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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Anyone with an autistic partner (past or present) who can help me out?

143 replies

LadyH846 · 30/08/2020 06:24

Hi all.

Please note I don't want to hear from people with no experience of autism in men, because those perspectives probably won't be of use to me given what I strongly suspect.

I thought there may be some people on here with experience with autistic spouses who can help me out.

I met a lovely guy a few years ago. We spent several months together. In the beginning he came across as really nice, sensitive, kind, caring. Took care of me when my sister died and I was at my lowest ebb. I fell hard and was very in love and still am.

Then we were separated physically due to my work for a couple of years. We kept in contact all that time.

We resumed the relationship several months ago but it has broken down and I'm trying to gain some insight into whether I should ask him to try again or leave it.

I'm trying to work out if his problematic behaviours are due to autism.

Some background info:

When we first met, he'd only ever had one 5 year relationship (so no romantic or sexual experience before age 37...he told me he just wasn't motivated to seek it out, which seems odd because he has a good sexual appetite now).

He told me his first relationship broke down because his partner believed he was autistic. He got assessed for autism but was told no he doesn't have it. I thought it was odd when he told me because he didn't exhibit any behaviours that I tend to think of as 'autistic' because he seemed totally neurotypical, but over time I began to see the previous partner's point of view.

I am wondering if he has autism. Some signs:

He doesn't behave in public how I'd expect him to behave. He can be a bit demanding with service staff for example. He remains polite while being demanding but something seems 'off' about his behaviour with strangers, in that it doesn't seem appropriate in some way that I can't put my finger on.

He doesn't know how to flirt and has never done anything romantic. Doesn't say anything affectionate. Only told me he loves me once, a long time ago. He doesn't respond when I say "I love you".

The only way we can express affection is through sex, which is very formulaic. He always wants the same things and does the same things.

When we were making love, I told him how much I adored him and he said, "is it normal to feel that?" Took me aback.

He doesn't communicate or plan well at all. He doesn't make many plans in advance, he often pops up last minute and sometimes he cancels last min too.

I often find that I think we've made a plan for a date but when it comes to it, we've had our wires crossed. He thought he wasn't confirming and I thought he was.

He is very poor at anticipating what I might need or want. Like for example, I made myself a big pot of stew to eat for next few days as I am on a special diet for health reasons, and it was the only thing I had available to eat. (I can't eat takeaways or processed foods). I came home to find he ate all of it. Didn't occur to him that I made it for me and needed it.

I am just frustrated by the lack of consideration for my needs.

He also has a very narrow sphere of focus. For example, if something comes up in his life that's very stressful, like work stress or buying a new property and involves a lot of interpersonal skills that he doesn't have, it's like he can only focus on that and will say he's got too much on his mind for dating for who knows how long until this stressful thing is over. Then he'll pop up again afterwards. Its like he can't juggle multiple life areas very well.

He's also terrible at conflict. He just withdraws, which is our main issue.

He can be rude/tactless and not understand why it is rude.

So when we have conflict, such as a rude comment he's made or bad communication, twice I've got sick of it and dumped him. It's like I had so much anger and frustration it seemed like the only way forward. The first time we got back together. The second time happened recently.

After I dumped him, I sent an email explaining why it escalated and my frustrations and said, that I also didn't want it to end. I received no reply and I have found in the past that I'm the one who has to chase, and drive the relationship communication wise. It's like he doesn't know what to say and doesn't know how to engage in conflict.

I'm struck by the contrast between the man I knew in the beginning and the man he is now. I feel like back then he was playing a role and couldn't keep it up.

I'm not sure if this man is autistic or just lacks some of the skills needed for successful relationship and isn't that into me. But my gut instinct thinks it's autism.

He has told me in the past that he has unique feelings for me, and I'm the only woman he feels he has truly connected with.

Does anyone have any ideas or thoughts? Should I get back in contact and tell him I want to try again. If we tried again I would start treating him as if he were autistic and adjust my expectations for his behaviour. I've also bought a couple of books about autism & relationships and the more I read, the more I suspect this is him.

