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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Husband late diagnosis of autism-i cant cope with it

256 replies

Itsallmakingsense · 03/01/2025 11:38

Before I start- I want to preface this by saying anything i write I do not mean to be offensive to anyone in anyway and I apologise if it comes across that way.
This is just my personal experience of my own life and how it is impacting us on a family and my emotions around it. It will be long, sorry.

Background- we got together when we were both 16, we are now 40 so have been together a very long time. I was attracted to my husband because he was popular, cool, attractive, brave, and a bit bad. I was a sensible plain Jane from a sensible family, only child.
I loved being his girlfriend. Once we moved in together age 21 I noticed a few things , such as not wanting to socialise. I thought this was very strange as he'd always socialised before and had lots of friends. Life went on, he worked nights and i worked days so weren't together a lot, and at weekends I saw my family and he either stayed home or saw his. I would go out with friends , he stopped.
Once we had children, I started to notice more things. He struggled to engage with them , he is very good at rules and routines and is quite a strict parent but he isn't able to really play with them. There have been countless times where we have been dancing to songs in the living room and he is sitting staring straight ahead.
Over the years , this all culminated into me starting to dislike him very much. I felt our children were suffering and i was doing all the emotional stuff, I felt totally neglected as a wife , he never initiated intimacy, we would often sit in silence and he would never start conversations with me and the worst one is when I chat after a few mins he tells me to stop. He also became reclusive other than going to work. I would take the kids to see his family and he wouldn't come with us.
This built up and i came to the conclusion he doesn't love me or the kids, isn't interested in us.
Time passed and he had what we thought was a nervous breakdown/mental breakdown or something. He couldn't function at all- wouldn't leave his bed or eat. He went from being a smart man to looking like a homeless person, didn't wash, and this went on for a year at that severity.
Had involvement of mental health teams and a psychiatrist who even now see him every week at our home. They thought he had psychosis.
After much treatment, and therapy they made a conclusion that he wasn't following the expected recovery path , or responding to the medication as expected or engaging in the therapy as expected. Based on this and things he had told them they decided he has autism and was actually suffering from autistic burnout.
He was furious with this diagnosis, but after much talking we have both come to the conclusion that it is right.
He has admitted to me that the way he was as a teenager was all an act. Behind closed doors he was very different which all came out when we started to live together. There are also other members of his family who are the same.
Everything now makes so much sense. When he was not engaging with me and the kids it wasn't because he didn't love us but because he was over stimulated and would zone out.
He has also said that he doesn't feel love or have any feelings for anyone - he doesn't understand what that is.
The trouble is, there has been untold damage to our children and our marriage that I can't come back from. I have wanted to separate from him for years and haven't felt strong enough. Now I do feel stronger but now have huge guilt as his behaviours that I interpreted as intentional were not.
The hard part for me is I'm an extremely emotional person- the polar opposite to him. I pick up on the slightest chsnge of emotion and i now feel highly anxious in my own home as I'm always over analysing him.
Is there any way forward in this marriage? Although we now have an answer, non of his behaviours have changed and he gets worse as he gets older. I don't think I can spend the rest of my life with someone who can't show love? I also feel lied to from when we were teenagers. The man i met wasn't him at all and he was fully aware of it.
He also manipulated many situations where he deflected everything onto me and made me feel I was the cause of everything and his behaviours were normal.
Everyone that knows us knows how he is. They never expect him to attend any social events for example. He can also come across as rude and standoffish. My parents and friends don't like him. They don't know his diagnosis as he won't let me tell anyone.
Our kids are teens now and our son has problems . I feel resentment over this is won't lie.

OP posts:
Bigcat25 · 03/01/2025 13:09

Your husband is still responsible for his behavior whether he has a condition or not. Autism is not an illness. I have an autistic friend who is extremely social (would like to go out six times a week with friends) admittedly they aren't typical but they try really fucking hard and they work. Your husband isn't trying. Autistic people are also capable of love.

Burnout doesn't have to be permanent.

