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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger's/ASD/ND: support thread 15

1000 replies

BustyLaRoux · 22/03/2025 06:42

New thread.
__
This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
__
It's complicated and it's emotional.
__
The old thread is here.

https://www.mumsnet.com/talk/relationships/5245372-married-to-someone-with-aspergersasdnd-support-thread-14?page=39&reply=143014416

Page 39 | Married to someone with Asperger's/ASD/ND: support thread 14 | Mumsnet

_New thread._ __ _This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ou...

https://www.mumsnet.com/talk/relationships/5245372-married-to-someone-with-aspergersasdnd-support-thread-14?page=39&reply=143014416

OP posts:
ItReallyDoesntMatterAnymore · 02/05/2025 07:16

Update on my trip to see my dad:

It went really, really well. Most importantly I got to spend time with my dad, we chatted a bit, watched TV together when he got too tired to talk, listened to music, I gave him drawings from DD and a couple of little gifts to cheer him up a bit. It was lovely, he looked really happy to see me and my mum, even when we just sat there, half watching TV together, he looked contented. He's not doing great though and I don't know what will happen next, but I am so so grateful that I managed to get over to see him

As for DD and H, they were absolutely fine, they did some nice walks together and on the video calls we had DD looked happy and chilled. H cooked her favourite foods and also got her McDonald's and Sushi. He really ensured me, before I left, that they would be fine and made me feel like I had no reason to even question going over to see my dad. He's losr two parents and a brother so is very empathetic to this pain. It helps me see him in a better light. Still know it can't work long term but right now I am letting him support me.

As some of you said, this trip was also very liberating for me. The anxiety about leaving DD just lifted and I actually wasn't as worried as I might have been previously. I took advantage of having a break and enjoyed reading my book in peace at the airport, embraced the freedom of travelling solo, was mindful of the not having to be on alert for DD's needs whilst on the place etc.

So yes, a trip full of emotions but also a first for so many things. I'm definitely taking nore trips and time away. It was good for DD too as she enjoyed the independence of doing more for herself as H is a bit less hands on. Maybe it's a good thing at this age (10, nearly 11).

Thank you all for the encouragement!

Pashazade · 02/05/2025 07:37

So glad to hear the trip went well all round. Lovely that you got to spend the time with your father. I think it’s great for DD to learn that time alone with Dad can be just fine and good for you to know that as and when the split happens she will be ok spending time just with him. Remember all of this and don’t forget to keep carving out some time for yourself, you’ve done it once you can do it again!

BustyLaRoux · 02/05/2025 07:40

lastapache · 01/05/2025 18:24

Hi All

I've just come across this thread. I will go back and read it all, and perhaps the previous ones too, but I just wanted to introduce myself. My DH is likely autistic and i am diagnosed ADHD. My youngest child is diagnosed autistic, and my middle child is awaiting assessment for ADHD. My oldest has some autistic traits but probably not enough to obtain a diagnosis.

My Dad definitely had OCD. Two of my cousins are autistic. My DH says that it is likely his Dad is autistic and probably his grandfather as well. So we have quite the genetic lines running between us.

I am sure that my DH suspects that he is autistic, but it is not something we have ever discussed as I think it would upset him. I don't think it's my place to "diagnose" him anyway. I found it funny when I was researching autistic traits while waiting for my son's diagnosis. I would mention something like "apparently hand flapping doesn't show up on all kids - we need to look out for things like finger tapping", and him saying "finger tapping? Sure that can't be autistic, everyone does that, I do that all the time". I thought "yeeeahhhhh, I'll just... leave that there".

We've been together for 17 years and we've definitely had our low points. After I had my third was a particularly stressful time for various reasons and DH barely spoke to me for a period of five months. In hindsight, it was probably autistic burnout combined with some situational stress.

I'd like to get an insight on how other people deal with an autistic partner, and also to get an insight on how frustrating it might be to have an ADHD partner. DH is painfully organised, and gets upset when things get untidy or messy. In contrast, I don't even see mess, and hate housework. It's probably the biggest source of tension between us. We're like chalk and cheese in a lot of ways. Anyway, I'm going back to read the threads now.

