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Here you'll find advice from parents and teachers on special needs education.

EHCP support thread no. 5

1000 replies

Needlenardlenoo · 05/04/2025 19:25

Another thread is nearly filled so here is a new one for when we need it. I am the original OP but have name-changed due to admin (let's call it spring cleaning). We got our EHCP finally in June last year and are in a state of cautious optimism two terms into the year 7 transition. There has been no contact from the LA at all to us, but perhaps no news is good news, sometimes. The next challenge is going to be the annual review. I am feeling a bit paranoid the LA might try a cease to maintain. Anyway, onwards and upwards and best wishes to all!

Here are links to previous threads:
EHCP support thread - www.mumsnet.com/talk/special_educational_needs/4834986-ehcp-support-thread
EHCP support thread no. 2 - www.mumsnet.com/talk/special_educational_needs/4989146-ehcp-support-thread-no-2
EHCP support thread no. 3 - www.mumsnet.com/talk/special_educational_needs/5077140-ehcp-support-thread-no-3
EHCP support thread no. 4 -
https://www.mumsnet.com/talk/special_educational_needs/5197351-ehcp-support-thread-no-4

OP posts:
Thread gallery
7
RareAzureBee · 18/07/2025 16:57

LA have decided after our preferred mainstream school returned a negative consult to go on a hunt for another mainstream school to take our child I don’t trust them to share the full reports as this shows what provision is missing from the plan which means there is a danger a school might say yes without knowing what our child really needs. There is also the issue we know nothing about these schools and now they are closed for the summer. I will email them to gives a heads up but they also then said have we considered resources bases- I asked months ago which ones we could access as some seem to be locked behind a diagnosis that we don’t have but they refused the answer. I think our ideal position would be they properly fund what he needs in the mainstream school. I have asked for costings resource placement vs support in mainstream school but unsure what else I can do?

thatsnotmygarden · 19/07/2025 08:20

Definitely contact any schools the LA will potentially consult to ensure they have an accurate picture.

You are way over the timescales, push the LA to finalise and appeal.

DD has a right to a mainstream education unless MS would be incompatible with the efficient education of others and there are no reasonable steps that could be taken to avoid this. The bar to prove this is far higher than LAs and schools admit. Although this is not necessarily a right to your particular choice of MS.

greenhappy · 19/07/2025 10:55

What is the absolute fastest way to get an appeal through for a child not in education? We'd have to do mediation as they are messing with the agreed Draft EHCP and taking out any mention of 'specialist provision'.

Sendcrisis2025 · 19/07/2025 13:14

greenhappy · 19/07/2025 10:55

What is the absolute fastest way to get an appeal through for a child not in education? We'd have to do mediation as they are messing with the agreed Draft EHCP and taking out any mention of 'specialist provision'.

There isn't a fastest way, you can flag they are out of education to tribunal which should prioritise it but it is discretionary but even then, it will be about 4 months.

You don't have to mediate, you just need to get the certificate to show you have considered it

Sendcrisis2025 · 19/07/2025 13:14

There isn't a fastest way, you can flag they are out of education to tribunal which should prioritise it but it is discretionary but even then, it will be about 4 months.

You don't have to mediate, you just need to get the certificate to show you have considered it

Sendcrisis2025 · 19/07/2025 13:14

My DD had her independent specialist setting agreed this week, she starts in September.

It hasn't sunk in yet.

Needlenardlenoo · 19/07/2025 14:53

That's good news @Sendcrisis2025. Have you been able to speak to them about transition or have they already broken up for summer?

OP posts:
Sendcrisis2025 · 19/07/2025 15:09

Needlenardlenoo · 19/07/2025 14:53

That's good news @Sendcrisis2025. Have you been able to speak to them about transition or have they already broken up for summer?

They sent out some information yesterday and have said they will be in touch 24th August and will schedule a home visit before she starts on the 8th Sept. They do a slow transition over a term to try and ensure it is successful as possible.

thatsnotmygarden · 19/07/2025 15:15

@Sendcrisis2025 that is brilliant news.

@greenhappy if you only have a draft and don’t have a finalised EHCP, you need to push the LA to finalise. What week are you on? Are they in breach of the timescales?

Once you have a finalised EHCP, you will be able to submit an appeal. You should appeal BFI. You can request the hearing is expedited on the basis DD is out of school.