I also come across alarming accounts from women saying don't get involved with autistic men.

Something to bear in mind is I have a health condition that gets worse with stress and I've been a bit sick with stress lately, due to all of this. Part me of me wonders if I need to leave it behind for good, but the grief would be immense.

Thanks in advance. I'm open to all honest opinions.

OP posts:
MillyMollyFarmer · 30/08/2020 08:17

Oh and autism assessments for adults are tricky if there isn’t a parent or a long term partner. Most won’t get their diagnosis even if they are. I don’t have a high opinion of autism professionals, they’re usually NT!

CausingChaos2 · 30/08/2020 08:21

Regardless of the possible autism, this relationship isn’t meeting your needs on a number of levels. It reads like you are trying to cling on to a bad relationship.

LadyH846 · 30/08/2020 08:26

OK so what I am hearing on this thread, from people who have first hand experience is that these troubles we are having are not necessarily down to his (possible) autism and my being NT. They're that he might be emotionally unavailable anyway, on top of possibly being autistic??

Because there are people out there (NT or not) who are more emotionally available and would probably be able to meet my needs in a relationship and vice versa.

OP posts:
Robotindisguise · 30/08/2020 08:31

My DH is in my view not NT. DD has Aspergers and in my view he does too - he’s very invested in being neurotypical though - cannot have a conversation about the possibility he isn’t. What I would say to you is acceptance of your boyfriend’s autism also means accepting that this behaviour is here to stay - which it certainly will be without a diagnosis, and probably will be anyway. That can be hard to accept but you need to be clear-sighted about that.

bathsh3ba · 30/08/2020 08:36

OP, my ex-husband is autistic, my daughter is being assessed for autism and I am an autism policy scholar, so I've a fair bit of experience from different perspectives.

It doesn't matter if he is autistic or not. It took me a very long time to accept that about my ex, who was diagnosed after we split up (but I knew he was). He is himself - autism may or may not play a part in who he is but autistic people come in all personality shapes and sizes. If you aren't happy with him, if he makes you feel bad, that is all you need to consider in a boyfriend-girlfriend relationship with no kids. I used to feel guilty for leaving because I worried how he behaved wasn't his fault. But actually it was. He may have been autistic but he still had the capacity to make choices and he chose to cheat and to lie about it and that is nothing to do with his autism.

Some autistic people make good boyfriends and others don't, just like in any other group of people.

SylvanianFrenemies · 30/08/2020 08:42

Some men with autism might behave like this, others definitely wouldn't.

Why does it matter? This is who he is, surely the question is whether the relationship works for you.

MillyMollyFarmer · 30/08/2020 08:50

It doesn't matter if he is autistic or not.

I think it does. If you can’t see why someone does certain things then you can’t understand. Cheating though, is nothing to do with autism and may have clouded your views.

MillyMollyFarmer · 30/08/2020 08:53

I’ve tried to read all of your posts so forgive me if u have missed something, but the initial op in particular lists negative things. What other users here are focusing on is his negative things as you see them.

What are the positives that make you choose this person? What are your issues that you bring to the relationship?

LadyH846 · 30/08/2020 08:53

@MillyMollyFarmer

It doesn't matter if he is autistic or not.

I think it does. If you can’t see why someone does certain things then you can’t understand. Cheating though, is nothing to do with autism and may have clouded your views.

Yes I agree. I am seeking understanding and when I have understanding I can decide from that place.

Bear in mind I knew absolutely nothing about autism before he mentioned to me that his one and only relationship broke down because she thought he was autistic and it was causing a lot of problems in the relationship.