Hello and welcome.
I am the ADHD partner and DP is Autistic. Funnily enough we are the other way round in terms of mess and organising. DP has poor executive function and really struggles with organising anything. This includes his physical space Not helped by the fact he has a tendency to hoard stuff. He has lots of hobby stuff (which never gets used). Lots of paperwork which sits in piles and bags and boxes which he never files or deals with. When he cooks he uses every knife, chopping board, roasting tin, etc. He is a great cook (he used to be a chef) but the mess he makes is unholy!

I, on the other hand, am scrupulously tidy. I have spreadsheets for things. I organise all our holidays. When I was growing up I was very chaotic. Everything disorganised. My room…you couldn’t see the floor. Couldn’t find anything. I don’t know what happened, but when I started living on my own, I went the other way! I became quite obsessive about tidiness. My house is always tidy. My desk is tidy. My bed is always made. I love my home and making it nice is like my special focus to the point where mess makes me agitated and distracted.

Living together was a shock! DP had sold himself quite differently. He’d said he was meticulous and organised!! The trouble with DP is he talks the talk. He would LIKE to be that way. He sees himself that way. He is not that way at all!! I had to very quickly adjust. At first I tried to help him with his paperwork (there’s a LOT. Tax returns. Child Arrangements Orders, so many court appearances, etc). He would get angry with my suggestions as he felt criticised. He would promise to do tasks which he then delayed or made excuses for. He has real issues with task avoidance. In the end I gave up trying to help. Invariably he would end up shouting. So I’ve left him to it. He can manage his own shit show!

In terms of our living space though, this was harder. I couldn’t ignore it. He makes a mess in every room he goes in! If he takes something out of a cupboard (say a drill) he won’t put it back. He’ll put it in front of the cupboard and say “I might use it again later”. He won’t. It will sit propped up against the cupboard for three weeks. It won’t bother him. He won’t tidy the kitchen as he goes. He will pile everything up or leave it on the work surface. Then at the end of the day he’ll clear it all up in one go. This is different to me. I will clear everything up as I go. There is no stuff left sitting about all day. Just different ways of doing things I guess. But it does mean having to work in / look at at a messy kitchen all day and this gives me the heebeejeebies!!!

In the end, without meaning to, I guess what I did was resign certain rooms to him and I kept on top of the other rooms. The lounge I kept tidy, the bathroom and our bedroom. I just tidied his shit up and these were then spaces I could relax in. Every morning I come downstairs and the first thing I do is go into the lounge and take out his food and plates from last night, puff the cushions and have a general tidy. It only takes a few minutes. The kitchen, office and breakfast room were given over to him. So I stopped washing up all his crap. I would do basic things like unload the dishwasher and take out the bins. But his piles of paper were all over the room, the table was covered. I just left him to it. I didn’t like it. But if and when I did tidy it he would get angry and say I was criticising him (even if I didn’t speak and he wasn’t in the room!). He felt my displeasure is probably what he meant. Felt guilty that once again I was tidying his crap up and he would have known it would irk me.

It kind of worked. I didn’t feel like I was his housemaid/mummy. Cleaning up after him in every room throughout the day. And he didn’t feel on edge with me having to clean up for him. He had his chaos space where he could relax and I had my tidy spaces where I could relax. But it did mean I just stopped cooking altogether. I HATED going in the kitchen. The bowls of this and that everywhere. The fridge which was dirty and full of endless jars and old leftovers and packets of random meats. It did make me a bit resentful. I decided I hated cooking. Whereas I’d quite liked cooking before I lived with him.

I can’t say that we found the perfect way to do things. This, plus many other reasons, has meant we decided to live apart in the end. For me, the mess was a large factor. I just felt on edge in my own home. I couldn’t cook anything. My diet turned to shit (or I just didn’t eat). I have very much enjoyed my new space. The kitchen is clean and organised. The fridge is a joy to behold. I have been enjoying making lovely food for me and the kids again. It’s amazing how someone else’s totally incompatible living preferences can affect you!

