Help end medical misogyny. Sign our petition.

Help end medical misogyny.
Sign our petition.

Sign the petition

Please or to access all these features

Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

See all MNHQ comments on this thread

Married to someone with Asperger's? Support group here! (Thread 3)

816 replies

ChangerOfNameAspieThread · 29/12/2018 14:44

This thread is for partners seeking to understand the dynamics of their relationship with someone with ASD. It is a support thread, and a safe space to have a bit of a rant. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
(ASD partners welcome to lurk or pop in, but please don't argue with other posters and tell them they are wrong.)

Some resources from the threads so far:
www.theneurotypical.com/effects-on-differing-nd-levels.html
www.maxineaston.co.uk/cassandra/
I've probably missed some, but will try to gather them later and put in a comment for the next thread!

Previous threads:
1st thread: www.mumsnet.com/Talk/relationships/3281058-Is-anyone-married-to-someone-with-Aspergers
2nd thread: www.mumsnet.com/Talk/relationships/3325419-married-to-someone-with-asperger-s-support-group-here

OP posts:
DitchyMcAbandonpants · 04/03/2019 18:37

@madaboutwands

That’s fair enough, I understand you wanting to talk about this but some of the advice on here made me want to curl up and die inside. Lots of it is just plain wrong.

I’m not a monster or a bad person or someone that posters should run away from a relationship with, just because I have ASD.

The one thing you can NOT do is to tell peole to not talk about their hurt because it makes you uncomfortable/you find it hurtful.

^Yes. I completely agree with this. So why am I being told not to talk about my hurt at being unfairly generalised in this way? What if my DP read this thread and took it for gospel? That we’re “just that way” and nothing can be changed so why try to work at anything?

The part of your post that made me saddest of all was the expectation that you can’t talk to people with ASD about their ASD or ask them questions.

If you can’t ask questions, if you can’t talk, then how can you have a relationship with that person?

It’s just as important (maybe even more so?) for people with ASD to talk about their relationship, their feelings and find ways to express themselves.

Just like many NT’s find certain topics difficult, we do too but finding a way to talk round these things is vital. Asking questions, demanding answers and making threats in lieu of demonstrated feelings is not the way to go, though. It’s more about finding ways in or talking about it in a way that interests your partner and suits you. If an NT couple had an argument and one partner came in with interrogations, accusations or constantly demanding reassurance, then that wouldn’t be an acceptable way to deal with it. Same with us - find a way to talk that suits both partners and lay out what’s needed, discuss and find a compromise that works for you both.

Yes, we can be very literal but that’s not always a bad thing. Ask the right questions in the right way and the likelihood is that you’ll get a verbal instruction manual about what’s happening in our heads.

But also, if an ASD person is just refusing to do things that you need to feel secure and loved, then they need to expect that they’re not going to get the relationship they want and effort needs to come from both sides for the optimal result. Find a way to put it in a straightforward and logical way, then there’s no excuse for not engaging and finding a way to compromise.

Please don’t write us off by ignoring us or thinking you can’t ask us questions. We’re more “like” you than “not-like” you, we want to talk, we want love and affection like you. We just have a few extra hurdles in the way but in a partnership, you navigate these things together, as a team.

Soverytiredofeverythinggoingon · 04/03/2019 18:55

But what lots of us are saying is that we ARE trying, we DO go above and beyond to try to talk with our partners, we make All the effort... And we still get nowhere. And we want to be able to say that, in here, freely, and get some support

without being told how we are wrong or ableist or discriminating just for saying how we feel, on an anonymous forum thread

DitchyMcAbandonpants · 04/03/2019 19:03

Then that’s fine. But why shut out other ASD people who might be able to offer advice or say “well, I can see why that approach wouldn’t have worked” or “he’s trying to pull a fast one there, it’s not an ASD trait”.

It’s fine to vent that someone with ASD is a dickhead. The difference is that it’s not fine to vent that they’re a dickhead because they have ASD.

I realise that many people are trying to do just that but I can’t help feeling that this distinction’s getting lost.

Soverytiredofeverythinggoingon · 04/03/2019 19:23

But people (most with ASC, not all of them) are coming in here and telling those of us who are posting for support, that we are wrong, ableist, cruel etc etc, just for feeling how we feel and seeking some support!

Can you really not see the reams of posts telling us how( allegedly) wrong we are?

Our feelings are valid, this is OUR support thread - read the title as it's very clear what the thread is all about.

We just want one thread to be able to get support from people in a similar situation.

How would it be if we came onto an ASC support thread, and started telling the posters how wrong they were? That wouldn't be OK would it? So why is it OK for those of you who disagree (with ASC or not), to do it to us, on this thread?

Soverytiredofeverythinggoingon · 04/03/2019 19:29

And yet again, I'm trying so hard to explain. And this thread, to me, is meant to be a respite from having to do that. Sad

Soverytiredofeverythinggoingon · 04/03/2019 19:34

And Ditchy thank you for offering, but you cannot possibly comment on the individual circumstances each of us with a ASC partner face. After all, as we all know, "if you've met one person with Autism, you've met one person with Autism" etc...

