Immune/ NK cells - Pred threat 27

[LaurenAB94]

@Bambii @Daffodil21 @Eeviee @Everhopeful35 @farfromperfect82 @Eeviee @Everhopeful35 @Hazlet2 @farfromperfect82 @HoldingOn2Hope @Jellystar23 @KtAgs @Lalaifa @LookingforAnswers86 @Marabouchoc @LRL12 @MrsMargot @Naticle @NessyT91 @NessyT91 @NICK7nick7 @rainwillmaketheflowersgrow @Rebecca9876 @Sophfr17 @Tinpo @VenusStarr @Wheresmyrainbow @Whyisthistakingsolong

@Tinpo I feel exactly the same as you about the '12 week safe point'. This is the first time I've ever got to that point, but it certainly doesn't feel safe.

I also have an association thing with Harry and Meghan, absolutely not the same thing at all as yours, that sounds awful. We got married on the same day they did, I always thought we would have our first child pretty much straight away like they did, and now they're on number two and we're still hoping number 1 will stick! I literally can't read or see anything about them without being reminded, especially now she's been open about her mc

Aww thankyou @LaurenAB94 I hope you are keeping well, you girls give me hope that it can happen!

@Tinpo I know exactly what you mean and the less said about Megan and Harry the better (man that girl is smug! ). I saw a pregnancy announcement on Instagram the other day from some random that I follow and she was only 7 weeks gone....it actually annoyed me for the rest of the day lol so irrational but I thought why does everyone else get this happy joyous time knowing everything will be fine and it's just a nightmare for us?! I dont tell anyone now apart from my mum.

I need to keep reminding myself that I've got the best doctor in the UK behind me....so many success stories on here, why shouldn't it be me too?! xxx

Hi Ladies, I hope it’s OK for me to post on here for the first time. I saw
Dr S for the first time a few weeks ago and was told I could contact the nurses for my blood test results in advance of my results appointment. I emailed them on Monday morning and haven’t yet had a reply. Is this usual? Hopefully if it is then it’s because they’re prioritising urgent emails, as I’m concerned now that I might need to contact them urgently once pregnant and could still be waiting for a reply days later!

Hi @Minta85, I've always found the nurses replied really quickly, within an hour or two but maybe I've just caught them on a good day? Don't be afraid to call, you're paying for a service and it would put your mind at rest too? Xx

Hi @Luckyducky2 thanks for your reply. I might try phoning the nurses’ number on the website if I don’t hear anything tomorrow morning. The [email protected] address sent an automated message saying to allow 48 hours for a reply, so I waited until this afternoon to chase. As you say, I’m paying for a service after all.

@Minta85 hopefully you'll get an email in the morning but definitely give them a wee call to chase it up! Good luck xx

I always find this email [email protected]
Helpful if not? You could send it to Lorna aswel as the nurses and see who replies first 😊 xx

Thanks @LaurenAB94, the nurses emailed me back tonight :)

I need to share some ‘ugly’ feelings. It seems like everyone ( in real life ) and celebs have one miscarriage and then the next pregnancy works . Why have had to go through this FIVE times ?! I know there’s no answers but I just feel so resentful today . Recurrent miscarriage makes me feel so lonely 😭 x

@Finleysmom84 you are definitely not alone, I've had 6 miscarriages and I actually burst out laughing in the hospital (before dissolving into tears) when I was told I was having an ectopic after ivf.....I thought this is just getting utterly ridiculous now, how much bad luck can one person have?! I've had every feeling possible the last few years and now I'm heading back to fear with an embryo transfer looming....not sure i can take another loss? But if I don't try I'll never know. But yes it is immensely irritating that every other person seems to have one miscarriage then boom its all fine aah! So freaking annoying and I know how lonely it feels. Hope you're doing okay xx

Hi everyone hope you are all well,
I have my results app with Dr S next week and I'm hoping to finally have some possible answers.

However today the NHS called me for my first RMC app with them after being referred in October.
Did anyone else go to both appointments? I feel a bit bad for going to NHS when I'm also seeing someone privately. The good thing is hopefully I should have the results from my erpc from September.

