never have had at all!!! And that is so true!!! No one can take away my memories!!!

[auntyfash]

I am so sorry to hear of your loss, he looks such an adorable little boy. xxxx

[amberlight]

There are never words enough, but I am so sad to hear of your loss...
Hope we can be here for you...

[NoodlesMam]

I'm so sad for your loss Gingegirl, I can't even begin to imagine what you are going through. Your little boy looks adorable and so very happy in your pictures. I hope you and your family can find the support you need at this devastating time.

[jardy]

Adorable and very loved little boy.Very sorry x

[used2bthin]

I am so sorry Gingegirl, how devastating and unfair.

[wendihouse22]

Beautiful boy. I am so sorry.

Love to you and your partner and wee girl. xx

[FickleFreckle]

I've just read this gingegirl, I can't find words to find how sorry I am, I have tears in my eyes for you all. Only two, and such a gorgeous little boy, life is so cruel and unfair sometimes. I'm glad you had him even for such a short time, I'm glad he was loved and treasured for every moment of his short life. I'm so sorry you have to go through this.

I hope you will find solace in the Bereavement boards but please if you want to stay on here and share your feelings and precious memories of your lovely boy with us, we are here to listen.

[nilbymaaf]

So sorry to hear of your loss.

[tryingtokeepintune]

So sorry for you and your family.

[magso]

I am so very sorry for your loss.

[Eloise73]

Have only just read this, i'm so sorry for your loss, your family are in my prayers xxx

[sumum]

Have only just seen this, so sorry for your loss, my thoughts are with you. xxx

[Herecomestheninkynonk]

What a beautiful child. So very sorry for you and your family. Wish I could say more, but will be thinking of you and yours.

[smileANDwave2000]

i cant imagine what your going through i have lost a close relative but a son or daughter would be any mums worst nightmare, please know im thinking of you and of your sad loss but remember were here on MN for a chat anytime bless you and now as you grieve try and not remember all the appointments ect but the times he made you smile and laugh all the good times and know you were a great mum and he had the best possible love and care from you , take care of yourself x

[asdx2]

So sorry to read of the loss of your beautiful boy In my thoughts and prayers x

[AlfalfaMum]

I'm so sorry for your loss. It all sounds so sudden
I have just been looking at your pictures - he looks so sweet and obviously brought you and the rest of your family so much joy. Hold onto that joy, and remember his beautiful smile, and let him make you smile even now.
I hope your little girl is okay xxx

[OrdinaryJo]

So very sorry for your loss. What a beautiful boy xxx

[mariamagdalena]

I wish I had words of advice; but in case you need things in one easy place, here are some links. compassionate friends; child bereavement trust; siblings; child death helpline.

Do you need any help with funeral arrangements? Any other practical things we can do? Are there any particular times of the day or night when knowing someone is sending thoughts/prayers your way might make a tiny difference?

So very sorry to hear of your loss .

[pigletmania]

Oh gingegirl big hugs to you (((((()))))). Looked at your pictures and your ds looks like a lovely little boy. My dd aged 4 has social communication difficulties, with speech and language developmental delay (possible ASD awaiting dx), it puts things in perspective. I often worry about her, that she is not at the same level as the NT children, and that her communication is not as good etc, but I thank god that she is happy and healthy and alive. Other things pale in comparison.

[woofie]

I am so very sorry for your loss gingegirl. What a beautiful little boy

[tiredmummyneedswineandsleep]

I'm so sorry to read this. My heart goes out to you. Photos are adorable. Sending you my love and sympathy. x

[BialystockandBloom]

You poor, poor thing . I am so, so sorry for the dreadful loss of your beautiful little boy. Sending you all the love and strength in the world xx

[2old2beamum]

I am so sad to read your sad news. My treasured son died aged 13years I felt my life was over,We had been through so much together. Although it was 8 years ago I am still grieving. I still feel the pain daily and I really wonder do I want the pain to go, it is all I have left. In a while my love you will embrace the pain and will not want it to go away. And remember no one can take your memories away
Much love to you and your family. Lindsey XX