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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger’s/ASD/ND: support thread 16

989 replies

BustyLaRoux · 15/06/2025 20:51

New thread.
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This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
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It's complicated and it's emotional.
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The old thread is here.

https://www.mumsnet.com/talk/relationships/5299389-married-to-someone-with-aspergersasdnd-support-thread-15?page=1

Married to someone with Asperger's/ASD/ND: support thread 15 | Mumsnet

_New thread._ __ _This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ou...

https://www.mumsnet.com/talk/relationships/5299389-married-to-someone-with-aspergersasdnd-support-thread-15?page=1

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5
Percypigspjs · 20/08/2025 13:14

Should you actually have to tell someone that if they want a relationship they have to visit, to show interest in lives other than their own, is this not common knowledge? Is this an ASD thing? Am I expecting to much from this relationship? I suppose you can’t make someone do something they aren’t built to do, if she did start it would be fake because she really is only interested in herself. I think we are here in her mind to listen, to applaud and sound excited and encourage her. The truth is really shit. I thought ASD people were challenging but not like this. I have some ND for sure but Im not like this.

Percypigspjs · 20/08/2025 13:20

Am I being a bit of a bitch for getting angry at her? Should I be taking into account that she can’t help this, she is wired this way. I’m just fed up, she is the mum, it’s her job to applaud us and the kids not the other way around. If it was anyone else I’d tell them to bugger off.

Fizzfamm · 20/08/2025 13:38

Thanks for the replies to my previous post ... I am very grateful!
I was able to chat to DH about the counselling and he's agreed that it maybe isn't the solution.

It sucks because we have no family support and I think that's a huge pressure for us... We carry a lot of heavy stuff in general in our family, what with our sons needs, but the lack of support (plus issues with unacceptance from family members, 'children should be seen and not heard' culture etc) is what weighs us down. We can't even get babysitters easily, because of how anxious it makes DS. Just pushing on and carrying on with the journey!

Thanks for the encouragement ❤️

Pashazade · 20/08/2025 15:10

@Percypigspjs you are allowed your feelings whether your mother is capable of recognising her behaviour as a negative behaviour or not. It affects you badly. Taking those feelings out on her would be another matter, if she genuinely has no ability to understand what she’s done. That what this conversation here is for, so you can yell into the void that you are deeply distressed. It might not help much but your feelings are valid, I don’t know how you break the cycle though. Walking away and going very low contact would seem the ideal solution so you minimise the mental disruption her company causes you whilst feeling like you are still being a good daughter. Because we are taught to believe that you don’t walk away from your parents however badly behaved they may be. But small doses on your terms might work. Allow yourself to recognise that it’s all about her. Have a little bingo card in your head that she fills out each time you see her. If you can put her behaviour aside and treat as an oddity rather than a deliberate attempt to inflict distress on you and go in with full knowledge of how the next two hours will be you might be able to find some pleasure in occasional visits.

EmotionalSupportHuman · 20/08/2025 18:53

Percypigspjs · 20/08/2025 13:20

Am I being a bit of a bitch for getting angry at her? Should I be taking into account that she can’t help this, she is wired this way. I’m just fed up, she is the mum, it’s her job to applaud us and the kids not the other way around. If it was anyone else I’d tell them to bugger off.

I think if you want a relationship with her then you have to choose acceptance. She is who she is and won’t change. Put a time limit on how long you spend with her, and learn to laugh (internally) at some of her craziness. I think my DM is ND and this is what works for me.

Percypigspjs · 20/08/2025 19:20

EmotionalSupportHuman · 20/08/2025 18:53

I think if you want a relationship with her then you have to choose acceptance. She is who she is and won’t change. Put a time limit on how long you spend with her, and learn to laugh (internally) at some of her craziness. I think my DM is ND and this is what works for me.

What kind of relationship can you have accepting that she has no interest in me only in her? It just makes me sad and unworthy when I go.

Pashazade · 20/08/2025 20:11

@Percypigspjs it is not that you are unworthy, you are totally worthy of love it is that she is incapable. It is not and never has been any reflection of your worthiness to be loved, it is all her problem. As Emotional said you need to accept she can’t give you want you want and that your love might be one way and try and make some peace with that if you’re going to keep her in your life. Otherwise you’ll continue to be unhappy.

EmotionalSupportHuman · 20/08/2025 21:34

@Percypigspjs Maybe you need to mourn the relationship you wanted but will never have? Or try therapy if that’s a possibility?