As pp said, you don’t have to actively partake in mediation. You only have to consider it. You can request the certificate and submit to SENDIST.

In the meantime, is alternative provision in place?

Needlenardlenoo · 19/07/2025 16:39

Sendcrisis2025 · 19/07/2025 15:09

They sent out some information yesterday and have said they will be in touch 24th August and will schedule a home visit before she starts on the 8th Sept. They do a slow transition over a term to try and ensure it is successful as possible.

That sounds really positive.

OP posts:
ILovePeggySue · 23/07/2025 08:21

Waiting to go to tribunal for a refusal to assess. Not due till next year. Daughter missed entire year of school so far (year 6). Has just received autism diagnosis, high sensory needs, anxiety and very fragile mental health. Probable PDA and in autistic burnout from masking. Secondary school have said they don't think they can meet need but council have said they have to as she is on roll there.

I asked about section 19 provision and the inclusion officer at the council said it would only apply if I had a letter from CAMHs and/or GP using the exact words that she is, 'medically unfit to attend school'. I don't have this, CAMHs have discharged but said she needs ehcp and specialist provision. Occupational therapist has said she needs specialist also and Ed psychologist has identified complex needs in 3 of the main areas.

Not sure what to do. Even if they agree to assess, we are still waiting to start the process in February next year, so 20 weeks from then and then waiting for draft etc. What is she meant to do for education while waiting? Can they just leave her with nothing in place? There is no transition plan in place for September, I would have to physically drag her to the school to get her in and she goes into fight/flight mode - she will escape or hurt someone. Don't know what else to do.

Needlenardlenoo · 23/07/2025 08:51

I'm sure @thatsnotmygarden will be along in a short while to confirm that the LA can't put conditions on like that.

Sorry to hear of your situation @ILovePeggySue.

However, do you think the Head of the secondary would be willing to write a letter to the GP which the GP would reply to, to say she's medically unfit for school?

You could also see what alternative provision you could find locally and ask their advice - in alternative provision there must be other students who were in the same position.

OP posts:
thatsnotmygarden · 23/07/2025 19:10

@ILovePeggySue have you requested an expedited hearing on the basis DD is not in school?

I asked about section 19 provision and the inclusion officer at the council said it would only apply if I had a letter from CAMHs and/or GP using the exact words that she is, 'medically unfit to attend school'.

@Needlenardlenoo is right, the law does not state the LA does not have a duty unless there is medical evidence with specific wording from CAMHS/GP. They should not have a blanket policy of waiting for specific wording in medical evidence from CAMHS/GPs before providing it. They should consider all evidence not just that of CAMHS/GP (and in fact, not just medical evidence. For example, if the primary acknowledge DD can’t attend, the LA should consider that evidence - but don’t worry if the school doesn’t support you, that doesn’t mean the LA doesn’t have to provide it.).

The government’s statutory guidance for arranging education for children who cannot attend school because of health needs states “Where specific medical evidence, such as that provided by a medical practitioner, is not readily available, the child’s home school or local authority should consider liaising with other medical practitioners and consider other evidence to ensure appropriate provision can be arranged as soon as possible.”

The LGO is clear that no evidence does not necessarily mean no duty. The LGO is of the opinion LAs must consider all available evidence and that there will sometimes be conflicting, little or no evidence and sometimes all the evidence the LA wants will be unavailable. They are also clear a lack of medical evidence does not necessarily mean the LA does not have a duty to provide provision, so LAs should not have a blanket policy of only providing provision if there is CAMHS or consultant evidence. There are several LGO reports and upheld decisions confirming this.

For example, this LGO report (pg10/11) criticised one LA for stating they did not have a responsibly to provide education because there was no medical evidence as that shows “a lack of understanding of the relevant legislation”. “Firstly, a lack of medical evidence should not stop a child from accessing education; nor does it negate the Council’s duty to provide the child with a suitable education.” And “Even without medical evidence, the Council had a duty to arrange suitable alternative education provision for Y under the category of ‘otherwise’. “

And this LGO decision states, “The Courts have found that councils are entitled to decide whether a child’s health needs prevent them from attending school and to decide what weight to give medical evidence. But the law does not say alternative provision will only be given where there is medical evidence.” And, remember, just because the LA has the ability to decide whether a child’s health needs preventative attendance doesn’t mean a parent can’t challenge that decision.

