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Premature birth

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I'm giving birth to a very poorly 29 weeker tomorrow, any advice?

556 replies

Alb1 · 01/04/2017 19:47

I won't go into too much detail as it can be a little quiet on here and I don't want to pour my heart out to no replies Blush

Il be exactly 29 weeks tomorrow, the baby is very poorly and it's been made clear her chances arnt great if they deliver her. But we also don't have any options to help her if we leave her in utero, so she's clearly going to get more sick and die anyway. The doctors arnt giving an opinion of what they think is best so it's all been left down to us, although they said if I was past 32 weeks they'd deliver. So we feel we need to deliver as surly even a tiny tiny chance is better than no chance. Our last baby was stillborn to the same condition (we were told these things don't happen twice, we had absolutely no idea, and nither did the doctors, that it could reoccur) but we didn't find out until hours before she died last time so we couldn't do anything, this time we've been trying for over 4 weeks and have exhausted all options other than delivery.

Don't no what advice I'm looking for, has anyone else had a baby against the odds and how did it go? I think with the doctors not being able to offer an opinion I want to feel like I'm not making a selfish or wrong decision somehow Confused

OP posts:
blueskyinmarch · 09/04/2017 18:14

I am so pleased to hear she is doing well. Hopefully she will go from strength to strength.

ithakabythesea · 09/04/2017 18:25

What a great update, I hope your daughter continues to make good progress.

DixieNormas · 09/04/2017 18:25

This reply has been deleted

Message withdrawn at poster's request.

LuchiMangsho · 09/04/2017 18:27

That is an EXCELLENT start. So from a long term perspective the less time she has spent on the ventilator the better the overall outcome. Is she on CPAP or high flow?
Also that is she is tolerating feeds is absolutely brilliant. If all goes well by Day 10 or so she might well be on full feeds and no TPN. The transfusion sounds dramatic but it isn't. Mine has had two, one on the eve of departure as a 'top up' before going home.
So it sounds v v positive for now. Fingers crossed it continues to be so.
And again, feel free to ask us stuff on anything from expressing to managing stuff in the NICU.

Ollycat · 09/04/2017 18:28

Its wonderful to hear she is doing so well Flowers

gfw01 · 09/04/2017 18:29

That is so great to hear!!! I've been checking every day and will continue to check! X

marmiteloversunite · 09/04/2017 18:32

Fantastic news. So pleased for you. Hope she continues to gain in strength and weight.

MrsGB2225 · 09/04/2017 18:32

That's great to hear she's doing so well. Xxx

Babieseverywhere · 09/04/2017 18:40

Lovely to hear about your new daughters progress :)

Pansiesandredrosesandmarigolds · 09/04/2017 18:41

Wow. SmileStar

grainmum · 09/04/2017 18:42

Fantastic news alb so happy for you xx

Glossolalia · 09/04/2017 18:44

Amazing, OP. What a lovely update.

I'm so glad you have found the time to update us (my DD was in NICU and I know how hard it is to find the head space)

I hope you are being kind to yourself, too.

OpalIridescence · 09/04/2017 18:46

So very pleased for all of you. Thank you for update!

Phalarope · 09/04/2017 18:56

What a lovely update - hope that you are being well looked after, too.

Moussemoose · 09/04/2017 19:00

Well done all of you and God bless.

yikesanotherbooboo · 09/04/2017 19:01

What a positive start , look after yourself.. congrats ,

UnbornMortificado · 09/04/2017 19:04

Lovely update, pleased to hear she's doing well Flowers

Neonatal is hard going, but massively worth it in the end.

Littleelffriend · 09/04/2017 19:10

I've been thinking about you what a lovely update x

Lissette · 09/04/2017 19:12

So delighted alb!

ohfourfoxache · 09/04/2017 19:16

Oh that's wonderful that she's doing so well! Thanks

Nix32 · 09/04/2017 19:20

That's great news. I'm really pleased for all of you xx

DragonNoodleCake · 09/04/2017 19:33

Glad she's doing well! X

Alb1 · 09/04/2017 19:40

Thanks luchi she's on high flow, 4 litres, they said she probably doesn't need as much but they are going easy on her because of the heart thing, she's been so unpredictable in the womb that they don't quite trust her yet. She's lovely tho, she's very alert and very chilled out.

I'm terrible with expressing, I've only been doing it 4 times a day as I just can't seem to find the time, crazy how busy days in nicu can be, hoping il get into some better routines soon

OP posts:
UnbornMortificado · 09/04/2017 19:43

Alb I don't know if it's the normal or medically proven but my milk tended to dry up when I wasn't able to have much skin-to-skin.

There is a medication that can help with milk flow called donperidone (sp)

emmeline7725 · 09/04/2017 19:43

So very happy for you and your family. Hope your daughter goes from srength8to strength.