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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Anyone with an autistic partner (past or present) who can help me out?

143 replies

LadyH846 · 30/08/2020 06:24

Hi all.

Please note I don't want to hear from people with no experience of autism in men, because those perspectives probably won't be of use to me given what I strongly suspect.

I thought there may be some people on here with experience with autistic spouses who can help me out.

I met a lovely guy a few years ago. We spent several months together. In the beginning he came across as really nice, sensitive, kind, caring. Took care of me when my sister died and I was at my lowest ebb. I fell hard and was very in love and still am.

Then we were separated physically due to my work for a couple of years. We kept in contact all that time.

We resumed the relationship several months ago but it has broken down and I'm trying to gain some insight into whether I should ask him to try again or leave it.

I'm trying to work out if his problematic behaviours are due to autism.

Some background info:

When we first met, he'd only ever had one 5 year relationship (so no romantic or sexual experience before age 37...he told me he just wasn't motivated to seek it out, which seems odd because he has a good sexual appetite now).

He told me his first relationship broke down because his partner believed he was autistic. He got assessed for autism but was told no he doesn't have it. I thought it was odd when he told me because he didn't exhibit any behaviours that I tend to think of as 'autistic' because he seemed totally neurotypical, but over time I began to see the previous partner's point of view.

I am wondering if he has autism. Some signs:

He doesn't behave in public how I'd expect him to behave. He can be a bit demanding with service staff for example. He remains polite while being demanding but something seems 'off' about his behaviour with strangers, in that it doesn't seem appropriate in some way that I can't put my finger on.

He doesn't know how to flirt and has never done anything romantic. Doesn't say anything affectionate. Only told me he loves me once, a long time ago. He doesn't respond when I say "I love you".

The only way we can express affection is through sex, which is very formulaic. He always wants the same things and does the same things.

When we were making love, I told him how much I adored him and he said, "is it normal to feel that?" Took me aback.

He doesn't communicate or plan well at all. He doesn't make many plans in advance, he often pops up last minute and sometimes he cancels last min too.

I often find that I think we've made a plan for a date but when it comes to it, we've had our wires crossed. He thought he wasn't confirming and I thought he was.

He is very poor at anticipating what I might need or want. Like for example, I made myself a big pot of stew to eat for next few days as I am on a special diet for health reasons, and it was the only thing I had available to eat. (I can't eat takeaways or processed foods). I came home to find he ate all of it. Didn't occur to him that I made it for me and needed it.

I am just frustrated by the lack of consideration for my needs.

He also has a very narrow sphere of focus. For example, if something comes up in his life that's very stressful, like work stress or buying a new property and involves a lot of interpersonal skills that he doesn't have, it's like he can only focus on that and will say he's got too much on his mind for dating for who knows how long until this stressful thing is over. Then he'll pop up again afterwards. Its like he can't juggle multiple life areas very well.

He's also terrible at conflict. He just withdraws, which is our main issue.

He can be rude/tactless and not understand why it is rude.

So when we have conflict, such as a rude comment he's made or bad communication, twice I've got sick of it and dumped him. It's like I had so much anger and frustration it seemed like the only way forward. The first time we got back together. The second time happened recently.

After I dumped him, I sent an email explaining why it escalated and my frustrations and said, that I also didn't want it to end. I received no reply and I have found in the past that I'm the one who has to chase, and drive the relationship communication wise. It's like he doesn't know what to say and doesn't know how to engage in conflict.

I'm struck by the contrast between the man I knew in the beginning and the man he is now. I feel like back then he was playing a role and couldn't keep it up.

I'm not sure if this man is autistic or just lacks some of the skills needed for successful relationship and isn't that into me. But my gut instinct thinks it's autism.

He has told me in the past that he has unique feelings for me, and I'm the only woman he feels he has truly connected with.

Does anyone have any ideas or thoughts? Should I get back in contact and tell him I want to try again. If we tried again I would start treating him as if he were autistic and adjust my expectations for his behaviour. I've also bought a couple of books about autism & relationships and the more I read, the more I suspect this is him.

I also come across alarming accounts from women saying don't get involved with autistic men.

Something to bear in mind is I have a health condition that gets worse with stress and I've been a bit sick with stress lately, due to all of this. Part me of me wonders if I need to leave it behind for good, but the grief would be immense.

Thanks in advance. I'm open to all honest opinions.

OP posts:
LadyH846 · 30/08/2020 09:47

[quote Eddiewasmyfavouritecharacter]@LadyH846

Your list of his positive traits is glowing. Would improving your communication help do you think? Only you know if it’s worth it. ‘The one’ myth has messed us all up![/quote]
It could do. I am not sure. A part of me wants to give it another go, although obviously it is up to him too. At the end of my email I said to him that it's up to him whether he wants to.

