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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

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Married to someone with Asperger's/ASC: support thread 6

975 replies

Daftasabroom · 03/08/2022 11:33

New thread, and as previously:

This thread is for partners seeking to understand the dynamics of their relationship with someone with ASD. It is a support thread, and a safe space to have a bit of a rant. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner. (ASD partners welcome to lurk or pop in, but please don't argue with other posters and tell them they are wrong).

OP posts:
LoveFoolMe · 06/11/2022 22:57

😊

creideamhdóchasgrá · 06/11/2022 23:00

Good to see the nasty post deleted and that we were not derailed by it
Putting the self first works :)

creideamhdóchasgrá · 06/11/2022 23:01

I garden and I love weeds :)

creideamhdóchasgrá · 06/11/2022 23:03

It's something I enjoy and I learn a lot from it - about life not just about soil and vegetables etc.

creideamhdóchasgrá · 06/11/2022 23:06

creideamhdóchasgrá · 06/11/2022 23:03

It's something I enjoy and I learn a lot from it - about life not just about soil and vegetables etc.

When I'm grading I'm putting myself first. There's not always time to do hobbies and the physical exertion / physical requirements are a bit much.

LoveFoolMe · 06/11/2022 23:10

That's wonderful that you enjoy it.

I feel guilty that I don't garden. My parents are/were keen gardeners. Then I think I'm doing pretty well to juggle everything else and that gardening's something I could do not should do. Feels so much better swapping in 'could' whenever I instinctively think 'should' 😊.

ReleaseTheDucksOfWar · 06/11/2022 23:14

Thank you bows we have ducklings! hence the name ...

I wonder how you escaped. It may be too personal to share but I wonder if you met someone else?

No and yes.

I escaped because an old family friend stepped in and said he'd make sure I wasn't homeless. As it turns out he's been very, very generous - I appreciate him til the end of my days, as I say.

I had made a friend online actually whom I was close to, but with absolutely -no- funny business going on. There was attraction, which I think was partly desperation, but 1) I REALLY REALLY wanted the marriage to work and 2) I'm not interested in cheating and 3) I can control myself! so the attraction was very much on the back burner and not fed, and starved. But I got warmth from the friendship, and he actually thought I was worth talking to which right then meant the world. He is also a decent man and never once tried to push me into something that I didn't want to do, which meant I could trust him.

Now, 3 years after the breakdown of the marriage, we are companions. He doesn't live here permanently. But he's also very good with my children and frankly he knows that they are the priority of my life until they are grown and can look after themselves well, and he accepts that. It can't be easy for him.

The catalyst for the end of the marriage was an extreme piece of ignoring. He'd shut down everything I had to say until I honestly felt silenced and could not talk. He would laugh and joke with the kids, but not me and I was feeling like he was taking them over. As with so many of us, if anything went wrong it was my problem and why was I making a fuss?

But the final straw was when I got a compliment about something I'd done from three men I'd never met before or since and he didn't look at me or speak to me for a week except over the very basics for the children. That's abusive, not autism, but I just didn't care at that point. It was the culmination of years of ignoring anything I had to say, and that it had come this time because of a random compliment didn't matter.

it fucks me right off when people say "have you considered you might not be easy to live with" because like so many people married to autistic people, I've considered this at extreme length. It's got some truth in it. But I fail to see how it can in any way be my fault if I'm left on the floor while developing sepsis, or he rides 1 foot from the bumper of the car in front at 160kpm on the autobahn, or he doesn't speak to me because I received a compliment from someone else.

"You should adapt more" makes very angry. I have no patience now with the arrogance of people who have not walked in our shoes, or who have had a much less heavy time of it and think -their- experience of being married to someone with autism is the same as everyone else's. If someone has a lighter experience of it, thank God for them, and I have no problems at all with someone in that situation who has the perception and humility to realise not everyone's experience is the same.

It's the thing that I struggle with with some of the autistic people who come here saying we are all terrible people because we should consider their struggles, without ever considering that some of us did nothing but try to consider their struggles and help their husband/wife with social and organisational matters.

On the other hand I have a very great deal of respect for the autistic people who come here, and there are some, and find the thread helps them understand 'the other side' and it can even help them deal with the complicated world of the NT's. Actually, as well as respecting their open mindedness and willingness to try to understand, it -helps- me personally because it feels like our efforts to communicate can, sometimes, get through. I appreciate that a lot.

ReleaseTheDucksOfWar · 06/11/2022 23:18

about stress and physical illness - there is a very great connection.