I guess I’m a lot further down the acceptance road so it’s easy for me to say “just accept that she won’t change” but hard to actually do it.

My mum still says the most outrageous things - like blaming me for making her feel bad about herself when I was a tiny kid. Or taking anything I do as a parent as a criticism, because it’s different to how she did it. But I just let her comments bounce off me now. They don’t hurt, because I know in myself that I’m making the choices that are right for me. She doesn’t ask about my life either and I genuinely feel nothing about that, because I don’t look to her to make me feel worthy. Of course I’d prefer to have more of a traditional mother-daughter relationship, and sometimes I feel a bit sad that I don’t, but I don’t rail against it. There’s no point. It won’t change anything. Your worthiness has to come from within. Easier said than done - I haven’t got that bit completely right either - but that’s the goal. Does that make sense?

Definitely keep talking it through here if you need to. These threads have really helped me to figure things out…

Percypigspjs · 20/08/2025 21:43

EmotionalSupportHuman · 20/08/2025 21:34

@Percypigspjs Maybe you need to mourn the relationship you wanted but will never have? Or try therapy if that’s a possibility?

I guess I’m a lot further down the acceptance road so it’s easy for me to say “just accept that she won’t change” but hard to actually do it.

My mum still says the most outrageous things - like blaming me for making her feel bad about herself when I was a tiny kid. Or taking anything I do as a parent as a criticism, because it’s different to how she did it. But I just let her comments bounce off me now. They don’t hurt, because I know in myself that I’m making the choices that are right for me. She doesn’t ask about my life either and I genuinely feel nothing about that, because I don’t look to her to make me feel worthy. Of course I’d prefer to have more of a traditional mother-daughter relationship, and sometimes I feel a bit sad that I don’t, but I don’t rail against it. There’s no point. It won’t change anything. Your worthiness has to come from within. Easier said than done - I haven’t got that bit completely right either - but that’s the goal. Does that make sense?

Definitely keep talking it through here if you need to. These threads have really helped me to figure things out…

What is the point in having any relationship at all? That’s where I’m at. I just can’t see the point. What benefit is there for any of us. There’s no interest in the grandkids, nothing. I hate to say it but there is only disappointment and nothing else, well there is sometimes hope but mostly just disappointed.

EmotionalSupportHuman · 20/08/2025 22:19

Percypigspjs · 20/08/2025 21:43

What is the point in having any relationship at all? That’s where I’m at. I just can’t see the point. What benefit is there for any of us. There’s no interest in the grandkids, nothing. I hate to say it but there is only disappointment and nothing else, well there is sometimes hope but mostly just disappointed.

It depends on what’s right for you. I don’t want to cut my DM out of my life, but maybe that’s the right move for you.

What I’m trying to say - maybe not very clearly - is that if you have zero expectations of your DM, then you won’t be disappointed. But if there are no positives at all, then maybe it isn’t worth the effort of having a relationship. Only you can make that decision. Could you go very low contact? How would she react if you only visited once or twice a year?

DucklingSwimmingInstructress · 21/08/2025 23:01

@PollyHutchen I ended it after 12 years and 2 children.

Regrets? That I stayed so long, except that he has no perception of danger and no idea how to parent well ( though he really does love them, there is no doubt at all of that).

Has he changed? On the surface yes in some ways. But it seems likely that it's superficial; there are certain external indicators of that.

EmotionalSupportHuman · 22/08/2025 07:00

I’m working hard at trying to improve things with DH, but really struggling with this one…

I try very hard not to ask him questions. Because they get taken the wrong way 90% of the time. But occasionally a question will slip out. Like “I’m going to the shop, is there anything you want?” that I’ll ask as I’m leaving for the supermarket.

Sometimes I get a “normal” response, but often I get a scathing tone of voice, with a comment like, “Give me half an hour and I’ll think of something”. The tone of voice is as if I’ve asked him to recite an entire Shakespeare play from memory. Like, how could he possibly know this, and why am I being so unreasonable? Clearly he feels like I’m putting him on the spot so I can set him up to fail and he will be publicly humiliated (even though there’s only us in the room).

All he needs to say is, “No thanks love”. Except he doesn’t say that.

Is there a name for this? Does anyone have any tips to stop it happening? I find the best way to stop this kind of thing is to just not speak, but then he gets upset and says, “You’re very quiet” in an accusatory tone.