So therefore YOU, as a person with Autism, couldn't possibly be able to comment on each of our individual experiences of living with a partner with ASC, could you.

MadAboutWands · 04/03/2019 20:32

Ok I will disagree slightly there.
I do think that having the POV of someone with ASD is very useful. I have some nice conversations with two friends who are diagnosed. It’s helpful.

The difference is that I dint feel threatened by them and they dint feel threatened by me.

The very big issue on those threads (and it’s not the first time it has happened) is that SOME people with ASD react very strongly to what they see as something profoundly unjust. They think posters make generalisation when they are talking about their experience etc...
I am assuming thy do so because they have been at the receiving end of many comments and hurts themselves that they ASSUME posters on these threads are the same. Totally unwilling to understand.
The level of aggressivity from posters on the spectrum on this thread is a good example.
And that attitude is certainly not conducive to having open communication lines.

On the other side, you have a group of people who are hurt, very very hurt by everyday comments and attitudes. That are trying to make things work but are banging their head in the wall. Wether the commonality between those posters is having a partner with AS or it is just being a relationship with similar type of people doesn’t matter. These posters are bond by the hurt and how similar their experience is. And unsurprisingly they aren’t keen on being at the receiving end of aggression. Or being told it’s all their fault. Or to end up trying to explain again what is their point, something they are doing on a regular basis with their own partner. Basically they are frustrated to have to face the same sort of communication issue they have in their relationhsip (again regardless of wethere it is or isn’t linked with ASD).
So they are hurt and frustrated.

No wonder communication is impossible on this thread!

@DitchyMcAbandonpants fwiw THIS is why not mixing NT partners and ASD partners ON THIS THREAD (only) isn’t a good idea.
Everyone gets annoyed and frustrated. Everyone assumes the other think xxx. And everyone is hurt.
A better way is to let each group recoup and have their safe place to vent.
Just like you wouodnt rant at your partner but you wouod do so during a counselling session, posters are ranting away in a safe place (hopefully here) so that they dont it at their partner.
This is what this thread is about.

Unfortunately, it also is becoming a not so safe place. This drives people into hiding (eg there was a thread a few years in a hidden part of MN for that very reason). Or it Leaves them alone to struggle.
Neither solutions are good imo.

Soverytiredofeverythinggoingon · 04/03/2019 20:37

I think this thread should move to the hidden place tbh

GaudaofEda · 04/03/2019 20:39

If you can’t ask questions, if you can’t talk, then how can you have a relationship with that person?

It’s just as important (maybe even more so?) for people with ASD to talk about their relationship, their feelings and find ways to express themselves.

@Soverytiredofeverythinggoingon

You say you are trying your best, doing everything you can, but there is little evidence, in fact you do a lot to ignore nearly every point
Ditchy and Autistic, and anyone who disagree with you are trying to tell. I mean it is kind of visible how the communication from Ditchy is not getting through to you. Why?

MadAboutWands · 04/03/2019 20:45

Btw, to Hedgehog and co.

The way you are talking to posters is actually very similar to what you are telling posters inst acceptable.
The aggressivity. Assuming peole are saying .
It’s tiring and no one shouod have to accept that level of At home or on a forum btw.

If you think someone is wrong, that a website isn’t helpful, that maybe doing things xx way rather than yyy, then say so.
In a polite and constructive way.
You’ll get a much better answer. And you will avoid hurting people in the process. Esp when those peole have been telling all across 3 threads about the level of aggressivity they are subjected to at home, in RL, on a daily basis.

MadAboutWands · 04/03/2019 20:49

Gauda do you have some special power to know what’s going on in soverytired home??

I wouod be very careful about assumptions there. Again.

As for not listening. Read my posts above.
Not many people are listening to each other. It goes both ways. It’s people hurting. ASD or NT.
And that’s why the first step is to avoid people getting even more hurt before attemting to communicate again.

AutisticHedgehog · 04/03/2019 20:49

An example of some comments that MN seemed acceptable (ie undeleted) from thread 1. Possibly the worst being the mother who wishes her son’s girlfriend to run for the hills. I can’t get over that a mother would ever wish such a thing on her son.

That’s why I’m upset. Autistic-bashing is condoned here.

Why would anyone want to fake it, when There is a high chance they could meet someone who is on their level and understands them.
That is the side I fail to comprehend, or is it that some people (mainly men I fear) just think that their thoughts and behaviour trumps all else, so no introspection is needed

It's a little like someone with an IQ of 20 pretending to be a genius until you are in a relationship, then reverting back to normal IQ incapable of understanding why you want to be with a genius

This thread has made me quite sad.
DS, 23, with AS has a serious girlfriend.
He says she accepts him as he is.
I want to tell her to run for the hills.
I appreciate that H is both an arsehole and an aspie.

