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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

See all MNHQ comments on this thread

Married to someone with Asperger's? Support group here! (Thread 3)

816 replies

ChangerOfNameAspieThread · 29/12/2018 14:44

This thread is for partners seeking to understand the dynamics of their relationship with someone with ASD. It is a support thread, and a safe space to have a bit of a rant. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
(ASD partners welcome to lurk or pop in, but please don't argue with other posters and tell them they are wrong.)

Some resources from the threads so far:
www.theneurotypical.com/effects-on-differing-nd-levels.html
www.maxineaston.co.uk/cassandra/
I've probably missed some, but will try to gather them later and put in a comment for the next thread!

Previous threads:
1st thread: www.mumsnet.com/Talk/relationships/3281058-Is-anyone-married-to-someone-with-Aspergers
2nd thread: www.mumsnet.com/Talk/relationships/3325419-married-to-someone-with-asperger-s-support-group-here

OP posts:
Seline · 20/01/2019 11:30

It reminds me of white people commenting about an incident happening to a black person and saying it’s not racist when the person who is black is saying it is

Except the white person is the person with privilege here. The person with Aspergers isnt.

Do you think it’s the reality or it’s what you wouod like it to be? Do you think you CAN evaluate whether someone on the spectrum can be hurtful or hard to live with as someone on the spectrum yourself?

Depends. I can be hard to live with at times because of Aspergers, I think most people with Aspergers know they have things that are difficult to manage whether they admit it or not. For example I hate visitors coming to my house, to me it's a massive invasion of my space and akin to an invasion. This is obviously very difficult to live with if you're more social any enjoy entertaining friends.

NTs can also be difficult to live with.

And I do know that sometimes, someone's Aspergers can make it impossible. I dated a man who intellectually was fascinating but he needed me to be his mother. Which was a role I couldn't do.

The thing is though, and I know this is a simplification, but you could technically walk away from this and not have to deal with Aspergers. We don't ever get to do that.

Seline · 20/01/2019 11:30

Akin to a confrontation not invasion twice.

ThisWayDown · 20/01/2019 11:57

OMG So. Much. To. Respond. To.

So in no particular order -

What is not fine is to self-diagnose autism as it is a very hard condition to diagnose

@AutisticHedgehog you are right. But you're missing that many on here do have diagnosed partners, and of those of us that don't, including myself, have had professionals or other people or even the partner themselves think that they have aspergers. Indeed, this is exactly the case for @Seline who you are sympathetic to - she said it was suggested she had Aspergers when she was a pre-teen but she's never been diagnosed. Perhaps you'd like to take her to task for aligning herself as being one of you when she has never been formally diagnosed?

midcenturylegs · 20/01/2019 12:09

I am upset how this conversation is going.
Please remember that this is a support thread for people struggling with a partner diagnosed with ASD and how it is upsetting them. It doesn't matter if that diagnosis is ASD, Aspergers or whatever new scientific name has come up etc. The behaviours are the same.
Anyone who has a gripe with the official scientific name of the diagnosis, or that we all have issues as NTs (we're all aware of our short-comings!) or are being unreasonable please leave. And start up a new thread perhaps?

peekyboo · 20/01/2019 12:32

I know anonymity is a great thing but maybe a secret group on FB would offer more support, without the danger of being judged for offloading?

ThisWayDown · 20/01/2019 12:38

Re this comment from @ChangerOfNameAspieThread

It's also worth letting everyone know that on another thread (not one of these) - possibly the one DownUnder was on - Autistichedgehog admitted to screen-shotting all the posts they reported that were subsequently deleted and keeping them on file months later. I highly advise to completely ignore this person.

I'm guessing you mean me when you say 'DownUnder' Grin Glad you brought that thread up though as it's important to me. It wasn't just one I was on, it was my thread. I started it. And aside from the comments AutisticHedgehog made about this thread, she tried to derail MY thread, was rude to and about me, and came back on at least one occasion specifically to point score and have a pop at me, despite me being badly and permanently physically injured and emotionally low. Fortunately several other posters recognised what was going on and called her out on this. I'm pointing this out, because it was personally upsetting to me and it's wearying to now have AutisticHedgehog quarrelling on this thread, which should be a safe thread.