Otherwise it is going to be very difficult letting him go. Been dating men on and off and had relationships over last 20 years, no one compares to this person for me. No one else touches my heart in the same way and I just adore him even though it is hard. I realise I could still meet someone else at some point, though.

OP posts:
MillyMollyFarmer · 30/08/2020 09:48

I'm about one week into that month and failing miserably due to all that has happened lately with DP.

I don’t know what kind of anxiety you have, but I got a lot out of CBT and especially hypnotherapy. The head space app is also helpful.
I’m 44 and am in early peri menopause for the last few years plus am hypothyroid. So my emotions are crazy!! Ha. You don’t think it’s hormonal related somehow? Lockdown was hard for me too, I get health anxiety sometimes from years of chronic illness.

Eddiewasmyfavouritecharacter · 30/08/2020 09:48

@LadyH846

You sound confused. It is not easy! Could you meet him in person?

LadyH846 · 30/08/2020 09:49

@gullsjustwannahavefun

My H is diagnosed as HFA which used to be called Aspergers. Some of his autistic tendencies and autistic behaviours became more obvious after we'd had children. Neither DC were good sleepers and it seems like the sleep deprivation triggered H and he got his diagnosis privately a few years ago. It helped us both understand more and it helped me accept some of his ways weren't because he didn't care. However depending on your ages and if you want DC with him, I'd think carefully. I felt like a single parent a lot of the time, as he'd be exhausted from 'mimicking' NT people through his working week and have nothing left by evenings and weekends. Nowadays he can't get through a Saturday without a nap. He'll fall asleep at the drop of a hat. He has no energy to play with the kids, or have a conversation with me. With age and tiredness, his OCD has developed into anxiety and depression and has limited our lives. It's not what my children deserve, and not the life I thought I would be having either. I love him but every day it gets a little bit harder, it's like the frog and boiling water scenario.
Sorry to hear gullsjustwannahavefun and thanks for sharing your insights.

I totally relate to the description of him being exhausted from mimicking NT all week.

OP posts:
FatCatThinCat · 30/08/2020 09:49

My husband is autistic. He's the most caring, romantic and loving person I know. Just like NT people, autistic people come in all flavours. Whether this man is autistic or not is irrelevant, all that matters is that you are happy in your relationship. You're clearly not, so walk away.

LadyH846 · 30/08/2020 10:00

[quote Eddiewasmyfavouritecharacter]@LadyH846

You sound confused. It is not easy! Could you meet him in person?[/quote]
I want to, but at this point I'm worried at coming off like a stalker.

I showed up at his house a few days ago, asked to talk after I ended things and said it felt unfinished and indicated maybe we could try again. He said he didn't have the mental capacity right now, wasn't available because of the stressful property situation (he is trying to buy next door). He said he felt completely exhausted. He didn't say when he'd be available. I said I didn't want to leave it hanging for weeks. He said understood. I felt frustrated and said, OK bye.

I already sent him an email a couple of days ago saying how I felt, that I still loved him and a big part of me wanted to try again, and saying that I do feel he isn't NT and described the impact of the behaviours on me. I also said if this is it between us, maybe we could be friends eventually.

He didn't reply, although it wasn't that long ago, and I know I'll have to follow up because of his inability to communicate. He described it as a block inside himself that stops him from communicating and taking steps to initiate communication with people. I don't know what he means and if that is related to possible autism.

His birthday is in 3 weeks. I could post a card through his letterbox and say I'm thinking of him and hope the property deal went OK and would love a chance to have a conversation and wish we could start again. I could also say, if you're not interested tell me and I'll respect that.

But I don't want to be overly persistent or do all the work. I don't know what is appropriate now. He was very tolerant the last time I ended things and it was almost like it never happened, but this time might be different.

OP posts:
LadyH846 · 30/08/2020 10:01

@MillyMollyFarmer

I'm about one week into that month and failing miserably due to all that has happened lately with DP.

I don’t know what kind of anxiety you have, but I got a lot out of CBT and especially hypnotherapy. The head space app is also helpful.
I’m 44 and am in early peri menopause for the last few years plus am hypothyroid. So my emotions are crazy!! Ha. You don’t think it’s hormonal related somehow? Lockdown was hard for me too, I get health anxiety sometimes from years of chronic illness.

