Immune/ NK cells - Pred threat 27

[LaurenAB94]

@Bambii @Daffodil21 @Eeviee @Everhopeful35 @farfromperfect82 @Eeviee @Everhopeful35 @Hazlet2 @farfromperfect82 @HoldingOn2Hope @Jellystar23 @KtAgs @Lalaifa @LookingforAnswers86 @Marabouchoc @LRL12 @MrsMargot @Naticle @NessyT91 @NessyT91 @NICK7nick7 @rainwillmaketheflowersgrow @Rebecca9876 @Sophfr17 @Tinpo @VenusStarr @Wheresmyrainbow @Whyisthistakingsolong

@Unicorn9 I’m so sorry 😞

@Unicorn9 I’m so sorry, my heart completely sank reading that. It’s so unfair.

I quote ‘the research says that it’s proven to help reduce natural killer cells which I have a high level of in pregnancy’ if people question me about my treatment plan. I had my midwife checking in appointment this week and two of them were making sarcastic comments to me about having Intralipids, hydroxy and steroids which really annoyed me as it was very unprofessional. The NHS unfortunately treatment me awfully throughout my miscarriages and just told me to have IVF even though there were no chromosomal issues with two of my babies if had tested and we got pregnant easily, so it annoys me that now they are trying to give me more bad advice!

So so sorry @Unicorn9. My heart goes out to you.
Did you find out at the clinic? I hope they can help you get answers xx

I am using a clinic in Greece for ivf. We can’t afford dr S. I went for a private scan on my own and there was no HB. I keep miscarrying around that time. Baby was fine before with gd heartbeat.... I am 42 now. Ivf failed once with a genetically normal embryo so why it would work with either of the next two I doubt.

Hi all. I hope everyone is doing okay xx

I’m currently 6 dpo, on prednisolone and cyclogest, so 4 more days to go until I can test. I haven’t shared this with any of my friends and family because I don’t want to explain myself and justify my decisions so I thought I’d post on here to see if anyone else is currently in the same boat.
I’m having some symptoms like bloating but that could be the meds of course. I’m terrified of getting a BFN and terrified of a BFP also. When I think of all the scans and potentially getting bad news, I get all panicky :( sorry for rambling on, just looking for others I can relate to xxx

@FruitandNut1 I'm sure everyone here can relate and understands, so don't feel like you're rambling on at all!

I did tell a couple of people I was on pred and cyclogest, and all of them seem to understand that I'm willing to try anything to prevent yet another loss. You might be pleasantly surprised if you do share, but equally if you want to keep it to yourself that's ok too. Fingers crossed for a bfp x

@FruitandNut1 I totally understand the fear of either outcome. I was lying in bed the other night just thinking ‘I can’t do this, I just can’t’ Sometimes DP and I ask each other why on earth we are potentially putting ourselves through it again. But I just keep reminding myself that I’ve never had a pregnancy with the support and medication that Dr S gives, so it’s worth one last shot. We can be one of the many success stories.

Im on CD21 and opks still completely blank. No hint of anything at all. It’s so disheartening - and I’m becoming so obsessed with it that I’m dreading what I’ll be like when I’m waiting to do a pregnancy test or waiting for a scan.

@Daffodil21 thank you for your kind words. I miscarried 3 times in 4 months in 2020 and when I shared this with friends & some family, some of their responses, although they meant well, really hurt me. I think once I get my BFP and am (fingers crossed) a little further along, I’d be happy to share. I’m glad that those around you were understanding xxx

@Tinpo it’s such a scary feeling isn’t it. I was in the same boat as you just a few weeks ago. I’d been testing for ovulation for two weeks since Xmas day only for AF to arrive 1.5 weeks early (which has never happened). Was so disappointed about having to wait yet again but I ovulated fairly quickly after that period.
This is also our first time doing this properly with the meds under Dr. S. After the consultation with him, I thought I was ovulating( but never tested), started the meds and then stopped because I was convinced I wasn’t ovulating after all. Of course I miscarried as I wasn’t on the meds. I was kicking myself sooo much. That meant the next month was out but I got pregnant by accident and again mc really early. Had to wait out another month and here I am, finally doing this properly. I think it’s totally worth another shot as like you, we’ve never had this kind of support right from the beginning.

