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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Anyone with an autistic partner (past or present) who can help me out?

143 replies

LadyH846 · 30/08/2020 06:24

Hi all.

Please note I don't want to hear from people with no experience of autism in men, because those perspectives probably won't be of use to me given what I strongly suspect.

I thought there may be some people on here with experience with autistic spouses who can help me out.

I met a lovely guy a few years ago. We spent several months together. In the beginning he came across as really nice, sensitive, kind, caring. Took care of me when my sister died and I was at my lowest ebb. I fell hard and was very in love and still am.

Then we were separated physically due to my work for a couple of years. We kept in contact all that time.

We resumed the relationship several months ago but it has broken down and I'm trying to gain some insight into whether I should ask him to try again or leave it.

I'm trying to work out if his problematic behaviours are due to autism.

Some background info:

When we first met, he'd only ever had one 5 year relationship (so no romantic or sexual experience before age 37...he told me he just wasn't motivated to seek it out, which seems odd because he has a good sexual appetite now).

He told me his first relationship broke down because his partner believed he was autistic. He got assessed for autism but was told no he doesn't have it. I thought it was odd when he told me because he didn't exhibit any behaviours that I tend to think of as 'autistic' because he seemed totally neurotypical, but over time I began to see the previous partner's point of view.

I am wondering if he has autism. Some signs:

He doesn't behave in public how I'd expect him to behave. He can be a bit demanding with service staff for example. He remains polite while being demanding but something seems 'off' about his behaviour with strangers, in that it doesn't seem appropriate in some way that I can't put my finger on.

He doesn't know how to flirt and has never done anything romantic. Doesn't say anything affectionate. Only told me he loves me once, a long time ago. He doesn't respond when I say "I love you".

The only way we can express affection is through sex, which is very formulaic. He always wants the same things and does the same things.

When we were making love, I told him how much I adored him and he said, "is it normal to feel that?" Took me aback.

He doesn't communicate or plan well at all. He doesn't make many plans in advance, he often pops up last minute and sometimes he cancels last min too.

I often find that I think we've made a plan for a date but when it comes to it, we've had our wires crossed. He thought he wasn't confirming and I thought he was.

He is very poor at anticipating what I might need or want. Like for example, I made myself a big pot of stew to eat for next few days as I am on a special diet for health reasons, and it was the only thing I had available to eat. (I can't eat takeaways or processed foods). I came home to find he ate all of it. Didn't occur to him that I made it for me and needed it.

I am just frustrated by the lack of consideration for my needs.

He also has a very narrow sphere of focus. For example, if something comes up in his life that's very stressful, like work stress or buying a new property and involves a lot of interpersonal skills that he doesn't have, it's like he can only focus on that and will say he's got too much on his mind for dating for who knows how long until this stressful thing is over. Then he'll pop up again afterwards. Its like he can't juggle multiple life areas very well.

He's also terrible at conflict. He just withdraws, which is our main issue.

He can be rude/tactless and not understand why it is rude.

So when we have conflict, such as a rude comment he's made or bad communication, twice I've got sick of it and dumped him. It's like I had so much anger and frustration it seemed like the only way forward. The first time we got back together. The second time happened recently.

After I dumped him, I sent an email explaining why it escalated and my frustrations and said, that I also didn't want it to end. I received no reply and I have found in the past that I'm the one who has to chase, and drive the relationship communication wise. It's like he doesn't know what to say and doesn't know how to engage in conflict.

I'm struck by the contrast between the man I knew in the beginning and the man he is now. I feel like back then he was playing a role and couldn't keep it up.

I'm not sure if this man is autistic or just lacks some of the skills needed for successful relationship and isn't that into me. But my gut instinct thinks it's autism.

He has told me in the past that he has unique feelings for me, and I'm the only woman he feels he has truly connected with.

Does anyone have any ideas or thoughts? Should I get back in contact and tell him I want to try again. If we tried again I would start treating him as if he were autistic and adjust my expectations for his behaviour. I've also bought a couple of books about autism & relationships and the more I read, the more I suspect this is him.

I also come across alarming accounts from women saying don't get involved with autistic men.

Something to bear in mind is I have a health condition that gets worse with stress and I've been a bit sick with stress lately, due to all of this. Part me of me wonders if I need to leave it behind for good, but the grief would be immense.

Thanks in advance. I'm open to all honest opinions.

OP posts:
LadyH846 · 30/08/2020 11:55

He had a good childhood with an attentive mother. But his father struggled with major depression and I know it impacted on him.