I don't think mine is hormonal. It's just too many things getting on top of me. I've never tried CBT I'll look up that app. Thanks.
OP posts:
LadyH846 · 30/08/2020 10:06

@FatCatThinCat

My husband is autistic. He's the most caring, romantic and loving person I know. Just like NT people, autistic people come in all flavours. Whether this man is autistic or not is irrelevant, all that matters is that you are happy in your relationship. You're clearly not, so walk away.
Thanks for sharing your experience fatcatthincat.
OP posts:
LadyH846 · 30/08/2020 10:11

Something I could do if I try again is educate myself better on autism (I haven't yet done much reading), try to understand better which traits might be part of the possible autism and which are just him.

Get some meds or other kind of help for my anxiety which was a problem before we even met.

Talk to him and see if he can alter some of the behaviours that cause the most problems.

Obviously see if he is up for it first. He may not be.

If it all goes wrong again, then we know it isn't meant to be. But one more try could be worth it.

OP posts:
Sorehandsandfeet · 30/08/2020 10:13

Autism or no autism, what it boils down to is whether you are compatible with each other and I suspect you aren't. Many autistic people are in mutually rewarding relationships with partners who suit them. If you need affirmations and reassurances to feel loved, respected and satisfied then whether you can explain his lack of giving you these away with autism or not, you will never be happy. In time you will be resentful and you may feel that he is not working hard enough to overcome his natural personality. You may read this as him not loving or caring for you enough. He sounds like he has many good traits, let him go so he can meet someone who appreciates him. Your anxiety regarding this will destroy your relationship anyway.

MillyMollyFarmer · 30/08/2020 10:14

Has he read much on autism? I have bought books for my husband too. I found having a child with autism helped me more.

I wouldn’t bombard him too much at this point. I’ve noticed a lot of emotions are kept inside them. He might be extremely upset without you but not coping because he has other more urgent issues he must prioritise. Too many things at once is overwhelming.
If your letter focused on his behaviours only, he might feel like you don’t accept him or see how your mental health impacts him and your relationship.

LadyH846 · 30/08/2020 10:19

@MillyMollyFarmer

Has he read much on autism? I have bought books for my husband too. I found having a child with autism helped me more.

I wouldn’t bombard him too much at this point. I’ve noticed a lot of emotions are kept inside them. He might be extremely upset without you but not coping because he has other more urgent issues he must prioritise. Too many things at once is overwhelming.
If your letter focused on his behaviours only, he might feel like you don’t accept him or see how your mental health impacts him and your relationship.

He hasn't read anything about autism. But he's often spoken of being ''different''.

In the email I also told him the things I love about him, and that I loved him, too. But I realise it may come across as not accepting of him.

I'm going to leave it for a few weeks. Maybe longer.

OP posts:
LadyH846 · 30/08/2020 10:24

@Sorehandsandfeet

Autism or no autism, what it boils down to is whether you are compatible with each other and I suspect you aren't. Many autistic people are in mutually rewarding relationships with partners who suit them. If you need affirmations and reassurances to feel loved, respected and satisfied then whether you can explain his lack of giving you these away with autism or not, you will never be happy. In time you will be resentful and you may feel that he is not working hard enough to overcome his natural personality. You may read this as him not loving or caring for you enough. He sounds like he has many good traits, let him go so he can meet someone who appreciates him. Your anxiety regarding this will destroy your relationship anyway.
Is it true that most autistic people are in happy relationships? I found an online counsellor for NT/ASD couples and autistic people, who claims that divorce rates are thought to be around 80%.
OP posts:
Bunnymumy · 30/08/2020 10:26

Have dated two men with autism in the past. Relatively briefly though tbf. But I've dated narcissistic men far longer and...this sounds it could be narcissism.

It sounds like he may just be selfish...
and doesnt give a fuck about your needs. Often narcissists don't engage in 'conflict' because they don't want to RESOLVE issues. They want you to feel like they 'just dont get it' (every time you find yourself having to explain to them why their unthoughtful/rude/cold/hurtful behaviour IS not ok).

Also that 'is this how I'm supposed to feel?' comment...tell me you didnt get psychopath vibes there!

It could be autism. But it could also be npd or similar. I'd read up on that too just incase.

Bunnymumy · 30/08/2020 10:26

Sorry, random capital IS lol

LadyH846 · 30/08/2020 10:34

@Bunnymumy

Have dated two men with autism in the past. Relatively briefly though tbf. But I've dated narcissistic men far longer and...this sounds it could be narcissism.

It sounds like he may just be selfish...
and doesnt give a fuck about your needs. Often narcissists don't engage in 'conflict' because they don't want to RESOLVE issues. They want you to feel like they 'just dont get it' (every time you find yourself having to explain to them why their unthoughtful/rude/cold/hurtful behaviour IS not ok).