Have you been testing for ovulation since the day your period stopped? Really hope you get a positive OPK soon- I get the frustration, it’s honestly never ending. Here if you need to chat. I’m currently symptom spotting like crazy!! Xxx

Hello lovely ones. This is a superovulation post. I ended up having my follicle scan with Mr S on CD8 (long story) and he found 2 follicles measuring 14mm. He’s told me to trigger on CD11. Thing is I’m worried if they grow 1mm a say that they’ll only be 17mm by then. Is that too small?! I also usually get my lh surge CD14, so CD11 seems v v early. Any and all thoughts welcome! I’m not sure if I’m just over worrying and should go with th flow. I wish they were open on a Saturday to ask :/ xxx

Sounds like a tough few months @FruitandNut1 - glad you were able to give it a proper go this month and everything crossed it works out for you! Yeah I’ve been testing since my period ended and nothing at all. I just hate not knowing what’s going on in my body! And also scared that I somehow ovulated and missed it so will miss out on taking the right meds, but that’s unlikely as I do get horrendous ovulation pains so it’s hard to miss!

@Tinpo hi, just wanted to check in and see how you’re getting on. Any luck with the ovulation tests?
I’m 9-11dpo, tested yesterday and it was negative! So surprised as we’ve always managed to conceive on the first go. I’ve had to stop the meds from this morning and am already feeling the withdrawal symptoms. This waiting game is horrible isn’t it xxx

@FruitandNut1 I’m sorry to hear it didn’t work out this month. Fingers crossed for you that next cycle is your one!

I’m a bit stressed. Last Monday we had our results appointment on zoom. We’re based in Ireland so couldn’t travel with covid restrictions. Anyway the prescription for hydroxy and cyclogest was posted out by the clinic last Wednesday and we still haven’t received it. I called the clinic and they said there’s not much they can do but to wait a few more days and then they’ll post out another one. They won’t email it to my pharmacy for GDPR reasons and they won’t post it to a friends address in the UK either.

I’m just a bit annoyed by the whole thing. We haven’t tried for three months now because of the testing and everything. I was so keen to get started TTC again but I’m worried now that I won’t have started the hydroxy in time and it will be a big disaster again. Uuughhh why does every part of this journey have to be so bloody difficult!

I’m on CD7 now, will probably ovulate on CD17. Does anyone know when is too late in your cycle to start on the hydroxy?

Hey @FruitandNut1 yes I did finally get a positive ovulation test on Sunday! But it was a bit weird - there was no build up, the lines just went from nothing to dark on the cheapies. I got the smilie face on clear blue on Sunday but it was gone on Monday which is weird because it’s always been there for two days for me. But we’ve done what we needed to and now in the horrible waiting game. I’m so sorry yours hasn’t worked out this month. I really want it to happen first time too, but I’m trying to not get hopes up. Which meds do you have to wean off? I only have to add cyclogest from ovulation, everything else I either take all the time or add from bfp so luckily I won’t have to wean off anything. Maybe treat yourself to a drink or a real coffee, or something else you can’t do when pregnant to soften the blow? I know I’ll be having a drink next weekend if I don’t get a positive!

That’s so frustrating @NessyT91 I’m not sure about when you can start on hydroxy - I started on day 1 but only because that was the day of my appointment. That was at my initial appointment he gave them to me straight away before result so they would build up in my system. Ps. I’m from Ireland too, but live in the U.K. there seem to be a few Irish on this thread!

