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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger's/ASD/ND: support thread 12

1000 replies

Daftasabroom · 17/07/2024 18:05

New thread.

This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. Some of us are ND ourselves, very many of us have ND children. It is a support thread, and a safe space, it does get emotional at times. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.

It's complicated and it's emotional.

The old thread is here.

Married to someone with Asperger's/ASD: support thread 11 | Mumsnet

New thread. This thread is for those of us seeking to explore the dynamics of long term relationships with our ND partners. It is a support thr...

https://www.mumsnet.com/talk/relationships/5081532-married-to-someone-with-aspergersasd-support-thread-11?page=1

OP posts:
LoveFoolMe · 18/07/2024 10:43

@BustyLaRoux
meticulous
That's exactly the right word for whatever DH does. Thanks!

Depending on the situation, with DH this comes across as high-achieving, fantastic, thorough, time-consuming, frustrating, obsessive and demanding.

LittleSwede · 18/07/2024 11:03

Thank you for the new thread @Daftasabroom still catching up on end of theast one.

Haven't got many spoons (another about to turn nasty tooth infection but managed to get antibiotics in time!) to write anything longer now but wishing 6everyone well, strength and whatever they need to keep going. I want to say don't be hard (but the potential PDAer in me doesn't like the word 'don't!) on yourselves for ending up in these relationships, it's almost inevitable due to either upbringing, masking, people pleasing or just because we're ND ourselves and drawn to our neuorokindred x

pikkumyy77 · 18/07/2024 11:29

F

Mistresstotheworkwife · 18/07/2024 12:04

SpecialMangeTout · 18/07/2024 07:44

Even though we are very much concentrating on our partners, I’d be very happy to support you re parents too!

I dont think any of it is easy (looking at my dcs relationship with their dad….)

Thank you! It's very hard, because it's common to find support when it comes to partners or children, but less so when it involves parents.

My mum got diagnosed with ASD quite recently actually, despite her having higher support needs than I do. She has pretty frequent meltdowns, can't do employment or finances, isn't able to read and write that well and has no concept of boundaries. Because of this, she has been in abusive situations all her life. She now has a carer. Our relationship is really strained; I'm trying to be no/low contact with her (since earlier this year) for a whole host of reasons, but she talks to my in-laws and friends independently from me and it makes it difficult, especially because my MIL will ask about her and I awkwardly have to say that don't know.

Part of the problem is just that she doesn't get things. And now she's bombarding me with messages regularly about how it hurts her so much that I am mad at her and how she loves me and the only limiting factor to her love is me ignoring her. My mum is autistic, but she's also a controlling, emotionally immature person who loves to be center of the universe, and it's hard for me to judge where one ends and the other begins. We had an argument earlier this year because she refused to give back one of my belongings, after which she gave me the silent treatment for 3 days straight + told DH that she was done with me. As soon as she's on the way home she texts me to say she felt uncomfortable with the 'atmosphere' and asked whether I was mad at her because I was acting weird... Like her memory of the incident was suddenly completely gone. When I reminded her she said she didn't quite get it but she was sorry and couldn't help her behaviour because she's autistic, and that my Angry reaction to her behaviour (which she now suddenly remembered...) reminded her of my abusive father (who was just as abusive to me).

Then a few days later she messaged me saying she's hurt because she gets the vibe that I sometimes wish I had a different mum. I have to seriously bite my tongue because whenever my mum couldn't cope with whatever when I was a child, her reaction would be to tell me she was sending me to a children's home or wondering why I wouldn't just be like [insert other child]. And her not coping included normal things children do..such as playing a little messy with water, or wanting to get up before 10am on weekends (pre teenage phase of course).

I really want to tell her that yes, I do wish I had a different mum at times, but that would probably not even do anything other than needlessly upset her, so I'm stuck with all my feelings and all my history without ever having the ability to make her understand, and it really sucks.

Sorry for the rant, today is not a good day. I don't really know where to go for support with parents because there's no thread - the stately homes one kind of assumes your parents are NT. It's a little different when they are not, though probably no less stressful. My mum doesn't always understand normal dynamics. For a really basic example, she calls my MIL 'mum' and calls FIL 'dad' at times, even though she's older than them and they are my in-laws. Similarly she'll engage with my friends in a way that suggests she sees them as her friends, rather than her DDs friends. It's not malicious, but it's one of the less problematic ways I can explain she doesn't always understand social structure and hierarchy. It's not as though she constantly wants to hang out with my friends or ILs, but she doesn't seem to get how old she is in comparison to them or what normal ways to address them or interact with them should be. I don't really care about this, but just using it to illustrate her level of understanding.

