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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger’s/ASD/ND: support thread 17

909 replies

SpecialMangeTout3 · 20/11/2025 22:18

New thread.
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This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
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It's complicated and it's emotional.
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The old thread is here.
https://www.mumsnet.com/talk/relationships/5355546-married-to-someone-with-aspergersasdnd-support-thread-16?page=10&reply=148665446

OP posts:
Theydontwantme · 13/03/2026 07:13

Mini2025 · 12/03/2026 23:00

And I guess I’ve had a breakdown. My husband hasn’t. I adapted and changed to orient around him. He didn’t change and doesn’t want to and is still healthy and well.

Our being agreeable and palatable comes at a cost. We’ve had to fight to be allowed this small corner of Mumsnet and I’ve felt suicidal at times. So I’ll have a discussion about it but I won’t be silenced about the devastating impact that a ND person had on me. And he does strongly exhibit classic ASD traits…

Perhaps it’s because as a women in the relationship with kids we are already doing most of the emotional stuff. We already carry a massive load so being partnered with someone who can’t and whom you have to hold their emotional load plus the fact you don’t get support with yours is where the donkeys back breaks. I am generalising but I think when kids become involved it just gets very hard. I know I need emotional support with my kids as they have additional needs and I worry and I feel guilty and many other emotions. But this support isn’t forthcoming and I find some days I want to collapse under the weight.

Theydontwantme · 13/03/2026 07:22

Marriage fails because people don’t get their needs met or unequal balance. I wonder if ND marriages have a higher divorce rate?

NDisthisit · 13/03/2026 07:29

Hello all…. It’s been a long and exhausting week. My not so DH is now on 9 days of not showering or bathing 🤢… I’m not saying a word… but I have pulled away - literally, no cuddling or kisses. I feel like if I say anything he will fly into a rage 😤 and he’ll also have an answer ie he strip washes at the sink 😳, it’s not good to wash away your natural oils, the water here is too hard for his skin…. He doesn’t smell awful but he doesn’t smell good, or clean, or fresh. I’m going to see how long he will go with out a full shower. If he asks me why im
not being affectionate, I will say I don’t find his lack of hygiene attractive. Written down, I can’t believe this is my life, why a grown man can’t see the need to be clean. I feel like im
going mad atm.

Mini2025 · 13/03/2026 09:21

Theydontwantme · 13/03/2026 07:22

Marriage fails because people don’t get their needs met or unequal balance. I wonder if ND marriages have a higher divorce rate?

I wondered the same thing last night. What is the divorce rate of ND relationships. And yet here we see many of us staying despite very difficult lives and burdens.

I guess maybe in an NT relationship there might be infidelity when ‘needs’ are not met, ie, often a man goes off and has an affair seems to be very often seen on here, but for us, because that huge red line is not crossed, we continue on.

i found this which is that in the case of divorce, 70% of women initiate divorce and up to 90% where the woman has a degree/higher education.

Reasons given:

  • Why Women Initiate: Reasons frequently cited for educated women initiating divorce include better financial independence (less reliance on the husband's income), unmet expectations regarding partnership, inequitable distribution of household/child-rearing tasks, and lower tolerance for "unreasonable behaviour".

And this:

Married men generally live longer than unmarried men, often closing the lifespan gap with women, but they do not typically outlive women overall. Marriage acts as a protective factor for men—offering better health, reduced risks, and social support—while women's health benefits from marriage are less pronounced.

Marriage offers no protective benefits for a woman, the research shows and if anything may even reduce mortality for women in some cases. It seems to be the quality of the relationship that matters for women with them having worse health outcomes as the quality declines.

So whatever the neurotype of your partner, it’s the quality of the relationship that determines longevity for women.

Mini2025 · 13/03/2026 09:21

And I really understand the burden of needing support with regards to the children and their extra needs. This is so so huge and the mental toll is so heavy. You have all my sympathy and empathy. I also feel I will break some days again.