AH as you do take your comments to your therapist, please let them know that I was personally hurt, upset and depressed that you thought it was appropriate to deliberately try and put down someone who was having a very difficult time.

ThisWayDown · 20/01/2019 12:40

@peekyboo I completely agree. There's things I want to share - positive things in fact! - but I don't feel comfortable doing so now.

peekyboo · 20/01/2019 12:45

@ThisWayDown

I'm in a couple of secret groups on FB and it's comforting and liberating to know you can go there to vent or for advice without being judged.

ThisWayDown · 20/01/2019 12:51

@peekyboo me too, including at least one for my own non-NT issues.

I’m happy to set up and run a secret FB group for people on this thread who are partners of people with ASD/suspected ASD. We don’t need to use our real name, we can set up FB profiles specifically for that group.

stonecoldstone · 20/01/2019 12:59

I stumbled across this thread last night. My friend has been struggling with what we thought was emotional abuse but her counsellor has said she thinks her husband maybe on the spectrum.

Lots of things on this thread are the same, the ignoring, the sulking, no joy or excitement, the controlling, always wrong or at fault.
But since emailing him (previous attempts at talking had him walking out the room or turning the tv up) and telling him how she felt and how unhappy she was he has magically turned into the nicest person in the world. It’s like he has googled ‘what to do and say when your marriage is on the rocks’ and is now acting from a script.

He says this is the real him and that all the bad was taken out in a few seconds of realisation.
She’s now living with a complete stranger but does get the odd glimpse of the ‘old’ him in the disapproving looks mainly.

I was wondering if this behaviour sounds familiar to anyone?

Autistichedgehog · 20/01/2019 13:10

This reply has been deleted

Message withdrawn at poster's request.

Aloethere · 20/01/2019 13:19

Autistichedgeog you and your attitude are the reason I stopped seeking support that I really badly need on these threads. It really upset me that you took that away from me and saddens me to see that you are still here reading and judging women whose shoes you will never walk.

ThisWayDown · 20/01/2019 13:58

@AutisticHedgehog I really don't feel comfortable or appreciate you linking to my thread here, or asking people to check it out to back up your side of events. I consider that bad form and respectfully ask that you ask @MNHQ to withdraw your post. It wasn't me who first brought up my thread here - I was responding to you and Changer discussing it.

In response to what you say though, I'm not being disingenuous. I wasn't sure whether your first comment wasn't to me, as you didn't address anyone by name and seemed to be talking generally about several posters on the thread. Also, it is my husband whose potential autism people were referring to. I said you came back on at least one occasion to have a pop at me. You did. More importantly, you derailed my thread. You made it about you and people with autism, as you are doing here.

Obviously on threads like this you only get one side. But that's the point of this thread - it's a support thread for people with partners who have ASD, not for both people in the couple. No one is saying that people with autism don't deserve support - quite the opposite!!! But THIS thread isn't THAT place.

Peachy2019 · 20/01/2019 13:58

I’ve been lurking on here...reading every post and those on the similar threads. I want to bring the convo back to the original topic and let you know ladies that I’ve taken immense comfort from reading and now knowing that I am not alone in the feelings I have with regards to my relationship with partner with suspected but undiagnosed AS. Everything you have said rings true for me and I have so much to say and contribute, which I will do if this thread is to continue? Love to you all 💕

ThisWayDown · 20/01/2019 14:05

Sorry just want to explain further why I don't feel comfortable AutisticHedgehog that you linked to my thread here. As you mentioned, several posters (not you) made unfair comments about me going to A&E. Some of these were nasty personal attacks. I didn't report any posts on my thread but looking at it now I can see that MNHQ made several deletions, and I know that other people did report posts. I shrugged off most of the hurtful comments, but I'd really rather not having you draw traffic to it for your own agenda.

ChangerOfNameAspieThread · 20/01/2019 14:13

Please people, just ignore Autistichedgehog. We all know what it's like to communicate with someone who doesn't/can't understand what we're saying - not through any fault of their own and I'm sure Autistichedgehog has qualities that are good in other areas of life, or pertinent, kind and helpful things to add to discussions, but not this one. If we keep responding, we're as guilty as them of making the thread go downhill: since when have our arguments, pleas for our feelings to be taken into consideration etc been heard with our partners? Here we are saying "I'm hurting and this is why" and along comes someone saying "I don't think you have any sensible reason to be hurt" and/or "I'm right your wrong. Totally wrong. Here's the proof and I won't stop until you give up." whilst spectacularly missing the point. We all know this discussion.