Oreyt · 03/01/2025 13:11

@RockOrAHardplace

Maybe your brother ignores your calls or meet ups because he's HAD to do these all week at work and is burnt out?

You don't seem to understand Autism.

JFDIYOLO · 03/01/2025 13:11

And at 40 you're both young enough to be my children. Imagine when you're my age 60

Another twenty years of this.

And potentially another 25 more.

MonkeyTennis34 · 03/01/2025 13:11

Isit2025yet · 03/01/2025 11:47

Divorce him. Life is short. You deserve a happy life. A diagnosis is neither here nor there.

I have to agree with this.
I was with DS1's father for 8 years.
I felt unloved, undervalued, angry.
I felt less lonely after I left.
I'm now in a relationship where I do feel valued.
He didn't have a diagnosis (DS1 27 does) but I couldn't have stayed with him either way.

Life IS short.

Sending you strength OP.

Howmanyshoeboxesdoesittake · 03/01/2025 13:13

wizzywig · 03/01/2025 12:56

You poor woman and your kids! Please leave. Guarantee that without you he will suddenly turn back into his charming masking self to reel the next woman in. He is autistic and that's ok. But what is worse is that he is mean and that's unforgivable

I am reporting this sentence

Guarantee that without you he will suddenly turn back into his charming masking self to reel the next woman in.

Its an appalling thing to say and ableist and nasty.

NoWayRose · 03/01/2025 13:13

Diagnosis or not, you’ve definitely given this marriage a fair shot for many years. If you don’t love him, leave x

Oreyt · 03/01/2025 13:14

Bigcat25 · 03/01/2025 13:09

Your husband is still responsible for his behavior whether he has a condition or not. Autism is not an illness. I have an autistic friend who is extremely social (would like to go out six times a week with friends) admittedly they aren't typical but they try really fucking hard and they work. Your husband isn't trying. Autistic people are also capable of love.

Burnout doesn't have to be permanent.

Edited

We aren't all like your friend.

Your contribution to this thred was pointless.

Hoppinggreen · 03/01/2025 13:14

It doesn't matter whether he can't or won't be a good husband or father, the fact is thats what you and your DC deserve.
You can have sympathy for him and still leave and make a new life

NameChanger91736 · 03/01/2025 13:14

Howmanyshoeboxesdoesittake · 03/01/2025 13:13

I am reporting this sentence

Guarantee that without you he will suddenly turn back into his charming masking self to reel the next woman in.

Its an appalling thing to say and ableist and nasty.

Someone upthread has said her ex did exactly this? I dont think its ableist if its pointing out somthing that does happen

LonginesPrime · 03/01/2025 13:15

It sounds like it would be best for both of you, and for your DC, to separate.

Don't stay just because you don't know where he would go - once you've made the decision, he will have to figure something out, but it shouldn't be your responsibility to find him somewhere in order to earn your freedom from a relationship you no longer want to be in.

You got together as teenagers, so even without the subsequent MH issues and autism diagnosis, people are likely to grow into adults that won't necessarily have the same traits they had in school.

As PPs have said, it's not like he lied about his autism or knew about it as a teen - if he did know about it, he likely wouldn't have ended up having a MH crisis where he stayed in bed for a year, as that sounds far more like he wasn't having a great time either rather than it being part of some calculated plan.

It's obviously an unfortunate situation, but you each did your best with the information available to you at the time. You haven't ruined your DCs' lives and neither has he, but you can make the future less stressful for all of you by being honest about your feelings and looking at practical solutions to end the relationship and finding sensible ways to communicate and co-parent going forward.

You can always frame it as being more about the fact you got together when you were still children and have grown apart if you worry that people might judge you for leaving him after the diagnosis. You stuck with him through all the really shit times, so anyone who accuses you of abandoning him obviously knows nothing about what you've actually been through.

cantthinkofausernametoadd · 03/01/2025 13:16

No advice but solidarity. I have an undiagnosed soon to be exH and I can't stand the man- the resentment and bitterness has kicked in with full force.