Mini2025 · 13/03/2026 09:39

NDisthisit · 13/03/2026 07:29

Hello all…. It’s been a long and exhausting week. My not so DH is now on 9 days of not showering or bathing 🤢… I’m not saying a word… but I have pulled away - literally, no cuddling or kisses. I feel like if I say anything he will fly into a rage 😤 and he’ll also have an answer ie he strip washes at the sink 😳, it’s not good to wash away your natural oils, the water here is too hard for his skin…. He doesn’t smell awful but he doesn’t smell good, or clean, or fresh. I’m going to see how long he will go with out a full shower. If he asks me why im
not being affectionate, I will say I don’t find his lack of hygiene attractive. Written down, I can’t believe this is my life, why a grown man can’t see the need to be clean. I feel like im
going mad atm.

That’s very hard. You really shouldn’t have to tolerate his lack of washing. There’s a minimum standard and he’s definitely not meeting it. I’m sorry you’re going through this. Remember though, you do have options 🤗

SpecialMangeTout3 · 13/03/2026 09:51

@Mini2025 i don’t think you’ve offended anyone 😄😄
Please carry on venting

OP posts:
SpecialMangeTout3 · 13/03/2026 10:10

@NDisthisit has that happened before?

I know some autistic people struggle with having a shower. Some are hypersensitive to the shower itself. My Fil struggled with the cold tiles in the shower (it was small and yes you were likely to touch the walls). Some struggle with the executive dysfunction side of things and it just doesn’t happen.

All of those are reasons though, not excuses. And the fact he doesn’t act on you telling him you’re not comfortable about it is quite telling.

But I’m very much wondering if the reasons he gave you for not showering are excuses he made up because he just can’t be bothered. Or excuses he made because he is ashamed that he is struggling and is trying to make it ‘more acceotable’ looking.
if the last one, then I’m assuming you’ve had occasions like this before 😢😢 Has anything made a difference re how often he showering then?
If it hasn’t happened before, he is showing no specific sensitivities (I dint know like so is, labels on clothes etc…), then it’s a whole different kettle of fish.

OP posts:
Theydontwantme · 13/03/2026 11:38

Mini2025 · 13/03/2026 09:21

And I really understand the burden of needing support with regards to the children and their extra needs. This is so so huge and the mental toll is so heavy. You have all my sympathy and empathy. I also feel I will break some days again.

Edited

I’ve just turned 43 and in the middle of perimenopause and I’m loosing the ability to mask my own issues. I am struggling with 2 SEND kids, having no family support and other family are getting old and unwell. The demands on me are increasing so my adhd is becoming harder to handle and I want to hide in the corner but I can’t, because I’m a mum and everyone needs me, I can’t fault but I can’t make my brain manage when it can’t. It’s all hard.

NDisthisit · 13/03/2026 13:10

@SpecialMangeTout3i have asked him very politely today why he’s not showered, to be fair he was calm but still gave the same answers.. I then said what’s worrying me is why you don’t think going 9 days isn’t more of a problem than the sensory issues. ( not sure if that makes sense but it did in the dialogue we where having) he then went down a new road that he doesn’t like that particular shower. 😳 he then tried telling me he did have a shower at the weekend- he didn’t - I was ill in bed most of it or with him! That wasn’t the hill I was about to die on but was very firm and kept to the facts. He then closes the conversation his normal way with the question “what do I want, he’ll do what ever I want, if it’s a shower everyday he will, but that’s not him” I said,
I’m not responsible for telling you when you should or shouldn’t shower, your resolution lies with how much you are prepared to work on this issue. You say you wash and are clean but I can tell you honestly you don’t look or smell clean. I don’t find it appealing and it making me pull away from
you. As I am
also allowed my comfort zone.
we did talk about counselling and our communication styles. Not sure if we achieved anything but a positive was no flying off the handle and no raised voices. It feels calm- but maybe that’s because I was boiling away like a pressure cooker 😭before we spoke - it’s now off my chest.