And this LGO decision states “Section 19 also requires the Council to make suitable education arrangements when a child who is of compulsory school age, who because of exclusion, illness or otherwise may not receive a suitable education unless the Council arranges it for them. Therefore, the Council had a duty to provide Y with education despite its view there was insufficient evidence to say she was medically unfit. This is because it should provide her with education under the category of otherwise.”

If you want other examples, there are others on the LGO website.

Request a referral back to CAMHS. Not with the aim of evidence but DD needs further input from them. It isn’t acceptable for them to say she needs an EHCP and SS then wash their hands of her.

Have you already emailed the Director of Children’s Services? Or have you communicated with lower down in the LA so far?

CAMHs have discharged but said she needs ehcp and specialist provision.

Do you have this in writing?

ILovePeggySue · 24/07/2025 11:56

Thank you, thank you. I have requested an expedited hearing using the send7 form as she is in phase transition. That was a month ago and still no response from tribunal.

Thank you for the links about medical evidence and court decisions - I will have a look and then start formulating a letter asking for provision. We have a family worker working with us and she is chasing camhs as I found suicide notes in daughter's room. I will chase GP again.

I have just received a transition plan from her new secondary school stipulating a slow transition, gradually moving up to full days and class reintegration. I don’t know why they think it will work - she couldn't cope in a small primary school and they think she will manage a bigger, noisier and busy secondary placement.

We have the CAMHS letter that does say she needs an EHCPA and specialist provision. We haven't chased the director of children's services. I will add them to the letter when I send it.

Just feel like I'm chasing my tail around in circles.

thatsnotmygarden · 24/07/2025 12:13

Email the Director of Children’s Services about the refusal to provide s19 provision. Even if you don’t get a response, it can sometimes chivvy the LA along. If it doesn’t, you have further evidence for taking it further.

Call SENDIST and ask them to make a note with the SEND7 that DD is out of school so that when it is looked at that information is available too. If they may tell you to submit a new SEND7, do that.

Needlenardlenoo · 24/07/2025 12:18

Hi @ILovePeggySue I did a SEN 7 form to try to hurry things along as DD was in year 6 and while it did make a difference (e g. they heard the tribunal sooner) I don't think we heard as quickly as a month. I found SENDIST efficient and organised but not necessarily fast. I guess they are dealing with huge volumes.

OP posts:
greenhappy · 26/07/2025 11:02

thatsnotmygarden · 19/07/2025 15:15

@Sendcrisis2025 that is brilliant news.

@greenhappy if you only have a draft and don’t have a finalised EHCP, you need to push the LA to finalise. What week are you on? Are they in breach of the timescales?

Once you have a finalised EHCP, you will be able to submit an appeal. You should appeal BFI. You can request the hearing is expedited on the basis DD is out of school.

As pp said, you don’t have to actively partake in mediation. You only have to consider it. You can request the certificate and submit to SENDIST.

In the meantime, is alternative provision in place?

@thatsnotmygarden We've been trying to negotiate but they are 32 weeks from application now, so 12 weeks over; we wanted to sort it (a specialist school) before finalising as an Appeal meant 6+ more months of EBSA but they've said no way, and will finalise a fairly bad local council specialist provision instead of the amazingly perfect one in the next borough over.

thatsnotmygarden · 26/07/2025 11:18

Unfortunately, allowing the LA to drag it out for months rarely works (and if it would, they could have conceded an appeal anyway). Push them to finalise ASAP and appeal.

Just so you are aware, there is no duty to provide the perfect/best placement. Only a duty to provide an appropriate placement and the provision reasonably required.

handmademitlove · 26/07/2025 17:53

I now have the LA response to the appeal. Having read the appendices with the list of things the LA must include in their response, there are definitely elements missing - most notably the attendance record and witness statement from the school. Do I question this or will the tribunal? I suspect they haven't asked the school as the school agree with me...

I have to provide final evidence by mid September, but am still awaiting an appointment with OT (the core of this appeal!). How do I manage that if I have not had the report by the deadline? We could arrange a private assessment but almost all the recommended OT companies in our area do not do tribunals as they also work for the LA..

thatsnotmygarden · 26/07/2025 19:12

Email the LA about the missing information. Copy in SENDIST. Give it a while. Then, if that doesn’t work, email SENDIST copying in the LA and give it time. It takes time for SENDIST to pick up on it and, given the hearing isn’t soon, it isn’t urgent.