Puffalicious · 03/01/2025 13:17

TomatoSandwiches · 03/01/2025 12:16

It isn't a deception consciously practiced it is called masking and is a subconscious behavioir that is utilised to help the autistic person survive and navigate life.
Sorry you felt lied to and deceived but please stop the ablesit crap if you don't understand autistic behaviours.

At the end of the day, you can finish a relationship for any reason or none, you aren't happy, he sounds quite horrible as a person anyway aside from the autism, he will need help to find a place to move to likey but that isn't your responsibility.
Make 2025 the year you put yourself first op.

See, I can't stand all this throwing 'ableist' insults around. The OP didn't sign up for this, and she's allowed to feel whatever she feels. And I can tell you as a mother of 2 autistic sons that it's brutal & feels so cruel at times. It feels like manipulation/ lies/ cruelty even if in your logical mind you know it's the autism. I never asked for this life, just like the OP didn't. I'm sort of sick of autistic individuals saying 'Tough, it's not my fault' this may be so, but it feels like emotional & psychological abuse when you're the one in it, no matter how much you read/ practise every suggestion. So please stop with the 'ableist' chat.

Oreyt · 03/01/2025 13:17

cantthinkofausernametoadd · 03/01/2025 13:16

No advice but solidarity. I have an undiagnosed soon to be exH and I can't stand the man- the resentment and bitterness has kicked in with full force.

If he's not diagnosed how do you know he's autistic?

NDornotND · 03/01/2025 13:18

Life is too short to be miserable - leave - he'll be OK - he might even be better alone without the expectations of family life that he clearly isn't able to meet.

DangerPigeon · 03/01/2025 13:18

Why would you stay?
You're miserable, you're not loved, your children are unhappy.

You sound like you feel an obligation to support him (which is normal) but you could do that from a new independent life of your own if you wish to, by helping him get set up with benefits and agencies/ charities that can help with support.

Do you really want to be in the same situation, or worse, in ten years time?

Moro93 · 03/01/2025 13:18

I definitely think your marriage is over. You’ve tried but it’s affecting you mentally and physically, you deserve to be happier.

I’m autistic and don’t take offence to anything you’ve said.

I do understand that your DH was masking when he was younger, I’ve done it myself. You don’t even realise you’re doing it and it’s very draining. I wouldn’t be too angry about this as he likely didn’t intentionally lie.

I do however think he seems very cold. The thing about autistic people having no empathy is a stereotype that most of the time isn’t true. A lot of times they feel emotion too strongly but have trouble expressing it. However, your DH does seem to lack empathy. I couldn’t accept him saying he doesn’t love anyone, I love my DH and children more than anything.

unlikelywitch · 03/01/2025 13:21

OP you and your children deserve so much better than this. You will never be loved or valued or respected by this man. The fact that he laughed at you when you talked about your PTSD should be the final nail in the coffin.

Mrsbloggz · 03/01/2025 13:21

muggletops · 03/01/2025 13:02

Similar situation here and I divorced last year. Its amazing how my Ex has miraculously got his life back on track and has a new girlfriend and seems 'back to normal' ie. what he was like when we met. Diagnosis or not, you need to put yourself first now. Sending best wishes on your next steps - this being the first OP - validation. 💪

Presumably the need to have another servant to replace the one that left (i.e you) has given him the incentive to pretend sufficiently for her to commit herself to him?

Stargazingstargazer · 03/01/2025 13:22

Based on your OP and your additionally distressing updates, please consider separating to protect yourself and to allow you to create a constructive and pleasant home for the remainder of your children’s childhoods. Have walked a similar path and I savour every minute of our now happy home. ExH very similar to yours. Wishing you all the best with this difficult situation

YellowRoom · 03/01/2025 13:23

I can't understand why you would stay in this marriage. You're basically his carer, he doesn't work, he doesn't acknowledge your wants and needs, he blames you for his failings, he's harming the children and makes no effort to improve the situation. Whatever the cause if his behaviour is, the effects on you and DC are meaningful. The fact that he forced you to keep your difficulties secret is chilling - cutting you off from support.