If I try to talk to him about this then he accuses ME of using the wrong tone of voice - he says he only talks like that because of the way I speak to him. It’s crazy making!

Percypigspjs · 22/08/2025 07:50

Why are we the ones working hard to try and improve relationships with people who aren’t working hard to improve relationships with us? I don’t know why I personally find it hard to accept the relationship I have. I want the other person to change to be the person I’d like them to be so I feel less rubbish. Why do we try and change people when they don’t see any issues?

Pashazade · 22/08/2025 08:11

@EmotionalSupportHuman I’m afraid my response would be “Look you miserable bastard I only asked you if there was anything you’d like out of courtesy I won’t bother in the future”, then leave the house, he’s being a tosser as well as autistic, that’s what it’s called. Yes it could feel like a demand, but a rational adult can understand it’s a polite enquiry, not a life or death situation. It’s is not an unreasonable question, I do exactly that and mine and now my son usually say yummy things!
He’s never once given me a hideously sarcastic response even when being a bit mardy. I’m aware the sarcasm could be defensive but if he is being sarcastic he knows what he is doing it’s not reflexive he’s choosing his response.

InWhatWorld · 22/08/2025 08:26

I've finally found my people! I've no idea why I have never come across this thread before, I've been on MN for as long as I've been married (16 years next week) and frequently looking for support to cope with my ND family.

I know I'm married to a ND man, we have three children two of whom have ASC and the other has a whole host of needs due to not being ND. I'm possibly on the spectrum myself and have spent the last15 years meeting the needs of everyone in my family and have realised no one is meeting mine. I am utterly burnt out, feeling like wanting to walk away from the marriage and the family as it is only me who does EVERYTHING!!. But I love DH, he is a good man and I know he doesn't want this to end. But nothing will change. I know it. Either I continue to do everything and live in a black and white world with little human connection, or I break everything up.

I resent my kids at the moment, the oldest two are teenagers and are testing the hell out of me. With no parenting support from DH I feel totally isolated. I see friends and family all of whom have partners that actually get involved and share parental responsibilities and realise, I've never had that. I constantly get told by the DC and DH to stop shouting. I hate shouting. I've spent a fortune in therapy thinking there was something wrong with me because I was always stressed and shouting. I realise now it's because I'm a one-woman f*cking super hero putting out all the fires, meeting everyone's needs while everyone else sits around expecting support.

I spent years supporting DD, even going to tribunal to get her an EHCP, while working full time. I ended up with a break down, but still nothing changed. I always thought there was something wrong with me, but I realise I've been super-human and asking way too much of myself and have been running on fumes for so long. No wonder I shout.

It's all come to a head this week and I have switched off from family life now, it's too exhausting. Yesterday was my last day in my job before I move to a new role, it was really emotive for me as I've loved working where I did (it was the break from my ND world that I needed). No one at home even asked me how my last day went or acknowledged me or said anything, F*ck me, typing this I realise how sh1t my life is.

I crave meeting someone for some human connection. I don't want sex, just someone to connect with, have meaningful talks with, actually have reciprocal conversations with. But I don't want to break up the family. I feel stuck. What do I do?

NoviceVillager · 22/08/2025 08:38

@EmotionalSupportHuman that is such twattish behaviour. Sorry that you are having to be in the receiving end of it.

I’ve talked to DH a bit about the questions thing. If you look up monotropism you’ll find accounts of a tunnel-like focus. The questions thing for my DH is actually when he’s pulled out if this attention tunnel it’s disorienting and difficult.

My attention is so fragmented that I really don’t understand this 🙈. The other thing that I looked up is a dislike of being perceived which seems quite common. Potentially that comes up with questions?

None of the above should be construed as letting your DH off for such rudeness!

NoviceVillager · 22/08/2025 08:43

@InWhatWorld it sounds like you need to divert some of the attention you’re giving to others so that you can self regulate, and are no longer shouting.

There’s a good podcast episode on the Hidden 20% podcast by an ND couples therapist that one partner can become the ‘overfacilitator’. Is that maybe you?

Can you change your behaviour to do less anticipation and service work for others? I know others on the thread have used the Mel Robbins ‘let them’ theory.

I think the main take home from this thread is that we can’t necessarily change others but can change what we do.

Percypigspjs · 22/08/2025 08:46

My partner is rude when I disrupt him by asking him something whilst he is in the middle of doing something else. I have learned to leave him alone, he is better doing things alone. I used to take this personally and wonder what I did wrong but it’s all on him. I’m connection before anything and he is task oriented, I tend to do things with others as I like the company.