I'm new to this and this thread has been immensely helpful already

OP posts:
Chocolate4me · 30/08/2020 08:59

My Ds has been diagnosed with high functioning autism after not being happy at school, and I have long suspected my OH as also having it.
But I prefer how my OH is to perhaps Neural Typical men as I don't want much of the lovey dovey stuff, I want an organised man, he has amazing self control, much more than me!!! He can see things much more logically than me, I can be an emotional wreck. He will take on board if I point out that he isn't getting my point, but equally I laugh it off and accept that it's not a big deal. He has learnt 'my triggers' with things like me getting irritated if he doesn't see me getting fed up with him not helping, and he will then look out for them a bit more and step in.
If he has alot on in work, then I also know to step in and maybe create a calmer home life to help him out, it's give and take. I think I'm a good match for his traits, and he is for me. He has a good routine, is tidy, organised and has his shit together all the time, I wish I could be more like him sometimes!!
So I guess what I'm saying is, if you don't think you are a good match for him, and can't get over the issues that bother you, then perhaps it won't work for you. I can't see a relationship working for my OH if he met a woman who wanted tons of affection and to be emotionally intune all the time, but we seem to be a good match. But my OH is willing to adapt, if I asked for him to be more affectionate then he would. Equally I'm willing to not be bothered about him coming across as a bit shy, needing quite direct instructions/reassurances about organising new things etc. I'm not really sure it's fair to expect therapy to change things, to change how his brain might be wired. Having a bit more understanding about autism might help him, but I'm sure as his child ages, he will learn alot more too. But if you're expecting him to act a bit more neural typical, then I think you're barking up the wrong tree

Eddiewasmyfavouritecharacter · 30/08/2020 09:01

I agree @LadyH846

It does matter. One of my family members who has ASD knows he has ASD and copes with it accordingly. His relationship is the most conflict-free compatible one I know. Knowledge and acceptance and awareness can be power. ASD really does look different in everyone though. When my therapist suggested my ex had ASD I couldn’t believe I hadn’t thought of that but it made such sense. He would do thoughtless things that friends would say was asshole behaviour but I knew he was a kind good person so I was super confused. ASD clarified a lot in my own head.

MillyMollyFarmer · 30/08/2020 09:02

Chocolate4me Really good post, you guys sound similar to us. I didn’t even want a wedding, never have, and he would of hated the attention and speaking in front of everyone ( he stutters when nervous ).

Chocolate4me · 30/08/2020 09:07

Me too! We aren't married for that exact reason, actually my partner would have endured the speach etc. Just to get married as he does like to try to follow a normal pattern of life, but it was me that didn't want the wedding drama.. He seems to get over things like this better as he has had to always mask and cope

LadyH846 · 30/08/2020 09:08

@MillyMollyFarmer

I’ve tried to read all of your posts so forgive me if u have missed something, but the initial op in particular lists negative things. What other users here are focusing on is his negative things as you see them.

What are the positives that make you choose this person? What are your issues that you bring to the relationship?

The positives:
  • He's the best listener I've ever met in my life. He's always been interested in me, my thoughts, my experiences, more than any man I'd dated
  • When my sister died, we didn't know each other well but I was amazed at his ability to hold a space for my pain over a period of weeks. He was incredible. Most people cannot do that, let alone for a stranger. It felt like he was a stable, solid person
  • He's humble and not egotistical in the least
  • He's neither defensive or reactive in arguments
  • Despite what I mentioned about him being formulaic, and people on here interpreting that to mean the sex is crap, he's actually a good lover and I enjoy being with him. He just is a bit restricted in what he wants to try.
  • He loves non sexual physical touch as much as I do
  • He's a good dad to his son and a responsible person
  • He is frugal, takes good care of his finances and has done a lot with not very much
  • He's funny
  • He has a vulnerability about him that in the beginning I saw but I didn't know what it was. It endeared him to me in a way and he touched my heart and still does
  • It's never boring talking to him. He's an interesting person
  • He's very practical and can fix absolutely anything
  • He's highly independent and self-sufficient
  • I love him.

The issues I bring to this relationship:

I did therapy and was told I have "anxious attachment" which is basically, I need more reassurance about the relationship (and that it's going OK) than the average person and I can get triggered when I don't get it.