Mini2025 · 13/03/2026 13:31

Theydontwantme · 13/03/2026 11:38

I’ve just turned 43 and in the middle of perimenopause and I’m loosing the ability to mask my own issues. I am struggling with 2 SEND kids, having no family support and other family are getting old and unwell. The demands on me are increasing so my adhd is becoming harder to handle and I want to hide in the corner but I can’t, because I’m a mum and everyone needs me, I can’t fault but I can’t make my brain manage when it can’t. It’s all hard.

Oh I really feel for you. My Mum got stage 4 cancer and struggled on for 2.5 years and that period broke me because of the high level of care that was needed for her, plus my two SEND kids. I was 46 at that time. We'd just come out of covid and then I had 2.5 years of that. I'd managed the kids fully over covid and all that came with that.Perimeno all the way through, then a year after my DM died, I found out I had an endocrine disease that needed an operation to fix things and save my body for later in life. That took a year to diagnose with scans and genetic tests etc. Then I had the operation and DH failed to look after me in an way at all, following emergency complications. He just ignored everything and went to work and the gym, despite me pleading for him to take me to hospital. Again, abandoned by what was supposed to be a strong male partner/anchor in my life.

So it tipped me over the edge.

I really get it. Women in their 40s and 50s are talked of as the "Sandwich Mums". Mums who are Mums to our kids but Mums also to our parents, because guess what, the care-giving for our parents, also falls to... drum roll folks... women!! Men don't tend to get involved. Well some of them do but not many. Well who'd have thought it? A life time of giving and then there's yet more to give, just as we thought we might be off the hook as the children are getting more independent, a second wrecking ball comes around.

All said with love but my God, as women we never stop giving and giving and giving. No wonder we burn out.

I don't know what the answer is for you. All I know is it's very important to take time away for yourself at regular intervals. I didn't and it's what caused me to collapse. I think being ND yourself means you are at risk. All the people I met in the hospital were ND or borderline like me. We are vulnerable and there is nothing in society that alleviates the mental health burden we deal with every day. I was talking with an ex-patient yesterday, we meet every week, a group of us who burnt out and it's like a form of therapy to meet up and see how we all are doing week by week. It's a life line for me because they see me, in all my brokenness but we are all the same so it's very comforting to be together with people who understand. I'd say that's key too. But I wouldn't have found this circle without the breakdown. All I know is you need to look after yourself because no one else will. You may be particularly vulnerable because your DM didn't teach you how to prioritise yourself. You have had to learn to parent yourself. My DM didn't know how to look after herself either and didn't prioritise me in the way I needed as a child. This taught me to endure and keep going because that's all I ever learnt and that was my downfall in all of this.

I'm so sorry. Please put your oxygen mask on first, before helping others, my therapist says this to me every week. Self-preservation, as you said. It's absolutely key to your survival and looking after yourself will feel alien because it's not been what you were ever taught to do. Nervous systems need to be protected, especially fragile ones like ours. I didn't understand this before it was too late for me. I wish I'd known what could happen and done my best to prevent but alas, the wheels were set in motion from my childhood that I would always be vulnerable. Take good care of yourself, please.

Theydontwantme · 13/03/2026 13:34

Mini2025 · 13/03/2026 13:31

Oh I really feel for you. My Mum got stage 4 cancer and struggled on for 2.5 years and that period broke me because of the high level of care that was needed for her, plus my two SEND kids. I was 46 at that time. We'd just come out of covid and then I had 2.5 years of that. I'd managed the kids fully over covid and all that came with that.Perimeno all the way through, then a year after my DM died, I found out I had an endocrine disease that needed an operation to fix things and save my body for later in life. That took a year to diagnose with scans and genetic tests etc. Then I had the operation and DH failed to look after me in an way at all, following emergency complications. He just ignored everything and went to work and the gym, despite me pleading for him to take me to hospital. Again, abandoned by what was supposed to be a strong male partner/anchor in my life.

