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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger's/ASD/ND: support thread 15

1000 replies

BustyLaRoux · 22/03/2025 06:42

New thread.
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This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
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It's complicated and it's emotional.
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The old thread is here.

https://www.mumsnet.com/talk/relationships/5245372-married-to-someone-with-aspergersasdnd-support-thread-14?page=39&reply=143014416

Page 39 | Married to someone with Asperger's/ASD/ND: support thread 14 | Mumsnet

_New thread._ __ _This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ou...

https://www.mumsnet.com/talk/relationships/5245372-married-to-someone-with-aspergersasdnd-support-thread-14?page=39&reply=143014416

OP posts:
ItReallyDoesntMatterAnymore · 03/04/2025 07:54

Oh and the practicality of getting stuff packec up to prepare for the renovations? Well, I spent weeks packing up mine, DDs bits and any kitchen/lounge stuff and moving it into accessible places in rooms unaffected by the 'knock throug'. H didn't even move his bits in the bedroom on the day the builders knocked through into it. They had to put a massive sheet of plastic over the bed and side of the room. Imagine the dust! He then couldn't get to his stuff upstairs as the builders had also removed the stairs.

It was a crazy year and because we nearly ran out of money H was determined to finish a lot of jobs himself, some of which are still not done to this day.

LoveFoolMe · 03/04/2025 13:37

BustyLaRoux · 02/04/2025 19:53

Yep, DP thinks I am very silly for getting excited about things. I mean, I think he thinks it’s quite endearing. But also baffling. He doesn’t get excited about anything. He also doesn’t seem to have a lot of emotions. Or at least he has emotions, but they tend to be negative ones: Stress. Shame. Anger. And he tends to feel overwhelmed by them. He doesn’t do joy or excitement. I find that so sad. I get so much joy out of small things. I can’t imagine a life without it. I suppose you don’t miss what you never had.

The only thing that brings DH joy is the lack of something negative 🙁

Peppasparty · 03/04/2025 16:30

LoveFoolMe · 03/04/2025 13:37

The only thing that brings DH joy is the lack of something negative 🙁

What happens if it’s negative?

LoveFoolMe · 04/04/2025 12:39

Peppasparty · 03/04/2025 16:30

What happens if it’s negative?

He gets stressed and angry. He basically says he wants to be left alone with no demands made on him. That's it.

He does have a few interests but is very negative and doesn't seem happy.

In contrast, I get joy from time with friends, family, music, comedy, being outdoors, sunshine, beautiful views, flowers, cocktails, history, novels, games, gorgeous colours, textiles.... I could go on 😆 You'd see me smiling and looking happy.

I find his constant negativity quite draining.

LoveFoolMe · 04/04/2025 12:43

Even with work, I'll say a mixture of positive and negative things whereas he only says negative stuff. I'm lucky that I love my job but I'm not convinced that everything has to be negative about his.

BustyLaRoux · 04/04/2025 17:37

LoveFoolMe · 04/04/2025 12:39

He gets stressed and angry. He basically says he wants to be left alone with no demands made on him. That's it.

He does have a few interests but is very negative and doesn't seem happy.

In contrast, I get joy from time with friends, family, music, comedy, being outdoors, sunshine, beautiful views, flowers, cocktails, history, novels, games, gorgeous colours, textiles.... I could go on 😆 You'd see me smiling and looking happy.

I find his constant negativity quite draining.

I know EXACTLY what you mean x

OP posts:
Peppasparty · 04/04/2025 20:48

It is funny you should say that. I have thought that perhaps that is the reason my mum stays away from me. Life with young kids is hard and sometimes it is negative and stressful only I’m not really allowed to say this, she does not want to here that anything is difficult. If I say something that is negative it will be ignored, changes the subject, dismissed as if the words never left my mouth. I thought she was being rude and uninterested but perhaps it is something else causing it. My brother on the other hand will not go to her for anything he needs a hand or support with, he won’t tell her anything bad. I wonder if this is the ND? I thought she just wasn’t interested. She is though only with positive stuff and stuff she doesn’t have to deal with or offer empathy.

Sweetandsaltycaroline · 04/04/2025 22:05

I dip in and out of these threads from time to time, @BustyLaRoux I'm glad you've broken free and sounds like it's so far going well.