@ThisWayDown - sorry! I did mean you, yes, and yes that was your thread that AH tried to derail. Sorry for bringing it up here now I see it's been linked. I just wanted people to know that AH screenshots before reporting posts as that's pretty underhand (whatever the reason) in my book. Didn't mean to cause you problems with it!

I am tempted by a secret place, and if everyone goes I'll come, because I don't want to be on my own! However, I've found these threads really useful because they're active and searchable. I want other partners to be able to find an active thread and feel they're not so alone.

I think our next thread needs to have

OP posts:
AutisticHedgehog · 20/01/2019 14:16

@ThisWayDown

I have asked for post with link to be deleted. I did not think I was doing anything inappropriate as you previously wrote this I'm guessing you mean me when you say 'DownUnder' Glad you brought that thread up though as it's important to me"

as I have asked for it to be deleted, please would you do me the reciprocal courtesy and get your post at Sun 20-Jan-19 12:38:06 deleted where you accused me of trying to have a go at you when I have now shown you that I didn't. It is not fair to attribute nasty comments made by other posters to me.

AutisticHedgehog · 20/01/2019 14:25

@ChangerofNameAspieThread

You will see that ThisWayDown has asked me to delete link to her thread and also conceded that I did not seek to derail her thread. You will note MN deleted several posts on that thread but none of them were mine

As I have complied with ThisWayDown's request, I'd be obliged if you'd get your comment also deleted where you wrongly accused me of derailing her thread.

And as for your hysterics of screen-shotting threads. Do you not realised that everytime you post on the internet you have to assume you are posting forever. I have explained why I did it and you really need to calm down.

ThisWayDown · 20/01/2019 14:44

Me again Blush As I said above, there's so much I wanted to comment on, especially as a lot of it was directed at or in reply to me. Some of the comments made have actually helped me clarify my own thoughts about my DH's Aspergers and ASD in general. So my following points come from a place of reflection, not conflict.

"In your case, I understand what you're saying about thinking the traits were non permanent problems caused by something outside the individual and that learning it's a part of them that won't change is hard to accept"

This isn't quite what I meant @Seline although I think that probably may well be the case with some people. I always thought that some of this behaviour was "a part" of my DH's character rather than outside him. But I thought it was wilfully done and that because he chose to do it, he could as easily choose not to do it. Accepting that a lot of it is down to ASD and therefore is part of how he is wired rather than due to his intentions is why I'm staying rather than leaving. It means I can understand DH and see that his intentions a lot of the time aren't, well, twatty. I can change the way I communicate with him. Now, this is in the context that (a) I love and desire my DH, (b) he brings strengths to our relationship and to our parenting that I don't have, and on balance there is a lot that is wonderful and supportive about our relationship and (c) he is willing to try and change certain destructive ways of communicating (after our child's therapist said he had to). There have been times I've wanted to leave - but I've had a 20years+ plus relationship, so not unusual surely - and I won't rule it out in the future if the certain destructive ways of communicating don't change. Everyone has their line, and all of our lines are going to be different.

Now I'll be honest. I think part of the reason I stay with a partner with ASD is because he is very, very high functioning and perhaps only does have strong traits rather than ASD. Same with my dc1- never any speech or other learning delay, communication that is over 90% higher than NT people their age, top sets in a mainstream school, never needed any one-to-one in class ... but they still have ASD and this causes them problems and causes them to exhibit behaviour that causes us as a family problems.

When my dc1 was diagnosed with ASD, they were diagnosed in London by a world-leading centre with expertise on autism. It was them who told me that 'Aspergers' was no longer a diagnosis in the diagnostic criteria because they used DCM-5. So apologies for technically getting that wrong, but I think you'll be hard pushed to find any child diagnosed in the last three years with Aspergers in the UK - as far as I can tell it's all ASD.