I told him that I found the experience of being in a relationship with him lately, demoralising & crushing, as a result. I realise I am needier than him.

I also think I've become more anxious as the years have passed and my anxiety has increased to such a point lately (due to my experience of lockdown) that I'm considering meds. I think I may come across as demanding as a result because of my heightened anxiety.

But I also able to give him space and time when he needs it.

OP posts:
LadyH846 · 30/08/2020 09:11

Forgot to say, I've just read chocolate4me's post and one of the other things I love about him is his self control and self discipline which is immense.

OP posts:
LadyH846 · 30/08/2020 09:13

@Chocolate4me

My Ds has been diagnosed with high functioning autism after not being happy at school, and I have long suspected my OH as also having it. But I prefer how my OH is to perhaps Neural Typical men as I don't want much of the lovey dovey stuff, I want an organised man, he has amazing self control, much more than me!!! He can see things much more logically than me, I can be an emotional wreck. He will take on board if I point out that he isn't getting my point, but equally I laugh it off and accept that it's not a big deal. He has learnt 'my triggers' with things like me getting irritated if he doesn't see me getting fed up with him not helping, and he will then look out for them a bit more and step in. If he has alot on in work, then I also know to step in and maybe create a calmer home life to help him out, it's give and take. I think I'm a good match for his traits, and he is for me. He has a good routine, is tidy, organised and has his shit together all the time, I wish I could be more like him sometimes!! So I guess what I'm saying is, if you don't think you are a good match for him, and can't get over the issues that bother you, then perhaps it won't work for you. I can't see a relationship working for my OH if he met a woman who wanted tons of affection and to be emotionally intune all the time, but we seem to be a good match. But my OH is willing to adapt, if I asked for him to be more affectionate then he would. Equally I'm willing to not be bothered about him coming across as a bit shy, needing quite direct instructions/reassurances about organising new things etc. I'm not really sure it's fair to expect therapy to change things, to change how his brain might be wired. Having a bit more understanding about autism might help him, but I'm sure as his child ages, he will learn alot more too. But if you're expecting him to act a bit more neural typical, then I think you're barking up the wrong tree
OK. Thanks very much for sharing.
OP posts:
Robotindisguise · 30/08/2020 09:23

I found a book called “between you and me” by Tony Atwood very helpful. The thing is, your DP might have great qualities and be a good person. But is he the right person for you? Do you want to feel “crushed” long term? Can you cope with a sex life that doesn’t sound satisfying? Don’t you think you deserve someone who will give you the reassurance you need to feel happy? It’s a tricky road being in a NT/ ND relationship. You need to be your own emotional support a lot of the time. I don’t always find it easy.

MillyMollyFarmer · 30/08/2020 09:25

Oh it’s really interesting reading your last posts. Your list of positives sounds exactly my DH! I love love love talking to him about my problems because he is not over emotional he helps me figure out issues with other people. It’s so helpful at not taking onboard others issues or worrying too much about what people think. His intelligence is what hooked me in too, so interesting to talk to.

In a lot of ways your partner sounds like a good one. So, do you think that while some of his issues are something that he should discuss and work on with you, that your mental health status right now probably would cause issues in any relationship? I have anxiety and depression at the moment, and we’ve found ways to work through it together. I’m trying not to put this on him and he’s looking after me in ways that most men wouldn’t. Maybe I’m biased because I’m in a good relationship with an autistic man, so take what I say with a grain of salt, but I don’t think this is necessarily a bad relationship and I think there are ways to work through this. A lot of what you’re saying may be more about your anxiety and attachment issues, and I think they’d impact a relationship with a NT man too.

LadyH846 · 30/08/2020 09:32

@Robotindisguise

I found a book called “between you and me” by Tony Atwood very helpful. The thing is, your DP might have great qualities and be a good person. But is he the right person for you? Do you want to feel “crushed” long term? Can you cope with a sex life that doesn’t sound satisfying? Don’t you think you deserve someone who will give you the reassurance you need to feel happy? It’s a tricky road being in a NT/ ND relationship. You need to be your own emotional support a lot of the time. I don’t always find it easy.
Thank you for the book recommendation. I'll check it out.