Ive resonated with several posts on here, and have found the last month pretty stressful.( nowhere near the serious types of situations some of you are in, but lots of minor stuff adding up)
I've just found it really upsetting and frustrating that from the outside we are a unit, or partnership, as both parents and businesses partners but in reality I'm doing most, if not all of the heavy lifting.
DH answer to any problem or dilemma (including injury or illness) is "it will probably be ok" meaning either "this is too stressful to think/change plans/deal with" or "Caroline will probably sort it out"
DS is on a school trip this week and I've been really anxious because I had an issue with my phone. I'm the first emergency contact, DH is 2nd. But in reality , his phone may well not be charged/be on do not disturb/have roaming data turned off...or he wont have it with him. All of these things, he reacts as if the phone is a separate entity that he has no control over. Last week I was talking about mum guilt I felt about all sorts of things. DH (as I suspected) is completely oblivious to parent guilt.....but also he seems oblivious that parenting itself is an active and on going role...

Ohdostopwafflinggeremy · 05/04/2025 08:37

I am in need of a little advice.
Dh is unwell, unwell as in he will not accept that the 'issues' he has are sideffects of the medication he has been on for HBP. He has seen at least 5 different doctors, one of them at A&E, physios, massage therapist, chiropractor, acupuncturist who have all told him it's the sideffects of the medication. He has had blood tests, an EKG and is now waiting on an MRI.
He works away and didn't go last time so has been home for 8 weeks, he is due to go again in 3 weeks but he doesn't think he'll be able. He is now saying he doesn't know whether he will be able to ever go back.
He is absolutely 100% convinced he has 'something' Parkinsons, MS, some kind of brain thing, possibly cancer.
He is incapable of talking about anything other than relaying the intensity of his symptoms on a daily loop.
I don't know how to help him. I am not minimising his discomfort and trying to be equally encouraging and sympathetic.
BUT he is driving me up the wall.
Any advice on how to handle him would be great.

NDornotND · 05/04/2025 08:44

Ohdostopwafflinggeremy · 05/04/2025 08:37

I am in need of a little advice.
Dh is unwell, unwell as in he will not accept that the 'issues' he has are sideffects of the medication he has been on for HBP. He has seen at least 5 different doctors, one of them at A&E, physios, massage therapist, chiropractor, acupuncturist who have all told him it's the sideffects of the medication. He has had blood tests, an EKG and is now waiting on an MRI.
He works away and didn't go last time so has been home for 8 weeks, he is due to go again in 3 weeks but he doesn't think he'll be able. He is now saying he doesn't know whether he will be able to ever go back.
He is absolutely 100% convinced he has 'something' Parkinsons, MS, some kind of brain thing, possibly cancer.
He is incapable of talking about anything other than relaying the intensity of his symptoms on a daily loop.
I don't know how to help him. I am not minimising his discomfort and trying to be equally encouraging and sympathetic.
BUT he is driving me up the wall.
Any advice on how to handle him would be great.

Probably a stupid question, but has he asked if it is possible to try a different type of medication for HBP? I know my mum tried quite a few different ones before she found something she could tolerate.

Ohdostopwafflinggeremy · 05/04/2025 08:51

@NDornotND This is his 3rd lot. Apparently restless legs are a symptom of all HBP medication though. The problem is he can't accept that it is a symtom rather than a major illness that the doctors are obviously misdiagnosing.

BustyLaRoux · 05/04/2025 09:05

I know someone on HBP meds and he says it’s been awful! He’s in so much pain from the meds. But he knew it was going to be a likely side effect so was prepared for it.

Can you adopt a standard response? “Yes, the doctors said this was a possible side effect”
and walk away?

Or my tried and tested response of “mmmmm”?

Don’t engage with it. Walk away. If he says “you’re not interested!” Then respond with “well you’ve been told what’s wrong”. Is it possible to just ignore it?

OP posts:
NDornotND · 05/04/2025 09:06

@Ohdostopwafflinggeremy
Sounds very like my mum. She's 85 now and riddled with arthritis, but she can't tolerate any painkillers other than paracetamol. She's had both knees and both hips replaced, but now has serious problems with her spine. She goes to the doctors repeatedly, asking for help, then whatever they suggest she says she can't take, because it makes her ill. Or takes it home & reads the entire leaflet, gets frightened of the possible side effects and refuses to take it. She wants them to 'get to the root of the problem, not just treat the symptoms'. I've tried explaining that all they can do is manage the symptoms. I really do feel for her, but it's very difficult to manage. Sorry, that doesn't help with your DH. Not sure what to suggest, but I understand how difficult it is.