Also that 'is this how I'm supposed to feel?' comment...tell me you didnt get psychopath vibes there!

It could be autism. But it could also be npd or similar. I'd read up on that too just incase.

Hi bunnymummy thanks for weighing in.

I don't think it's npd. I know a lot about it because a family member has it. My understanding is that Npd people tend to dislike criticism and have fragile ego's. They build themselves up by tearing others down. I would say he doesn't really have much of an ego and can easily take criticism. He doesn't and hasn't ever abused me in any way. I don't think he's ever even criticised me before. He's very accepting.

He is a good person but he is inflexible and comes across as selfish in the ways he doesn't seem to be very good at considering my needs. But then I often haven't talked to him about it either.

OP posts:
Bunnymumy · 30/08/2020 10:47

Hmm it could still be at the very low end of the spectrum. My first partner..it took me a long time to realise even looking back that he was one, because I had met a lot worse. He was...selfish. But not arrogant ect... and he was very sly about the way he set me up to fail ect. You mention your partner eating your stew when he knew you were on a special diet. Yeah...that sorta thing...

I left him because I never felt supported. I felt like he just never considered my needs. It wasnt until years later (after learning about npd the hard way) I looked back and realised there had been lots of narcissistic traits. He had just been very covert. (And I just had been excusing them.as something else- youth ect...)

Narcissistic triangulation (something or someone else always seemed more appealing than the hear and now with me) never considering my feelings, never apologising, looking at me as though I was malfunctioning for calling him up on unthoughtful behaviour ect... loads of them.

I still find it hard to equate him with the monstrous sorts I've met since. But I cant unsee it now.

Just be aware it's a spectrum and they are all different. And the sabotaging behaviour (standing on you to make themselves feel big) can actually be done very sly. So that you excuse it as a mistake or them just not thinking ect...

Having these sort in the family can also make you a magnet for more.

It sounds like you've got your radar on though so, trust your gut I guess.

But I think maybe youd be happier with someone else anyway.

Sallycinammonbangsthedruminthe · 30/08/2020 10:51

My partner is severely autisic OP. He is hard work at times but so worth it! His life is on a very different wavelength to mine, by that I mean how he sees things and how i do. Some examples are..he is not kind or sensetive this does not mean he isnt loving or caring it means he just doesnt get the social niceties that we would expet.So say for example I am unwell,he can see I am unwell I tell him so he gets it.he will make me a coffee and tell me to go get in bed and rest all good,then he will think in his head omg she is illl and it throws him completely.He tries to work out how to help me so he might decide to help me by doing the housework but its not like putting the washing on or washing up its almost a manic thing so I am trying to sleep he is in and out asking how much of this do i use,wheres the so and so for this job just going to hoover the landing now just checking you arent asleep! Its exhausting and its his way of helping! The house is immaculate I am laid there thinking what was the point \i have had no rest!!!He has no outward emotions...this was very hard to accept at first so if we see couples walking holding hands and I reach for his he doesnt get why,he moves his hand like hes been burned!!.He works very hard for us but if there is any change to his work routine it throws him totally.He is creative and artisti and can build anything,make anything how he does this is beyond my comprehension.He cant tell us he loves us but he shows it to us, We only need mention something one and its done.So for example we were watching a programme and I mentioned how lovely the gazebo and pergola was..3 days later he had worked solidly and produced,made erected us both! Our garden looks amazing lol.He also has no awareness of social situations..he can often say things that make me shake my head in disbelief.So me and my friend were talking about something,anything and he will jump in totally off topic about the price of wheat! Makes no sence has no relation to what we were on about and derails the topic.He thinks it he says it.He was joining in and being friendly and likes my friend so was trying to be welcoming to her but like you are left scrathing your head thinking wheat?what wheat ?who mentioned wheat? lol it can be insanely funny or just odd! Another thing he does is with regard to our kids...this is hard or has been..he has no sense of not what is acceptable as such but he doesnt see what could happen...so like if the kids were doing something I would say stop that now its dangerous or so and so could happen..he doesnt see that.My older chid for example jumping on the bed with my youngest child on too err no stop it so and so could fall off and hurt themselves...he would say the kids were jumping on the bed and so and so fell off and banged their head but they are ok .Now I would have stopped it to avoid an incident..he wouldnt have seen an incident could occur and they were just having fun.All this sounds dreadfully depressing but its not.We have been married for 10 years and its been a fab 10 years! I can read him now and I know what it all means.I know him.I know when he is being stubbon or awkward it is really he is unsure how to proceed or he is frightened.I know when he makes a cuppa or brings the washing in when its raining its his way of showing he cares,small daft things.I know when an episode of mania is coming and I an divert him to keep him on an even keell.I also know how funny he is,how unconventional he is.I know he is for me always and for our family.He is loyal and works hard for us.He will never say I love you and be all hearts and flowers his mind doesnt work that way but last week we were chatting about is day at work and he said he had been busy cos some of the lads were chasing some new girls who had started work in the canteen,pretty lasses they are he said,..so i said something like bet you had a look too didnt you?! light heartedly meaning nothing and he looked at me dead straight faed and said no..Mick said.one of them was giving me the eye all day..oh really I said ..did that make you smile? NO why would it I have got you...and somehow that was so honest and so heartfelt it was enough for me! Life sometimes isnt easy dealing with.living with,loving an autistic bipolar,manic adult but its worth it ,,every minute is worth it...sorry for the long rambling weird post hope you can see though although it has its challenges life can be rewarding and happy and I wouldnt swap mine for anything!! He is a good man,a solid man,a dependable man full of life most of the time and although we function on different wave lengths we do function! And who is to say his mind is wrong ? Mine could be wrong to him too!!! If I had to rely on him for romance,a sense of humour and deep emotional fulfilment it might not work purely because it is above and beyond him to think in those ways but decency,honour,loyalty and respect are freely given by the bucket load! It works for me!!