The mess is something he doesn’t see. Whereas I am either compelled to tidy it (which I don’t mind doing a bit but all day in every room and I start to seethe!) or I sit there gritting my teeth and avoiding certain rooms. He also felt on edge as I suppose he could sense my discomfort about something he can’t really do anything about.

I don’t know the answer. Living apart is easiest. lol! Maybe not an option for you! Having certain spaces which are kept tidy and some which are more chaotic did mean we had some spaces we could relax in. I wonder if your DH feels like I did. Constantly on edge and resentful about how much he feels he needs to do to keep on top of it. It’s quite hard to live in someone else’s mess. Just as it is hard to see the mess and deal with it if your brain just doesn’t work that way. I suppose you have to find a compromise. He needs to let some stuff go a bit and you probably need to tidy up as you go along more. Perhaps easier said than done…..

OP posts:
Sweetandsaltycaroline · 02/05/2025 08:12

BustyLaRoux · 02/05/2025 07:40

Hello and welcome.
I am the ADHD partner and DP is Autistic. Funnily enough we are the other way round in terms of mess and organising. DP has poor executive function and really struggles with organising anything. This includes his physical space Not helped by the fact he has a tendency to hoard stuff. He has lots of hobby stuff (which never gets used). Lots of paperwork which sits in piles and bags and boxes which he never files or deals with. When he cooks he uses every knife, chopping board, roasting tin, etc. He is a great cook (he used to be a chef) but the mess he makes is unholy!

I, on the other hand, am scrupulously tidy. I have spreadsheets for things. I organise all our holidays. When I was growing up I was very chaotic. Everything disorganised. My room…you couldn’t see the floor. Couldn’t find anything. I don’t know what happened, but when I started living on my own, I went the other way! I became quite obsessive about tidiness. My house is always tidy. My desk is tidy. My bed is always made. I love my home and making it nice is like my special focus to the point where mess makes me agitated and distracted.

Living together was a shock! DP had sold himself quite differently. He’d said he was meticulous and organised!! The trouble with DP is he talks the talk. He would LIKE to be that way. He sees himself that way. He is not that way at all!! I had to very quickly adjust. At first I tried to help him with his paperwork (there’s a LOT. Tax returns. Child Arrangements Orders, so many court appearances, etc). He would get angry with my suggestions as he felt criticised. He would promise to do tasks which he then delayed or made excuses for. He has real issues with task avoidance. In the end I gave up trying to help. Invariably he would end up shouting. So I’ve left him to it. He can manage his own shit show!

In terms of our living space though, this was harder. I couldn’t ignore it. He makes a mess in every room he goes in! If he takes something out of a cupboard (say a drill) he won’t put it back. He’ll put it in front of the cupboard and say “I might use it again later”. He won’t. It will sit propped up against the cupboard for three weeks. It won’t bother him. He won’t tidy the kitchen as he goes. He will pile everything up or leave it on the work surface. Then at the end of the day he’ll clear it all up in one go. This is different to me. I will clear everything up as I go. There is no stuff left sitting about all day. Just different ways of doing things I guess. But it does mean having to work in / look at at a messy kitchen all day and this gives me the heebeejeebies!!!

In the end, without meaning to, I guess what I did was resign certain rooms to him and I kept on top of the other rooms. The lounge I kept tidy, the bathroom and our bedroom. I just tidied his shit up and these were then spaces I could relax in. Every morning I come downstairs and the first thing I do is go into the lounge and take out his food and plates from last night, puff the cushions and have a general tidy. It only takes a few minutes. The kitchen, office and breakfast room were given over to him. So I stopped washing up all his crap. I would do basic things like unload the dishwasher and take out the bins. But his piles of paper were all over the room, the table was covered. I just left him to it. I didn’t like it. But if and when I did tidy it he would get angry and say I was criticising him (even if I didn’t speak and he wasn’t in the room!). He felt my displeasure is probably what he meant. Felt guilty that once again I was tidying his crap up and he would have known it would irk me.