When it comes to trauma and the body, there is an outstanding book by Bessel van der Kolk called "The Body Keeps the Score". Trauma can indeed extract a heavy price in many ways, including physical.

creideamhdóchasgrá · 06/11/2022 23:21

@LoveFoolMe some days getting my jumper on the right way round and in the right way is a major achievement! Yes we could do so many things... :)
Lovely memories of your parent's gardening and that can be honoured in all sorts of ways without actually doing gardening, like appreciating someone else's. .

creideamhdóchasgrá · 06/11/2022 23:28

ReleaseTheDucksOfWar · 06/11/2022 23:14

Thank you bows we have ducklings! hence the name ...

I wonder how you escaped. It may be too personal to share but I wonder if you met someone else?

No and yes.

I escaped because an old family friend stepped in and said he'd make sure I wasn't homeless. As it turns out he's been very, very generous - I appreciate him til the end of my days, as I say.

I had made a friend online actually whom I was close to, but with absolutely -no- funny business going on. There was attraction, which I think was partly desperation, but 1) I REALLY REALLY wanted the marriage to work and 2) I'm not interested in cheating and 3) I can control myself! so the attraction was very much on the back burner and not fed, and starved. But I got warmth from the friendship, and he actually thought I was worth talking to which right then meant the world. He is also a decent man and never once tried to push me into something that I didn't want to do, which meant I could trust him.

Now, 3 years after the breakdown of the marriage, we are companions. He doesn't live here permanently. But he's also very good with my children and frankly he knows that they are the priority of my life until they are grown and can look after themselves well, and he accepts that. It can't be easy for him.

The catalyst for the end of the marriage was an extreme piece of ignoring. He'd shut down everything I had to say until I honestly felt silenced and could not talk. He would laugh and joke with the kids, but not me and I was feeling like he was taking them over. As with so many of us, if anything went wrong it was my problem and why was I making a fuss?

But the final straw was when I got a compliment about something I'd done from three men I'd never met before or since and he didn't look at me or speak to me for a week except over the very basics for the children. That's abusive, not autism, but I just didn't care at that point. It was the culmination of years of ignoring anything I had to say, and that it had come this time because of a random compliment didn't matter.

it fucks me right off when people say "have you considered you might not be easy to live with" because like so many people married to autistic people, I've considered this at extreme length. It's got some truth in it. But I fail to see how it can in any way be my fault if I'm left on the floor while developing sepsis, or he rides 1 foot from the bumper of the car in front at 160kpm on the autobahn, or he doesn't speak to me because I received a compliment from someone else.

"You should adapt more" makes very angry. I have no patience now with the arrogance of people who have not walked in our shoes, or who have had a much less heavy time of it and think -their- experience of being married to someone with autism is the same as everyone else's. If someone has a lighter experience of it, thank God for them, and I have no problems at all with someone in that situation who has the perception and humility to realise not everyone's experience is the same.

It's the thing that I struggle with with some of the autistic people who come here saying we are all terrible people because we should consider their struggles, without ever considering that some of us did nothing but try to consider their struggles and help their husband/wife with social and organisational matters.

On the other hand I have a very great deal of respect for the autistic people who come here, and there are some, and find the thread helps them understand 'the other side' and it can even help them deal with the complicated world of the NT's. Actually, as well as respecting their open mindedness and willingness to try to understand, it -helps- me personally because it feels like our efforts to communicate can, sometimes, get through. I appreciate that a lot.

O my, that's a beautifully wise post. Thank you.

TheFlyingMonkeys · 07/11/2022 02:48

ReleaseTheDucksOfWar · 05/11/2022 23:03

my younger son* is assessed on the edge of the spectrum, my older son is assessed autistic. Their father won't go for an assessment but it's extremely clear that he is.

Extremely clear how?

ReleaseTheDucksOfWar · 07/11/2022 07:29

A lot of the characteristics that are in our assessed older son, but to a more extreme degree.

All, and I mean all, the professionals that are involved for our son who have met him will give me the silent nod when I say I think he has autism. They can't say it outright for professional reasons, but all have done that silent nod thing. Apart from the first and most experienced of them all, who did say it outright.

LoveFoolMe · 07/11/2022 07:48

@ReleaseTheDucksOfWar
How awful for you 🙁, I don't think you could have done more. Glad you have a much more supportive partner now.

Bessel van der Kolk's "The Body Keeps the Score" is another one recommended by our counsellor although I haven't read it yet.

ReleaseTheDucksOfWar · 07/11/2022 07:57

it was an eye opener for me!

I have trauma from a difficult childhood and I don't think it's any coincidence at all that I picked an apparently-stable, apparently-kind man who turned out to be rigid and actively unable and unwilling to listen. I've had intense therapy for it though. During the marriage I exploded regularly, which I'm not proud of. Since getting out of it, in the last 3 1/2 years I have not exploded once.

