I'm giving birth to a very poorly 29 weeker tomorrow, any advice?

[Alb1]

I won't go into too much detail as it can be a little quiet on here and I don't want to pour my heart out to no replies

Il be exactly 29 weeks tomorrow, the baby is very poorly and it's been made clear her chances arnt great if they deliver her. But we also don't have any options to help her if we leave her in utero, so she's clearly going to get more sick and die anyway. The doctors arnt giving an opinion of what they think is best so it's all been left down to us, although they said if I was past 32 weeks they'd deliver. So we feel we need to deliver as surly even a tiny tiny chance is better than no chance. Our last baby was stillborn to the same condition (we were told these things don't happen twice, we had absolutely no idea, and nither did the doctors, that it could reoccur) but we didn't find out until hours before she died last time so we couldn't do anything, this time we've been trying for over 4 weeks and have exhausted all options other than delivery.

Don't no what advice I'm looking for, has anyone else had a baby against the odds and how did it go? I think with the doctors not being able to offer an opinion I want to feel like I'm not making a selfish or wrong decision somehow

please get proper professional help

What do you mean randomer?

Another one with no medical advice but offering a hand to hold. Will be thinking of you 💐

Thinking of you tomorrow op xxxx

Randomer Fairly certain the OP is getting professional help. OP I hope things go well tomorrow and you get a good long cuddle with your daughter.

Good luck tomorrow. I hope your baby is a fighter.
You are an amazing mummy already making such decisions with strength. Whatever the outcome we are all here to hear your story should you feel the need to share it. Please don't feel you have to though.

Holding you both in the light

cherish her warmth and cuddles and make as many memories as you can.

i truly hope they can find something to make her life long and healthy.

a chance is still a chance xx

Sending you all of my best wishes. My DD was very poorly and prem when born and I wouldn't wish that on anyone. What ever happens I will be thinking of you. (She is well now)

Thinking of you and your beautiful baby today and tomorrow

thinking of you alb, fwiw i'd make the same decision in the same circumstances and the doctors would have told you if they felt it was the wrong thing to do. Wishing you, your DH and the baby luck.

Best wishes for tomorrow OP
I found this (you may have seen already)

I have nothing to say except Iv got all my fingers crossed for you both and if it's not insulting to you then you will all be in my prayers.

I have huge admiration for you. Whatever happens (both) your child/ren is loved and will always be cherished.

Hope that it works out for you. X

No advice but hope all goes well for you all tomorrow

Will be thinking about you and your DH tomorrow, and hope that all goes well for you.

I am with Neonrainbow on all of the points she has made. I have nursed prem babies of 22 weeks upwards, and it is amazing what neonatologists can do. Big hugs and loads of flowers to you.

Peace and love to you and your family

sending very best wishes for tomorrow xx

Thank you so much for all being so lovely. Lovely to hear of babies born early doing well now too.

Just to be clear (because I'm not sure what randomer means) I'm at a specialist hospital with a great team, over the past 4 and a half weeks fetal medicine, fetal cardiology, and now paediatric cardiology and the neonatal team have all been speaking to each other, we have tried every medication and procedure available in the womb and they haven't worked. We are 100% out of options, but I have followed the professional advice at every step and they have been great, they arnt advising against it now, but they just can't make this choice for me. I haven't made this decision lightly. SVT is a very managable and fairly common condition, they just can't control it in my baby in the womb. If they can get her through the first few weeks and prematurity, shel probably outgrow the SVT before she's 1, and even if not SVT won't hugely effect her life. It's suppose to be a simple condition we are just super unlucky

Alb Bliss is a fantastic community to make contact with, and are extremely supportive to parents and families.

Alb, so pleased to hear you are at a specialist centre. Best wishes

I assume randomer means professional help for the trauma of what you're going though. Phrased a bit harshly though.

Wow definitely sounds like better off outside, what a bastard having more than one baby with SVT. FWIW there was a woman in hospital with me on unit with a baby with hydrops, once fluid was gone baby did brilliantly. I wish you all the best, keep eating and drinking, get plenty of support at home and people bringing you things on the ward, absolutely know what you mean about wanting to hold a warm baby and know that she's seen you as well.