It kind of worked. I didn’t feel like I was his housemaid/mummy. Cleaning up after him in every room throughout the day. And he didn’t feel on edge with me having to clean up for him. He had his chaos space where he could relax and I had my tidy spaces where I could relax. But it did mean I just stopped cooking altogether. I HATED going in the kitchen. The bowls of this and that everywhere. The fridge which was dirty and full of endless jars and old leftovers and packets of random meats. It did make me a bit resentful. I decided I hated cooking. Whereas I’d quite liked cooking before I lived with him.

I can’t say that we found the perfect way to do things. This, plus many other reasons, has meant we decided to live apart in the end. For me, the mess was a large factor. I just felt on edge in my own home. I couldn’t cook anything. My diet turned to shit (or I just didn’t eat). I have very much enjoyed my new space. The kitchen is clean and organised. The fridge is a joy to behold. I have been enjoying making lovely food for me and the kids again. It’s amazing how someone else’s totally incompatible living preferences can affect you!

The mess is something he doesn’t see. Whereas I am either compelled to tidy it (which I don’t mind doing a bit but all day in every room and I start to seethe!) or I sit there gritting my teeth and avoiding certain rooms. He also felt on edge as I suppose he could sense my discomfort about something he can’t really do anything about.

I don’t know the answer. Living apart is easiest. lol! Maybe not an option for you! Having certain spaces which are kept tidy and some which are more chaotic did mean we had some spaces we could relax in. I wonder if your DH feels like I did. Constantly on edge and resentful about how much he feels he needs to do to keep on top of it. It’s quite hard to live in someone else’s mess. Just as it is hard to see the mess and deal with it if your brain just doesn’t work that way. I suppose you have to find a compromise. He needs to let some stuff go a bit and you probably need to tidy up as you go along more. Perhaps easier said than done…..

Oh my gosh you have described so much of my DH here it's unreal
The cooking - he loves cooking, spends hours in the kitchen pottering around drinking most of a bottle of wine making something (not aways considering if other people like those tastes/ingredients) and using every pan/utensil in the kitchen, spilling stuff, leaving ingredients out etc. Everyone says how lucky I am that he likes cooking, but he gets the enjoyment our of it while it takes me nearly as long to clean up afterwards!
The paperwork avoidance and denial
The mess blindness
Not putting stuff away. We bought our house as a project. When DC were little there was always some DIY or renovation going on, at evenings/weekends etc (so always an excuse not to do things/come out with me and DC) There were so many "what if.." moments from DH casually leaving stuff atound, when DS was a toddler. DS found a container of tools with Stanley knives in it on the floor, once a full size wooden door had been leaned up on the landing and DS was learning to walk and pulled himself up on it and it nearly fell on him. I was in the toilet one day and heard banging, DS had got DH club hammer and was whacking the wall with it.
When I say how difficult it was parenting when DS was a toddler, DH downplays it...but a) he wasn't doing the parenting and b) he actively made my life harder by leaving hazards all over the place that DS seemed attracted to!
The last room he decorated was the bathroom which (thankfully) was more recently when DC were older but I'm not lying when I say he left tools/tiles/paraphernalia in every room in the house. It drove me insane!

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 02/05/2025 08:14

Love your updates @BustyLaRoux. I do that, simply don’t eat some days. Can’t face it. I also leave pockets of mess but keep puffing the cushions.

Life from the other side 💕, keep sharing with us!

ItReallyDoesntMatterAnymore · 02/05/2025 08:21

'Mess Blindness', yes can totally relate to that re H! Everything you describe @BustyLaRoux and @Sweetandsaltycaroline down to the endless jars and the Stanley knives!

On Mother's Day H cooked a lovely roast for me, but then ran out of steam (as usual, he means well then gets overwhelmed. There was alsoa lit of swearing involved whilst cooking. He loves to cook but it makes him very frustrated!) leaving me to deal with an hours worth of tidying. He said just stick it all in the dishwasher, well, it's not as easy as that...

BustyLaRoux · 02/05/2025 08:39

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 02/05/2025 08:14

Love your updates @BustyLaRoux. I do that, simply don’t eat some days. Can’t face it. I also leave pockets of mess but keep puffing the cushions.

Life from the other side 💕, keep sharing with us!