NDornotND · 05/04/2025 09:08

Cross-posted with @BustyLaRoux - sounds like a good approach to take

Ohdostopwafflinggeremy · 05/04/2025 09:44

This has been my approach. Letting him talk, reiterating that the professionals have never ever suggested it may be anything sinister. Accepting that he's right, i couldn't possibly understand how he feels.
The fact that he doesn't actually research anything, just throws things out there then gets stuck in that groove.
The fact that he didn't go to work and is talking about never being able to work again is scaring me. When I say "OK, what if...... then what?" He hasn't thought that far. When I say since he is the main breadwinner this affects the whole family so we should talk some scenarios through. He can’t or doesn't want to talk about the future, just about what's happening today, with him, in minut detail.
Should I play along or play dead, though nothing i do seems to matter up till now.

Seriestwo · 05/04/2025 10:02

I lost you all, was still posting on the old thread and wondering if I had scared you off!

it’s out wedding anniversary today. 23 years married.

he patted my shoulder before he went on a run. And asked me when I was leaving (I’m taking the kids to see their grandparents). I looked at him blankly, wondering what I’d been asked, he snurked, shook his head and left.

neither of us have got each other cards or intend to make a fuss.

I need to sort out my health and my finances and find a little flat. It is long since time

Seriestwo · 05/04/2025 10:02

Pink kettle, it sounds nice

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 05/04/2025 12:14

@Ohdostopwafflinggeremy I think it comes back to the ‘Let Them’ theory. You can’t change his mindset. Instead, focus on your well being ‘Let Me’ 💕

Ohdostopwafflinggeremy · 05/04/2025 15:19

I think I may have to purchase the Let Them book, seems to have helped a few fellow sufferers on here 🥰

Cleanthecoffeemachine · 05/04/2025 19:11

Ohdostopwafflinggeremy · 05/04/2025 08:51

@NDornotND This is his 3rd lot. Apparently restless legs are a symptom of all HBP medication though. The problem is he can't accept that it is a symtom rather than a major illness that the doctors are obviously misdiagnosing.

Has he tried magnesium supplements? They can help with restless legs.

Ohdostopwafflinggeremy · 05/04/2025 19:37

Cleanthecoffeemachine · 05/04/2025 19:11

Has he tried magnesium supplements? They can help with restless legs.

No, but I'm will go buy some for him to try. He may not take them if the 'doctor' hasn't prescribed them though.
An over the counter supplement couldn't possibly help his undiagnosed mystery ailment. 🤔🙄🫨

Bluebellforest1 · 05/04/2025 19:58

@Ohdostopwafflinggeremy my h is very similar, with lots of undiagnosed issues that he claims he has. He takes BP meds and statins. He drinks a huge amount of alcohol. His latest ailment is “severe insomnia”, which he says makes him get up in the middle of the night and crash about in the kitchen, waking me in a separate bedroom on another floor! And he wonders why I don’t wish to share a bed/ bedroom with him! I suggest it’s due to the fact that he sleeps at least 4 hours during the day, but I’m wrong, of course.
I also don’t sleep well, but stay in bed, read, scroll on mumsnet. Apparently he can’t do that due to his “severe insomnia”.
Ridiculous and bloody infuriating!

BustyLaRoux · 08/04/2025 08:23

An update for those needing inspiration to do “the impossible…..”