NotISaidTheCat · 03/01/2025 13:23

OP, I've only read your responses so I don't know if anyone else has suggested this, but do check out this support thread for spouses of people with ASD: Page 34 | Married to someone with Asperger's/ASD/ND: support thread 13 | Mumsnet

Don't be afraid to put yourself and your children first. You didn't sign up to be his carer and you deserve to be happy.

Page 34 | Married to someone with Asperger's/ASD/ND: support thread 13 | Mumsnet

New thread. This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ou...

https://www.mumsnet.com/talk/relationships/5183563-married-to-someone-with-aspergersasdnd-support-thread-13?page=34&reply=140808540

Adhdwife · 03/01/2025 13:23

My husband had a late diagnosis of ADHD with the (private) psychiatrist suggesting he might also want to pursue an autism diagnosis (which DH hasn't done, that's fine with me, we both recognise he has autistic traits).

His condition does have a negative impact on our relationship at times but the difference for us is he has a good heart, loves me deeply, and we do our best to work together to iron out the issues. We can also laugh about some of his traits.

I always think a long marriage is worth working on, but that takes two.

If your husband isn't willing to engage/have counselling/is being a dick about it all, then I can't see a way forward for you OP, you need to save yourself and your kids. Good luck.

Howmanyshoeboxesdoesittake · 03/01/2025 13:26

Puffalicious · 03/01/2025 13:17

See, I can't stand all this throwing 'ableist' insults around. The OP didn't sign up for this, and she's allowed to feel whatever she feels. And I can tell you as a mother of 2 autistic sons that it's brutal & feels so cruel at times. It feels like manipulation/ lies/ cruelty even if in your logical mind you know it's the autism. I never asked for this life, just like the OP didn't. I'm sort of sick of autistic individuals saying 'Tough, it's not my fault' this may be so, but it feels like emotional & psychological abuse when you're the one in it, no matter how much you read/ practise every suggestion. So please stop with the 'ableist' chat.

No it is ableist, prejudiced and insulting in the extreme to people who suffer from ASD.

The person with ASD didn’t sign up for a life of fear and being misunderstood, or the prejudice that is being displayed on this thread either! They just long to fit in and be “normal”.

My ASD dd used to cry at night when she was younger because she wanted to fly on a plane but she found, and still finds, the experience too overwhelming. We hope she will manage it one day. In the meantime she had to put up with her classmates calling her weak, a snowflake, a crybaby, a weirdo.

Threads like this don’t help and these ableist posts are written by supposed adults who have dc themselves!

You would think there would be more understanding of the condition on a site like Mumsnet but the ignorance on this thread is mind-blowingly depressing tbh.

Puffalicious · 03/01/2025 13:26

bountybars · 03/01/2025 12:21

As an autistic mum with an autistic son to be honest his life is just different to yours and what you consider normal. He has spent a lot of time trying to fit in and is exhausted and why should he fit it with what society thinks is norma if he's uncomfortable with it.
You say your son is having issues, it's quite possible he's inherited it from his dad and will live quite similarly, if you don't want to be with him don't, you can leave him be but don't expect him to change and don't expect your son to change if he's the same.
What would you say to your son's future wife who felt this way about her husband and the father to her children?
That's not a trick question but just something to consider.

I absolutely will discourage both my sons from marrying/ being in a relationship. I say that with love for them & their prospective partners.

My older son is NT & it's like a whole other species. Whilst i would never vocalise this to anyone except DP, & I work my socks off to be the best parent ever, I grieve the life I should have had, & wouldn't wish that on other people.

Lwrenn · 03/01/2025 13:26

Hi @Itsallmakingsense what a horrible time you're having, I'm so sorry!

You need to leave.
My DP and I are both ND and we have a great understanding of the others quirks and behaviours yet we still annoy the other one, to be NT and and being a partner of either of us would be hugely frustrating.
Autism aside, you're miserable. Ducks in a row and off you go x

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