A puffed cushion is a thing of joy!!! 🤩

OP posts:
BustyLaRoux · 02/05/2025 08:42

Your update has warmed my heart @ItReallyDoesntMatterAnymore ! I’m so glad you got to do it. Letting him support you right now is absolutely the right thing to do. What a lovely experience for DH and DD too. Sounds like they had a great time! And you have had some much needed restorative time and also a confidence boost that coparenting could work one day when you’re ready for your pink kettle! Xx

OP posts:
Echobelly · 02/05/2025 08:51

Glad your trip went well @ItReallyDoesntMatterAnymore

@working4ever - the French teaching thing is that DS starts Y10 in September and unfortunately they have to do a language and DS appears not to have picked up French at all. Like, i have never learned French but I know more than he does. We have heard from a therapist and ADHD kid parents that languages can just be super difficult, but DH won't seem to accept this and thinks DS is just not bothering with French. So he's trying to talk to DS in French at home and this just leads to him very angry bc DS can't seem to remember things DS explain to him 10 minutes ago. I think that processing thinking and speaking in another language is just really hard for DS and there's a lot to do at once and he just can't really do it.

Seriestwo · 02/05/2025 09:14

This makes a lot of sense to me. I am married to someone who wants to parallel live. That is why he says he is 9/10
happy and I am dying of loneliness and frustration

www.facebook.com/share/v/16EiGWaYzQ/?mibextid=wwXIfr

Echobelly · 02/05/2025 09:28

That sounds tough @Seriestwo . And I don't imagine you are asking for too much by anyone's standards.

Peppasparty · 02/05/2025 11:55

Seriestwo · 02/05/2025 09:14

This makes a lot of sense to me. I am married to someone who wants to parallel live. That is why he says he is 9/10
happy and I am dying of loneliness and frustration

www.facebook.com/share/v/16EiGWaYzQ/?mibextid=wwXIfr

Snap but with family. I want to spend time and gain memories together. They all want to do things separately and then talk about it. I want to experience it with them.

SpecialMangeTout3 · 02/05/2025 12:53

Georgeismydog · 02/05/2025 06:43

I'm single without being single

Yep.
I think it’s also tied up to the ‘parallel life’ mentioned above too.

But it leaves alone and lonely (2 different things imo).
It only got better for me when I started to really detach. I think you get lonely when you find yourself alone, with no support, in a situation where you’d expect support if that makes sense.

Im sorry. I d8nt really have an answer there. Just that I can hear you. I can see how lonely you feel. It’s valid and true.
Keep talking to us. We get it.

ANiceLittleHouseByTheSeaWithACatCalledBrenda · 02/05/2025 12:57

@ItReallyDoesntMatterAnymore so pleased your trip went well. I was thinking about you this morning. It’s the start of things… 💕#PinkKettle

Georgeismydog · 02/05/2025 13:02

Ranting, he has the empathy of a stone

Okay I put my hand up, I am worrying about our kids. I'm a mum, it is in my DNA.

I know they are in their 20s but i am sorry i get upset if i see they are making a mistake

Peppasparty · 02/05/2025 13:31

Georgeismydog · 02/05/2025 13:02

Ranting, he has the empathy of a stone

Okay I put my hand up, I am worrying about our kids. I'm a mum, it is in my DNA.

I know they are in their 20s but i am sorry i get upset if i see they are making a mistake

It is also extremely difficult for an ASD brain to absorb and take any interest in something they don’t have interest in. So even if he wants to do it for you his brain will not allow him as it isn’t interested.

Georgeismydog · 02/05/2025 14:15

Peppasparty okay but where does that leave me? I'm worrying constantly about our kids

working4ever · 02/05/2025 14:22

@Echobelly try an Asian language. ExH couldn't do European languages but clicked with an Asian language on holiday - can't read it but chatting away! Could your ds try Chinese for example rather than french? Or would that entail a "project" from your DH and pressure on your ds ....

Peppasparty · 02/05/2025 14:26

Georgeismydog · 02/05/2025 14:15

Peppasparty okay but where does that leave me? I'm worrying constantly about our kids

I don’t know really, I suppose constantly worrying. Is there anywhere you could go, like counselling to get some of the worry out. I think sometimes we can’t control the situation that creates the worry and we have to just medicate the symptoms. (Medicate but not as in literally with tablets).