Yesterday I did my first weekly shop in years! I now have a clean and tidy fridge for the items to go in! Previously about 1.5 of the (only 4) shelves were taken up with jars. Jars of 3 or 4 different flavours of jam. Jars of random chilli stuff (home made). Jars of soup pastes which haven’t been opened in five years. Just jars and jars and jars. Occasionally I used to sneak the odd really out of date one into the bin (unnoticed, as he never used the ones at the back!). But it would surely be replaced with other random condiment in a jar before long! The salad drawer was disgusting! Couldn’t fit any actual salad in it as it was full of packets of random meats and cheeses which had definitely seen better days. It did not smell (or look) good! Also the remaining shelves would have multiple Tupperware boxes of week old veg and half portions of pasta. Just taking up space. Not being eaten. Usually thrown away after a couple of weeks. So I had about half a shelf available to me for food shopping. I could only buy enough food for two days at a time. Time consuming. Expensive. Hated putting stuff in the fridge. Hated trying to find it again. Hated opening the fridge.
Now I have a fridge full of healthy meals for the week. It’s organised and clean. I keep opening the door and looking at it! It gives me enormous pleasure!!!!
The washing up is done.
The recycling is taken out when it gets near full.
The hob is cleaned after use.
There is no stinky fatty meat being cooked and permeating the house with its frying smell.
There are no more little bowls and pots of this and that all over the kitchen surfaces.
Food is healthy and fuss free and me and the kids eat at a reasonable time. And I clean up straight after eating.

I realised I was just eating shit, or not eating at all. I HATED cooking in that kitchen. It was messy and there was no space for me. Often with dirty stuff being left “soaking” or piling up round the sink. It had completely changed my cooking and eating habits. If DP went away, I would give it a really good clean and tidy. Throw some stuff away. And cook for me and the kids. But as soon as he came back (brandishing armfuls of non descript meat packages for the fridge!) my heart would sink and the mess and smells would start up within a day or two and I’d have to resign myself once more.

The worst part (maybe not the worst! But fairly intolerable) was the fact he would try to insist he was very clean and organised in the kitchen and always had been! That with his previous partner everything in the fridge was labelled and eaten within a time frame so nothing ever went off or got thrown away. Everyone ate well. It was all organised and healthy. The only reason things have gone awry is because he is with someone else (me!). (His previous partner never cooked so the kitchen was his basically). The implication being that it is me who causes him to suddenly have an overcrowded dirty fridge with food going off all the time.

This is a repeated pattern of mismanagement and blame. It’s the same with his court cases. His moving out. Anything really. I don’t know how he manages to hold down his job as surely he must be the same at work?!

Meanwhile I am just enjoying the space and the peace. No one mismanaging everything around me and blaming me/everyone. No one being grumpy and stressed things aren’t going their way. No one finding negative things to say about everything. No one endlessly saying how unwell they feel (in the end I said “would it be easier to tell me when you DON’T feel ill? I think I can count on my fingers the days in a year when you’re NOT feeling unwell!”). We are not tiptoeing about staying out of his way if he’s in a funny mood. I am not on alert, always half listening out for the sound of disagreements between him and my kids (usually him accusing them of something which they may or may not have done). The house is tidy. No one makes passive aggressive shitty comments about what we’re doing. No one is asking to borrow my car (relief!!!) and causing arguments by not being back on time when I need it and then being furious when I’m not very happy. I can use my car whenever I like!

I do actually miss his company a bit. He isn’t all bad. He gives nice cuddles. We make each other laugh. He can be thoughtful. He is practical when it comes to putting shelves up. I do not miss ALL THE REST! I feel so free and happy. I am enjoying being in my space. My pink kettle and toaster are in use daily and I think of you guys every time I use them. Thank you everyone for helping me get through some difficult years and make my exit. Sending strength and resilience to anyone of you who is starting to make your exit plans. It will be OK. More than OK.

OP posts:
ItReallyDoesntMatterAnymore · 08/04/2025 09:57

Love this update @BustyLaRoux ❤️

That kitchen sounds very similar to mine here, the endless collection of jars, the out of date stuff, the mess, the little saucers or bowls of stuff... I am definitely heading towards doing the impossible, there is a sort of shift in my life at the moment with lots of stuff going on and I am seeing it as a sign that there is major change happening and I am deciding to just embrace it. I am not as scared or am not in doubt about doing the right thing, it doesn't even feel that impossible any more. Just trying to find the timing to suit me and DD.

My DF is unwell and I may need to spend more time in my home country, H will need to help out with DD as she's not keen on travel but maybe this is a chance for them to bond a bit whilst I do the odd night away. DF likely ND and it's proving very hard for him to suddenly be very frail and in need of care and help in the home as he is used to living as a semi recluse surrounded by his model trains.

Ohdostopwafflinggeremy · 08/04/2025 09:58

Well done you. So happy for you, and your kettle ❤️
Thank you for the uplifting post @BustyLaRoux

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