LoveFoolMe · 18/07/2024 12:11

@Mistresstotheworkwife 🫂
That's tough 🙁

SpecialMangeTout · 18/07/2024 13:37

@Mistresstotheworkwife that's hard. 🫂🫂

fwiw I agree that knowing where autism ends and where being abusive starts is very hard to define.
Id have said for example, dh staying silent, like if he was frozen, is autistic meltdown even though it looks like he is giving me the silent treatment. But still giving the silent treatment 3 days on is abusive (well unless someone else has another explanation! I’ve learnt a while ago that how I see things isn’t always adequate).
And yet, regardless of whether it’s an autistic trait or it’s abuse, the impact on us is still the same. Esp when you were a child!!

Somehow talking about your mum is probably making it harder than a partner. ‘Leaving your parent’ aka going NC is much harder than getting divorced.

HowIrresponsible · 18/07/2024 14:00

Is it a red flag for my partner to have said he never experiences joy?

ParentGuy · 18/07/2024 18:19

Hi.

As i said on another thread, I once had a girlfriend who was undiagnosed autistic. My experiences mirror those of others on here. The lack of communication, empathy and general lack of consideration were the hardest things. It's so hard! Thankfully it's over now and I've moved on. If you get the chance, never look back!!!

SpecialMangeTout · 18/07/2024 18:31

HowIrresponsible · 18/07/2024 14:00

Is it a red flag for my partner to have said he never experiences joy?

I’d think alexithymia.

Not sure it’s a red flag. It’s certainly sad.
I dont think dh would say he never experiences joy. But from the outside he seems to be spending his time mainly in neutral or angry.

Another possibility is dissociation. I’ve experienced that. And yes joy feels impossible to reach then.

Flittingaboutagain · 18/07/2024 19:47

HowIrresponsible · 18/07/2024 14:00

Is it a red flag for my partner to have said he never experiences joy?

Depends. Will he quietly support you to experience it or sabotage anything outside his special interests?

Simplefoke · 18/07/2024 20:00

Flittingaboutagain · 18/07/2024 19:47

Depends. Will he quietly support you to experience it or sabotage anything outside his special interests?

Do people actually sabotage things like this? I mean I know narcissistic people do but do ND people also?

HowIrresponsible · 18/07/2024 20:38

Flittingaboutagain · 18/07/2024 19:47

Depends. Will he quietly support you to experience it or sabotage anything outside his special interests?

He has never looked at the photos from my holiday of life time. He slag off my favourite holiday destination for a "joke."

But to be fair to him, he has been there with me for a short break after I'd been.

I asked him what his problem was with me loving that country so much and he admitted he was jealous. He was jealous of the joy I got from it as he never feels joy.

No sabotage though he was supportive and helpful when I went.

ThischarmingHam · 18/07/2024 21:24

I am trying to accept that there won’t be any interest in my emotional life or emotional wellbeing from DH and to an extent DC, who are autistic (DH I am more certain every day but he isn’t diagnosed so I could be wrong..)
So the obvious next step is to try to get my emotional needs met elsewhere. How is that supposed to work. Has anyone managed this?
I have no free time because I am looking after ND DC. I can’t cultivate existing friendships because there is no time, forget making any new ones. I don’t want to have an affair. I have had to give up my job because of ill health and now can’t go back for at least a few years because of the additional needs of the DC. My parents need looking after, so do the PIL. I feel so stuck.

SheSlays · 19/07/2024 06:34

@ThischarmingHam It sounds like you have such a lot on your plate and could really do with some support. No wonder you’re feeling stuck.
My first thought was to find yourself a therapist/counsellor for emotional support but, given what you’ve described, I don’t know if you’d be able to carve out the time/space, not to mention cost of therapy. Is that possible for you?
either way, I just want to say I hear you.

SheSlays · 19/07/2024 06:47

This thread has been the catalyst for a rather earth shattering, lightbulb moment for me.