Don't feel you have to because I appreciate you might not want to but if you want to post or PM roughly where you are, I will post/message some suggestions of independent OTs if you wanted to get an independent report (which 99% of the time are superior to the LAs). However, unless you are lucky with a cancellation, it is highly unlikely you will have the report by mid-September, but don’t worry. Lots of people travel for independent OT assessments.

Previously, you could request late evidence be admitted and in the case of newly available independent reports submitted by parents, it was rare for it not to be. The new practice directions came into force earlier this month (with a period of supposed leeway). You are still able to request late evidence is admitted. In the case of an OT report, I would still expect it to be admitted, but who knows what the new PDs will mean longer term for late evidence.

greenhappy · 28/07/2025 07:58

What are the new practice rules, @thatsnotmygarden?

thatsnotmygarden · 28/07/2025 12:14

You can see the new PDs here. There is supposed to be some leeway initially. Although I have already heard of two cases where hearings have been adjourned and parties have been instructed to go away and reduce the WD. One on MN and one IRL. Although in both cases the WD sounded a bit of a mess anyway, so it may still have been commented on previously.

Alltheyearround · 29/07/2025 19:00

Still no decision from LA on setting for Sept. Enhanced resource base say cannot meet needs, I know one of the 2 schools we proposed has said the same. Just one I don't know how they answered. LA saying they need decisions back from consultations before they name a type of setting (questionable, it should be from B and F I think).

Back to the drawing board, he's a SEN betweener - not severe enough for the specialist school/college but working at levels of speech and literacy that rule out mainstream. Plus we are rural so not overly blessed with schools. Think we have explored all the options within a 20 mile radius. Need especially SALT and preferably OT on site really which limits.

thatsnotmygarden · 29/07/2025 20:18

Is the LA in breach of the timescales? The LA can’t use placements failing to respond to consultations as an excuse for failing to finalise amendments following AR within the timescale. They can name a type without naming a specific placement.

Is the school who has responded negatively to the consultation wholly independent? You have a right to mainstream, but from what you post, I wouldn’t say (the right) SS is unsuitable for DS’s needs. It would be more than 20 miles, but did you rule out Brantwood? If there isn’t a suitable placement, have you considered EOTAS/EOTIS?

Alltheyearround · 30/07/2025 09:24

Thanks@thatsnotmygarden.

No the LA isn't yet breaching timescales. The AR was mid May and draft was end of June (I pointed out they were in breach there).

They can name a type without naming a specific placement.
I have also pointed this out to them. They just ignore and do corporate waffle in response.

Is the school who has responded negatively to the consultation wholly independent? Not wholly.

I think we need the right SS. What he needs in terms of interventions is more than mainstream with ER can provide. We have battled current school endlessly about motor skills/OT exercises which are in the plan and delivered poorly. We should have changed before now really but hindsight is a wonderful thing.

We did look at Brantwood (haven't visited) but we did find some negative comments about EHCP provision not being done by some parents in reviews of the school - exactly what we want to avoid so it put us off. We might put it back on the list. He does need proper structured literacy provision for dyslexia and very delayed reading/writing (Y2-3 at age 15). Brantwood appear a little vague on this. He could do with a speech and lang school or dyslexia school but the ones we have approached say his academic levels are too low e.g. Alderwasley.

Apparently the LA haven't consulted any schools other than those we have suggested. High Peak School looks good but it only goes to 16 and DS is due to go into Y11 in Sept so if they force a tribunal he'd miss most of that year I suspect.

If there isn’t a suitable placement, have you considered EOTAS/EOTIS?

We both work (DH full time self employed and I am p-time) so it would be tricky.

DS would probably quite like that but we'd have to be careful to make sure he got proper social/peer group and not just spending time with us. We would be perfectly capable of doing things like maths and literacy (I'm a qualified dyslexia specialist tutor).

We would certainly need the speech therapy paid for. That's the real stumbling block for home ed as we just couldn't afford 2 hours a week plus travel for SALT.
There are some farm AP's nearby but you need to go with the child.

Other options suggested by one school we visited & we have yet to explore are Bridge college (Cheadle), Inscape and Strive.

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