OP posts:
gullsjustwannahavefun · 30/08/2020 11:56

Asking him to alter the things that bother you isn't necessarily going to work. You cannot change people, and why would you want to if that's who you love? My H would desperately love to change certain things about himself, but it's asking someone to change their very person, he is who he is. My H changed gradually over the years, from an outgoing man (because he was mostly masking/mimicking how he thought someone should act) to what he is now, much more isolated and emotionless, but he is so happy to know now he isn't a 'freak' and it's ok for him not to want to see friends or have hobbies or whatever image he thought he had to live up to. But your bloke is presenting himself to you as he is. If you aren't compatible now then it's likely you won't ever be.

SoulofanAggron · 30/08/2020 11:58

I have autistic traits and have had partners/lovers who've had traits or been ASD.

Nothing you describe necessarily screams autism. It could be more easily explained by him being a bit of a twat or worse; he certainly doesn't act like he considers you much.

In the beginning he came across as really nice, sensitive, kind, caring. Took care of me when my sister died and I was at my lowest ebb.

So, he can be what you want of a partner when it suits him. This is classic, that dodgy men 'love bomb' at the start and then get worse as time goes on.

Something to bear in mind is I have a health condition that gets worse with stress and I've been a bit sick with stress lately, due to all of this. Part me of me wonders if I need to leave it behind for good, but the grief would be immense.

He's making you ill/iller. You'll grieve for a while but then you'll be ok.

He will be increasing your anxiety.

Maybe I should leave the ball in his court now and see if anything ever happens.

You don't really have an option in that you've pretty much done all you can.

The not feeling able to communicate claim, I think he's partly using as an excuse. He's not that into you. Even if he's genuine about that, it means he's not currently capable of a relationship. He's even said so.

Sorry OP. Flowers Flowers Flowers xxx

MillyMollyFarmer · 30/08/2020 11:59

Yes I’m always careful about behavioural modification, you can take the essence of a person away just because they’re different. Maybe because I’m the mother of an autistic child too, I am more tolerant and adaptable to traits others would struggle with because I see they’re not on purpose.

Lovemusic33 · 30/08/2020 12:00

I can relate to a lot of what you have written, I am very much like him (but female) and a lot my relationships sound similar to this one. I get stressed easily and when I’m stressed I feel I can’t give myself to anyone or anything else until I have sorted the thing that’s stressing me out. I find it uncomfortable when anyone talks about how they feel about me or if someone tells me they love me, it’s not that I don’t feel anything (I feel way too much) but I don’t know how to word it or how to respond to complements.

I think you either have to break away from him for good or you need to except that this is how he is. I wouldn’t blame anyone for walking away, I know I can be a bloody nightmare to put up with and I feel bad for the way I put myself across. If you feel you can’t cope with it and you need more from a man then walk away.

MillyMollyFarmer · 30/08/2020 12:01

I find it weird how people are focussed on his behaviour but not realising or considering your neediness and anxiety and how difficult that must be for him. Also totally ignoring all the positives you stated. There is more than just his possible autism that’s making communication difficult. No partner can meet all your needs. Do you have good girlfriends?

LadyH846 · 30/08/2020 12:01

@gullsjustwannahavefun

Asking him to alter the things that bother you isn't necessarily going to work. You cannot change people, and why would you want to if that's who you love? My H would desperately love to change certain things about himself, but it's asking someone to change their very person, he is who he is. My H changed gradually over the years, from an outgoing man (because he was mostly masking/mimicking how he thought someone should act) to what he is now, much more isolated and emotionless, but he is so happy to know now he isn't a 'freak' and it's ok for him not to want to see friends or have hobbies or whatever image he thought he had to live up to. But your bloke is presenting himself to you as he is. If you aren't compatible now then it's likely you won't ever be.
If we did speak again I would ask him to please do his best become clearer in his communciation. And give examples of the kind of clarity I'm after in what situations. That sort of thing. I don't think that constitutes asking him to change who he is, does it? Or maybe I'm wrong.
OP posts:
LadyH846 · 30/08/2020 12:05

@SoulofanAggron

I have autistic traits and have had partners/lovers who've had traits or been ASD.

Nothing you describe necessarily screams autism. It could be more easily explained by him being a bit of a twat or worse; he certainly doesn't act like he considers you much.

In the beginning he came across as really nice, sensitive, kind, caring. Took care of me when my sister died and I was at my lowest ebb.

So, he can be what you want of a partner when it suits him. This is classic, that dodgy men 'love bomb' at the start and then get worse as time goes on.

Something to bear in mind is I have a health condition that gets worse with stress and I've been a bit sick with stress lately, due to all of this. Part me of me wonders if I need to leave it behind for good, but the grief would be immense.

He's making you ill/iller. You'll grieve for a while but then you'll be ok.

He will be increasing your anxiety.