glumbum38 · 30/08/2020 10:54

I am currently separating from my ASD husband. We only figured out he was autistic in the last 18 months or so and we have been together for 14 years. We went for specialist AS/NT counselling and it was eye opening. I'd say there have been two main hurdles. The first is that for years I imposed NT expectations on him without knowing why he couldn't respond. It has been near impossible to change my expectations, despite reading many books and educating myself. The second hurdle is that he won't accept the diagnosis and is defensive and not self-aware.
It has been so difficult and so painful for me to let go as he is a good man and I have a lot of love for him. It was having children that pushed him to coping capacity and we haven't been the same since.
Good luck, there is nothing clear cut about AS/NT relationships.

QuestionMarkNow · 30/08/2020 10:55

Same here @LadyH846.
DH accepts that he is probably on the spectrum. It’s hard. We’ve been together 20 years and I’ve been hurt many many times because he can’t see things from my pov.

I don’t remember things being like this at the start, which seems common. They are trying hard to start with but can’t keep it up day in and day out.

I’m afraid I haven’t been able to make it work for me, even after lowering my expectations a lot. My advice would be to get out.

LadyH846 · 30/08/2020 10:57

Thanks for sharing sallycinnamon, that's really nice. The price of wheat thing made me laugh - and does remind me of the weird, random, unrelated stuff my fella will interject into conversations.

OP posts:
QuestionMarkNow · 30/08/2020 10:57

@glumbum38, I suspect this has been the case for us too.

Stress, noise etc is making things much harder for both of us.

QuestionMarkNow · 30/08/2020 11:02

@Sallycinammonbangsthedruminthe, I could cope better with your DH. Because he does things for you, just because he knows you would like it.
My DH copes by going inwards and silent. That means that. If I’m ill, I’m getting ignored and he just carries on with his own routine/special interest .

MillyMollyFarmer · 30/08/2020 11:11

Sallycinammonbangsthedruminthe Your post is so sweet and I relate to so much of it!! I’ve been ill a long time and my DH fusses non stop seeing what he can do because he’s never sure! God it’s annoying but so well intentioned!

Sallycinammonbangsthedruminthe · 30/08/2020 11:12

the wheat conversation is typical of many! It is almost like he thinks he has been having a conversation with you but he hasnt and you have to follow it! Its very strange! Parents evenings are particullaly hilarious! So and so is expected to achieve this grade and needs help with such and such to improve..ok we will do our best to work on that...did yu know vardy scored 3 times for leiester last week...errr what!!! or right I amoff to the shop for something for dinner what would you like? Get some sun cream for tomorrow! err why? well I booked us a caravan on the coast for 3 days we are off in an hour! err what,when ,why? just thought the kids would like it!!!!! first i heard about it but ok we can do that lol ...no rhyme nor reason..no schedual to follow no clue!!! now I would pressume that weekends away would be things we would discuss before hand together but he doesnt do that bit very well!! He is in his 50s now so cant see much hope in that changing much!!! Life isnt easy as I said before and it can be frustrating but its ok! You do have to give so much more though mentally and I dont blame anyone for walking away,honestly there has been a few times I considered it but I am glad I didnt...just dont settle..your needs have to be met too otherwise it will never work...