@NessyT91thank you. Oh that is so annoying, I TOTALLY get your frustration. I’m sorry I can’t help you with your question but I can empathise with every part of this journey being dragged out to the max. Lockdown really isn’t helping matters either

@Tinpo ahh that’s good news, even if you only got the smiley face for one day! Crossing everything for you. The TWW is absolutely horrible, we can’t even do anything like go out etc to take our mind off things. I’m really struggling this time.
I was on prednisolone and cyclogest, I had a massive headache all day today and I’m very bloated but tbh I expected it to be worse. The clinic want me to test again tomorrow as I normally get positives quite late in my cycle so the torture isn’t over for me yet I’ve been treating myself to my favourite foods all week, I just feel very defeated this week, I’m really fed up with this lockdown and everyone I know is having such a hard time. I will be more positive again but I feel like until I get AF I won’t feel like I’m out. Hope you are managing to keep busy xxx

So just a little update from me - just had my dating scan and all is well, measuring 13 weeks today. now going to start weaning off the pred, which I am a little nervous about but also looking forward to coming off it!

Hope everyone is doing ok x

@Daffodil21 congratulations that's exciting to see baby doing so well at 13 weeks. I hope the rest of your pregnancy goes well xx

@Daffodil21 that’s great news! I’m back with Dr S on Monday for my scan (11 weeks as ovulated late so behind a week - should’ve been 12 weeks scan) and intralipids if all OK with the scan. Then I’m back the following Wednesday for the scan with the Professor which I’m nervous about in case there’s anything wrong but also looking forward to it as it’s meant to be very detailed. Does anyone know if you can get a picture from Dr S of the baby, or do they only do load the scans onto the dongle they give you? I wanted a photo for when we hopefully tell my daughter after the professor scan if all Ok. Xx

I don’t remember the option of a printed photo but there’s a boots downstairs. It’s not clear from the website if they print photos but you could pop in to check.

@NICK7nick7 I wasn’t given a option for printed pictures just on the USB but sure you can print one from it x

Do you get a usb with photos on at every scan ?

@LaurenAB94 yes 6,8,10 & 16 wk go on one and you get another one if you see the professor for your 12 wk as he takes a lot of pictures. X

@LRL12 thanks 😊

Mini rant from me: someone I know announced a pregnancy on social media and talked about how she won’t be having any scans or medical intervention. She just knows and trusts that her body is making the perfect baby for her. And she didn’t even do a pregnancy test, just waited until she knew for sure she was. Made me feel sad that I’ll never have that positivity or trust in my body, and also annoyed that she was almost shaming anyone who needs medical help. Urgh, anyway. Rant over.

@FruitandNut1 how are you getting on? Did you test again? I’m going to start testing on Wednesday but I don’t feel positive about it. I’m not stressing or symptom spotting at least so that’s something.

Hope everyone is doing ok ❤️

@Tinpo re your friend, hmm she’s sounding smug and that is super annoying...but no scans?!

Thanks, I’m doing okay now. I had a shitty week! I got my period yesterday, 4 days early and so so painful. I don’t know if I mentioned this to you but we’ve always conceived on our first try (6 times planned, once unplanned) and this is the first time it didn’t work. I did some research and found that some super fertile women couldn’t conceive straight away after being on prednisolone and cyclogest...I don’t know what to think. I was told to take cyclogest from when I get the static smiley but is that too soon? Should I have waited until after ovulation? This is so stressful. Coming off the meds was horrible, I had withdrawal symptoms for 3 days. Today was better, I feel a little motivated again and hopeful for the next cycle.

I’m glad you’re not stressing it symptom spotting, I was a nightmare! Wishing you all the luck in the world for Wednesday xxx

@Tinpo that post would have had me raging (and does a little now, even though I don't know your friend!)

@FruitandNut1 sorry you got your period. I took cyclogest and pred from 2dpo and did conceive that cycle, so it may not be due to the meds, it may just be one of those things (sorry, cringing at my own cliche here). It was the cycle folllowing a mc though, so maybe that's why I was more fertile. Hopefully you'll have more luck next month