What did you all do? X

@Wheresmyrainbow I went to my rmc before I saw dr S , I would still go as you will probably be able to get some medications from them that Dr S prescribes. I didn't have a good experience with my doctor but that's my experience and every doctor is different. I wish you the best for both appointments.

Wheresmyrainbow I would go but I also had a bad experience with the consultant I had who told me to keep trying and then give up. Her exact words. I think it is very much the luck of the draw but just keep in mind that their sole job is not recurrent miscarriage so they may not be as interested in the field as other specialists...

@Wheresmyrainbow I'm not with dr S but I would still go to the RMC. You shouldn't feel bad about it at all. The fact is you shouldn't have to go private to have proper investigations and answers for your MCs, but unfortunately that's usually the only way to get answers

Hi @Wheresmyrainbow I also didn't have a good experience at my RMC, the consultant shrugged her shoulders at me and said I should think about donor eggs. I had waited 6 months for the appointment and was absolutely raging! I would go but don't pin all your hopes on getting any answers from them as it seems to be a postcode lottery on whether you will get someone who is decent and actually can and will help! Good luck xx

Thanks everyone! I just hope this is the start of finally getting some answers x

@Luckyducky2 thank you 🥰

Hi all. I’m feeling really down these last few days. I just realised I have zero expectation of a baby at the end of this pregnancy. And because of having to shield I feel like I’m right back at the start of 2020 in lockdown - my 2020 pregnancy had almost exactly matching dates to this one so it just feels like being right back there. The difference this time is that I will at least have proper care, a treatment plan and appointments every two weeks, whereas last year I had no treatment beyond aspirin and had to go to scans alone, and was alone at 20 weeks when I found out my boy had died. I’m so traumatised by it all, but my family don’t seem to recognise this and keep talking about the baby, as if it’s a sure thing. And as if this new pregnancy magically erases the pain of losing the last three.
Sorry for the rant. I just feel like it’s going to be a long hard year. I haven’t even had my six week scan yet and I already feel like time is standing still!

@Tinpo I’m sorry things are so difficult for you right now. My losses have all been early so I can’t even begin to comprehend how devastating a second trimester loss would be. I do identify with how you feel though, we’re back on the TTC train again and honestly I’m terrified to get a BFP despite wanting a baby so badly! Everything crossed for your 6 week scan and at least you now have a great doctor and treatment plan, and all of us whenever you need to vent ❤️

@Tinpo I understand where your coming from. I've got my 10week scan on 24/2 and last year on that date I had a 6week scan and the baby had passed away so it feels scary to be going to a scan on that day again, I know things are different now I'm under Dr S but it still doesn't stop the worrying and my brain playing tricks on me.
You've got lots of medications this time that should hopefully help your little one. I know it's hard hopefully after 20weeks you may be a little more reassured.
Just remember you can do this!

Thank you both @LaurenAB94 and @NessyT91 - even just writing it all down makes me feel better. I read some things this week about people with the same condition as me (CHI) who’s treatment was going well until they caught covid and then it flared up and they lost the babies, so I’ve gone into a total paranoid panic mode. But all I can do is take the medication and do my very best not to catch covid.

I hope your 10 week scan goes well!

@Tinpo thank you. I know Covid doesn't help but hopefully things will start to move forward as people get vaccinated. Your shielding so low risk for catching it too. Have you got something else you can focus on so your not overthinking things as much? Maybe a project in the house? Something you've always wanted to make?
I'll keep my Fingers crossed for you, we have the best doctor 😊 x

Ladies can I just check about taking a pregnancy test on Mr S’s plan? I’m 9 DPO today and tested this morning with BFN. Should I stop taking the cyclogest or should I take it again tonight and test tomorrow morning? I don’t think this is my month anyway but I don’t want to mess things up by stopping the cyclogest too soon...

@NessyT91 I would keep taking it and test tomorrow. I had a negative at 9DPO but it turned positive the next day. It’s still so early.

@LaurenAB94 yes I’ll definitely have to find myself some projects to distract me. Shielding for me means giving up work so it really is a strange time!

@NessyT91 keep taking it till 10DPO I had a negative too at 9DPO but it was positive at 10DPO but it is faint. Good luck x