The weariness and exhaustion that comes from sharing your life with an AS partner seems to be a common theme.
It is relentless
I totally see the extra child comments.
Stroppy teenager in my case

Because if you think they are difficult to live with, just try divorcing one

ALL THE BLOODY TIME This phrase, the caps, the tone, sums up this whole thread and life with an AS partner

Racist, sexist and homophobic, because he can't put himself in any other person's place, which is also upsetting

Understanding he has Aspies helps me digest his behaviour but goodness it is very very hard to live with day in and day out

I’ll leave it to you to see whether you can work out why I’m upset.

Soverytiredofeverythinggoingon · 04/03/2019 20:49

It's very visible that anything any one says to YOU, is being ignored.

You are a bully, going by your posts on this thread.

Soverytiredofeverythinggoingon · 04/03/2019 20:51

That was aimed at Gauda BTW.

AutisticHedgehog · 04/03/2019 20:51

(And some of these comments made by —recent— posters in this thread 3 - not just from 6 months ago)

Soverytiredofeverythinggoingon · 04/03/2019 20:53

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

MadAboutWands · 04/03/2019 21:04

@autistichedgehog going through those threads to find all the little things that are hurtful is a very masochist thing to do tbh.

Once again, you are hurt. That’s very clear.
Could you also accept that posters on this thread are just as hurt by your comments?

AutisticHedgehog · 04/03/2019 21:06

all the little things

Jesus - talk about trivialising ableism!

These comments are the tip of the iceberg. There are many many more.

And I’d love you to quote me back anything that I’ve written that is as remotely hateful as those comments above.

Who’s doing the gaslighting here?

Soverytiredofeverythinggoingon · 04/03/2019 21:22

OK so I used the T word, apologies MNHQ.

MadAboutWands · 04/03/2019 21:32

Gaslighting???
How is recognising you are hurt gaslighting exactly? Yu are picking up the bits fits your narrative and ignoring all the rest.

Communication is a two way system.
Where is your recognition that posters on this thread are hurting too?

And why on earth do you keep going through those threads with a fine comb (which is what I meant by ‘little things’ NOT that they were trivial to you or trivial altogether) when it’s clearly hurting you to read them all???

MadAboutWands · 04/03/2019 21:36

Btw doyou also notice the difficulty in communicating?

I want to say one thing and you understand something completely different.
Do you think it’s a possibility posters have tried to say one thing and you understood it in a different way? Cross wired type of situation

AutisticHedgehog · 04/03/2019 21:39

This reply has been deleted

Message withdrawn at poster's request.

DitchyMcAbandonpants · 04/03/2019 21:46

Hold on - I feel like we’ve all completely lost the plot here.

Having a safe space doesn’t mean you get to attack vulnerable people - and not only that, attacking them directly for their disability - just because you’re fed up of living with another person with a similar disability.

This whole wailey-wailey thing about “I just wanted a safe space where no-one would challenge my prejudices” is a little unhinged, isn’t it? You wouldn’t say something like: “I just need a safe place where I can call women over-emotional and crazy without any women coming in and getting upset”. It just doesn’t make any sense.

I mean, we are all aware that this is an anonymous forum where people are regularly accused of making up fake personas or doing a reverse, or being emotional trolls? If someone’s really struggling with ASD issues, an anonymous forum with unverified pseudo-experts is not the place for support that’s apparently so critical to some posters.

Seriously, if being allowed to be openly discriminatory to disabled people without being challenged, is something you guys need as a respite - then, honestly? I’m done.

Have your respite and welcome to it. But the next time you’re all commiserating with each other about how difficult is it to understand the husband you love - even though you’re all trying so very hard - it might be an idea to remember the other people with autism here that were trying to offer an opposing point of view. Remember how they got chased off, flamed, shut down and told they didn’t belong.

Yes, your feelings might be hurt but we have to live our entire lives with a disability - and, well, you can see from here the general level of support we get from NT’s. If you’re struggling to work out why you can’t talk to your loved ones with ASD, I genuinely think the last few pages of this thread offers a good insight into why ND’s find it hard to trust NT’s and open up about the difficulties they face.

GaudaofEda · 04/03/2019 21:46

YOU, as a person with Autism, couldn't possibly be able to comment on each of our individual experiences
Why not? What is it about this insistence about people with autism not being allowed to speak? Not being able to do this and that?
You expect NT to comment on all circumstances, but not ASC?
How is this not ableist?

And yet again, I'm trying so hard to explain. And this thread, to me, is meant to be a respite from having to do that. sad
It's hard possibly because it doesn't square.

But people (most with ASC, not all of them) are coming in here and telling those of us who are posting for support, that we are wrong, ableist, cruel etc etc, just for feeling how we feel and seeking some support!

But you are not just posting how you feel. You are talking about people with a protected characteristic without sufficient concern about their dignity and false stereotypes it creates.

You are making assumptions, generalisations, pervasively rolling on the discriminatory narrative of cassandra.

Projections, assumptions and stereotypes about your H and people on the spectrum are NOT your feelings, not an experience and not a need. They are prejudices being normalised.

whitehandledkitchenknife · 04/03/2019 21:58

Time to post this very helpful forum

www.different-together.co.uk

Flowers to those trying to find solutions