ReleaseTheDucksOfWar · 07/11/2022 08:00

eh, no, occasionally I've been driven to distraction by older son and his endless attempts to manipulate and break boundaries to get what -he- wants, and he can be awful to his little brother. So yes, I have occasionally been driven too far and gone pop. But I hate it, it's not productive and it's once every year now as opposed to infinitely more often.

WakingUpDistress · 07/11/2022 09:03

@ReleaseTheDucksOfWar I do think that therapy/counselling is essential.

It’s the insights you get and the strength to make the right choice for you (whatever it is btw)

ReleaseTheDucksOfWar · 07/11/2022 09:25

I am fortunate in that I could get out. So many people are trapped. Though I'm glad I stayed as long as I did though the cost is huge. The children's father loves them but his danger-awareness is very poor :/

ReleaseTheDucksOfWar · 07/11/2022 09:27

People who say "if it's too bad, leave" don't think of the consequences for the children. It's hard to leave if you are truly afraid they won't reach adulthood because he'll let the non-swimming child play right next to the canal in winter, or when you see the youngest going to school in dirty clothing that doesn't fit, unbrushed hair and without a shower.

ReleaseTheDucksOfWar · 07/11/2022 09:47

sorry for splurging a bit. Have written most of this before, but somehow putting it down here is cathartic

there was a lady called Catmaiden, I sometimes wonder how she's doing.

BleuNoir · 07/11/2022 12:02

@ReleaseTheDucksOfWar it's very sad but also very interesting to read your experiences RTDOW. I'm so sorry you've had to go through all of that.

Yes, it is cathartic to write it all down. It helps put on paper all that you've been through and you know then you weren't making it all up and it wasn't just this or just that. It was real and very very hard going.

I'm so very happy for you that a family friend stepped in. What an angel of a person that person is. And that you have found someone steady to be that reassuring presence in your life. What a great set up!

How does it feel to be free? You must be glad you made the decision. I wonder if one day that might be me?

If I'm honest, I probably could leave but my energy is too low at the moment with family commitments and my Mum not well. I will wait until next year when I think there will be a break of sorts and maybe consider the options.

Truthfully though I like my family home. I like our creature comforts. It's not anything too special but it's the home where the children have grown up. There have been good times, there have been a lot of sad times too. I've just felt very beaten down since my Mum's illness. And I know a new version of me has appear but I'm scared about that person and how she would cope alone.

And I know exactly what you mean about going pop. I do pop. Quite a lot and it's so draining. I'd like not to pop anymore. To be at peace. It sounds so nice.

It's strange how autism differs. DH is very danger aware to the point that the children freeze these days and are endlessly scared of everything now, he's put the fear of God in them.

Don't do this, don't do that or this or this or this might happen. He said he did a personality test for a job once and he was told he was a negative negative - has a double negative to his personality. He always imagines the worst. I'm sure this comes from the trauma of his life growing up. But he certainly won't get any help to change his outlook which would be so helpful. It's hard to live with that dark cloud all the time.

For the record, he also has excellent executive functioning for his own life. He can't do it for anyone else's though. God forbid I should ask him to do ANYTHING extra. It will be met with a scowl and then a blanket no. I don't ask anymore.

And he can't do emotional recipriocity. Not at all.

WakingUpDistress · 07/11/2022 16:16

It’s the lack of emotional reciprocity that is getting me down the most.

creideamhdóchasgrá · 07/11/2022 18:34

I found this on emotional reciprocity...

"Warm, loving, intimate relationships are a necessity for her neurology,
the presence of chronic impassivity from her spouse is a primary factor in the development of Cassandra Syndrome (also called Emotional Deprivation Disorder, Affective Deprivation Disorder or, most recently – Ongoing Traumatic Relationship Syndrome)."

asdmarriage.com

creideamhdóchasgrá · 07/11/2022 18:39

I found this re ASD and emotional reciprocity (asdmarriage.com)

"Do these neurological attributes remove the possibility of emotional reciprocity?

No.

The biggest block to emotional reciprocity, intimacy and attunement is a lack of willingness, agreeability and conscientiousness. When two partners are equally oriented toward the goal of empathic response, then the difficulties that arise from neurology are endurable. A blip in memory, a distracted response, a robotic tone, a missed non-verbal cue – it doesn’t add up in the manner that problematic behavior patterns do over time. A neurotypical wife often has an abundance of compassion and kindness for a good-hearted husband who acknowledges his challenges, addresses the impact upon his wife, and endeavors to sustain learning and change."

creideamhdóchasgrá · 07/11/2022 18:40

asdmarriage.com

creideamhdóchasgrá · 07/11/2022 18:49

and this from asdmarriage.com

"an autistic spouse without intellectual deficit is still capable of asking his wife if she needs a hug when she’s crying. Just as he learns other scripts within the broader social world, so too can he build his repertoire of scripts and rules in responding to his wife."