Maybe I should leave the ball in his court now and see if anything ever happens.

You don't really have an option in that you've pretty much done all you can.

The not feeling able to communicate claim, I think he's partly using as an excuse. He's not that into you. Even if he's genuine about that, it means he's not currently capable of a relationship. He's even said so.

Sorry OP. Flowers Flowers Flowers xxx

I agree it would be inappropriate to do more than I have.

I was going to leave it for a few weeks and then get in contact again but I think I'm going to leave him alone. He knows I'd talk to him again if he got in contact so I'll leave it.

I've already told him it feels like he's not that into me. That's what I said when I dumped him.

OP posts:
LadyH846 · 30/08/2020 12:05

@MillyMollyFarmer

I find it weird how people are focussed on his behaviour but not realising or considering your neediness and anxiety and how difficult that must be for him. Also totally ignoring all the positives you stated. There is more than just his possible autism that’s making communication difficult. No partner can meet all your needs. Do you have good girlfriends?
I have some good online friends, but not many in person.
OP posts:
Sorehandsandfeet · 30/08/2020 12:10

I'm sorry if I came across as harsh but I meant your narrative as being that he had an excuse for his behaviour and your feelings towards those behaviours were somehow unjustified. You cannot fix things by understanding autism and accepting less than you ultimately need to be happy.
Also, just for info, did you see his assessment report?
Is he willing to see another specialist?
Could he be telling you all this in order to get you to put up with his shoddy behaviour and then blame you for your perfectly normal reaction to it?
That could be a way to groom you for abuse too.
Remember your own boundaries, autism or not.

Scautish · 30/08/2020 12:12

@ChaChaCha2012

If you only want to hear from people with experience of relationships with a person with autism, why are you happy to hear from those who only suspect their partner has autism? Self selecting the responses to suit your viewpoint just reinforces your ignorance around autism.

I have autism (diagnosed). A previous partner had it also (diagnosed). He and I are as different and diverse as any other couple, any other person. We are not some ineffectual stereotype like you are trying to present.

Well said. The continual perpetuation of the autistic stereotype on MN is so ableist. But apparently it is an NT’s right to be able to discuss us openly, attributing all sorts of negative behaviours to autism.

OP, your opening post is offensive to me as an autistic person and your half-hearted apology to @ChaChaCha2012 is indicative of your (perhaps unconscious) pejorative opinion of autistic people. Please don’t shut out autistic people from conversations like this. The world will only improve if we have an open dialogue and try to understand each other. Not by creating and “us and them” scenario.

But I’m going to hide this thread now as it’s actually quite upsetting to see us being discussed, being told not to comment and this being seen as acceptable by MN.

MillyMollyFarmer · 30/08/2020 12:17

Who told you not to comment? The OP just thinks she would like comments from those in relationships with people with autism. That’s not that strange. It must be weird to feel you’re being discussed as it were. But people try to understand all sorts of things, anxiety for one... depression... and that can be hard to see as not everyone is the same but I don’t think it’s fair to always take it as an attack or treating you as different or not normal. If people want to understand each other, we have to have conversations. Autistic people discuss NT’s all the time. I’m often talked about when my family and their friends on the spectrum are around. I’ll be the only NT there sometimes! Sometimes people have not nice intent, but usually I think people just want to know what to do without being offensive.

LadyH846 · 30/08/2020 12:17

It didn't even occur to me to ask autistic people to tell me what they think. I'm really sad this thread has upset you. I wish I could alter it to say they are welcome to comment too. I have found those posts helpful.

Who I wanted to shut out from this thread was those people who always come on saying LTB for everything. I wanted something more considered from people with experience.

OP posts:
Twizzleisadancer · 30/08/2020 12:19

both me and my DH are autistic. My DH is nothing like what you describe...He is the kindest most thoughtful person you could ever meet. Life is hard for him not because of his autism but because of how our society has such rigid neurotypical-centric expectations and has constructed autism to be a bad thing and all about weaknesses.

Autism is always used to excuse poor behaviour or to explain some sort of deficiency, which is not fair. I couldn't even begin to list the gift autism is in both mine and DH's lives...