Echobelly · 02/05/2025 15:30

working4ever · 02/05/2025 14:22

@Echobelly try an Asian language. ExH couldn't do European languages but clicked with an Asian language on holiday - can't read it but chatting away! Could your ds try Chinese for example rather than french? Or would that entail a "project" from your DH and pressure on your ds ....

Sadly not a GCSE option at his school and a bit late anyway! DS would love to learn Japanese, though, he's obsessed with Japan right now.

I'm considering suggesting to DH that we offer DS an Nintendo Switch2 if he gets a minimum mark in French in tests later this year. Expensive potentially, but I think it might settle once and for all whether DS really can't do French or if he just needs more motivation. I think he would try his best if it was an option and also the worst outcome in 'no Switch 2' rather than 'Dad is furious' (I know DH shouldn't be furious anyway and he knows I think so). If he can't improve his French for that, then at least it could be pretty much proved to DH that DS isn't just 'not bothering'.

By the way, DH's interview went well, including the bit where he had to discuss something he doesn't have direct experience of, and they want to meet him in person next week for final stage. I suspect he will get pipped at the post by someone with more direct experience ultimately, but we'll see. It would be amazing if he could get this. He's 'paid his own way' for the last two years in terms of bills etc, but I have been running through my saving for holidays, kids summer camps, home improvements etc during that time and am tiring of it rather. I'm finally earning enough where I can cover some of this without dipping into savings, but it would be nice for it not all to be on me.

Georgeismydog · 03/05/2025 05:45

Got upset yesterday due to ASD DD. My DH doesn't get my tears. It is so hard

DucklingSwimmingInstructress · 03/05/2025 09:03

Georgeismydog · 02/05/2025 14:15

Peppasparty okay but where does that leave me? I'm worrying constantly about our kids

Ive never found a solution to this.

I try to let go, but you can't let go after a certain degree. They've been away on a driving holiday (a 10yo and a 17 yo, 5 - 8 hours in the car a day!) and I have to be aware that it's possible they won't come back. Ex should not be driving tbh. He has tailgated cars at a distance of 1 meter, going 200kph on the autobahn. He's a major accident waiting to happen and I'm so scared the children will be in the car with him when it does.

When the youngest goes to school after being at his father's, sometimes he looks like a homeless child, literally - dirty, hair unbrushed and badly tangled, clothes that don't fit sometimes. The other children have teased him unkindly, which he feels sharply.

You can't stop worrying, imo.

SpecialMangeTout3 · 03/05/2025 10:12

@Georgeismydog the worry about young adult dcs is a hard one.
I don’t think you ever stop worrying about them.
I also think I needed/need to learn to let go, let them make their mistakes and hopefully learn from that.

Its harder when they also have some SN.
I can see dc2 struggles. I have the tendency to relate them to dh 🫣🫣 and how it affected him.
But I’m trying to remember that, actually, dc2 is doing well. He is independent. He is doing well at Uni. He has found a group he gets on well (never mind it’s an outdoor sport with high risk … which gives me nightmares). Basically trying to hang on the positives so I’m not thinking if the negatives.

SpecialMangeTout3 · 03/05/2025 10:16

Georgeismydog · 03/05/2025 05:45

Got upset yesterday due to ASD DD. My DH doesn't get my tears. It is so hard

And that’s the issue too isn’t it?

He doesn’t get why you would worry about your dd for the same reason he doesn’t get your menopause. It’s too foreign to him to get it.

Does he worry about your dd at all? Or again, it’s too disconnected from his own experience? Or, like my dh, he has a head in the sand approach because otherwise it’s too overwhelming?

Petra42 · 05/05/2025 21:14

Hi all, just checking in. I never heard back from my now ex. Finding it hard to comprehend the complete disconnect though in hindsight I've been here before where he would retreat and I'd be begging/smoothing things over. I can see the pattern now of me not knowing what was coming next as my partner would retreat/end the conversation bluntly. This time it's very final but I just dont understand how someone can just switch off. For me I'm struggling with all the memories and could I have handled things differently?

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