InWhatWorld · 22/08/2025 11:12

NoviceVillager · 22/08/2025 08:43

@InWhatWorld it sounds like you need to divert some of the attention you’re giving to others so that you can self regulate, and are no longer shouting.

There’s a good podcast episode on the Hidden 20% podcast by an ND couples therapist that one partner can become the ‘overfacilitator’. Is that maybe you?

Can you change your behaviour to do less anticipation and service work for others? I know others on the thread have used the Mel Robbins ‘let them’ theory.

I think the main take home from this thread is that we can’t necessarily change others but can change what we do.

Thanks Novice, I've added that podcast to my list. Also briefly read up on 'let them' theory, which makes sense, but harder to do in reality when you live with the consequences of what 'let them' means, eg, if they are never stepping up to cook dinners or clean up, then those things don't get done.

I don't think I'm an overfacilitator by choice, I hate doing all the extra work, I would love to kick back like the rest of the household and do very little, it's not something I enjoy, but nor can I stand living in chaos, and I think this is where I think I may be on the spectrum. I crave order and tidiness and my house is only ever like that if I'm on top of it.

Percypigspjs · 22/08/2025 13:25

Why can we not see these relationships for what they are? Is it because we can only do relationships and love the way we know how?

Claymoreiron · 23/08/2025 12:59

Hello. Long time lurker. Waiting to pluck up courage to join properly.

Can anyone suggest some website/books to help? I’m struggling with DH and feel angry and resentful.

when we met (over 30 years ago) I just thought he was quirky. He’s not. He was initially diagnosed with severe Dyslexia and Dyspraxia. He seems also to be aut/ADHD. Waiting for a diagnosis.

Current major issue is relationships with others. In every work setting he’s been in, he ends up falling out with a colleague. This triggers depression and anxiety. It’s not the colleagues, it’s him. He doesn’t ‘get’ the politics of work. He ends up paranoid, like people are laughing at him behind his back. nothing I say helps him. I’m bored of it now. This latest issue will drag on for months while DH becomes increasingly paranoid and anxious. To be fair, the colleague is lazy and annoying but DH can’t handle it and let him get under his skin.

Any suggestions of what might help me or him? Books, websites?

Thankyou

Pashazade · 23/08/2025 13:51

@Claymoreiron you should have a look at Rejection Sensitivity Dysphoria as that sounds like what you’re dealing with. It might help you understand his response but he needs to be prepared to address things too. You and he might find the books Small Talk and Dirty Laundry enlightening by Richard & Roxanne Pink.

BustyLaRoux · 23/08/2025 17:51

Percypigspjs · 20/08/2025 21:43

What is the point in having any relationship at all? That’s where I’m at. I just can’t see the point. What benefit is there for any of us. There’s no interest in the grandkids, nothing. I hate to say it but there is only disappointment and nothing else, well there is sometimes hope but mostly just disappointed.

So why do you persist? I can’t see anything positive from what you’ve described in your posts about your relationship with her. Why do you keep going back for more? Is it duty? Is it guilt? Is it because you’re clinging on to the hope she will be different one day? Why don’t you just fade her out? Sounds like she wouldn’t even notice!

OP posts:
BustyLaRoux · 23/08/2025 18:05

@EmotionalSupportHuman Erm…this sounds awful. I have a close relative I’ve posted about before and they have a similar scenario where EVERYTHING is taken the wrong way, but even they could probably ask if partner wanted anything from the shop and just about get away unscathed! What you describe sounds worse than their situation (and theirs is pretty bad). I’m sorry to be blunt but ASD or not, he just sounds extremely rude. When he speaks to you like that are you not inclined to tell him to piss off?

OP posts:
BustyLaRoux · 23/08/2025 18:55

PollyHutchen · 20/08/2025 10:01

I'm interested in stories of people who have walked away from an adult partner or relative whose autism caused big problems in the relationship?

Do people have regrets if they stayed away? Have people gone back and picked up the threads? To what extent - and I know it may only be in quite a minor way - has the person with autism been capable of changing?

(I am of course talking about people who would be regarded as 'high functioning' in many respects. As opposed to non-verbal, significant learning difficulties etc.)

Yes I have.

I lived with DP for 5 years. I didn’t know he was autistic when we got together. His son is autistic (again, we didn’t know this at the time) and it dawned on me gradually how very similar they were.