I think what I'm trying to say is there's good kind people and bad unkind people in the world. Most people are somewhere between the two. Some of these people will be autistic and some of these won't be, it's actually irrelevant. I think ultimately as is
in any relationship you need to be on the same page and from what you have described it doesn't sound as if you are! My DH and I often joke that our negative experiences in past relationships are due to mismatched expectations and little insight into how autism changes how we process and see the world. As we are both autistic we understand each others experiences and can make the necessary allowances and support each other to navigate areas we find tricky. For Example my DH finds communication difficult so I am the one who phones up companies and sorts things etc whereas I have much greater sensory issues so he always tells me in advance when he is going to do hoovering so I can put ear defenders on etc that sort of thing. I am not saying for one minute that autistic people need to only be in relationships with other autistic people for it to be a successful loving relationship, but there does need to be an element of give and take. I hope our experience is useful for you and can help you understand your partner. However he also needs to work to understanding your needs also and playing his part in working towards a relationship that is satisfying and positive for both of you :)

LadyH846 · 30/08/2020 12:19

I think I'm going to have to leave the thread now too. I'm really upset that I've done something discriminatory when all I wanted was some help.

Thank you to those who commented with their experiences. I really do appreciate it all the insights.

OP posts:
MillyMollyFarmer · 30/08/2020 12:22

You haven’t done anything discriminatory at all. It would be unfair to categorise this as that.

Wifeoflaugh · 30/08/2020 12:31

Hi @LadyH846 I've been married for nearly 30 years to a man who I now know is autistic. There are some things you say about your dp that sound very similar others very different, of course. Our marriage has been rocky and we've come close to divorce several times.

Things that feel similar to us - your need to have open honest communication and his shutting down. Dh does this and it drives me mad. e.g. we have an argument or emotionally difficult situation happens, I tell dh clearly how I feel, my worries, etc etc. Him - silence. Zero response. When I ask him why he hasn't said anything he'll look surprised and say he didn't realise it needed a response as I hadn't asked a direct question. If I push him to say how he feels he'll say he can't tell me yet because he doesn't 'know the answer'. Unlike your dp, he is very romantic but in the same slightly getting it wrong way, it's romance by the rule book without empathy about my needs. I will always get flowers and extravagant gifts on an anniversary and birthdays but they will invariably be things I don't want or lilies - poisonous for cats that I've asked him not to buy. I will get a totally over the top amount of puddings and chocolates that I don't like but he has a sweet tooth.

This is starting to sound like a rant about my dh but I wanted to you to see that understanding something is a result of autism doesn't make it any easier to live with. In fact it makes it harder because there's very little hope of changing the behaviours that are essentially what makes them the person they are. Therapy and counselling are totally useless for my dh because he doesn't feel or see any benefits in talking stuff through. He just wants an answer. (The typical black / white way of seeing things).

PPs said autism or not doesn't matter - if the relationship doesn't work, the relationship doesn't work. I agree. What difference does it make knowing why somebody is behaving in a way that makes you unhappy? Believe me, knowing somebody is autistic doesn't change anything.

If I could speak to my younger self 30 years ago, deeply in love with that amazing intelligent and caring man I would probably tell myself to get out. I can't say it that to myself but I can to you.

Aerial2020 · 30/08/2020 12:32

If he has been assessed for autism and it has come back he is not, why do you keep asking?
Is there something you know better than professionals?
Even if he was, what result would you like? It would explain his behaviour so it's all ok now?
If he's not for you, leave the guy alone and stop analysing this.

Aerial2020 · 30/08/2020 12:34

@LadyH846

I think I'm going to have to leave the thread now too. I'm really upset that I've done something discriminatory when all I wanted was some help.

Thank you to those who commented with their experiences. I really do appreciate it all the insights.

Help with what? To understand why the relationship didn't work out? If someone came on here and said I think my ex boyf has bit polar but the professional have assessed and he is not, would you keep asking because you don't believe it and want another answer? Why is autism fair game to discuss like this?
Aerial2020 · 30/08/2020 12:34

*Bi polar

MillyMollyFarmer · 30/08/2020 12:36

If he has been assessed for autism and it has come back he is not, why do you keep asking?

Maybe people who keep asking this should read the flipping thread first

MillyMollyFarmer · 30/08/2020 12:38

Why is autism fair game to discuss like this?

Because autism has long been neglected and poorly supported. Go and check in with the NAS who spend most of their time trying to improve assessment processes and improve time periods for assessment. We waited 6 years on the NHS for an appointment and then had to go private. It is far harder to get an adult assessed because it’s something best done with infants before they assimilate and change for society. This is fairly well known so I don’t know why people keep asking

Aerial2020 · 30/08/2020 12:40

Yes I bloody know that thank you.
I was asking why it was ok to ask mumnetters to help if her ex has autism, which is ridiculous when no one has met him

Aerial2020 · 30/08/2020 12:41

I didn't say never discuss autism or awareness.

MillyMollyFarmer · 30/08/2020 12:46

I was asking why it was ok to ask mumnetters to help if her ex has autism

Because that’s what this site is for! Nobody knows anyone’s kids partners etc but we all ask for advice every damn day. Asking other people who are in relationships with autistic people is perfectly reasonable. Geez

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