So it tipped me over the edge.

I really get it. Women in their 40s and 50s are talked of as the "Sandwich Mums". Mums who are Mums to our kids but Mums also to our parents, because guess what, the care-giving for our parents, also falls to... drum roll folks... women!! Men don't tend to get involved. Well some of them do but not many. Well who'd have thought it? A life time of giving and then there's yet more to give, just as we thought we might be off the hook as the children are getting more independent, a second wrecking ball comes around.

All said with love but my God, as women we never stop giving and giving and giving. No wonder we burn out.

I don't know what the answer is for you. All I know is it's very important to take time away for yourself at regular intervals. I didn't and it's what caused me to collapse. I think being ND yourself means you are at risk. All the people I met in the hospital were ND or borderline like me. We are vulnerable and there is nothing in society that alleviates the mental health burden we deal with every day. I was talking with an ex-patient yesterday, we meet every week, a group of us who burnt out and it's like a form of therapy to meet up and see how we all are doing week by week. It's a life line for me because they see me, in all my brokenness but we are all the same so it's very comforting to be together with people who understand. I'd say that's key too. But I wouldn't have found this circle without the breakdown. All I know is you need to look after yourself because no one else will. You may be particularly vulnerable because your DM didn't teach you how to prioritise yourself. You have had to learn to parent yourself. My DM didn't know how to look after herself either and didn't prioritise me in the way I needed as a child. This taught me to endure and keep going because that's all I ever learnt and that was my downfall in all of this.

I'm so sorry. Please put your oxygen mask on first, before helping others, my therapist says this to me every week. Self-preservation, as you said. It's absolutely key to your survival and looking after yourself will feel alien because it's not been what you were ever taught to do. Nervous systems need to be protected, especially fragile ones like ours. I didn't understand this before it was too late for me. I wish I'd known what could happen and done my best to prevent but alas, the wheels were set in motion from my childhood that I would always be vulnerable. Take good care of yourself, please.

My youngest is 3 and showing signs of ASD. I can’t see a break for a very long time. I’m too old to have a toddler!!!!

Mini2025 · 13/03/2026 13:45

Theydontwantme · 13/03/2026 13:34

My youngest is 3 and showing signs of ASD. I can’t see a break for a very long time. I’m too old to have a toddler!!!!

Ok that's even harder!! I wish you all the best TDWM. I really do. You are wanted by the way, by all of us. Please keep posting and venting. At least this is a safe space.

Theydontwantme · 13/03/2026 13:49

Mini2025 · 13/03/2026 13:45

Ok that's even harder!! I wish you all the best TDWM. I really do. You are wanted by the way, by all of us. Please keep posting and venting. At least this is a safe space.

I shouldn’t complain about my partner. He most definitely is ASD but he is very useful. He remembers everything, will sort the shopping will actually do anything you ask him to do. If you want a cuddle he will. He helps with the physical side of the load and he is a good dad. People like him, he is likable in his quirks. My mum….nah!!! lol

SpecialMangeTout3 · 13/03/2026 20:30

@NDisthisit first if all well done for staying calm. I know first hand how hard it is! I’ve needed to rehearse what I wanted today to dh before hand before being able to do that.

Do you think your dh has understood how badly it’s affecting you?

I found that, with dh, I had to be extremely clear I wasn’t going to accept xyz. Anything along the lines of ‘it’s your decision’ (which I’ve done a lot. Being cooperative, good communication etc….) got me nowhere. It had to come down to a very stern ‘I’m not accepting xyz ever’ for the penny to drop.