What's interesting for me with the terms is that traditionally Aspergers was essentially viewed as a very high-functioning subset of autism. Which is why I asked AutisticHedgehog for clarification on her statistic that under 16 per cent "of Aspies" didn't have a full-time job. She's come back and described those people as having autism rather than aspergers, which makes sense and is what I was expecting. My DH and the many people with Aspergers we know ALL have full-time jobs - in fact most of them are high-earning. This is the level of 'functioning' I'm talking about, not a partner who couldn't cope with a full-time job. I''m not in a relationship with someone with that level of need and disability.

Seline · 20/01/2019 14:54

ThisWay your comment about functioning and work is a bit convoluted. Not being able to work full time isn't the same as not being high functioning. I'm high functioning, no speech delay and have an IQ in the 130s. I still can't work full time.

I understand now what you mean about your partners traits so thanks for clarifying.

AutisticHedgehog · 20/01/2019 15:31

I also have a very high IQ and am very highly educated. I cannot work FT.

High Functioning means an IQ of over 70. It does not mean a genius. Having Asperger's/HFA does not automatically mean you are a genius

here is a link to the AAA test (developed by Simon Baron-Cohen) which is one of the main diagnostic tools for Asperger's in adults. It used both the AQ and EQ test and you need to pass the threshold in ALL sections. Crucially, it has to have had a "clinically significant impact" throughout your life. This often means the person cannot work FT due to anxiety/sensory/social issues. There will be of course some Aspies who can hold FT jobs (in places like silicon valley there are a large number, but they are possibly working in organisations where there are many Aspies, so it will be an easier environment to work in)

None of the diagnosed Aspies I know work FT.

ChangerOfNameAspieThread · 20/01/2019 16:03

Hi @stonecoldstone it's not really possible to say he does or doesn't have it to be honest. That's kind of like diagnosing and that's not really what we do. Perhaps send her on over here to have a read and see for herself? I'm not trying to be a pain, it's just genuinely difficult to say (and I wouldn't want to either way). Basically, from the reactions on these threads so far, she'll know from reading if she feels like she fits with our experiences.

There are also some books listed in the first post of this thread (and further in too) that she might find useful.

In a way we're not so much focussed on the Aspergers, but on how we feel in our relationships. Both the books and these threads, I think, should give her an indication if she feels like us.

OP posts:
ChangerOfNameAspieThread · 20/01/2019 16:06

Hi @Peachy2019. You've joined us on a bumpy day. ;) But we're around on and off if you fancy posting.

OP posts:
ThisWayDown · 20/01/2019 16:47

Lots of x-posts with my last post, which I was quickly trying to finish as I was about to arrive somewhere (was typing in transit).

I appreciate that not being able to work full time is not the same as high functioning - I was using high functioning as a term generically, not specific to the diagnostic criteria. I should have used the term impairment.

I am not with someone who is 'impaired' to the extent they cannot work full-time.

I certainly didn't use the word 'genius' Grin and wouldn't about my DH. He is, and he will happily admit this himself, not a genius.

Apart from my DH, I was referring to diagnosed 'Aspies' by the way. I know many. All work full-time.

@Seline I would think that your ADHD is probably as much if not more to do with whether you're able to work full-time or not than your (undiagnosed) ASD, and of course there are many crossover traits. I say this as someone with ADHD (diagnosed by the NHS). Important to point this out because this is a thread about Aspergers.

@ChangerofNameAspieThread no problem and I think you're right to have made people aware of the screenshotting.

I find it somewhat disturbing that you have taken in screenshots of this thread to your therapy sessions @AutisticHedgehog and sad. I'm bewildered that this thread - and I wasn't on the first one that you screenshot - is of such importance that you wanted to spend your therapy time discussing it. Unless we tag you, we are not talking about YOU, we're talking about our partners, who are very different to you and in most cases are probably very different to each other. But there are some similar traits. And OUR frustration, which is ours, and not yours, is ours to discuss as and when we wish to. .

Thank you however for asking for your comment to be withdrawn, I really appreciate it Flowers I've considered your request to have my comment withdrawn as well and I don't agree with you at all that I was mistaken or that Changer was. You did temporarily derail my thread. You did 'have a pop' at me at your last comment on my thread. I stand by those comments.

peekyboo · 20/01/2019 16:52

I can't find the list of books mentioned earlier. Sorry if I'm being dim. I was going to suggest one but don't want to repeat if it's on a proper list already.