I’ve come to realise that pretty much all the significant men in my life have autism. Dad, brother, ex husband, son, closest male friend and current partner/fiancé…

perhaps because there are other presenting issues: think bi polar, ocd, early trauma etc, the autism has somehow been missed or misdiagnosed.(And I guess the way “we” understand autism has shifted enormously over the last few years.)

it’s made me realise that I have normalised my experience of relationships with autistic men. As in, I’ve never felt truly seen, heard or understood in my relationships with the men in my life. Never expected to have my needs met. I generally prioritise their needs over mine.

im not sure what I do with this information now. Struggling to process it all tbh. Could do with a handhold

ThischarmingHam · 19/07/2024 06:53

Handhold here. It’s very painful to look around you in new light SheSlays
We all get that on here. Hopefully there will be some relief in the recognition you’re having, in time, because you’ll know that your instincts will have been right all along.
Maybe this will offer eg a reason for inexplicable behaviour in the past. Sometimes that can be freeing. As it is, you have already found others who understand the significance of what you’re seeing, on here, but also I hope you’ll find that IRL.Flowers Brew

MySocksAreDotty · 19/07/2024 07:13

I see you SheSlays. It’s very hard.

@ThischarmingHam I feel like it’s only possible by adding resources to the family, which is annoying since usually these cost money. Could be getting a cleaner, therapist, extra clubs for the DC if they are able to go, training your DH to be able to do bedtimes on a certain night so you can regularly get some time?

I just started to drop stuff and see what my kids and partner could cope without. Ok it’s not good for DSs to have ultra processed food when DH is tired. But I just decided my sanity is more important. Are there trade offs like this possible? Sometimes we have to remake certain routines differently to get time back so some creativity is needed but I realise some support needs will be very high and it isn’t always possible.

LoveFoolMe · 19/07/2024 07:32

🫂@SheSlays

ThischarmingHam · 19/07/2024 07:40

Thank you for your lovely post SheSlays
It’s just a particularly difficult patch right now. Things will change. Flowers

ThischarmingHam · 19/07/2024 07:41

Thank you Dotty

LoveFoolMe · 19/07/2024 07:48

@ThischarmingHam No easy answers but 🫂

Thankfully I have time with friends and colleagues but can see that might not be possible 🙁

Is there any way you can see friends whilst looking after DC? For example going on walks together?

SheSlays · 19/07/2024 08:10

LoveFoolMe · 19/07/2024 07:38

Does anyone have a partner with Obsessive Compulsive Personality Disorder?

DH was diagnosed as autistic 10 years ago but I think the OCPD criteria fit him as well.

https://images.squarespace-cdn.com/content/v1/60d2550de332b22f60eec9f4/bf05e74d-0cf5-44ba-9190-abdc90821b94/OCPD+vs+autism+%282025%29.png?format=750w

https://www.ocpd.org/what-is-ocpd

My exH, father of my two adult children, has OCPD.

For us, the ocd was very clear, whereas (as per my recent post) the autism is a very recent revelation.

there certainly seem to be many overlapping features.

I found ex’s strict adherence to routine and ritual super challenging, especially when our children became teenagers. And he really struggled with them having their own distinct set of needs and personalities that were quite different to his.

what are you noticing in your partner? @LoveFoolMe

LoveFoolMe · 19/07/2024 11:08

@SheSlays Every paragraph in the linked graphic sounds like my DH

Apex3 · 19/07/2024 11:09

SheSlays · 19/07/2024 06:47

This thread has been the catalyst for a rather earth shattering, lightbulb moment for me.

I’ve come to realise that pretty much all the significant men in my life have autism. Dad, brother, ex husband, son, closest male friend and current partner/fiancé…

perhaps because there are other presenting issues: think bi polar, ocd, early trauma etc, the autism has somehow been missed or misdiagnosed.(And I guess the way “we” understand autism has shifted enormously over the last few years.)

it’s made me realise that I have normalised my experience of relationships with autistic men. As in, I’ve never felt truly seen, heard or understood in my relationships with the men in my life. Never expected to have my needs met. I generally prioritise their needs over mine.

im not sure what I do with this information now. Struggling to process it all tbh. Could do with a handhold

I went through something similar @SheSlays. For years and years (I’m talking 20 years!) I just thought this was the way it was. It had become normal for me. It’s only one day I was sat on the sofa, on my own, my wife walked past me without saying a word, hood of hoodie over her head, I thought to myself this CANNOT be right, this CANNOT be normal. This surely is not what other people experience out of a relationship?

Then I did some googling, found a thread where somebody mentioned Asperger’s and all the pieces fell into place. Holy smoke, did they ever. How could I be so dozy? I now realise ASD/Aspergers is probably rife throughout the whole of her Father’s side of the family. I’m not saying it would have necessarily changed anything, but I would have been in a much more educated position to decide whether to stay in the relationship earlier on, knowing what the future (ie as a single person but trapped in a marriage) would hold

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