It might be that by being ‘too soft’, he didn’t register how serious I was (NT/ASD miscommunication). It might be that p, because he is also avoidant, telling him ‘it’s up to him’ meant he heard ‘great I can carry on as I want’

OP posts:
SpecialMangeTout3 · 13/03/2026 20:33

@Mini2025 its interesting you found a lot of people in hospital were ND.
Do you think it’s the consequence of masking for too long/being undiagnosed/not supported enough or is it more of a expectations towards men vs expectations towards women so women are pushed well beyond their limits because they’re told to be caring, supportive etc…?

OP posts:
SpecialMangeTout3 · 13/03/2026 20:34

Fwiw I know the suicide rates for ND people is much higher than the general population so somehow your observation doesn’t surprise me 😢

Youre right that looking after yourself is really important, esp if you’re ND

OP posts:
distinctpossibility · 14/03/2026 07:17

I posted a number of threads back for support when my DH got his ASD diagnosis a year or so ago. I am happy to say that the "them vs us" dynamic that he and my teenager with ASD briefly toyed with was stamped on very quickly by us all. In fact it has led to my daughter having a much better sense of humour about her quirks, to see herself reflected in her dad. They both have fairly low support needs, but high anxiety, and a diagnosis seems to have helped DH advocate for himself at work which is great. I am very proud of him.

He hasn't ended up going off with a new (hypothetical) neurodivergent woman and remains my loving, funny, kind DH after a wobbly 6 weeks or so. In hindsight the diagnosis was a painful time as DH was orphaned as a teenager and has no other family etc.... it was very hard, and probably not appropriate, for us both that I had to feed into the diagnostic process as the person who has known him the longest. Basically it made us both dwell on our "incompatibilities" and wobbled us both.

I will say a period of 12 weeks of funded CBT for me from Disability Direct was a game changer at helping me deal with the things I could and couldn't control. I still have a recurring thought that I am just DH's special interest and a masking tool but it has worked for 19 years so I do need to try not to pick that scab too much 😂

Georgeismydog · 14/03/2026 08:16

My mum is dying. My undiagnosed husband had no empathy. It is like living with a stone.

distinctpossibility · 14/03/2026 08:46

Georgeismydog · 14/03/2026 08:16

My mum is dying. My undiagnosed husband had no empathy. It is like living with a stone.

I am so sorry to hear that. What a difficult time. 💐

Would he respond to you telling him what you need in practical terms, and then managing your expectations that he will give practical help but you'll need to look elsewhere for emotional support? It is no match to the empathy and compassion you'd like / deserve to see from him, but it might smooth the next few weeks.

I am thinking for example "You will need to be responsible for all school drop offs and pick ups. I cannot have immovable commitments outside of my mum right now." Giving my DH (ASD) whole areas of responsibility and telling him to "own the process from end to end" was game-changing for our dynamic.

Georgeismydog · 14/03/2026 08:56

I am trying to hold it all together for my kids. They are mid 20s. They dont understand. No one understands what it is like.

Theydontwantme · 14/03/2026 09:00

Georgeismydog · 14/03/2026 08:56

I am trying to hold it all together for my kids. They are mid 20s. They dont understand. No one understands what it is like.

I’m sorry.

Georgeismydog · 14/03/2026 09:06

I feel so alone. No one understands what it is like

Georgeismydog · 14/03/2026 09:07

I can't stop crying. Everything seems so bleak right now

SpecialMangeTout3 · 14/03/2026 10:37

Georgeismydog · 14/03/2026 08:16

My mum is dying. My undiagnosed husband had no empathy. It is like living with a stone.

Oh George’s, I’m so sorry 😢

Are you able to be with your mum? What about your dcs?

Would you like to tell us more about what’s going on atm? I know we’re only ‘Internet friends’ (if that’s the right word) but if we can give you a bit of support/relief from across the wire, maybe it will help a bit.

For whatever reason, it sounds like the lack of support when we really need it has been a theme recently. It’s shit. It’s making things 100x harder than they already are. And you certainly deserve much more than that

OP posts:
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