It caused huge problems in our relationship. He would find fault and criticise a lot, if not with me then with my DC. Whereas his DC could do no wrong.

He would fly off the handle and say I was criticising him (ugh the irony!) fairly often. Simple “would you mind doing such and such?” Would be taken as “you lazy arsehole, why haven’t you done such and such?!” That kind of thing.

He would need to make shitty pointed comments all the time. And yet if I made a pointed comment (I am human. Yes, I try not to do it but I do make the odd one) he would fly into a rage. An absolute rage. How DARE I?! How dare I make an “UNHELPFUL COMMENT” at him (fine for him to make countless ones to me though!).

He used to tell me I was impossible, that I had to have the last word at all times. Even as I silently walked away from him while he shouted his “last words” at me, he would tell me I always had the last word (I really didn’t. I’d given up trying to reason).

The rages, the hypocrisy, the sensitivity to any perceived criticism, the lack of understanding that it was his perception which was the issue and not the words I was saying. My inability to find any way to communicate things I was unhappy with without him flying off the handle - this lead to emotional distancing by me. I felt like I was smiling but I’d switched off the lights inside.

There were other things too. The disorganisation and mess. He would lie about having done tasks and say he’d done them when he hadn’t. Stalling. Putting his head in the sand. Choosing to do things he enjoyed rather than dealing with urgent matters which were affecting our finances. Lying about it (who says autistic people can’t lie?!). Piles of papers everywhere which I wasn’t allowed to move or comment on.

The silent treatment and moods.

The insistence his very unreliable memory was the single truth. There was neverANY possibility that he might have misremembered or misunderstood something. Always accusations and blame whenever there was a small misunderstanding.
Misunderstandings being another thing that would set him off. Insistence that HE didn’t get anything wrong. It must have been me. I did it. I was at fault. I wasn’t clear. I misheard. Etc etc Like a child! And all the while I’m like “it doesn’t matter, it’s a simple misunderstanding!”. He wouldn’t accept that. Nope. It was my error. It had to be.

It all became too much. I had enough one day and said I would move out. He now tells people we arrived at this decision together and it was what he wanted all along (he has a need to take credit for things and will often phrase things in a very credit driven ego centric way. So instead of “we went to dinner” he will say “I took you for dinner”. That kind of thing. He has to have the credit. Even when it isn’t due!)

It wasn’t my intention to stay together. I fully intended that would be the end of us, but actually this new arrangement has worked well and we have stayed as a couple. He sees me in a different light and realises how much he loved me. How good I am for him actually. And him me.

I must give him credit. He has worked incredibly hard. He stopped heavy drinking. He is organising his life. He has a new house. And while there are still piles of stuff and rooms not sorted, it’s a whole lot better than the state the last place had got in. He is devoting more time to his DD instead of giving all his attention to his son. He accepts when I tell him he’s overstepped my boundaries (I am firm about these and I say what’s on my mind even if I think he won’t like it). To be fair to him, for the most part he accepts what I say and reflects. We rarely have a cross word. I think one argument in 4 months. We have disagreed about things and he’s got pissy and I’ve said he needs to leave. So not an argument, as I’ve refused to engage with it. He leaves. Reflects. Messages and says sorry, he’s been an asshole again and knows it. I say ok. Let’s move on then. He learns from his mistakes.

I can cope with him being an asshole (which is probably about once a month) because I have my safe space. I don’t need to pretend I’m fine to keep the peace. I don’t overreact either and get upset, as I can just make him leave and I can get on with doing something nice for me (glass of wine and something I like on TV). All the emotions are under control. They’re not suppressed and they’re not huge.

I feel very safe and very independent. #pinkkettle

I must say also that I’ve been unwell in recent weeks (back injury) and he has been Amazing!!!! Coming to my house. Cooking and cleaning up every day, driving me to the GP, picking up my meds. Giving me massages. Bringing me hot drinks. I have barely lifted a finger. I keep apologising and saying I’m so sorry he’s doing all this and he just replies with how happy he is do it because he loves me and doesn’t like to see me suffering. I’ve never been treated with such care. It’s one of the things he is very good at. I do feel very well looked after.

Moving apart was the best thing we could have done. I feel like all the best parts of ourselves have come back. It isn’t perfect. He is quite needy sometimes. He still gets in a piss over small things.But we can manage it now we have space. I am happier and I think that makes everything better for both of us.

Not sure if this would work for everyone. It’s quite unusual. It does seem to be working for us (though we are only 5 months in).

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