I don't feel constantly crushed or demoralised.

The sex life is satisfying but it's less varied than what I've experienced in the past.

These are valid questions though.

OP posts:
LadyH846 · 30/08/2020 09:35

@MillyMollyFarmer

Oh it’s really interesting reading your last posts. Your list of positives sounds exactly my DH! I love love love talking to him about my problems because he is not over emotional he helps me figure out issues with other people. It’s so helpful at not taking onboard others issues or worrying too much about what people think. His intelligence is what hooked me in too, so interesting to talk to.

In a lot of ways your partner sounds like a good one. So, do you think that while some of his issues are something that he should discuss and work on with you, that your mental health status right now probably would cause issues in any relationship? I have anxiety and depression at the moment, and we’ve found ways to work through it together. I’m trying not to put this on him and he’s looking after me in ways that most men wouldn’t. Maybe I’m biased because I’m in a good relationship with an autistic man, so take what I say with a grain of salt, but I don’t think this is necessarily a bad relationship and I think there are ways to work through this. A lot of what you’re saying may be more about your anxiety and attachment issues, and I think they’d impact a relationship with a NT man too.

That's very interesting that he sounds so similar to your DH.

My mental health status is a problem and my doctor suggested I come in to talk about it and see what could be done but I was going to spend a month trying to treat the anxiety naturally. I'm about one week into that month and failing miserably due to all that has happened lately with DP.

I was prescribed a valium for a medical procedure a while back and I noticed how nice it was to be calmer and less obsessive.

Apparently the best way to soothe attachment anxiety is to get into a relationship with a warm, reassuring, supportive person. So I am guessing he's always going to be aggravating that part of me.

OP posts:
Eddiewasmyfavouritecharacter · 30/08/2020 09:37

@LadyH846

Your list of his positive traits is glowing. Would improving your communication help do you think? Only you know if it’s worth it. ‘The one’ myth has messed us all up!

LadyH846 · 30/08/2020 09:37

I'm also very depressed due to what happened during lockdown, and I find it harder than I used to, to exercise, eat enough, work etc. I also think that has worsened since I ended things with him. It has only been a few days though.

OP posts:
gullsjustwannahavefun · 30/08/2020 09:40

My H is diagnosed as HFA which used to be called Aspergers. Some of his autistic tendencies and autistic behaviours became more obvious after we'd had children. Neither DC were good sleepers and it seems like the sleep deprivation triggered H and he got his diagnosis privately a few years ago. It helped us both understand more and it helped me accept some of his ways weren't because he didn't care. However depending on your ages and if you want DC with him, I'd think carefully. I felt like a single parent a lot of the time, as he'd be exhausted from 'mimicking' NT people through his working week and have nothing left by evenings and weekends. Nowadays he can't get through a Saturday without a nap. He'll fall asleep at the drop of a hat. He has no energy to play with the kids, or have a conversation with me. With age and tiredness, his OCD has developed into anxiety and depression and has limited our lives. It's not what my children deserve, and not the life I thought I would be having either. I love him but every day it gets a little bit harder, it's like the frog and boiling water scenario.

MillyMollyFarmer · 30/08/2020 09:44

gullsjustwannahavefun That’s sad for you and your children, sorry that it didn’t work out better. My DH is an amazing father, they’re extremely close even through teenage years and very affectionate with one another, both very huggy people. I think it will vary with parenthood, as much as with NT’s.

Eddiewasmyfavouritecharacter · 30/08/2020 09:46

@gullsjustwannahavefun

My ex couldn’t get through the day without a nap either!

@LadyH846

I’m recently separated & I do think rose tinted glasses go on quick. Are you overthinking staying with him? (That’s what I did)

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